Current NJ Metro Program & Service Announcements - National Multiple Sclerosis Society

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Current NJ Metro Program & Service Announcements

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Various dates and times

This information is updated the first week of every month
This page was last edited 7/8/15
 

Dear Friend of the NJ Metro Chapter, 

Please read this message to learn about advocacy in July, connecting to the wide variety of local research opportunities, learning opportunities (coping with anger, gender differences and doctor visits), and so much more! 


MS Activist Week in New Jersey

The National MS Society is hosting our first annual New Jersey Activist Week from July 20 -24. Volunteers from across the State will meet with policymakers in their district offices to share their stories and advocate for important legislative issues. We need YOU to reinforce our advocacy message! 

You can learn more from this link and you can register to participate in virtual visits or in-person visits to legislators.

Contact Mara Brough at mara.brough@nmss.org or (267) 765-5104 for additional information.


Research Participation Opportunities – you may even get a stipend!

There are several opportunities for people with MS to participate in research studies, either on site, at home or online. 

Currently our website describes specific research opportunities with Columbia University, Holy Name Medical Center, Kessler Foundation Research Center (some of these studies at Kessler provide stipends and/or transportation reimbursement), Rutgers, The State University of NY at Buffalo and University at Albany. 

There is even a study for Progressive MS!  If you have progressive MS, you can help researchers learn more about MS and memory.  Be sure to click on the link below to get the details about the Progressive MS Research!

Click on this link to learn about these studies.


Can Do Multiple Sclerosis Upcoming Webinars - FREE! 

2nd Tuesday of each month 8:00 p.m. – 9:15 p.m. EST. Reserve your spot now!

Can Do MS’s monthly webinar series offers insight from MS experts representing different medical disciplines so that participants can gain additional knowledge relating to MS.  Participants interact with a team of Can Do MS Programs Consultants, by asking questions to learn how to actively co-manage their MS from the comfort of their home.  The next webinar is listed below: 

Tuesday, July 14, 2015, 8 - 9:15 p.m.
Can Do MS Webinar: Coping Effectively with Anger in Your Relationships

Presented by Peggy Crawford, PhD & Susan Kushner, MS, PT
Please join Psychologist, Peggy Crawford, and Physical Therapist, Sue Kushner, for a discussion of some of the more common triggers for anger, the impact of conflict on relationships and strategies for improving communication and coping constructively with anger. 

Register from this link.

If you are not able to view Can Do MS webinars live, then visit Can Do MS’s webinar archives. Watch them on your own time.


Tele-learning Series

What: A series of teleconferences aimed at providing information and guidance on current matters essential to liv­ing one’s best life with MS featuring experts by phone with an online presentation and Q&A.  The remainder of the series is listed below:   

Gender Differences in MS    

Tuesday, July 21 - 7 p.m. or

Thursday, July 23 - 10 p.m.

Preparing for MS Doctor Visits   

Tuesday, Sept. 15 - 7 p.m. or

Thursday, Sept. 17 - 10 p.m.  

Where: From the comfort of your own home   

Registration is required: Call -1-800-344-4867, email generalmailbox@nmss.org or register online from this link.

You will get a call-in number or web link upon registration. Register for all of them today – you will receive a reminder for each call.

Please note: All tele-learning calls are recorded and can be found on the same webpage indicated above. 


MS Patient Program in memory of Dr. Joseph Herbert, Founder and Director of the Barnabas MS Care Center, 2003-2014 

What:  Patient program 

When:  Thursday, October 29, 5:30 p.m.

Where:  Barnabas Health Ambulatory Care Center,  

200 South Orange Avenue, Livingston, Conference Room A/B

Speakers:  Ilya Kister, MD and Krupa Pandey, MD 

Dr. Kister who will discuss the legacy of Dr. Herbert as a pioneering MS clinician and researcher and Dr. Pandey who will provide updates on the latest MS treatments. 

RSVP Required: By Oct 19 - Email at Teamlink@barnabashealth.org or call 1-888-724-7123.

Sponsored by: Barnabas Health


Community Health Law Project

CHLP will help you get answers to your questions about health insurance enrollment.  If you had a life changing event that prevented you from enrolling in a health insurance program during open enrollment (November 15, 2014 – February 15, 2015), you still may be eligible to enroll.  More information can be found on the CHLP website:  http://www.chlp.org/programs.


Holy Name Orthotic Clinic

The physical therapy department of Holy Name Medical Center offers an orthotic clinic for anyone needing to get an ankle foot orthotic or other prescribed brace; patients will be evaluated by physical and occupational therapists; orthotic vendors will be present.  The clinic is held on the second Wednesday of each month.  To make an appointment or to get more information, please call the physical therapy department at 201-833-3085.


Program in Spanish - Please share this with anyone you know who is affected by MS and also speaks Spanish!

Café con Leche 
Café con Leche es un programa gratuito de la Sociedad ofreciendo un grupo de apoyo que se reúne mensualmente por teléfono bajo la dirección de un profesional para todos los hispanohablantes afectados por la esclerosis múltiple y que quieren comunicarse con otros. Para averiguar más o inscribirse, llame al 1-800-344-4867, opción 3. 

Café con Leche is a Society program offering a free monthly professionally led telephone support group for anyone affected by MS who speaks Spanish and wants to connect with others. To learn more or to register, call 1-800-344-4867. 


Connect Through Self-help Groups 

The New Jersey Metro Chapter sponsors more than 30 self-help groups in 14 counties. These groups bring together people who share a common life experience for support, education, and mutual aid. Members of self-help groups share a belief that positive personal change happens through individual efforts with the support of others. 

For more information about SHGs, contact Lisa at that Chapter at lisa.torre-janssesn@nmss.org or at 732-508-4431. 

You can also view the Chapter website page at:  http://www.nationalmssociety.org/Chapters/NJM/Find-Resources-and-Support/Programs/Self-Help-Group.


Attention Veterans!

People who served in the armed forces may have special benefits that address their MS related needs.  For more information to see if you are eligible for specific veteran programs, contact Joyce Williams at 973-676-1000, ext. 1729 


Care Partner Support Group

Connect with other care partners, find support and share your experiences. This National MS Society support group is led by experienced volunteers who are here to help you navigate life as a care partner of a person with MS.  To learn more, click on this link.


Caregiver Education & Support Program in Bergen County

The Caregiver Education and Support Program provides in-home professional instruction and support to caregivers entrusted with the responsibilities of caring for someone with a chronic illness, disability, or disease. As there are no income guidelines to qualify, the caregiver must be unpaid and 18 years of age or older. Among the services available are:

  • Nutritionists
  • Occupational, physical, and speech therapists
  • Registered nurse
  • Social worker

Read more about the Bergen County Caregiver Education & Support Program or call 201-336-6504. 

Other counties that have similar programs include: 

Morris: Call main number - 973-285-6848

Ocean: Call Board of Social Services - 732-349-1200

Somerset: Visiting Nursing Association - 908-766-0180 ext. 110

For information in other counties, contact the county Office for Disability Services in the specified county; you can find the county list at this link.


Young Adults

Disability Allies and the Young Adult Social Group under the National Alliance for Mental Illness will host an upcoming event to connect young adults with and without disabilities together: BBQ event on July 12th at 1pm in New Brunswick; call Ross Yellin at 908-616-5091 for more information.  


Displaced Homemakers in NJ

Displaced homemakers are individuals who have worked in the home for a number of years and, due to divorce, separation, death or disability of a spouse or partner, now find themselves as the primary source of household income.  In many cases, displaced homemakers may be underemployed and unable to support either themselves or their children. After having lost their primary source of financial support, displaced homemakers may need to return to the workforce. 

Learn more about New Jersey’s displaced homemakers programs and how they may help someone you know.  Please visit their website or call 1-855-INFO-DCF (1-855-463-6323).


Do you have an employment question you would like answered? Are you curious about workplace disclosure, social security benefits, need a reasonable accommodation or are you thinking about returning to work? 

If so, the National MS Society has a dedicated employment specialist to answer your questions.  Feel free to pose your questions directly to EmploymentQuestions@nmss.org. You can expect to receive a response within 48 hours.


How to Choose the Wheeled Mobility Device that's Right for You

You can learn about how to choose a mobility device right from the comfort of your own home!  The videos are available on the National MS Society website (scroll to the bottom and both parts are there) and on YouTube.  They are equipped with closed captions. To activate the closed captions when playing the videos on YouTube, click on the CC button on the toolbar that appears below the video, and select on.


Are you looking for a low cost mobility device?  Then read the next paragraph to learn about the Chapter’s Client-to-Client Resources webpage.


Client to Client Resources

View this webpage to learn about specific durable medical equipment that is available free or low cost.


Free Educational Programs from Pharmaceutical Companies

The National MS Society, New Jersey Metro Chapter is making this information available to you about these educational opportunities.  The chapter is not sponsoring these programs. The Society has had no role in developing the content of these programs. 


What:  Ready to learn about Relapsing MS?

When:  Wednesday, July 8th, 6:30 p.m.; a free meal will be served

Where:  Seasons 52, 217 Lafayette Avenue, Edison

Speaker:  Allan Perel, MD, Alpha Neurology

RSVP: 866-703-6293; TR303463 (1239693)

Sponsored by: Genzyme

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What: Quiet MS, for People with Relapsing Multiple Sclerosis

When: Thursday, July 9th 2015 at 6 p.m.

Where: Mohawk House, 3 Sparta Avenue, Sparta, NJ 07871 (dinner will be served)

Speaker: Dr. Gary Clauser, Lehigh Neurology, Allentown, PA & a MS ambassador

RSVP: 1-866-703-6293 or GenzymePatientRSVP@ahmdirect.com

Sponsored by: Genzyme

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What: Quiet MS, for People with Relapsing Multiple Sclerosis

When: Friday, July 10th, 2015 at 12 pm

Where: Biagio’s Ristorante, 299 Paramus Road, Paramus, NJ 07652 (lunch will be served)

Speaker: Dr. MaryAnn Picone, Holy Name MS Center, Teaneck, NJ & a MS ambassador

RSVP: 1-866-703-6293 or GenzymePatientRSVP@ahmdirect.com

Sponsored by: Genzyme

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What: Ready to learn about Relapsing MS?

When: Friday, July 10th,12:30 p.m.; complementary meal

Where: Fresco’s Restaurant, 210 Ryders Lane, Milltown

Speaker: Gary Clauser, MD, Lehigh Neurology

RSVP: 866-703-6293; Meeting Code: TR303466 (1239832)

Sponsored by: Genzyme

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What: Living With Multiple Sclerosis (MS) - An informative event for people living with MS and their care partners

When: Tuesday, July 14, 6:30 p.m. (dinner provided)

Where: Park Avenue Events, 618 Park Avenue, Freehold,

Speaker: Amos Katz, MD, Linda E Cardinale MS Center, Freehold

RSVP: 1-866-703-6293 or GenzymePatientRSVP@ahmdirect.com

Sponsored by: Genzyme

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What: MS Relapse Symptoms:  Understanding your Treatment Choices

When: Tuesday July 14, 6:00 p.m.

Where: Calandra's 234 Bloomfield avenue, Caldwell; complimentary meal and parking provided 

Speaker: Yanchun Zhang, MD

RSVP: 1-877-219-0410 use program ID#3197 

Sponsored by: Mallinckrodt 

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What: Getting to Know Your Options

When: Wednesday, July 15, 7 p.m. (complementary dinner)

Where: Fiorino Ristorante 38 Maple St Summit

Speaker: Mark Diamond, MD

RSVP: 1-877-969-1722 or at mslifelines.com/liveevents

Sponsored by: EMD Serono (Rebif)

 -----------------------------------------  

What: Quiet MS, for People with Relapsing Multiple Sclerosis

When: Thursday, July 16, 6 p.m.

Where: Legal Seafoods, The Mall at Short Hills, 1200 Morris Turnpike, Short Hills (dinner will be served)

Speaker: Stuart Fox , MD, The Neuroscience Center of Northern New Jersey, Morristown, NJ & a MS ambassador

RSVP: 1-866-703-6293 or GenzymePatientRSVP@ahmdirect.com

Sponsored by: Genzyme

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What: Quiet MS, for People with Relapsing Multiple Sclerosis

When: Tuesday, July 21st, 6 p.m.

Where: Flemings Steakhouse, 90 The Promenade, Edgewater (dinner will be served)

Speaker: MaryAnn Picone, MD, Holy Name MS Center, Teaneck, NJ & a MS ambassador

RSVP: 1-866-703-6293 or GenzymePatientRSVP@ahmdirect.com

Sponsored by: Genzyme

-----------------------------------------  

What: Ready to learn about Relapsing MS?

When: Wednesday, July 22, 6:30pm; complementary meal

Where: Bertucci’s, 899 St. George’s Ave, Woodbridge Twp

Speaker: Allan Perel, MD, Alpha Neurology

RSVP: 866-703-6293; Meeting Code: TR303468 (1239694)

Sponsored by: Genzyme

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What: C.H.A.T. (Connecting Helping Aspiring Teaching) subject: Staying Motivated

When:  Wednesday, July 29,12 p.m. (complementary lunch)

Where: Salt Creek Grill in Princeton Forrestal Village 1 Rockingham Row, Princeton

Speaker: Kristen Whitlock, MS Lifelines Nurse

RSVP: 1-877-969-1722 or at mslifelines.com/liveevents

Sponsored by: EMD Serono (Rebif)

 -----------------------------------------  

What: Living With Sclerosis (MS) - An informative event for people living with MS and their care partners

When: Tuesday, July 28, 6:30 p.m. (dinner provided)

Where: Villa Romanza, 429 NJ 156, Hamilton Township, NJ

Speaker: Amos Katz, MD, Linda E Cardinale MS Center, Freehold

RSVP: 1-866-703-6293 or GenzymePatientRSVP@ahmdirect.com

Sponsored by: Genzyme

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What: C.H.A.T. (Connecting Helping Aspiring Teaching) subject: “Staying Motivated

When: Wednesday, July 29,12 p.m. (complementary lunch)

Where: Salt Creek Grill in Princeton Forrestal Village 1 Rockingham Row Princeton, NJ 08540 (609-419-4200)

Speaker: Kristen Whitlock, MS Lifelines Nurse

RSVP: 1-877-969-1722 mslifelines.com/liveevents

Sponsored by: EMD Serono (Rebif)

-----------------------------------------  

What: Living With Sclerosis (MS) - An informative event for people living with MS and their care partners

When: Thursday, July 30, 6:30 PM (dinner provided)

Where: Villaggio Grill, 100 McKinley Avenue, Manahawkin

Speaker: Amos Katz, MD, Linda E Cardinale MS Center, Freehold

RSVP: 1-866-703-6293 or GenzymePatientRSVP@ahmdirect.com

Sponsored by: Genzyme

----------------------------------------- 

What: Quiet MS, for People with Relapsing Multiple Sclerosis

When: Friday, July 31,12 p.m.

Where: The Madison Hotel, 1 Convent Road, Morristown (lunch will be served)

Speaker: Gary Clauser, MD, Lehigh Neurology, Allentown, PA & a MS ambassador

RSVP: 1-866-703-6293 or GenzymePatientRSVP@ahmdirect.com

Sponsored by:  Genzyme

----------------------------------------- 

What: Ready to learn more about Relapsing MS?

When: Monday, August 3, 12:30 p.m.; complementary meal

Where: Seasons 52, 217 Lafayette Ave, Edison

Speaker: Gary Clauser, MD, Lehigh Neurology

RSVP: 866-703-6293; Meeting Code: TR303480 (1239833)

Sponsored by: Genzyme

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What: Ready to learn about Relapsing MS?

When: Tuesday, August 4, 6:30 p.m.

Where: Ponte Vecchio, 3863 Highway 516 East, Old Bridge

Speaker: Roger Behar, MD & Devin Friedlander, MD, Princeton & Rutgers Neurology

RSVP: 866-703-6293; Meeting Code: TR306787

Sponsored by: Genzyme

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What: C.H.A.T. (Connecting Helping Aspiring Teaching) subject: “Staying Smart with Relapsing MS and Your Therapy

When: Wednesday, August 5, 7 p.m. (complementary dinner)

Where: Fleming’s Steakhouse and Wine Bar, 90 The Promenade, Edgewater

Speaker: Donna Gleeson MS Lifelines Nurse

RSVP: 1-877-969-1722 or at mslifelines.com/liveevents

Sponsored by: EMD Serono (Rebif)

----------------------------------------- 

What: C.H.A.T. (Connecting Helping Aspiring Teaching) subject: Staying Smart with Relapsing MS and Your Therapy

When: Wednesday, August 12, 7 p.m. (complementary dinner)

Where: Iberia Tavern and Restaurant 80-84 Ferry St Newark

Speaker: Donna Gleeson MS Lifelines Nurse

RSVP: 1-877-969-1722 or at mslifelines.com/liveevents

Sponsored by: EMD Serono (Rebif)

----------------------------------------- 

What: Ready to learn more about Relapsing MS?

When: Monday, August 31, 12:30 p.m.; complementary mea

Where: Bertucci’s, 899 St: George’s Ave, Woodbridge Twp

Speaker: Gary Clauser, MD, Lehigh Neurology

RSVP: 866-703-6293; Meeting Code: TR303484 (1242299)

Sponsored by: Genzyme

----------------------------------------- 

What: Gilenya® Patient Programs:  Know Your Options:  A Closer Look at Gilenya® (fingolimod) and You  

When: Tuesday evenings at 7:00 p.m. and Thursday evenings at 10:00 p.m.

Where: Speakers Direct on Line, Webinars

Speaker(s): MD's, NP's and Patient Guides

Sponsored by: Novartis Pharmaceuticals

More information: http://www.gilenyapatientprogram.com/meetings/pdf   


Keep S'myelin - a newsletter about MS just for kids!

Keep S’myelin is a colorful, engaging, informative, and reassuring newsletter to help children and their parents talk and learn about MS together. Each issue is filled with stories, interviews, games, and activities that highlight a specific topic related to MS, as well as a special section just for parents.  To receive this newsletter, contact Lisa at the Chapter at Lisa.Torre-Janssen@nmss.org.


Bike to Create a World Free of MS!

  • Bike MS: Barrels and Brews (formerly Bike MS: Hops to Hops), on September 13 in Ringoes.  Choose your route length of 40 or 62 miles and pedal over the hills of the Amwell Valley. Celebrate at the Unionville Vineyard with a relaxing lunch, wine and beer.
  • Bike MS: Country Challenge on September 19 & 20 from Morristown to Whippany and back.  Route options offered are the 25, 50, 62 and the two-day 100-mile ride.  Enjoy the Saturday finish line featuring Oktoberfest food and entertainment!  

Register or learn more at www.nationalmssociety.org/Chapters/NJM/Fundraising-Events or call 732-660-1005, press option 2


You can read the most current Chapter newsletter online from this link.


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