Thanks to forging partnerships with supportive key legislators and their staff, the California chapters of the National MS Society now have some promising opportunities to raise awareness about the challenging long term care needs of people living with MS and their loved ones.
On August 5th the Society will be providing testimony at a key hearing before the California State Assembly Aging and Long Term Care titled “Role Reversals: When Men Become Caregivers.” We are also partnering with the California Research Bureau who recognize there are a multitude of facets to MS; so, they plan to do some issue briefs that hopefully will lead up to a hearing of the Assembly Aging and Long Term Care Committee in early 2015 that highlights MS and other neurological diseases whose needs and barriers are uniquely similar.
The goal of the hearings are to identify and discuss the strengths, weaknesses, and opportunities to improve government's capacity to respond to changing population needs. The Chair of Long Term Care Committee has asked us to provide a male caregiver who can focus on the challenges men face when they are caregivers for a partner or spouse is living with MS, e.g. children/family, job, etc, and the impact that has on the woman living with MS, and if possible, how government can assist. The testimony should be no more than 3-4 minutes.
If you feel this opportunity describes your situation, please contact Audra Hindes at firstname.lastname@example.org