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Current NJ Metro Program & Service Announcements

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Various dates and times

This information is updated the first week of every month
This page was last edited 2/1/17

Please read this message to learn about:   

  • Walk MS!  Register at www.walkms.org or email NJMWalk@nmss.org
  • Transportation Research
  • An educational webinar:  Negotiating Reasonable Accommodations on Feb 15 and Discrimination on the Job on Feb 28
  • Research participation and advocacy opportunities (home modification survey and tax credits; Make MS medications accessible);  
  • So much more!

Register today for Walk MS! 

Eleven locations throughout NJ on the weekend of April 29-30, 2017

Scroll through this message to read about the 11 walk locations or click on this link:  www.walkms.org   


Adults with Disabilities:  Let Your Voice Be Heard About Transportation!

The Arc of New Jersey has partnered with the Rutgers Center for Advanced Infrastructure and Transportation to conduct a research study about how adults with disabilities use different modes of transportation. Want to Voice Your Opinion? Along with their experiences, participants will be encouraged to share their hopes for the future of public transportation. Participants will answer questions during a short ten minute interview conducted by a member of the New Jersey Self-Advocacy Project team. The answers will be used to develop a report about positive and negative aspects of current transportation options. To learn more about the project and/or to get involved, please e-mailNJSAP@ArcNJ.org or contact Ashley at 732-743-8345.


FREE - National MS Society and Can Do MS Webinar & Telelearning Series

2nd Tuesday of each month 8:00pm – 9:15pm EST. Reserve your spot now!

There are two webinars in February!

The 2016 Webinar & Telelearning Series brings together a collaboration of MS experts — to help you learn strategies to live your best life with MS. Each free webinar & telelearning program features two presenters with time for Q&A.

Tuesday, February 15 , 2017, 8-9:15pm: 

Negotiating Reasonable Accommodations- click here to register

Unsure how to ask for reasonable accommodations? Hear from Nina T. Martinez Skadden Fellow/Staff Attorney, Employment Mediation Project at New York Legal Assistance Group and learn about the process, including the legal implications and the employer’s perspective.

Tuesday, February 28, 8-9:15pm

Discrimination on the Job - click here to register

Think you may have been discriminated against on the job but aren’t sure what signs to look for? Please join Linda Batiste, Principal Consultant at the Job Accommodation Network (JAN) and Charles Goldman, Attorney at Law, who will educate you on what constitutes discrimination in the workplace. The experts will discuss tips on how to spot discrimination on the job and what steps you can take to help protect yourself. Get informed on your options and learn when it may be valuable to speak with an attorney or file a claim of discrimination with the U.S. Equal Employment Opportunity Commission (EEOC). You’ll also hear about the state and federal laws that are in place to prevent discrimination in the workplace

If you are not able to view Can Do MS webinars live, then visit Can Do MS’s webinar archives. Watch them on your own time. Visit http://www.mscando.org/webinararchive 

For a complete schedule of upcoming webinars, visit this link:http://www.nationalmssociety.org/Resources-Support/Library-Education-Programs/Telelearning-Program    


Wellness

One Step for MS program - the National MS Society New Jersey Metro area, and the YMCA’s listed below, are proud to collaborate in offering a customized wellness program for individuals with MS. The One Step program is a 12-week, 24-session wellness course designed for adults with MS. One Step aims to provide attendees with a comfortable and accessible environment to encourage empowerment via facilitated conversations, and, through therapeutic exercises, address the issues of fatigue, mobility, weakness and depression. For more information and to register for these programs, contact the YMCA of your choice below:  

To find out if there’s a local YMCA in your area, and if they offer any adaptive exercise classes, click on: http://www.njymca.org/locations/

Click here for the current New Jersey Metro Spring Wellness Calendar.

For more Wellness resources, including adaptive programs at Kessler, CentraState and YMCAs, visit our website: including adaptive programs at Kessler, CentraState and YMCAs, visit our website  www.nationalmssociety.org/Chapters/NJM/Calendar/Programs/Wellness-Programs 

Wellness Discussion Guide from the National MS Society  
the National MS Society  www.nationalMSsociety.org/wellnessguide    

 


Connect Through Self-help Groups 

The New Jersey Metro Chapter sponsors more than 30 self-help groups in 14 counties. These groups bring together people who share a common life experience for support, education, and mutual aid. Members of self-help groups share a belief that positive personal change happens through individual efforts with the support of others. 

For more information about SHGs, contact the National MS Society at 800-344-4867 or at generalmailbox@nmss.org.

You can also view the Chapter website page at: http://www.nationalmssociety.org/Chapters/NJM/Find-Resources-and-Support/Programs/Self-Help-Group 


Attention Veterans! 

People who served in the armed forces may have special benefits that address their MS related needs.  For more information to see if you are eligible for specific veteran programs, contact Joyce Williams at 973-676-1000, ext. 1729  


Program in Spanish - Please share this with anyone you know who is affected by MS and also speaks Spanish!

Café con Leche  

Café con Leche es un programa gratuito de la Sociedad ofreciendo un grupo de apoyo que se reúne mensualmente por teléfono bajo la dirección de un profesional para todos los hispanohablantes afectados por la esclerosis múltiple y que quieren comunicarse con otros. Para averiguar más o inscribirse, llame al 1-800-344-4867, opción 3. 

Café con Leche is a Society program offering a free monthly professionally led telephone support group for anyone affected by MS who speaks Spanish and wants to connect with others. To learn more or to register, call 1-800-344-4867.


Advocacy Participation 

  • Join the MS Activist Network

Receive updates and action opportunities on federal, state and local policy affecting the MS community. In just a few clicks, you can email your public officials about why an issue is important to you. Click here to join.

  • Become a District Activist Leader

Volunteer to be the face of MS for your elected officials. You'll build and foster critical relationships with elected officials in your legislative district, and helping to solidify the MS grassroots movement across the country. Click here to apply to become a district activist leader.

  • Join the Government Relations Advisory Committee

Volunteer to work strategically and tactically with the MS community and elected officials to change the lives of people impacted by MS. Click hereto apply to join the government relations advisory committee.  


Respite Care in Mercer County

Enable Inc., of Mercer County, NJ, is participating in a state-sponsored Respite Care program, providing short-term intermittent relief for caregivers of people age 60 and over who require nursing facility level of care but wish to remain at home.  They must also qualify financially according to state guidelines.  The respite can be provided in a variety of ways: home care, adult day care, short-term stays in assisted living or other options.  Enable's Statewide Respite Care Coordinator can help you determine your eligibility and develop a plan that suits your needs (609-987-5003, ext 145).  


The Personal Assistance Services Program (PASP) 

The PASP provides routine, non-medical assistance to adults with disabilities who are employed, involved in community volunteer work, or attending school. Personal assistants help with tasks such as: light housekeeping, bathing, dressing, preparing meals, shopping, driving or using public transportation. The total number of hours a person can receive is determined based on individual need, up to a maximum of 40 hours/week. For more information, view this webpage: http://www.state.nj.us/humanservices/dds/projects/pasp/


Research Participation Opportunities – you may even get a stipend!

There are several opportunities for people with MS to participate in research studies, either locally on site, at home or online. 

Currently our website describes specific research opportunities with Case Western University, CentraState Medical Center, Columbia University, Holy Name Medical Center, Kessler Foundation Research Center (some of these studies at Kessler provide stipends and/or transportation reimbursement), Rutgers, The State University of NY at Buffalo and University at Albany. There is even a study for Progressive MS (If you have progressive MS, you can help researchers learn more about MS and memory). 

Be sure to click on the link below to get the details about the each of these studies: 

http://www.nationalmssociety.org/Chapters/NJM/Services-and-Support/Resources/Local-Research-Studies


Holy Name Orthotic Clinic 

The physical therapy department of Holy Name Medical Center offers an orthotic clinic for anyone needing to get an ankle foot orthotic or other prescribed brace; patients will be evaluated by physical and occupational therapists; orthotic vendors will be present.  The clinic is held on the second Wednesday of each month.  To make an appointment or to get more information, please call the physical therapy department at 201-833-3085. 


How to Choose the Wheeled Mobility Device that's Right for You

You can learn about how to choose a mobility device right from the comfort of your own home!  The videos are available on YouTube from the National MS Society. They are equipped with closed captions. To activate the closed captions when playing the videos on YouTube, click on the CC button on the toolbar that appears below the video, and select on.


Caregiver Education & Support Program in Bergen County

The Caregiver Education and Support Program provides in-home professional instruction and support to caregivers entrusted with the responsibilities of caring for someone with a chronic illness, disability, or disease. As there are no income guidelines to qualify, the caregiver must be unpaid and 18 years of age or older. Among the services available are: Nutritionists, Occupational, physical, and speech therapists, Registered nurse, Social worker. Read more about the Bergen CountyCaregiver Education & Support Program or call 201-336-6504.  

To learn about the variety of services for people with disabilities, in all NJ counties, go to this link: http://www.state.nj.us/humanservices/doas/home/saaaa.html  


Arts Unbound is Recruiting Artists! 

Arts Unbound is actively recruiting emerging artists with disabilities for their Artist Development Program. This program is for people living with disabilities who are interested in or currently pursuing a career as a professional artist. All the participants will be expected to commit to developing a career plan, participate in workshops and master classes, and learn how to approach galleries and retailers. Staff will conduct portfolio reviews, promote the participants’ work to galleries, boutiques, and other retailers, license works for reproduction, help artists build online portfolios, and host group art exhibits. 

Artists interested in participating should contact Celene Ryan, Director of Artist Development at Arts Unbound at cryan@artsunbound.org or at 973-675-2787. You may send up to three images of work that you think represents your strongest efforts. Please also share a little about yourself and your professional goals for the next year.


Free Educational Programs from Pharmaceutical Companies

The National MS Society, New Jersey Metro Chapter is making this information available to you about these educational opportunities.  The National MS Society, New Jersey Metro Chapter is not sponsoring these programs. The Society has had no role in developing the content of these programs. 

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What:  Tysabri - The Importance of Staying on Therapy

When:  Tuesday, February 7, Registration: 6pm, Program Start: 6:30 PM, Dinner will be served.

Where:  Maggiano's Little Italy, 600 Commons Way, Building E, Bridgewater

Physician Speaker: Dr. Manish Viradia - Hunterdon Orthopedic Institute, Flemington, NJ

Patient Speaker: Jennifer P., Wantagh, NY

RSVP:  866-955-9999

Sponsored by:  Biogen

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What:  Tysabri – The Importance of Staying on Therapy

When:  Thursday, February 9, 6pm (registration at 5:30), complimentary dinner

Where:  Rosa Mexicano |390 Hackensack Ave. | Hackensack, NJ  07601

Speaker:  Mary Ann Picone, MD, Holy Name Hospital

RSVP:  http://stayingontherapy.com or 1 (866) 955-9999

Sponsored by:  Biogen

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What:  An MS Speaker Event

When:  Monday, February 13, 6:30 PM Dinner

Where:  Seasons 52, 217 Lafayette Rd.  Edison, NJ

Speaker:  Jean Bakke-Cain, NP  Lehigh Neurology

RSVP:  1-800-682-7502, www.MoreaboutMStreatment.com; Use code TR399425

Sponsored by: Sanofi Genzyme Corporation

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Title: The Importance of Staying on Therapy

When:  Wednesday, February 15, Registration 6 pm, program starts at 6:30pm

Where: Nanni's Restaurant, 53 west Passaic Street, Rochelle Park

Speaker: Dr. Gregory Anselmi, MD, Jennifer Paretta

Sponsored by: Biogen

RSVP:  866-955-9999

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What:  Symptoms of MS Relapse

When:  Tuesday, February 28, 6:00; meal provided

Where:  Biaggios, Paramus Road, Paramus

Speaker:  Dr. Maryann Picone, Holy Name MS Center Neurologist

RSVP:  register online at www.actharmsrelapse.com  

Sponsored by:  Mallinckrodt Pharmaceuticals

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What:  An MS Speaker Event

When:  Wednesday, March 8, 6:30pm  Dinner

Where:  Grand Summit Hotel.  Summit, NJ

Speaker:  Dr. Gary Clauser, MD  Lehigh Neurology

RSVP:  1-800-682-7502; www.MoreaboutMStreatment.com; Use code TR399422

Sponsored by:  Sanofi Genzyme Corporation

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What: Navigating MS

When:  March 16, 6pm Registration. Meal and Speaker at 6:30pm. Free Parking

Where:  Grand Wilshire Hotel, 350 Pleasant Valley Way, West Orange

Speaker:  Krupa Pandey, MD

RSVP:  1-866-955-9999

Sponsored by:  Biogen

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What:  An MS Speaker Event

When:  March 17,12:30 lunch

Where:  Lou Cas, 9 Lincoln Highway, Edison

Speaker:  Dr. Gary Clauser, MD  Lehigh Neurology

RSVP:  1-800-682-7502  /  MoreaboutMStreatment.com  Use code TR399

Sponsored by:  Sanofi Genzyme Corporation


WALK MS 2017 - Registration Open!

11 walk locations across northern and central NJ

   Saturday, April 29, 2017

   Liberty State Park, Jersey City

   Oak Ridge Park, Clark

   Solberg Airport, Readington

   Boardwalk, Seaside Park

   Sunday, April 30, 2017

   Overpeck County Park, Ridgefield Park

   Horseshoe Lake Recreation Complex, Roxbury

   Orange Reservoir, West Orange

   Veterans Park, North Brunswick

   Battlefield State Park, Manalapan

   Bar Anticipation, Lake Como

   Veterans Park, Hamilton

For more information or to register, visit www.walkms.org or emailNJMWalk@nmss.org


Registration for Bike MS: Coast the Coast is now open!

Join us on May 20th and 21st as we embark on an unforgettable journey along the Jersey Shore. Choose one of five routes and enjoy breathtaking coastal views while passing through seaside towns on flat terrain. With 1,500 cyclists of all ages and riding abilities by your side, you'll experience an incredible level of camaraderie on a ride filled with laughter, excitement, support and a profound sense of accomplishment. Register online at http://www.bikemscoastthecoast.org or call (732)-660-1005.  


MUCKFEST returns to New Jersey this June!

Register today and join the fun – whether it’s your first time or your sixth time – we know you’ll have a MUCKING good time supporting the MS Society.

Registration Link: http://main.nationalmssociety.org/site/PageServer?pagename=HOM_MUCK_MuckFest_info_newjersey   


Do it Yourself Fundraising MS

With DIY Fundraising MS you get to take your talents and hobbies and turn them into a fundraising event of your own! Whether you like to play sports, host dinner parties, sell jewelry and crafts, or dance, the possibilities are endless.

No matter what your connection to MS is, we are all in the same fight to raise awareness and funds to end MS forever. Rally your friends, family and coworkers to do something about MS today! For details on how to kick-start your DIY fundraiser contact Julie Falgiano at 732.508.4432 or julianne.falgiano@nmss.org.  


You can read the most current Chapter newsletter online from this link: http://www.nationalmssociety.org/Chapters/NJM/Stay-Informed/MS-Connection-Newsletter  

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