Current NJ Metro Program & Service Announcements - National Multiple Sclerosis Society

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Current NJ Metro Program & Service Announcements

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Various dates and times

This information is updated the first week of every month
This page was last edited 4/3/15
 

Dear Friend of the NJ Metro Chapter,     

Please read this message to learn about telephone and web learning dates (employment, research, intimacy, etc), the circus, research opportunities, Walk MS weekend, Bike MS and much more!


You can read the most current Chapter newsletter online from this link:  

http://www.nationalmssociety.org/Chapters/NJM/Stay-Informed/MS-Connection-Newsletter


Spring Wellness - Yoga, Tai Chi, Aquatics!  

You must register through the Chapter in order to participate in these wellness classes.  To register contact Aubrey at aubrey.donovan@nmss.org and include your name, email / mailing address, daytime phone number, and the name & location of the program(s) you are interested in. 

OR you can call the Society and ask for a listing of classes in your area 1-800-344-4867.  

There is a voluntary $30 suggested donation (not mandatory) for participation in a program. 

Please visit the chapter Wellness Page for more information on wellness classes in your area!  


Hamilton YMCA – One Step Program

The New Jersey Metro Chapter of the National Multiple Sclerosis Society and the Hamilton YMCA are proud to announce a collaborative effort in developing a customized wellness program for individuals with multiple sclerosis. The One Step program is a 12-week, 24-session course designed for medically diagnosed adults with MS. One Step aims to provide attendees with a comfortable and accessible environment to encourage empowerment via facilitated conversations, and, through therapeutic exercises, address the issues of fatigue, mobility, weakness and depression. Morning and evening sessions available!

Please contact: Joe Fuhrman  609-581-9622 x132 or prevention@hamiltonymca.org for more information and to register for this program!


Can Do Multiple Sclerosis Upcoming Webinars – FREE!

2nd Tuesday of each month 8:00p.m. – 9:15p.m. EST. Reserve your spot now!

Can Do MS’s monthly webinar series offers insight from MS experts representing different medical disciplines so that participants can gain additional knowledge relating to MS.  Participants interact with a team of Can Do MS Programs Consultants, by asking questions to learn how to actively co-manage their MS from the comfort of their home.  The next webinar is listed below: 

Tuesday, April 14, 8-9:15pm

Can Do MS Webinar:  Living With Progressive MS

Presented by Can Do MS Programs Consultants:
Rosalind Kalb, PhD & Patricia Kennedy, RN, CNP, MSCN
Please join Pat Kennedy, Nurse Practitioner, and Roz Kalb, Psychologist, as they share their thoughts and perspectives about living with progressive forms of MS.  In this webinar, you will hear about exciting new developments in research, learn how to manage your symptoms, and get helpful tips on how you and your support partner can manage day-to-day challenges while maintaining a healthy partnership and emotional equilibrium.

Register from this link:  https://cc.readytalk.com/cc/s/registrations/new?cid=ckmoge3z34kc

Webinar Series Archive

If you are not able to view Can Do MS webinars live, then please Can Do MS’s webinar archives. Watch them on your own time. Visit http://www.mscando.org/webinararchive


Tele-learning Series

What:  A series of teleconferences aimed at providing information and guidance on current matters essential to liv­ing one’s best life with MS featuring experts by phone with an online presentation and Q&A.  The remainder of the series is listed below: 

Sex ED for Grownups-Intimacy in MS  

Tuesday, May 19- 7 pm or

Thursday, May 21- 10pm

Gender Differences in MS   

Tuesday, July 21- 7 pm or

Thursday, July 23- 10pm

Preparing for MS Doctor Visits  

Tuesday, Sept. 15- 7 pm or

Thursday, Sept. 17- 10pm 

Where:  from the comfort of your own home  

Registration is required: call -1-800-344-4867 or email generalmailbox@nmss.org or register online from this link:

http://www.nationalmssociety.org/Chapters/NJM/Services-and-Support/Services/Telelearning-Series-2014-2015

You will get a call in number or web link upon registration. Register for all of them today – you will receive a reminder for each call.

Please note: all tele-learning calls are recorded and can be found on the same webpage indicated above.


Salaam Shrine Circus

What:  Salaam Shrine Circus has graciously donated tickets for people with MS and their families to attend a fun filled evening at the circus. 

When:  Thursday, May 14, 2015, at 7:00 pm

Where:  Mennen Sports Arena in Morristown

Tickets:  Contact Jennifer at the Chapter at  201-977-6044 or Jennifer.fallon@nmss.org.  Please include complete contact information along with how many tickets are being requested.

Place your request for tickets (due to limited tickets please request no more than 5 tickets per family) by April 27th.  Tickets will be on a first come, first serve basis and will be mailed to you along with directions closer to the event. 


Holy Name Orthotic Clinic

The physical therapy department of Holy Name Medical Center offers an orthotic clinic for anyone needing to get an ankle foot orthotic or other prescribed brace; patients will be evaluated by physical and occupational therapists; orthotic vendors will be present.  The clinic is held on the second Wednesday of each month.  To make an appointment or to get more information, please call the physical therapy department at 201-833-3085.


Program in Spanish - Please share this with anyone you know who is affected by MS and also speaks Spanish!

Café con Leche

Café con Leche es un programa gratuito de la Sociedad ofreciendo un grupo de apoyo que se reúne mensualmente por teléfono bajo la dirección de un profesional para todos los hispanohablantes afectados por la esclerosis múltiple y que quieren comunicarse con otros. Para averiguar más o inscribirse, llame al 1-800-344-4867, opción 3.

Café con Leche is a Society program offering a free monthly professionally led telephone support group for anyone affected by MS who speaks Spanish and wants to connect with others. To learn more or to register, call 1-800-344-4867.


FRIENDS – that is what you get when you join a self-help group (SHG)!  

F =  Fun to be had when you join the group.

R =  Research updates and study participation experiences to be shared among group members.

I =  Information to be discussed about a variety of topics.

E =  Education is important.

N =  Network to live your best life with MS. 

D =  Dedicate your time to help people with MS.

S = Socialize, meet new people.

There are more than 30 SHGs in the 14 counties of the NJ Metro service area.  There may be one that is just right for you!  Learn about the different groups and see how you can contribute to the excitement of their meetings.  Your participation and voice is always welcome!

A group for veterans with MS meets at the VA in East Orange on the 4th Tuesday of every month. 

For more information contact Joyce Williams at 973--676-1000 x1729.

For more information about SHGs, contact Lisa at that Chapter at lisa.torre-janssesn@nmss.org or at 732-508-4431. 

You can also view the Chapter website page at:  http://www.nationalmssociety.org/Chapters/NJM/Find-Resources-and-Support/Programs/Self-Help-Group 


Attention Veterans! 

People who served in the armed forces may have special benefits that address their MS related needs.  For more information to see if you are eligible for specific veteran programs, contact Joyce Williams at 973-676-1000, ext. 1729 


Care Partner Support Group

Connect with other care partners, find support and share your experiences. This National MS Society support group is led by experienced volunteers who are here to help you navigate life as a care partner of a person with MS.  To learn more, click on this link:  Carepartner Support Group 


Coaching for Emerging Artists

Arts Unbound is excited to announce it has received a grant from the Kessler Foundation to provide professional development support to fifteen to twenty artists with disabilities over the next year (October 2014-September 2015).

Arts Unbound is actively recruiting new emerging artists with disabilities for the program. All the participants will be expected to commit to developing a career plan, participate in workshops and master classes, and learn how to approach galleries and retailers. Staff will conduct portfolio reviews, promote the participants’ work to galleries, boutiques, and other retailers, license works for reproduction, help artists build online portfolios, and host group art exhibits.

Artists interested in participating should contact Celene Ryan, Director of Artist Development at Arts Unbound at 973-675-2787 or cryan@artsunbound.org. You may send up to three images of work you think represents your strongest efforts. Please also share a little about yourself and your artistic goals for the next year.  


Research Participation Opportunities – you may even get a stipend!

There are several opportunities for people with MS to participate in research studies, either on site, at home or online.  Currently our website describes specific research opportunities with Columbia University, Kessler Foundation Research Center, Rutgers, The State University of NY at Buffalo and University at Albany.  Click on this link to learn about these studies: 

http://www.nationalmssociety.org/Chapters/NJM/Services-and-Support/Resources/Local-Research-Studies  

For more information about additional nationwide opportunities, click on this link: 

http://www.nationalmssociety.org/Research/Participate-in-Research-Studies/Surveys#section     


Do you have an employment question you would like answered? Are you curious about workplace disclosure, social security benefits, need a reasonable accommodation or are you thinking about returning to work? 

If so, the National MS Society has a dedicated employment specialist to answer your questions.  Feel free to pose your questions directly to this email address:  EmploymentQuestions@nmss.org.  You can expect to receive a response within 48 hours.


How to Choose the Wheeled Mobility Device that's Right for You

You can learn about how to choose a mobility device right from the comfort of your own home!  The videos are available on the National MS Society website (scroll to the bottom and both parts are there) and on YouTube.  They are equipped with closed captions. To activate the closed captions when playing the videos on YouTube, click on the CC button on the toolbar that appears below the video, and select on.

Are you looking for a low cost mobility device?  Then read the next paragraph to learn about the Chapter’s Client-to-Client Resources webpage.


Client to Client Resources

View this webpage to learn about specific durable medical equipment that is available free or low cost: 

http://www.nationalmssociety.org/Chapters/NJM/Find-Resources-and-Support/Resources/Client-to-Client-Resources 


Free Educational Programs from Pharmaceutical Companies

The National MS Society, New Jersey Metro Chapter is making this information available to you about these educational opportunities.  The National MS Society, New Jersey Metro Chapter is not sponsoring these programs. The Society has had no role in developing the content of these programs:

What: Living with MS: An informative event for people living with MS and their Care Partners

When: Tuesday, April 7th, 2014 at 6 pm

Where: The Madison Hotel, 1 Convent Road, Morristown, NJ 07960 (dinner will be served)

Speaker: Dr. Stuart Fox, The Neuroscience Center of Northern New Jersey, Morristown, NJ & a MS ambassador

RSVP: 1-866-703-6293 or GenzymePatientRSVP@ahmdirect.com

Sponsored by: Genzyme

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What: C.H.A.T. (Connecting Helping Aspiring Teaching)

When: April 8, 2015 6:30 pm (complementary dinner included)

Where: Iberia Tavern and Restaurant 80-84 Ferry St Newark

Speaker: Donna Gleason MS Lifelines Nurse

RSVP: 1-877-969-1722 mslifelines.com/liveevents

Sponsored by: EMD Serono (Rebif)

-----------------------------------------

What: Living with MS: An informative event for people living with MS and their Care Partners

When: Friday, April 10th, 2014 at 11 am

Where: High SocieTea House, 2 Old Newark Pompton Turnpike Wayne, NJ 07470

Speaker: Dr. MaryAnn Picone, Holy Name MS Center, Teaneck, NJ & a MS ambassador

RSVP: 1-866-703-6293 or GenzymePatientRSVP@ahmdirect.com

Sponsored by: Genzyme

 -----------------------------------------

What:  Ampyra - I Will Take the Next Step

When: Wednesday April 22,2014, 6:30pm

Where: Maggiano’s Little Italy, 70 Riverside Square Hackensack, NJ 07601

Speaker: Mary Ann Picone, MD Medical Director – MS Comprehensive Care Center at Holy Name

RSVP:  1-800-397-8082 or visit www.LiveAmpyraEvent.com; space is limited

Sponsored by:  Acorda

 -----------------------------------------

What: Ampyra- I Will Take the Next Step

When: Tuesday, April 21, 2015  6:30 pm

Where: Calabrias, 588 S. Livingston Ave. Livingston NJ 07039

Speaker: Krupa Pandey, MD - Barnabas MS Comprehensive Care Center

RSVP:  1-800-397-8082 or visit www.LiveAmpyraEvent.com; space is limited

Sponsored by:  Acorda

 -----------------------------------------

What:  Making sense of MS Today

When: April 22 2015,  6:45 pm (with complementary dinner included)

Where: Iberia Tavern and Restaurant 80 Ferry St, Newark

Speaker: Mark Diamond, MD

RSVP: 1-877-969-1722 mslifelines.com/liveevents

Sponsored by: EMD Serono (Rebif)

 -----------------------------------------

What: The facts on MRIs & MS

When: May 6, 2015 6:30 pm (complementary dinner included)

Where: Maggiano's Little Italy 390 Hackensack Ave,  Hackensack

Speaker: Donna Gleason MS Lifelines Nurse

RSVP: 1-877-969-1722 mslifelines.com/liveevents

Sponsored by: EMD Serono (Rebif)

 -----------------------------------------

What: Patient Empowerment Program – “Understanding MS Symptoms” / “Biogen Idec Treatments for Relapsing MS”

When: 5/7/2015 at 6:00 PM Eastern - Meal will be served.

Where: Newark Liberty International Airport Marriott, 1 Hotel Road, Newark, NJ 07114

Speaker: Gregory Anselmi, MD & Laura Rizza, Patient Advocate

RSVP: www.BiogenMSsessions.com or call 1-866-955-9999

Sponsored by:  Biogen

  ----------------------------------------- 

What: C.H.A.T. (Connecting Helping Aspiring Teaching)

When: May 13, 2015 6:30 pm (with complementary dinner included)

Where: Fleming’s Steakhouse and Wine Bar 90 The Promenade, Edgewater

Speaker: TBD

RSVP: 1-877-969-1722 mslifelines.com/liveevents

Sponsored by: EMD Serono (Rebif)

----------------------------------------- 

What:  Gilenya® Patient Programs:  Know Your Options:  A Closer Look at Gilenya® (fingolimod) and You

When:  Tuesday evenings at 7:00 pm and Thursday evenings at 10:00 pm

Where:  Speakers Direct on Line, Webinars

Speaker(s): MD's, NP's and Patient Guides

Sponsored by:  Novartis Pharmaceuticals

More information: http://www.gilenyapatientprogram.com/meetings/pdf   


Keep S'myelin - a newsletter about MS just for kids!

Keep S’myelin is a colorful, engaging, informative, and reassuring newsletter to help children and their parents talk and learn about MS together. Each issue is filled with stories, interviews, games, and activities that highlight a specific topic related to MS, as well as a special section just for parents.  To receive this newsletter, contact Lisa at the Chapter at Lisa.Torre-Janssen@nmss.org.


Walk MS Weekend – April 18 and 19

Walk MS 2015 will feature 12 unique walk sites. Register today by visiting walknjm.nationalMSsociety.org or by emailing njmwalk@nmss.org. Choose from a Saturday walk or a Sunday walk, from parks to boardwalks and more!  

Exciting News! On April 19th Toufayan Bakery will make a GUINNESS WORLD RECORDS® official attempt for the Largest Display of Sandwich Wraps at the Walk MS event at Ridgefield Park. In collaboration with volunteers from the National MS Society, Toufayan will use its line of wheat, whole wheat, flavored, and gluten-free wraps to wrap up a record, building more than 600 unique sandwich creations! It’ll be a sight to see – don’t miss it!

Bike to Create a World Free of MS!
Bike MS has something for everyone…  Don’t miss the chance to be a part of the national Bike MS cycling series. We offer both active and virtual participation so that chapter members can participate, inspire and encourage friends and family to join in one or all of our Bike MS events, whether they pedal the route or not!

  • Bike MS: Coast the Coast, May 16 & 17. Our premier cycling event offers ride lengths of 25, 50, 85 and the two-day 170-mile route along the Jersey Shore from West Long Branch to Cape May. 
  • Bike MS: Barrels and Brews (formerly Bike MS: Hops to Hops), on September 13 in Ringoes.  Choose your route length of 40 or 62 miles and pedal over the hills of the Amwell Valley. Celebrate at the Unionville Vineyard with a relaxing lunch, wine and beer.
  • Bike MS: Country Challenge on September 19 & 20 from Morristown to Whippany and back.  Route options offered are the 25, 50, 62 and the two-day 100-mile ride.  Enjoy the Saturday finish line featuring Oktoberfest food and entertainment!  

Register or learn more at: www.nationalmssociety.org/Chapters/NJM/Fundraising-Events or call 732-660-1005, press option 2


MS Rock for a Cure! 

We can't wait any longer to share this awesome event with you! We'll be partnering with the Count Basie Theatre & The Fab Faux – a Beatles tribute band – on June 13 to bring you a brand-new concert event. Are you ready to rock for a cure? For more information and to buy tickets, contact Karen at the NMSS at 201-977-6054or at karen.drzik@nmss.org   


Muckfest MS

MuckFest MS is the fun mud and obstacle 5K for everyone and it is taking place on June13 at South Mountain Reservation in West Orange.  All you need is a pair of sneakers and a sense of humor. 100% of the donations raised by participants go back to the National MS Society, so every runner can make a difference in the lives of people living with MS. You can register at www.muckfestms.com.


Annual Spring Fling for the MS Center at Holy Name Medical Center

18th Annual Spring Fashion Fling for MS

Glenpointe Marriott // Teaneck, NJ
Sunday April 26th, 2015; 11:30AM-3:30PM
Tickets $100
Fashions provided by Lord & Taylor // The Fashion Center, Ridgewood NJ
Honorary Chairperson Chris Cimino // Meteorologist, WNBC-TV
Honorary MS Ambassador // Meredith Vieira
Visit www.holyname.org/springfling for more information  


Kessler Foundation Wheelchair 10K 

What: 15th Annual Kessler Foundation WTFUSA National Wheelchair 10K Championship*

When:  Memorial Day, May 25, 2015; the Wheelchair 10K begins at 8:15am, with registration opening at 7am

Where:  Graydon Pool in Ridgewood

Click for more information and registration for the Wheelchair 10K.

*This event is one of the largest integrated races in the country, as wheelchair athletes compete on the same course, at the same time, as the runners. Racers compete for cash prizes! An extra $3,000 has been added to the cash awards, which brings the cash prize total to over $15,000 this year!


Find Us On Facebook!  https://www.facebook.com/NMSSnjm


 

 

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