Current NJ Metro Program & Service Announcements - National Multiple Sclerosis Society

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Current NJ Metro Program & Service Announcements

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Various dates and times

This information is updated the first week of every month
This page was last edited 9/9/16
 
Please read this message to:
  • discover different learning opportunities (webinar about Health Insurance, What Everyone Needs to Know); 
  • learn about research participation and advocacy opportunities (home modification survey; voter registration
  • participate in fundraisers for MS and
  • learn so much more!

Join us for our next FUNdraising events - participate, volunteer, support:  

Bike MS: Country Challenge www.BikeMSCountryChallenge.org
September 17 & 18, 2016, Morristown, NJ
25, 50, 62 and 100 mile route options
Scroll to the bottom for more information!

Dinner of Champions
September 21, 2016 at The Hanover Marriott in Whippany
Scroll to the bottom for more information!

FREE - National MS Society and Can Do MS Webinar & Telelearning Series
2nd Tuesday of each month 8:00pm – 9:15pm EST. Reserve your spot now!

The 2016 Webinar & Telelearning Series brings together a collaboration of MS experts — to help you learn strategies to live your best life with MS. Each free webinar & telelearning program features two presenters with time for Q&A.
The September Webinar:  Health Insurance: What Everyone Needs to Know
Tuesday, September 13, 2016, 8-9:15pm
Most people – with or without MS –  get health insurance from different sources as they grow from childhood to adulthood, through their working lives and beyond. Understanding how eligibility for health insurance from these different sources can impact you and your family, how and when to enroll and other key factors are especially important for people with MS to assure their continued access to care and financial security. This webinar will provide a basic overview of the different ways people with MS and their families can get and keep health insurance, how to plan for transitions (such as moving from employer-based coverage to Medicare), and what to expect as an enrollee in a private or public health insurance plan.
You can learn more and register from this link:  https://cc.readytalk.com/cc/s/registrations/new?cid=xzkjsf6lekbq.  
If you are not able to view Can Do MS webinars live, then visit Can Do MS’s webinar archives. Watch them on your own time. Visit http://www.mscando.org/webinararchive 
For a complete schedule of upcoming webinars, visit this link: http://www.nationalmssociety.org/Resources-Support/Library-Education-Programs/Telelearning-Program 

Wellness Classes - Adaptive Yoga, Tai Chi & Aquatics
Registration required, no fees, caregivers welcome; contact the Society at 1-800-344-4867, or email: patti.pasquino@nmss.org 
Wellness Discussion Guide
www.nationalMSsociety.org/wellnessguide 
For more Wellness resources, including adaptive programs  at Kessler, CentraState & YMCA’s, visit our website:  
www.nationalmssociety.org/Chapters/NJM/Calendar/Programs/Wellness-Programs 

Save the Date for the Chapter Annual Meeting
What:  Contemporary Issues in MS
When:  Sunday, November 13, 2016; breakfast to be served
Where:  The Renaissance Woodbridge Hotel 515 US-1 Iselin
Registration ($10 per person) is required; you can register from this link:  http://njmmain.nationalmssociety.org/site/Calendar?id=360567&view=Detail  
OR call 1-800-344-4867 and say, “I want to register for the NJ Metro Annual Meeting on Nov 13.” 

FREE Home Accessibility Program in Saddle Brook
What:  There’s No Place Like Home: Accessibility and Home Modification Fair
When:  Sat, Sept 24, 9-12 noon; breakfast to be served; vendors to meet!
Where:  Kessler Rehabilitation, 300 Market Street, Saddle Brook
Speakers:  Representatives from Kessler Rehabilitation; MS literature will be available
Registration is required:  http://njmmain.nationalmssociety.org/site/Calendar?id=360799&view=Detail  OR call 1-800-344-4867 and say, “I want to register for the Free Home Accessibility Program in Saddle Brook.”

Home Modification Story Collection Survey  
Have you recently considered or taken steps to make your home more accessible? Were costs of the modification a hindrance or burden?
Some states have tax credits to help people with disabilities make their homes more accessible. In New Jersey and across the country, the National MS Society and MS activists are working on home modification tax credit legislation and your story can help with these efforts.
Each of us has a story that can drive change.  Please click here to complete a short anonymous survey about your experiences with home modifications.
Link to survey: https://www.surveymonkey.com/r/PXHNGJ6   

Your Right to Vote and Polling Place Accessibility
Election Day is Tuesday, November 8.  Be sure that you have the opportunity to cast your vote.   
In recent presidential election years, only about 60% of the eligible population has voted. Currently more than 1 out of 7 eligible voters lives with a disability; yet the voter turnout rate of people with disabilities is nearly 6% lower than that of other Americans.
Whether you live with a disability or not, it is important to exercise your right to vote. Easily access registration, deadlines and voting information — alphabetical by state — here.

Join the MS Movement 
Have you met with your elected official and shared how MS affects you? Are you interested in growing this relationship to keep people with MS top of mind as he or she considers legislation? Lead the way in your community by becoming a volunteer District Activist Leader! As a District Activist Leader, you will build and foster critical relationships with the elected officials in your legislative district. You will serve as a liaison between these officials and the Society, helping to develop a reliable grassroots movement across the state and the country. Click here to apply. 

Join the MS Activist Network 
Receive updates on federal, state and local policy impacting people affected by MS. Also, you'll receive an MS Action Alert when an issue or piece of legislation calls for your immediate attention; with a few clicks you can email your public officials about why a current issue is important to you. For more information on how you can become an MS Activist contact: Mara Brough, Senior Manager, New Jersey Advocacy at mara.brough@nmss.org 

Do you have an employment question you would like answered? Are you curious about workplace disclosure, social security benefits, need a reasonable accommodation or are you thinking about returning to work? 
If so, the National MS Society has a dedicated employment specialist to answer your questions.  Feel free to pose your questions directly to this email address:  EmploymentQuestions@nmss.org.  You can expect to receive a response within 48 hours.  

The Personal Assistance Services Program (PASP) 
The PASP provides routine, non-medical assistance to adults with disabilities who are employed, involved in community volunteer work, or attending school. Personal assistants help with tasks such as: light housekeeping, bathing, dressing, preparing meals, shopping, driving or using public transportation. The total number of hours a person can receive is determined based on individual need, up to a maximum of 40 hours/week. For more information, view this webpage:  http://www.state.nj.us/humanservices/dds/projects/pasp/

 

Research Participation Opportunities – you may even get a stipend!
There are several opportunities for people with MS to participate in research studies, either locally on site, at home or online. 
Currently our website describes specific research opportunities with Case Western University, CentraState Medical Center, Columbia University, Holy Name Medical Center, Kessler Foundation Research Center (some of these studies at Kessler provide stipends and/or transportation reimbursement), Rutgers, The State University of NY at Buffalo and University at Albany. There is even a study for Progressive MS (If you have progressive MS, you can help researchers learn more about MS and memory). 
Be sure to click on the link below to get the details about the each of these studies: 
http://www.nationalmssociety.org/Chapters/NJM/Services-and-Support/Resources/Local-Research-Studies

Holy Name Orthotic Clinic
The physical therapy department of Holy Name Medical Center offers an orthotic clinic for anyone needing to get an ankle foot orthotic or other prescribed brace; patients will be evaluated by physical and occupational therapists; orthotic vendors will be present.  The clinic is held on the second Wednesday of each month.  To make an appointment or to get more information, please call the physical therapy department at 201-833-3085.

Program in Spanish - Please share this with anyone you know who is affected by MS and also speaks Spanish!

Café con Leche
Café con Leche es un programa gratuito de la Sociedad ofreciendo un grupo de apoyo que se reúne mensualmente por teléfono bajo la dirección de un profesional para todos los hispanohablantes afectados por la esclerosis múltiple y que quieren comunicarse con otros. Para averiguar más o inscribirse, llame al 1-800-344-4867, opción 3. 
Café con Leche is a Society program offering a free monthly professionally led telephone support group for anyone affected by MS who speaks Spanish and wants to connect with others. To learn more or to register, call 1-800-344-4867. 

Connect Through Self-help Groups 
The New Jersey Metro Chapter sponsors more than 30 self-help groups in 14 counties. These groups bring together people who share a common life experience for support, education, and mutual aid. Members of self-help groups share a belief that positive personal change happens through individual efforts with the support of others. 
For more information about SHGs, contact Lisa at that Chapter at lisa.torre-janssen@nmss.org or at 732-508-4431. 
You can also view the Chapter website page at:  http://www.nationalmssociety.org/Chapters/NJM/Find-Resources-and-Support/Programs/Self-Help-Group

Attention Veterans!
People who served in the armed forces may have special benefits that address their MS related needs.  For more information to see if you are eligible for specific veteran programs, contact Joyce Williams at 973-676-1000, ext. 1729  

How to Choose the Wheeled Mobility Device that's Right for You
You can learn about how to choose a mobility device right from the comfort of your own home!  The videos are available on the National MS Society website (scroll to the bottom and both parts are there) and on YouTube.  They are equipped with closed captions. To activate the closed captions when playing the videos on YouTube, click on the CC button on the toolbar that appears below the video, and select on.
Are you looking for a low cost mobility device?  Then read the next paragraph to learn about the Chapter’s Client-to-Client Resources webpage.

Client to Client Resources
View this webpage to learn about specific durable medical equipment that is available free or low cost:
http://www.nationalmssociety.org/Chapters/NJM/Find-Resources-and-Support/Resources/Client-to-Client-Resources    

Caregiver Education & Support Program in Bergen County
The Caregiver Education and Support Program provides in-home professional instruction and support to caregivers entrusted with the responsibilities of caring for someone with a chronic illness, disability, or disease. As there are no income guidelines to qualify, the caregiver must be unpaid and 18 years of age or older. Among the services available are: Nutritionists, Occupational, physical, and speech therapists, Registered nurse, Social worker. Read more about the Bergen County Caregiver Education & Support Program or call 201-336-6504.  
To learn about the variety of services for people with disabilities, in all NJ counties, go to this link:  http://www.state.nj.us/humanservices/doas/home/saaaa.html 

Arts Unbound is Recruiting Artists! 
Arts Unbound is actively recruiting emerging artists with disabilities for their Artist Development Program. This program is for people living with disabilities who are interested in or currently pursuing a career as a professional artist. All the participants will be expected to commit to developing a career plan, participate in workshops and master classes, and learn how to approach galleries and retailers. Staff will conduct portfolio reviews, promote the participants’ work to galleries, boutiques, and other retailers, license works for reproduction, help artists build online portfolios, and host group art exhibits. 
Artists interested in participating should contact Celene Ryan, Director of Artist Development at Arts Unbound at cryan@artsunbound.org or at 973-675-2787. You may send up to three images of work that you think represents your strongest efforts. Please also share a little about yourself and your professional goals for the next year. 

Free Educational Programs from Pharmaceutical Companies
The National MS Society, New Jersey Metro Chapter is making this information available to you about these educational opportunities.  The National MS Society, New Jersey Metro Chapter is not sponsoring these programs. The Society has had no role in developing the content of these programs. 
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What: Listen. Learn. Live. Life with MS
When:  Thursday, September 15th at 6 pm; dinner will be served
Where:  Ruth’s Chris Steakhouse, 1 Hilton Court, Parsippany
Speaker:  Stuart Fox, MD, Neuroscience Center of Northern NJ, Morristown
RSVP:  1-866-703-6293 or www.mslivingevents.com
Sponsored by:  Sanofi Genzyme
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What:  Empower Yourself with Rehabilitation Therapy and Exercise 
When:  Thursday, September 22; 6:30pm; a light meal will be served
Where:  Park Avenue Events, 618 Park Ave, Freehold
Speakers:  Amos Katz, MD, Medical Director of Linda Cardinale MS Center at CentraState and Herb Karpatkin, PT, DSc, NCS, MSCS, Assistant Professor Hunter College Program in Physical Therapy
RSVP:  1-800-397-8082 or visit www.msevents.com
Sponsored by:  Acorda Therapeutics
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What: Listen. Learn. Live. Life with MS
When:  Friday, September 23rd at 12 pm; lunch will be served
Where:   Il Villaggio, 651 Route 17 North, Carlstadt, NJ
Speaker:  Mary Ann Picone, MD, Holy Name MS Center, Teaneck
RSVP:  1-866-703-6293 or www.mslivingevents.com
Sponsored by:  Sanofi Genzyme
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What:  Navigating MS
When:  Friday, September 30,11:30am check in, 12pm seminar start)  lunch will be served, and self-parking available on site
Where:  Flemings Prime Steakhouse, 90 The Promenade, Edgewater
Speaker:  Mary Ann Picone, MD, Holy Name Hospital, Teaneck
RSVP:  Register by phone at 1-866-955-9999 or on website at: www.Navigating-MS.com 
Sponsored by:  Biogen
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What:  Navigating MS – A Learning session in Relapsing MS
When:  Wednesday, October 5, check in 6:30pm, program start 7pm,   dinner will be provided. Self-parking is available onsite.
Where:  Salt Creek Grille, 1 Rockingham Row, Princeton, NJ 08540
Speaker:  Roger Behar, MD - Princeton & Rutgers Neurology, Somerset and patient, Rosemarie C
RSVP:  Register by phone at 1-866-955-9999 or on website at: www.Navigating-MS.com
Sponsored by:  Biogen
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What: Navigating MS, A learning session on relapsing MS
When:  Wednesday, October 19; check-in 11:30 AM, Seminar 12noon; lunch will be provided.
Where:  La Cipollina Ristorante, 16 W Main St, Freehold
Speaker:  Amos Katz, MD; Jill K, Patient Speaker
RSVP:  1-866-955-9999; www.Navigating-MS.com 
Sponsored by:  Biogen
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What:  Staying Healthy and Fit with MS
When:  Thursday, October 20, 6:30pm; a light meal will be served
Where:  Maggiano’s Little Italy, 70 Riverside Square, Hackensack
Speakers:  Mary Ann Picone, MD Medical Director, Holy Name Hospital MS Center and Stephen Kanter, PT, DPT, ATC, Supervisor of  Rehabilitation Services International MS Management Practice
RSVP:  RSVP by Friday, October 14, 2016 at 1-800-397-8082 or visit WWW.MSEVENTS.COM
Sponsored by: Acorda Therapeutics
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What:  Gilenya® Patient Programs:  Know Your Options:  A Closer Look at Gilenya® (fingolimod) and You   
When:  Tues evenings at 7pm and Thu evenings at 10pm
Where:  Speakers Direct on Line, Webinars
Speaker(s): MD's, NP's and Patient Guides
Sponsored by:  Novartis Pharmaceuticals
More information: http://www.gilenyapatientprogram.com/meetings/pdf 

Bike MS: Country Challenge
September 17 & 18, 2016
25, 50, 62 and 100 mile route options
Morristown, NJ
www.BikeMSCountryChallenge.org
This ride offers a one or two-day cycling adventure through historic towns, pretty back roads and around the Great Swamp! Whether you are looking to ride with friends or push yourself to greater limits, Bike MS: Country Challenge is for you!  Register to ride or volunteer online at www.BikeMSCountryChallenge.org.

Dinner of Champions
Join us on September 21, 2016 at The Hanover Marriott in Whippany to celebrate 70 years of the National MS Society and to honor and recognize those who are leaders in both their corporate citizenship and community contributions. This year’s Honorees include Bayer, Rosemarie Collopy and Bonnie Higgins. For more information please contact Alexis Stone at alexis.stone@nmss.org or at 201-977-2459.

Do It Yourself Fundraising MS 
You have most likely heard about our amazing chapter events like Walk MS, Bike MS and Muckfest MS, but have you heard about DIY Fundraising MS?
With DIY Fundraising MS you get to take your talents and hobbies and turn them into a fundraising event of your own! Whether you like to play sports, host dinner parties, sell jewelry and crafts, or dance, the possibilities are endless.
No matter what your connection to MS is, we are all in the same fight to raise awareness and funds to end MS forever. Rally your friends, family and coworkers to do something about MS today! For additional information on kick-starting your DIY event contact Julie Falgiano at 732.508.4432 or julianne.falgiano@nmss.org.   

MS Centers Host Fundraisers
Linda E Cardinale in Freehold and Holy Name in Teaneck 
    
     Linda E Cardinale MS Center
     What:   An Evening in the Vineyards 
     When:    Friday, September 16, 2016, 7-10pm 
     Where:  CentraState Medical Center, 901 West Main St, Freehold
     More information: http://www.centrastatefoundation.org/An-Evening- in-the-Vineyards
     Holy Name MS Center Awards Dinner 
     What:  The 2016 MS Center Awards Reception
     When:  Thursday, October 13, 2016, 6-9pm
     Where:  Il Villaggio, Route 17, Carlstadt
     Honorees:  Bogota Savings Bank, Joseph Coccaro, President & CEO and The Winifred M. and George P. Pitkin Foundation with the Lawrence R. Inserra Leadership Award.
     More information:  www.holyname.org/msawardsreception; or contact Lisa Futterman at 201-833-3000 x3899 or futterman@holyname.org.  

Nothing Is Impossible
Nothing Is Impossible is an organization that provides assistance to people in financial need.  The organization does respond to requests from people with MS.  They are having an upcoming fundraiser:
What:  Eleventh Annual Golf Outing; The day is complete with cocktails, dinner, silent auction and 50/50
When:  Thursday, September 15, 2016
Where:  Ballyowen Golf Club in Hardyston, NJ
More details:  Click here to see the details

 

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