National Multiple Sclerosis Society
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Contact your U.S. Representative today to ensure access to complex rehabilitation technology!
Provide quality, comprehensive healthcare to more people living with disabilities.
Make sure consumers have the information they need to make good healthcare decisions.
Ensure that people with MS have access to a comprehensive network of healthcare providers.
Develop relationships with state agencies to raise awareness about MS and our community’s needs.
The Massachusetts state budget Line Item 4513-1111 funds the Department of Public Health’s (DPH) prevention and disease management programs including, but not limited to, the Multiple Sclerosis Home LINKS program administered by the Greater New England Chapter of the National Multiple Sclerosis Society.
Senate bill 1869 extends the jurisdiction of the Massachusetts Architectural Access Board (AAB) to make it coextensive with the Americans with Disabilities Act (ADA). The bill would update the AAB’s jurisdiction where it falls short of ADA standards (AAB does not cover employee-only spaces that are covered by ADA). This change also provides for federal certification of the AAB code, meaning building owners and designers can ensure federal compliance when meeting state regulations.
Many people with MS rely on accessible transportation known as The MBTA Ride. On April 6, 2011 Governor Patrick signed Executive Order 530 which established a commission that examined and provided recommendations to improve and reform Para transit transportation services. Linda Guiod, Executive Vice President of Chapter Programs, Services and Advocacy, was sworn in as a member of this commission.
House Bill 2057 establishes standards for the minimum technical criteria for medical diagnostic equipment used in physician's offices, clinics, emergency rooms, hospitals, and other medical settings. The standards shall ensure that this equipment is accessible to, and usable by, individuals with disabilities, and shall allow independent entry to, use of, and exit from the equipment by these individuals to the maximum extent possible.
Senate bill 564 would require the Massachusetts Division of Medical Assistance to apply for a spousal waiver by requesting an amendment to an existing 1915 (c) home and community-based waiver for physically disabled adults who meet criteria for nursing level care. Concurrently, the Chapter is pursuing a pilot program to waive the income for married people with MS who are severely disabled.
Respite care is a coordinated system that provides person-centered and community-based planned or short term relief to primary caregivers from the demands of the ongoing responsibilities of caring for an individual with special needs regardless of age, race, ethnicity, or situation. It allows caregivers to remain in the workforce and to delay or prevent institutionalization for their loved ones.
House bill 136 requires Massachusetts to set standards for recruiting, hiring, and reporting on employment of people with disabilities on all multi-year vendor contracts.
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