Researchers Recruiting African Americans with MS and Family Members Across the U.S. for Genetics Stu - National Multiple Sclerosis Society

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Researchers Recruiting African Americans with MS and Family Members Across the U.S. for Genetics Studies – Key to finding cause of MS and better treatments

February 3, 2014

Rationale: Genes are known to play a role in determining who is susceptible to developing multiple sclerosis, and may also influence the course of the disease. People living with MS can make a difference in studies searching for these genes by donating their DNA from blood samples. Identifying the exact location of MS genes could help determine who is at risk for developing the disease and may provide clues to its cause, prevention, and better treatment. Focusing on ethnic groups with lower susceptibility to MS (such as African-Americans) and higher susceptibility (such as individuals of Northern European descent), and searching for what is common and what is different in their genes may help pinpoint regions that contain MS genes. Large numbers of participants are needed to accelerate this research.

Details: It is not necessary to travel to San Francisco to participate in this study. Once an individual has gone through the initial phone screening and has agreed to participate, they are sent a kit via express mail. The kit includes a consent form, a health information privacy form, and a medical records release form (only for participants with MS). The kit also includes everything necessary for the blood draw, which can be taken to a local lab or clinic, where the blood can be drawn and then returned in a prepaid envelope to the UCSF MS Genetics Lab. There is no cost to the study participants.

At all times, records and other information that is shared with investigators are handled in a confidential manner. There is no charge for participation.

Contact: To participate or request additional information, please complete our brief intake survey.

OR you may contact us directly:

Jayaji More
Clinical Research Coordinator
UCSF Multiple Sclerosis Genetic Susceptibility Project
675 Nelson Rising Lane, Suite 235A, Box 3206
San Francisco, CA 94158

Toll Free Phone: 1-866-MS-Genes (1-866-674-3637)

Email: msdb@ucsf.edu

Website: http://msgenetics.ucsf.edu/

About Multiple Sclerosis

Multiple sclerosis, an unpredictable, often disabling disease of the central nervous system, interrupts the flow of information within the brain, and between the brain and body. Symptoms range from numbness and tingling to blindness and paralysis. The progress, severity and specific symptoms of MS in any one person cannot yet be predicted, but advances in research and treatment are moving us closer to a world free of MS. Most people with MS are diagnosed between the ages of 20 and 50, with at least two to three times more women than men being diagnosed with the disease. MS affects more than 2.3 million people worldwide.

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