Current NJ Metro Program & Service Announcements - National Multiple Sclerosis Society

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Current NJ Metro Program & Service Announcements

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Various dates and times

This information is updated the first week of every month
This page was last edited 6/3/15
 

Dear Friend of the NJ Metro Chapter, 

Thank you to everyone who supported our Bike MS event, Coast the Coast; we appreciate your time, attention and generosity! 

Please read this message to learn about connecting to the wide variety of local research opportunities, learning opportunities (newly diagnosed with MS, intimacy, gender differences and doctor visits), health insurance, social events and so much more! 


Newly Diagnosed with MS?

The National MS Society offers learning opportunities about the various aspects of living with MS.  You can view the opportunities online from this link:  http://www.nationalmssociety.org/Symptoms-Diagnosis/Newly-Diagnosed.

There is a unique in-person meeting in New York City:

What:  Moving Forward: An Educational Program for People Newly Diagnosed with MS

When:  Saturday, June 13, 2015, 9:30 AM - 3:00 PM

Where:  New York Law School,185 West Broadway, New York, NY 10013 

More information:  http://www.nationalmssociety.org/Chapters/NYN/Calendar/Programs/Moving-Forward-An-Educational-Program-for-People-N

Registration Required by June 8. 


Research Participation Opportunities – you may even get a stipend!

There are several opportunities for people with MS to participate in research studies, either on site, at home or online. 

Currently our website describes specific research opportunities with Columbia University, Holy Name Medical Center, Kessler Foundation Research Center (some of these studies at Kessler provide stipends and/or transportation reimbursement), Rutgers, The State University of NY at Buffalo and University at Albany. 
There is even a study for Progressive MS!  If you have progressive MS, you can help researchers learn more about MS and memory.  Be sure to click on the link below to get the details about the Progressive MS Research!
Click on this link to learn about these studies: 
http://www.nationalmssociety.org/Chapters/NJM/Services-and-Support/Resources/Local-Research-Studies


Free Chronic Disease Self-Management Workshops

What:  Workshops designed for adults age 55 and older who want to take charge of their ongoing health problem(s).  Participants will get the support they need, find practical ways to deal with pain and fatigue, discover better nutrition and exercise choices, understand new treatment options, and learn better ways to talk to their doctor and family about their health.

When:  The six-week workshops are each Wednesday from May 6th to June 10th, 2015, from 2:00 pm to 4:00 pm

Where: the Metuchen Library on 480 Middlesex Avenue, Metuchen

Sponsored by:  Quality Insights Quality Innovation Network and Metuchen Library

More information and registration:  contact Karen Hale at (732) 238-5570 ext: 2032 or khale@hqsi.org

You can also read more about the workshops from this link:  http://patch.com/new-jersey/woodbridge/new-workshops-help-those-ongoing-health-conditions-0.   


Can Do Multiple Sclerosis Upcoming Webinars - FREE! 

 2nd Tuesday of each month 8:00p.m. – 9:15p.m. EST. Reserve your spot now!

Can Do MS’s monthly webinar series offers insight from MS experts representing different medical disciplines so that participants can gain additional knowledge relating to MS.  Participants interact with a team of Can Do MS Programs Consultants, by asking questions to learn how to actively co-manage their MS from the comfort of their home.  The next webinar is listed below: 

Tuesday, June 9, 2015, 8-9:15pm
Can Do MS Webinar:  Exercising with MS

Join us live from the convenience of your home or office at no charge for an in-depth discussion on topics relating to exercise, nutrition, communication, symptom management and total health.  Our unique webinar series will provide insight from more than one MS expert, so you can gain additional knowledge relating to multiple sclerosis.  Interact with our team of Can Do MS consultants, ask questions and learn how to adopt healthy lifestyle behaviors, actively co-manage your MS and live your best life.  Register from this link:  http://www.mscando.org/multiple-sclerosis-programs/webinar-series/.

If you are not able to view Can Do MS webinars live, then please Can Do MS’s webinar archives. Watch them on your own time. Visit http://www.mscando.org/webinararchive


Tele-learning Series

What:  A series of teleconferences aimed at providing information and guidance on current matters essential to liv­ing one’s best life with MS featuring experts by phone with an online presentation and Q&A.  The remainder of the series is listed below:  

Gender Differences in MS    

Tuesday, July 21- 7 pm or

Thursday, July 23- 10pm

Preparing for MS Doctor Visits   

Tuesday, Sept. 15- 7 pm or

Thursday, Sept. 17- 10pm  

Where:  from the comfort of your own home   

Registration is required: call -1-800-344-4867 or email generalmailbox@nmss.org or register online from this link:
http://www.nationalmssociety.org/Chapters/NJM/Services-and-Support/Services/Telelearning-Series-2014-2015
You will get a call in number or web link upon registration. Register for all of them today – you will receive a reminder for each call.
Please note: all tele-learning calls are recorded and can be found on the same webpage indicated above. 


Community Health Law Project

 CHLP will help you get answers to your questions about health insurance enrollment.  If you had a life changing event that prevented you from enrolling in a health insurance program during open enrollment (November 15, 2014 – February 15, 2015), you still may be eligible to enroll.  More information can be found on the CHLP website:  http://www.chlp.org/programs.


Holy Name Orthotic Clinic

The physical therapy department of Holy Name Medical Center offers an orthotic clinic for anyone needing to get an ankle foot orthotic or other prescribed brace; patients will be evaluated by physical and occupational therapists; orthotic vendors will be present.  The clinic is held on the second Wednesday of each month.  To make an appointment or to get more information, please call the physical therapy department at 201-833-3085.


Program in Spanish - Please share this with anyone you know who is affected by MS and also speaks Spanish!

Café con Leche 
Café con Leche es un programa gratuito de la Sociedad ofreciendo un grupo de apoyo que se reúne mensualmente por teléfono bajo la dirección de un profesional para todos los hispanohablantes afectados por la esclerosis múltiple y que quieren comunicarse con otros. Para averiguar más o inscribirse, llame al 1-800-344-4867, opción 3. 
Café con Leche is a Society program offering a free monthly professionally led telephone support group for anyone affected by MS who speaks Spanish and wants to connect with others. To learn more or to register, call 1-800-344-4867. 


Connect Through Self-help Groups

The New Jersey Metro Chapter sponsors more than 30 self-help groups in 14 counties. These groups bring together people who share a common life experience for support, education, and mutual aid. Members of self-help groups share a belief that positive personal change happens through individual efforts with the support of others. 

For more information about SHGs, contact Lisa at that Chapter at lisa.torre-janssesn@nmss.org or at 732-508-4431. 

You can also view the Chapter website page at:  http://www.nationalmssociety.org/Chapters/NJM/Find-Resources-and-Support/Programs/Self-Help-Group.


Attention Veterans!

 People who served in the armed forces may have special benefits that address their MS related needs.  For more information to see if you are eligible for specific veteran programs, contact Joyce Williams at 973-676-1000, ext. 1729 


Care Partner Support Group

Connect with other care partners, find support and share your experiences. This National MS Society support group is led by experienced volunteers who are here to help you navigate life as a care partner of a person with MS.  To learn more, click on this link:  Carepartner Support Group 


Young Adults

Disability Allies and the Young Adult Social Group under the National Alliance for Mental Illness will host an upcoming event to connect young adults with and without disabilities together: 

Beach Trip to Belmar*- June 20th at 12 Noon; call Ross Yellin at 908-616-5091 for more information.

*Belmar is one of the most accessible beaches in NJ and have installed Mobi-Mats to many of its beaches.  These hard surface ramps continue down midway through the beachfront and provide universal access for anyone with a wheelchair, walking aid or baby stroller. http://www.visitbelmarnj.com/content.php?pid=2   


Displaced Homemakers in NJ

Displaced homemakers are individuals who have worked in the home for a number of years and, due to divorce, separation, death or disability of a spouse or partner, now find themselves as the primary source of household income.  In many cases, displaced homemakers may be underemployed and unable to support either themselves or their children. After having lost their primary source of financial support, displaced homemakers may need to return to the workforce. 

Learn more about New Jersey’s displaced homemakers programs and how they may help someone you know.  Please Visit http://www.state.nj.us/dcf/women/displaced/ or call 1-855-INFO-DCF (1-855-463-6323).


Do you have an employment question you would like answered? Are you curious about workplace disclosure, social security benefits, need a reasonable accommodation or are you thinking about returning to work? 

If so, the National MS Society has a dedicated employment specialist to answer your questions.  Feel free to pose your questions directly to this email address:  EmploymentQuestions@nmss.org.  You can expect to receive a response within 48 hours.


How to Choose the Wheeled Mobility Device that's Right for You

You can learn about how to choose a mobility device right from the comfort of your own home!  The videos are available on the National MS Society website (scroll to the bottom and both parts are there) and on YouTube.  They are equipped with closed captions. To activate the closed captions when playing the videos on YouTube, click on the CC button on the toolbar that appears below the video, and select on.
Are you looking for a low cost mobility device?  Then read the next paragraph to learn about the Chapter’s Client-to-Client Resources webpage.


Client to Client Resources

 View this webpage to learn about specific durable medical equipment that is available free or low cost: 
http://www.nationalmssociety.org/Chapters/NJM/Find-Resources-and-Support/Resources/Client-to-Client-Resources  


Free Educational Programs from Pharmaceutical Companies

The National MS Society, New Jersey Metro Chapter is making this information available to you about these educational opportunities.  The National MS Society, New Jersey Metro Chapter is not sponsoring these programs. The Society has had no role in developing the content of these programs:

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What:   Living With Multiple Sclerosis (MS) - An informative event for people living with MS and their care partners

When:   June 1, 6:30 PM (dinner provided)

Where: Park Avenue Events, 618 Park Avenue, Freehold, NJ 07728

Speaker:  Amos Katz, MD

RSVP:  1-866-703-6293 or GenzymePatientRSVP@ahmdirect.com

Sponsored by:  Genzyme

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What:  Biogen Idec treatments for Relapsing MS

When:  6/3/15, 6:00 pm; a modest meal will be served

Where:  The Grand Chalet, 1377 State Rt 23, Wayne, NJ 07470

Speaker:  Dr. Gregory Anselmi

RSVP:  www.BiogenMSsessions.com or call 1-866-955-9999

Sponsored by:  Biogen

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What: Quiet MS, for People with Relapsing Multiple Sclerosis

When: Wednesday, June 3rd, 6 pm

Where: Mohawk House, 3 Sparta Avenue, Sparta, NJ 07871 (dinner will be served)

Speaker: Dr. Yevgeniy Khesin, Neurologic Associated Arts, Newton, NJ; and a MS ambassador

RSVP: 1-866-703-6293 or GenzymePatientRSVP@ahmdirect.com

Sponsored by: Genzyme

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What: C.H.A.T. (Connecting Helping Aspiring Teaching): Staying Smart with Relapsing MS and Your Therapy

When: June 3, 7pm (with complementary dinner included)

Where: Fleming’s Steakhouse and Wine Bar 90 The Promenade Edgewater, NJ 07020 (201-313-9463)

Speaker: Donna Gleeson MS Lifelines Nurse

RSVP: 1-877-969-1722 mslifelines.com/liveevents

Sponsored by: EMD Serono (Rebif)

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What: C.H.A.T. (Connecting Helping Aspiring Teaching); Staying Smart with Relapsing MS and Your Therapy

When: June 10, 2015 7pm (with complementary dinner included)

Where: Iberia Tavern and Restaurant 80-84 Ferry St Newark, NJ 07105 973-344-6117

Speaker: Donna Gleeson MS Lifelines Nurse

RSVP: 1-877-969-1722 mslifelines.com/liveevents

Sponsored by: EMD Serono (Rebif)

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What: Quiet MS, for People with Relapsing Multiple Sclerosis

When: Thursday, June 11, 9:30 am

Where: Panera Bread, 165 Route 4 West, Paramus, NJ 07652 (breakfast will be served)

Speaker: Dr. Sibyl Wray, Hope Neurology Multiple Sclerosis Center, Knoxville, TN; and a MS ambassador

RSVP: 1-866-703-6293 or GenzymePatientRSVP@ahmdirect.com

Sponsored by: Genzyme

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What: Quiet MS, for People with Relapsing Multiple Sclerosis

When: Friday, June 19th, 2015 at 11:30 am

Where: High SocieTea House, 20 Old Newark Pompton Turnpike, Wayne, NJ 07470 (lunch will be served)

Speaker: Dr. MaryAnn Picone, Holy Name MS Center, Teaneck; and a MS ambassador

RSVP: 1-866-703-6293 or GenzymePatientRSVP@ahmdirect.com

Sponsored by: Genzyme

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What: Quiet MS, for People with Relapsing Multiple Sclerosis

When: Tuesday, June 23, 6 pm

Where: The Madison Hotel, 1 Convent Road, Morristown, NJ 07960 (dinner will be served)

Speaker: Dr. Stuart Fox, The Neuroscience Center of Northern New Jersey, Morristown; and a MS ambassador

RSVP: 1-866-703-6293 or GenzymePatientRSVP@ahmdirect.com

Sponsored by: Genzyme

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What:    Living With Sclerosis (MS) - An informative event for people living with MS and their care partners

When:  June 23

6:30 PM (dinner provided)

Where: Villa Romanza, 429 NJ 156, Hamilton Township, NJ

Speaker:  Amos Katz, MD

RSVP:  1-866-703-6293 or GenzymePatientRSVP@ahmdirect.com

Sponsored by:  Genzyme

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What:  MS Relapse Symptoms: Understanding your treatment choices

When:  Tuesday, June 23, 6:00pm, meal provided

Where:  Maggiano's Little Italy,  The shops at Riverside, 70 Riverside Square, Hackensack, NJ 07601

Speaker:  Dr. Mary Ann Picone

RSVP:  1-877-219-0410 program ID #3150

Sponsored by:  Mallinckrodt Pharmaceuticals

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What:  Get The Facts, MRIs and MS

When:  Wednesday, June 24, 7pm (complementary dinner included)

Where:  Fleming’s Steakhouse and Wine Bar 90 The Promenade Edgewater, NJ 07020

Speaker:  Amos Katz, MD

RSVP:  1-877-969-1722 mslifelines.com/liveevents

Sponsored by:  EMD Serono (Rebif)

 ----------------------------------------- 

What:  Quiet MS, for People with Relapsing Multiple Sclerosis

When:  Tuesday, June 25,6 pm

Where:  La Strada Ristorante, 1105 Route 10 East, Randolph, NJ 07869 (dinner will be served)

Speaker:  Dr. Stuart Fox, The Neuroscience Center of Northern New Jersey, Morristown; and a MS ambassador

RSVP:  1-866-703-6293 or GenzymePatientRSVP@ahmdirect.com

Sponsored by:  Genzyme

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What:    Living With Sclerosis (MS) - An informative event for people living with MS and their care partners

When:   Thursday, June 25 (dinner provided)

Where:  Villaggio Grill,   100 McKinley Avenue, Manahawkin , NJ

Speaker:  Amos Katz, MD

RSVP:  1-866-703-6293 or GenzymePatientRSVP@ahmdirect.com

Sponsored by:  Genzyme

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What:    Living With Multiple Sclerosis (MS) - An informative event for people living with MS and their care partners

When:    Tuesday, June 30, 6:30 PM (dinner provided)

Where: Park Avenue Events, 618 Park Avenue, Freehold, NJ 07728

Speaker:  Amos Katz, MD

RSVP:  1-866-703-6293 or GenzymePatientRSVP@ahmdirect.com

Sponsored by:  Genzyme

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What:    Living With Multiple Sclerosis (MS) - An informative event for people living with MS and their care partners

When:   Tuesday, July 14, 6:30 PM (dinner provided)

Where: Park Avenue Events, 618 Park Avenue, Freehold, NJ 07728

Speaker:  Amos Katz, MD

RSVP:  1-866-703-6293 or GenzymePatientRSVP@ahmdirect.com

Sponsored by:  Genzyme

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What:  Getting to Know Your Options

When:  Wednesday, July 15, 2015 7pm (complementary dinner included)

Where: Fiorino Ristorante 38 Maple St Summit, NJ 07901 (908-227-1900)

Speaker: TBD

RSVP: 1-877-969-1722 mslifelines.com/liveevents

Sponsored by: EMD Serono (Rebif)

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What: C.H.A.T. (Connecting Helping Aspiring Teaching) subject: Staying Motivated

When:  Wednesday, July 29, 2015 12pm (with complementary lunch included)

Where: Salt Creek Grill in Princeton Forrestal Village 1 Rockingham Row, Princeton

Speaker: Kristen Whitlock, MS Lifelines Nurse

RSVP: 1-877-969-1722 mslifelines.com/liveevents

Sponsored by: EMD Serono (Rebif)

 -----------------------------------------  

What:    Living With Sclerosis (MS) - An informative event for people living with MS and their care partners

When:  Tuesday, July 28, 6:30 PM (dinner provided)

Where: Villa Romanza, 429 NJ 156, Hamilton Township, NJ

Speaker:  Amos Katz, MD

RSVP:  1-866-703-6293 or GenzymePatientRSVP@ahmdirect.com

Sponsored by:  Genzyme

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What:    Living With Sclerosis (MS) - An informative event for people living with MS and their care partners

When:   Thursday, July 30, 6:30 PM (dinner provided)

Where:  Villaggio Grill,   100 McKinley Avenue, Manahawkin , NJ

Speaker:  Amos Katz, MD

RSVP:  1-866-703-6293 or GenzymePatientRSVP@ahmdirect.com

Sponsored by:  Genzyme

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What:  Gilenya® Patient Programs:  Know Your Options:  A Closer Look at Gilenya® (fingolimod) and You  

When:  Tuesday evenings at 7:00 pm and Thursday evenings at 10:00 pm

Where:  Speakers Direct on Line, Webinars

Speaker(s): MD's, NP's and Patient Guides

Sponsored by:  Novartis Pharmaceuticals

More information: http://www.gilenyapatientprogram.com/meetings/pdf   


Keep S'myelin - a newsletter about MS just for kids!

Keep S’myelin is a colorful, engaging, informative, and reassuring newsletter to help children and their parents talk and learn about MS together. Each issue is filled with stories, interviews, games, and activities that highlight a specific topic related to MS, as well as a special section just for parents.  To receive this newsletter, contact Lisa at the Chapter at Lisa.Torre-Janssen@nmss.org.


Bike to Create a World Free of MS!

Thank you for supporting the 2015 Bike MS: Coast the Coast!   We hope to see you at one of our September rides!  Remember, you can participate as a cyclist, virtual cyclist, volunteer, Champion or inspire someone else to ride!  Bike MS has something for everyone!!

  • Bike MS: Barrels and Brews (formerly Bike MS: Hops to Hops), on September 13 in Ringoes.  Choose your route length of 40 or 62 miles and pedal over the hills of the Amwell Valley. Celebrate at the Unionville Vineyard with a relaxing lunch, wine and beer.
  • Bike MS: Country Challenge on September 19 & 20 from Morristown to Whippany and back.  Route options offered are the 25, 50, 62 and the two-day 100-mile ride.  Enjoy the Saturday finish line featuring Oktoberfest food and entertainment!  

Register or learn more at: www.nationalmssociety.org/Chapters/NJM/Fundraising-Events or call 732-660-1005, press option 2


Muckfest MS

MuckFest MS is the fun mud and obstacle 5K for everyone and it is taking place on June13-14 at South Mountain Reservation in West Orange.  All you need is a pair of sneakers and a sense of humor. 100% of the donations raised by participants go back to the National MS Society, so every runner can make a difference in the lives of people living with MS. You can register at www.muckfestms.com

And if you don’t want to run, volunteer!  We need many hands on both Saturday and Sunday.  For more information on volunteer opportunities, contact Emily Borsetti: Emily.borsetti@nmss.org


You can read the most current Chapter newsletter online from this link:  http://www.nationalmssociety.org/Chapters/NJM/Stay-Informed/MS-Connection-Newsletter


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