National Multiple Sclerosis Society
Ensure that Congress provides funding for MS research and the U.S. Food and Drug Administration so that we can stop disease progression, restore function, and end MS forever.
The Ensuring Access to Quality Complex Rehabilitation Act creates a separate benefit category under Medicare for complex rehabilitation technology (CRT), protecting access to these customized products so that people with significant disabilities can have their medical needs addressed and remain independent.
Caregivers of people with MS spend about 24 hours a week providing care. Of these caregivers, 64% are emotionally drained, 32% experience depression and 22% have lost a job due to caregiving responsibilities. The Lifespan Respite Care Program helps states better coordinate and deliver quality respite care that improves the health of family caregivers and allows the person living with MS to continue living at home.
Medicaid provides comprehensive health coverage to nearly 9 million non-elderly people with disabilities and to 10 million low-income Medicare beneficiaries who rely on Medicaid to fill Medicare’s gaps including many people living with MS. Medicaid is a true safety net for people with MS as MS is one of the most expensive chronic diseases and people with MS are often forced to stop working because of their disease.
Lack of public information on the price of healthcare services, the paperwork required to attain care, and insufficient notification of benefit changes contribute to the burden of living with MS.
People with multiple sclerosis (MS) have a variety of healthcare needs including neurological symptoms, emotional and psychological issues, rehabilitation interventions to enhance mobility and independence and long-term care. These healthcare needs vary dramatically person to person. Every person with MS needs meaningful access to a comprehensive network of providers to meet his or her unique needs.
Partnerships and the relationships that result allow us to be at the table when decisions are being made and advocate for changes that have a positive impact on the lives of those with MS.