Current NJ Metro Program & Service Announcements - National Multiple Sclerosis Society

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Current NJ Metro Program & Service Announcements

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Various dates and times

This information is updated the first week of every month
This page was last edited 5/2/16
 
Please read this message to:  join Coast the Coast Bike event; discover different learning opportunities (webinar about Mind and Body: A Winning Team in Stress Management); an artist opportunity, research participation, Musical Moments starring Aretha Franklin, and so much more
THANK YOU to everyone one supported Walk MS – we couldn’t have had this successful event without you! 

Join us for our next FUNdraising events-participate, volunteer, support: 
Bike MS: Coast the Coast - 25th Anniversary, May 21 & 22

http://main.nationalmssociety.org/site/TR?fr_id=27696&pg=informational&sid=13240
Musical Moments for MS - June 16
www.nationalmssociety.org/Chapters/NJM/Calendar/Programs/Musical-Moments-for-MS
Muckfest MS – June 25 & 26
www.Muckfestms.com

FREE - National MS Society and Can Do MS Webinar & Telelearning Series
2nd Tuesday of each month 8:00pm – 9:15pm EST. Reserve your spot now!

The 2016 Webinar & Telelearning Series brings together a collaboration of MS experts — to help you learn strategies to live your best life with MS. Each free webinar & telelearning program features two presenters with time for Q&A.
The May webinar:  Mind and Body: A Winning Team in Stress Management
Tuesday, May 10, 2016, 8-9:15pm
Please join David Engstrom (Clinical Psychologist) and Sue Kushner (Physical Therapist) in an interactive discussion on helping your mind and body work together to reduce and more effectively manage stress.  During this program, you will learn to recognize signs of stress, understand the relationship between stress and MS, identify the costs and benefits of stress, and implement effective coping strategies, including yoga and mindfulness. You can register from this link: https://cc.readytalk.com/cc/s/registrations/new?cid=k528ci2a4fpd#.
If you are not able to view Can Do MS webinars live, then visit Can Do MS’s webinar archives. Watch them on your own time. Visit http://www.mscando.org/webinararchive 
For a complete schedule of upcoming webinars, visit this link: http://www.nationalmssociety.org/Resources-Support/Library-Education-Programs/Telelearning-Program 

Arts Unbound is Recruiting Artists!
Arts Unbound is actively recruiting emerging artists with disabilities for their Artist Development Program. This program is for people living with disabilities who are interested in or currently pursuing a career as a professional artist. All the participants will be expected to commit to developing a career plan, participate in workshops and master classes, and learn how to approach galleries and retailers. Staff will conduct portfolio reviews, promote the participants’ work to galleries, boutiques, and other retailers, license works for reproduction, help artists build online portfolios, and host group art exhibits. 
Artists interested in participating should contact Celene Ryan, Director of Artist Development at Arts Unbound at cryan@artsunbound.org or at 973-675-2787. You may send up to three images of work that you think represents your strongest efforts. Please also share a little about yourself and your professional goals for the next year.  

NEW!  Wellness Discussion Guide for People with MS and Their Healthcare Provider
This guide is designed to ensure that people with MS and their healthcare providers have the information and materials they need to engage in effective conversations and decision-making around wellness and lifestyle interventions. You can view and download the Guide from this link:   www.nationalMSsociety.org/wellnessguide
New Jersey Metro Sponsored Wellness Classes
Click here for the listing.
The classes are held in a variety of locations throughout northern and central New Jersey; caregivers are welcome to participate with the person who has MS. Registration is required; contact the Society’s Information & Referral Center at 1-800-344-4867, email Aubrey.donovan@nmss.org. There are no fees for these classes.

NEW!!! - One Step for MS program, held at four YMCA’s, which we have formed partnerships with in New Jersey:
The National MS Society New Jersey Metro area, and the YMCA’s of Hamilton, Madison, Freehold & Old Bridge, are proud to collaborate in offering a customized wellness program for individuals with MS. The One Step program is a 12-week, 24-session wellness course designed for adults with MS. One Step aims to provide attendees with a comfortable and accessible environment to encourage empowerment via facilitated conversations, and, through therapeutic exercises, address the issues of fatigue, mobility, weakness and depression.
For more information and to register for these programs, contact the YMCA of your choice below:  
Additional MS Specific Wellness Partnerships, include the following: 
  • SWIM, Inc. (Specialized Water Interest Movement) Assists adults with muscular impairments to obtain water based therapy. Operates ten programs in nine community and YMCA pools in New Jersey, stretching from Sussex to Cape May. Each program, or chapter, run by a dedicated group of volunteers, encourages adults with Multiple Sclerosis, Post-Polio Syndrome, Parkinson’s disease, and other mobility impairments to enjoy FREE aquatic exercise in a safe and caring environment. http://www.swim-inc.org/ 
  • MS Aqua Therapy Class, Co-sponsored by Physical Therapy by the Bay and Toms River Fitness and Aquatic Center. The class is taught by a licensed Physical Therapist and consists of exercises that target strength, flexibility, balance, posture, co-ordination and functional activities. There is a $5.00 per person charge for each class attended.  A Medical Release note from your doctor is required for participation. Contact: Carol Buckwalter, 732-270-0224. 

Do you have an employment question you would like answered? Are you curious about workplace disclosure, social security benefits, need a reasonable accommodation or are you thinking about returning to work? 
If so, the National MS Society has a dedicated employment specialist to answer your questions.  Feel free to pose your questions directly to this email address:  EmploymentQuestions@nmss.org.  You can expect to receive a response within 48 hours.  

Join the MS Activist Network 
Receive updates on federal, state and local policy impacting people affected by MS. Also, you'll receive an MS Action Alert when an issue or piece of legislation calls for your immediate attention; with a few clicks you can email your public officials about why a current issue is important to you. For more information on how you can become an MS Activist contact: Mara Brough, Senior Manager, New Jersey Advocacy at mara.brough@nmss.org 

Research Participation Opportunities – you may even get a stipend!
There are several opportunities for people with MS to participate in research studies, either locally on site, at home or online. 
Currently our website describes specific research opportunities with Case Western University, CentraState Medical Center, Columbia University, Holy Name Medical Center, Kessler Foundation Research Center (some of these studies at Kessler provide stipends and/or transportation reimbursement), Rutgers, The State University of NY at Buffalo and University at Albany. There is even a study for Progressive MS (If you have progressive MS, you can help researchers learn more about MS and memory). 
Be sure to click on the link below to get the details about the each of these studies: 
http://www.nationalmssociety.org/Chapters/NJM/Services-and-Support/Resources/Local-Research-Studies

MS Staged Reading at NJPAC
What: Staged Reading of Surely Goodness and Mercy, by Chisa Hutchinson; the play is about a low-income woman from Newark who is diagnosed with MS and is having a hard time finding health care.  She befriends a young boy at the school where she works and the two friends help each other through their troubles. 
A panel discussion will take place after the performance.  The panel includes:  Stuart Cook, MD, Clinical Director of the MS Treatment and Diagnostic Center at Rutgers-NJ Medical School, Newark; Rosemary S. McGee, medical humanities faculty member at Morristown Medical Center; Dr. Ellen Anthony Moore, assistant professor of theater arts at Marymount Manhattan College; and Sharon Zucker, Dean of Guidance at NJ SEEDS.
When:  Friday, June 24th, 2016, Staged Reading begins at 7pm with a $5 admission;* panel discussion begins about 8pm with free admission. 
Where:  The Chase Room at NJ PAC, One Center Street, Newark
Sponsored by:  New Jersey Council for the Humanities, NJPAC and Newark Celebration 350 
More information:  https://njtheatrealliance.org/NJStageX-2016
*Tickets to the reading may be purchased by calling 1-888-GO-NJPAC (1-888-466-5722)or at njpac.org/events/detail/njpac-stage-exchange-the-commissions 

Holy Name Orthotic Clinic
The physical therapy department of Holy Name Medical Center offers an orthotic clinic for anyone needing to get an ankle foot orthotic or other prescribed brace; patients will be evaluated by physical and occupational therapists; orthotic vendors will be present.  The clinic is held on the second Wednesday of each month.  To make an appointment or to get more information, please call the physical therapy department at 201-833-3085.

Program in Spanish - Please share this with anyone you know who is affected by MS and also speaks Spanish!
Café con Leche 
Café con Leche es un programa gratuito de la Sociedad ofreciendo un grupo de apoyo que se reúne mensualmente por teléfono bajo la dirección de un profesional para todos los hispanohablantes afectados por la esclerosis múltiple y que quieren comunicarse con otros. Para averiguar más o inscribirse, llame al 1-800-344-4867, opción 3. 
Café con Leche is a Society program offering a free monthly professionally led telephone support group for anyone affected by MS who speaks Spanish and wants to connect with others. To learn more or to register, call 1-800-344-4867. 

Connect Through Self-help Groups 
 The New Jersey Metro Chapter sponsors more than 30 self-help groups in 14 counties. These groups bring together people who share a common life experience for support, education, and mutual aid. Members of self-help groups share a belief that positive personal change happens through individual efforts with the support of others. 
For more information about SHGs, contact Lisa at that Chapter at lisa.torre-janssen@nmss.org or at 732-508-4431. 
You can also view the Chapter website page at:  http://www.nationalmssociety.org/Chapters/NJM/Find-Resources-and-Support/Programs/Self-Help-Group

Attention Veterans!
People who served in the armed forces may have special benefits that address their MS related needs.  For more information to see if you are eligible for specific veteran programs, contact Joyce Williams at 973-676-1000, ext. 1729  

How to Choose the Wheeled Mobility Device that's Right for You
You can learn about how to choose a mobility device right from the comfort of your own home!  The videos are available on the National MS Society website (scroll to the bottom and both parts are there) and on YouTube.  They are equipped with closed captions. To activate the closed captions when playing the videos on YouTube, click on the CC button on the toolbar that appears below the video, and select on.
Are you looking for a low cost mobility device?  Then read the next paragraph to learn about the Chapter’s Client-to-Client Resources webpage.

Client to Client Resources
View this webpage to learn about specific durable medical equipment that is available free or low cost: 
http://www.nationalmssociety.org/Chapters/NJM/Find-Resources-and-Support/Resources/Client-to-Client-Resources    

Free Educational Programs from Pharmaceutical Companies
The National MS Society, New Jersey Metro Chapter is making this information available to you about these educational opportunities.  The National MS Society, New Jersey Metro Chapter is not sponsoring these programs. The Society has had no role in developing the content of these programs. 
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What:  Navigating MS
When:  Wednesday, May 4; 5:30pm registration, 6pm start; dinner and complimentary parking.
Where:  Via Veneto, 2410 Highway 35, Manasquan
Speaker:  Amos Katz, MD
RSVP: WWW.BIOGENMSKNOWLEDGE.COM or 1-866-955-9999
Sponsored by: Biogen
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What:  Listen. Learn. Live with MS
When:  Monday, May 9, 6:30pm, dinner will be provided
Where:  La Cipolina Ristorante, 16 West Main Street, Freehold
Speaker:  Amos Katz, MD
RSVP:  (866) 703-6293 or email: GenzymePatientRSVP@ahmdirect.com
Sponsored by:  Sanofi- Genzyme
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What: Listen. Learn. Live. Life with MS
When:  Wednesday, May 11th at 6 pm; dinner will be served
Where:  Fiore's Italian Restaurant, 12 Elm Street, Morristown, NJ
Speaker:  Dr. Stuart Fox, Neuroscience Center of Northern NJ, Morristown
RSVP:  1-866-703-6293 or www.mslivingevents.com
Sponsored by:  Sanofi Genzyme
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What: Beyond MS Basics
When:   Thursday, May 12, 6pm registration; 6:30pm start. Meal and complimentary parking provided.
Where:  Grand Chalet, 1377 Route 23 South, Wayne
Speaker: Karen Blitz-Shabbir, DO
RSVP:WWW.BIOGENMSKNOWLEDGE.COM or 1866-955-9999
Sponsored by: Biogen
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What:  Beyond MS Basics
When:  Thurs, May 12, 6pm reg, 6:30 dinner; free valet parking
Where:  The Grand Chalet, 1377 Route 23 South, Wayne
RSVP: 1-866-955-9999
Sponsored by:  Biogen
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What:  Listen. Learn. Live with MS
When:  Monday, May 16, 6:30, dinner will be provided
Where:  Villagio Ristorante, 100 McKinley Ave, Manahawkin
Speaker:  Amos Katz, MD
RSVP:  (866) 703-6293 or email: GenzymePatientRSVP@ahmdirect.com
Sponsored by:  Sanofi- Genzyme
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What: C.H.A.T. (Connecting Helping Aspiring Teaching) subject: “Setting Expectations and Staying the Course"
When:  Wednesday, May 18, 7pm with complementary dinner
Where: Fleming’s Steakhouse and Wine Bar, 90 The Promenade, Edgewater
Speaker: Diane Monteferrante MS Lifelines Nurse 
RSVP: 1-877-969-1722mslifelines.com/liveevents
Sponsored by: EMD Serono
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What: Listen. Learn. Live. Life with MS
When:  Wednesday, May 18, 6pm, dinner will be served
Where:  Maggiano's Little Italy, 70 Riverside Square Mall, Hackensack,
Speaker:  Dr. Mary Ann Picone, Holy Name MS Center, Teaneck, NJ
RSVP:  1-866-703-6293 or www.mslivingevents.com
Sponsored by:  Sanofi Genzyme
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What: Navigating MS
When:  Thursday, May 19, 6pm registration, 6:30pm program. Meal provided
Where: Maggianos, 70 Riverside Square Mall, Hackensack
Speaker: Karen Blitz-Shabbir, DO
RSVP: WWW.BIOGENMSKNOWLEDGE.COM     CALL 1866-955-9999
Sponsored by: Biogen
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What: C.H.A.T. (Connecting Helping Aspiring Teaching) subject: “Setting Expectations and Staying the Course "
When:   Wednesday, May 25, 12pm (lunch included)
Where: The Salt Creek Grille 1 Rockingham Row Princeton
Speaker: Kristen Whitlock MS Lifelines Nurse 
RSVP: 1-877-969-1722mslifelines.com/liveevents
Sponsored by: EMD Serono (Rebif)
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What: C.H.A.T. (Connecting Helping Aspiring Teaching) subject: “Setting Expectations and Staying the Course"
When:  Wednesday, May 25, 7pm (dinner included)
Where: Iberia Tavern and Restaurant 80-84 Ferry St, Newark
Speaker: Kim Higdon, MS Lifelines Nurse 
RSVP: 1-877-969-1722mslifelines.com/liveevents
Sponsored by: EMD Serono (Rebif)
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What: Listen. Learn. Live. Life with MS
When:  Wednesday, May 25th  at 6 pm; dinner will be served
Where:  Mohawk House, 3 South Sparta Avenue, Sparta, NJ
Speaker:  Dr. Yevgeniy Khesin, Neurologic Associated Arts, Newton
RSVP:  1-866-703-6293 or www.mslivingevents.com
Sponsored by:  Sanofi Genzyme
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What:  Medical Cannabis in NJ and MS
When:  Wednesday, June 15, 7pm
Where:  Kershaw Commons, 6000 Applewood Dr, Freehold
More Information:  856-933-8700
Sponsored by:  Compassionate Sciences Alternative Treatment Center
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What:  Medical Cannabis in NJ and MS
When:  Saturday, June 25, 12noon
Where:  Hunterdon Healthcare, 1738 Route 31N, Clinton
More Information:  856-933-8700
Sponsored by:  Compassionate Sciences Alternative Treatment Center
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What:  Gilenya® Patient Programs:  Know Your Options:  A Closer Look at Gilenya® (fingolimod) and You   
When:  Tues evenings at 7pm and Thu evenings at 10pm
Where:  Speakers Direct on Line, Webinars
Speaker(s): MD's, NP's and Patient Guides
Sponsored by:  Novartis Pharmaceuticals
More information: http://www.gilenyapatientprogram.com/meetings/pdf 

Bike MS: Coast the Coast - 25th Anniversary
This 2 day fundraising cycling event takes place on May 21 and 22, 2016, taking you from Monmouth University to Cape May!  For more details, click on this link:  http://main.nationalmssociety.org/site/TR?fr_id=27696&pg=informational&sid=13240  

Join us for our signature benefit event
Musical Moments for MS!  
What:  A concert gala with a special performance by Aretha Franklin, the Queen of Soul 
When:  Thursday, June 16, 7:30pm; reception begins at 6pm.  
Where:  the NJ PAC, Newark 
Honorees:  Kevin Cummings, President & CEO of Investors Bank, will serve as our 2016 Corporate Honoree. Our Humanitarian Honoree is Steven B. Kalafer, Chairman, Flemington Car & Truck Company.  Our Medical Honoree is Peter D. Dowling, MD, Clinical Professor, Department of Neurology & Neurosciences, Rutgers NJ Medical School.  
More Information:  Karen Drzik at 201-977-6054 or Karen.drzik@nmss.org

Join Us MuckFest® MS!  June 25 & 26, West Orange
MuckFest MS is the fun mud and obstacle 5K for everyone. Runners have a blast on mountains of mud and outrageous obstacles that spin, swing, and fling them up, down, and sideways. The event is built for laughs, but it’s also on a serious mission: to support people living with multiple sclerosis and to bring us closer to a world free of MS. 100% of participants’ fundraising dollars support the National Multiple Sclerosis Society. 
After getting dirty on the course, runners (called “muckers”) go to the Scrub Your Muck clean-up station and then head over to the MuckFestival area to grab some grub, down a beer (or soda) or two, and decide, once and for all, who had the most epic spill of the day. Children ages 4-11 get to join in the fun with a mucky, pint-sized play lot just for kids called the Lil’ Muckers free of charge.
Not u[p for getting dirty but want to be a part of the day?  Volunteer!! 
For more information or to register go to: www.Muckfestms.com

Do It Yourself Fundraising MS 
You have most likely heard about our amazing chapter events like Walk MS, Bike MS and Muckfest MS, but have you heard about DIY Fundraising MS?
With DIY Fundraising MS you get to take your talents and hobbies and turn them into a fundraising event of your own! Whether you like to play sports, host dinner parties, sell jewelry and crafts, or dance, the possibilities are endless.
No matter what your connection to MS is, we are all in the same fight to raise awareness and funds to end MS forever. Rally your friends, family and coworkers to do something about MS today! For additional information on kick-starting your DIY event contact Julie Falgiano at 732.508.4432 or julianne.falgiano@nmss.org.   

You can read the most current Chapter newsletter online from this link: http://www.nationalmssociety.org/Chapters/NJM/Stay-Informed/MS-Connection-Newsletter

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