2014 LINKS Teleconference Series - National Multiple Sclerosis Society

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2014 LINKS Teleconference Series

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2014 LINKS Teleconference Series

9 Opportunities to Learn More About MS from the Comfort of Your Home

We are pleased to present a series of teleconferences for clients with MS and their families entitled “LINKS.”  Whether you just received a diagnosis of MS or have been living with it for a long time--the goal of this series is to “link” you with information and tips on how to maintain your quality of life in the years ahead.

This nine week series will run Tuesday nights (7-8 pm) from April 1 through May 27, 2014. Each call will be conducted using a toll-free number, so you can call from the comfort of your home. Participate in several calls* or just the one that interests you.

What is a Teleconference?

A teleconference is an opportunity to learn new information from the comfort of home by calling into a designated number to hear an interactive presentation.

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*You will need to register individually for each call you wish to attend.

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April 1st, 2014 at 7:00 pm: Driving and MS

Few things in life give such a sense of freedom as the ability to drive a car. Unfortunately, the cognitive and physical impairments that accompany MS can sometimes jeopardize this freedom. In this call, Dr. Schultheis will speak about her research on these factors and how they can impact a person’s ability to drive. She’ll also provide some tips and advice for ensuring that you are safe every time you get behind the wheel.

Guest Speaker: Dr. Maria Schultheis is an Associate Professor with appointments in the Department of Psychology and the School of Biomedical Engineering, Science and Health Systems at Drexel University. Dr. Schultheis is a Clinical Neuropsychologist who received her PhD in Clinical Psychology from Drexel University in 1998. Her clinical and research experience have been focused on the rehabilitation of cognitively impaired populations, including traumatic brain injury, stroke and multiple sclerosis.

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April 8th, 2014 at 7:00 pm: Gait (Walking Problems) and MS

Problems with gait (difficulty in walking) are among the most common mobility limitations in MS. Learn about the factors that lead to walking limitations in MS and the consequences of decreased mobility, as well as therapeutic and assistive technology options available to help address these problems. 

Guest Speaker: Francois Bethoux, MD serves as the Director of Rehabilitation Services at the Cleveland Clinic Mellen Center in Ohio. Dr. Bethoux completed a Neuroimmunology fellowship at the Mellen Center for Multiple Sclerosis Treatment and Research (affiliated with the Cleveland Clinic Foundation). His research interests include outcomes measurements in both general and multiple sclerosis specific neurorehabilitation, gait analysis and evaluation of symptomatic therapies, and rehabilitative interventions for spasticity in MS and other disorders of the central nervous system.

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April 15th, 2014 at 7:00 pm: How Kids Perceive MS

Your daughter is trying out for the varsity basketball team. Your son is rehearsing for his first performance with the youth orchestra and your youngest is heading off to kindergarten. They are trying to keep pace with all the demands of school and friends and growing up. You’re waiting for the “right time” to tell them what’s behind your frequent doctor visits, trips to physical therapy and constant fatigue. You try to mask it and maintain a brave front as best you can; but you can tell they suspect something. Join us as we discuss how children and adolescents may perceive illness, especially when it affects a parent; and ways to get this important conversation started in your home.

Guest Speaker:  Dr. Sala Webb is a Board Certified Child and Adolescent Psychiatrist. She is the Medical Director of Webb Psychiatric Consulting, PLLC providing clinical and training services to various entities. She maintains a clinical faculty appointment through the Virginia Treatment Center for Children/Department of Psychiatry at the Virginia Commonwealth University. Dr. Webb currently serves on the Clinical Advisory Committee for the National MS Society, Central & Eastern Virginia Chapter.

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April 22nd, 2014 at 7:00 pm: Emotional Health and MS

In addition to its physical symptoms, MS may have profound emotional consequences that can seem confusing and overwhelming. Please join this call as we discuss the unpredictable emotional changes that may take place with MS, as well as how to manage emotional health with MS including physiological changes, symptom management and treatment options.

Guest Speaker:  Dr Cherie Hyder is currently a Senior Medical Liaison for Avanir Pharmaceuticals and is dedicated to Neurology and Psychiatry research.  She earned a BS degree in Molecular Biology and Chemistry at Iowa State University where she worked in Genetics research for 5 years.  She next earned the Doctor of Pharmacy degree at University of Missouri where she graduated with Honors.  She completed a JD degree with emphasis on patent law, FD&C Act and contract law.  Cherie worked as an Investigator at FDA for 5 years and moved into industry roles spanning Regulatory Affairs, Clinical Development, Quality Assurance, Business Development and Medical Affairs in PhRMA at Eli Lilly, Solvay Pharmaceuticals, Novartis and Pfizer prior to joining Avanir Pharmaceuticals, totaling more than 24 years.  She continues to develop courses and lectures on development of new medicines, bioethics, clinical research methods and clinical programs.  

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April 29th, 2014 at 7:00 pm:  Why Everyone Needs a Power of Attorney

Estate planning for individuals with disabilities requires specific knowledge beyond ordinary legal documentation. This planning recognizes the special needs of a person with a disability and the relevant government benefits programs, care and living options, and quality of life. The cornerstone of an effective plan is an appropriately drafted Power of Attorney. While Powers of Attorney vary in characteristics, specific planning considerations related to disability issues must be considered in order to provide effective, long term use of this planning document.

Guest Speaker:   Julian E. Gray, Certified Elder Law Attorney is the founder and managing attorney of Julian Gray Associates located in Moon Township and the South Hills of Pittsburgh, PA. Julian concentrates his practice in the areas of Elder Law, disability and special needs planning, as well as Veterans benefits. Mr. Gray received his undergraduate degree from Penn State University and his law degree from Duquesne University School of Law. Mr. Gray has been recognized as a Pennsylvania Superlawyer and in Best Lawyers in America. He is one of only a few Certified Elder Law Attorneys practicing in Western Pennsylvania. Julian Gray also authors a monthly Elder Law column in the Pittsburgh Post Gazette.

 

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May 6th, 2014 at 7:00 pm: MS: The African-American Experience

The myth that African Americans do not get MS is just that — a myth. African Americans do get MS. In fact, studies suggest that MS can be especially active in African Americans. Listen in on this call as Dr. Mary Hughes, chair of the National MS Society’s African American Advisory Council, discusses issues ranging from clinical course of MS to response to therapy to genetics. 

Dr. Mary Hughes is chair of the Department of Neurology at Greenville Hospital System in South Carolina. She received her medical degree from the University of Tennessee and completed her residency at Emory University in Atlanta. She also completed a fellowship in neurology at the Medical College of Georgia. She is board certified in clinical neurophysiology by the American Board of Psychiatry and Neurology.  Prior to relocating to Greenville, she served as medical director of the Augusta (GA) Multiple Sclerosis Center and as an associate professor in the Department of Neurology at the Medical College of Georgia. She currently serves on the National MS Society Board of Directors, National Clinical Advisory Board, and chairs the National African American Advisory Council.

Listen Now
 

May 13th, 2014 at 7:00 pm: Gotta Go, Gotta Go! An Update on Bladder Problems in Individuals Living with MS

Bladder dysfunction, which can include frequency and/or urgency of urination, hesitancy in starting urination, frequent nighttime urination, and incontinence, occurs in at least 80% of people living with MS.  Join this call as we explore more about the normal neurologic control of the bladder and what can occur with MS regarding neurologic control. This call will also discuss signs and symptoms of bladder problems, diagnostic tests, and treatment options.

Guest Speaker: Dr. Lonny S. Green, M.D. is the director of the Virginia Women’s Continence Center in Richmond, VA.  He sees patients with urinary incontinence and bladder difficulties.  Dr. Green has received numerous honors, authored many articles in his field of study, and presented in the US and abroad. Dr. Green is a diplomate of the American Board of Urology, as well as the National Board of Medical Examiners.  He is active with the American Urological Association and is a fellow of the American College of Surgeons.

Listen Now

 

May 20th, 2014 at 7:00 pm: Complimentary Approach to MS

In the United States, approximately 75% of people with MS use one form or another of complementary and alternative medicine, generally in combination with their prescribed MS treatments. This teleconference will be an interactive workshop that combines the best of the East and the West in regard to managing your MS. Participants will learn a complementary approach including energy movement, such as Tai Chi and Qi Qong as a form of healing, as well as changes in diet, life style, and essential supplements in addition to the conventional medical treatments currently available.

Guest Speaker: Dr. Jerry Fleishman is a Board Certified Neurologist and Licensed Acupuncturist in addition to Director of Clinical Neurophysiology, Section Chief of Neurology, and Director of the Stroke Unit at the Franklin Square Hospital in Baltimore, MD. Dr. Fleishman is also a Clinical Instructor in Neurology at Johns Hopkins Medical Center.  He combines a complementary approach in his practice using the “Best of the East” and the “Best of the West” in the diagnosis and treatment of his patients.  Dr. Fleishman has lectured for numerous organizations over the years on topics of Neurology, as well as a complementary approach to good health and specific illnesses.  He has been named in Consumer’s Guide to Top Doctors in Maryland and “Top Doc” in the Baltimore Magazine.

Listen Now
 

May 27th, 2014 at 7:00 pm: Progress in Treatment Options and MS Research

Research in MS is progressing at a remarkable rate, with more potential therapies in the pipeline than at any other time in history. Join us and learn how far we’ve come, where we’re going, and what the Society and others are doing to move toward a world free of MS. 

Guest Speaker: Carol Freeman MSN, RN, CNRN, FNP-BC is a family nurse practitioner with certification in neuroscience nursing. Carol is currently working at the MS Clinic at the University of Michigan. She has worked with the National MS Society, Michigan Chapter and previously coordinated a multiple sclerosis clinic for 20 years. 

 

Contact information

Randee Sanders
randee.sanders@nmss.org
443-641-1212

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