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Researchers Want to Know What You Think – Opportunities to Participate in Surveys and Other MS Research Studies

July 21, 2015

The National MS Society provides a forum for researchers who are conducting surveys and other research studies – and often people can participate without leaving their homes, by connecting with their computers or other devices. The topics are varied, ranging from single surveys about emotions or workplace accommodations to registries like iConquerMS and NARCOMS, where participants are engaged on an ongoing basis.

These surveys/studies are being conducted either by investigators seeking to answer scientific or health policy questions about MS, or by pharmaceutical or medical device companies conducting market research to develop or improve products for people with MS.

We review these opportunities, but they are offered as information only, not an endorsement or recommendation.

There are currently 25 surveys/research studies you can browse on our “Surveys and Other Research Studies” page. Here are a few:

Mothers with physical or mobility disabilities
Researchers from the University of Massachusetts would like to learn about the health care experiences of mothers with physical or mobility disabilities during pregnancy. 

Job accommodations for older workers with MS
Individuals who are aged 55 or older and need job accommodations are being sought for a study by researchers at the Florida State University. The results will help service providers and employers to learn more about how to improve the job accommodation process for older workers.

Social economic costs, quality of life, and experience in people with MS and caregivers
This survey is part of an international project gathering evidence to improve the diagnosis and treatment of MS, and gather information about the socio-economic impact of such improvements. Investigators are asking people with MS and caregivers to lend their insight to this effort.

Read more about these and other opportunities. These research efforts can’t move forward without the participation of people affected by MS and their family members.
 

About Multiple Sclerosis

Multiple sclerosis is an unpredictable, often disabling disease of the central nervous system that disrupts the flow of information within the brain, and between the brain and body. Symptoms range from numbness and tingling to blindness and paralysis. The progress, severity and specific symptoms of MS in any one person cannot yet be predicted, but advances in research and treatment are leading to better understanding and moving us closer to a world free of MS. Most people with MS are diagnosed between the ages of 20 and 50, with at least two to three times more women than men being diagnosed with the disease. MS affects more than 2.3 million people worldwide.

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