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MS Study Alert: Share Your Thoughts About MS Research

May 24, 2017

Summary: The MS Minority Research Engagement Partnership Network is seeking to understand how people with MS from different backgrounds and races think about medical research. Participants 21 and older who have MS are encouraged to respond to this 15-minute survey.
 
Rationale: Multiple sclerosis (MS) affects people of many races and ethnicities and research indicates that the disease may have a greater impact on minority populations than previously believed. For example, studies show that MS can be aggressive among African Americans in particular. However, minority populations tend to be underrepresented in scientific research, making it difficult to uncover key insights into how the disease works and how well treatments work for people in different groups.
 
The MS Minority Research Engagement Partnership Network is a comprehensive program designed to bring together diverse stakeholder groups to identify and characterize current barriers to minority participation in MS research and develop community-endorsed, culturally appropriate strategies and solutions to overcome these barriers. The Network is spearheaded by the Accelerated Cure Project, and is funded by the nonprofit Patient-Centered Outcomes Research Institute.
 
Eligibility and Details: Participants are at least 21 years of age and have MS. Investigators want to understand how people with MS from different backgrounds and races think about participating in medical research. Have you ever thought about participating in a research study? What do you think is important to study? What would help you be a part of a study? This anonymous survey should take around 15 minutes to complete.
 
Contact: To take the survey, visit: http://tinyurl.com/MSSurvey-NMSS. For more information about this project, visit www.acceleratedcure.org/ms-minority-research-network. If you have any questions, please email: msminorityresearch@acceleratedcure.org
 
Conteste la Encuesta: http://tinyurl.com/MSSurvey-NMSS-ES. Para más información sobre este proyecto haga clic aquí. Si tiene preguntas, envíenos un correo electrónico a: msminorityresearch@acceleratedcure.org.
 
Learn about more opportunities to advance MS research, including responding to surveys and signing up with the NARCOMS patient registry.

About Multiple Sclerosis

Multiple sclerosis is an unpredictable, often disabling disease of the central nervous system that disrupts the flow of information within the brain, and between the brain and body. Symptoms range from numbness and tingling to blindness and paralysis. The progress, severity and specific symptoms of MS in any one person cannot yet be predicted, but advances in research and treatment are leading to better understanding and moving us closer to a world free of MS. Most people with MS are diagnosed between the ages of 20 and 50, with at least two to three times more women than men being diagnosed with the disease. MS affects more than 2.3 million people worldwide.

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