Current NJ Metro Program & Service Announcements - National Multiple Sclerosis Society

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Current NJ Metro Program & Service Announcements

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This information is updated the first week of every month
This page was last edited 2/1/16
 
Please read this message to meet the new Chapter President; Kiss Goodbye to MS; discover different learning opportunities: webinars about Career Change and Technology; Free From Falls, Everyday Matters; One Step, Disability program in March, research participation, WALK MS 2016 and so much more!

New Chapter President!
We welcome Lisa Gallipoli to the National MS Society!  Lisa “joined the movement” on Jan 5, 2016; she has more than 20 years of not-for-profit professional experience and most recently she served as Executive Director of the Greater New York Division of the American Liver Foundation. She has previously worked at Autism Speaks and Susan G. Komen for the Cure. She is quickly learning about MS and looks forward to meeting as many constituents as possible.

Kiss Good-Bye to MS: 
For more information about this program, click here.

You can read the most current Chapter newsletter online from this link: http://www.nationalmssociety.org/Chapters/NJM/Stay-Informed/MS-Connection-Newsletter  
You can ready the 2015 Annual report from this link:  http://www.nationalmssociety.org/NationalMSSociety/media/New-Jersey-Metro/About%20this%20Chapter/Files/2015-Annual-Report.pdf  

MS Awareness Week is in March!
March 7th to 13th  is MS Awareness Week but we will be sharing MS related activities all month! Be on the lookout for special announcements and a calendar of activities; visit the Chapter website often for updates: www.nationalmssociety.org/NJM .

FREE - National MS Society and Can Do MS Webinar & Telelearning Series
2nd Tuesday of each month 8:00pm – 9:15pm EST. Reserve your spot now! An additional session has been added in February, see the notes below!  
The 2016 Webinar & Telelearning Series brings together a collaboration of MS experts — to help you learn strategies to live your best life with MS. Each free webinar & telelearning program features two presenters with time for Q&A.
The next webinar:   
Navigating Career Change: Working with MS is Possible! 
Tuesday, February 9, 2016, 8-9:15pm
Please join Danielle Moser and Debra Heindel as they explore the challenges of working with MS. Danielle and Debra are co-authors of FOCUS: Creating Career + Brand Clarity, which outlines a very simple, easy to follow process that helps professionals gain clarity to be able to develop an entrepreneurial approach to self-marketing.  You can register from this link:  https://cc.readytalk.com/cc/s/registrations/new?cid=7jwljrbgpr99#.
The additional session in February:
Managing Your MS Symptoms with Technology
Tuesday, February 23, 2016, 8-9:15pm
Please join Mark Surabian, founder/owner of ATHelp.org and Anna Lenhart, project manager with AbleData to learn how to utilize technological solutions in the workplace.  You can register from this link:  https://cc.readytalk.com/cc/s/registrations/new?cid=g9wl8141mv92.
If you are not able to view Can Do MS webinars live, then visit Can Do MS’s webinar archives. Watch them on your own time. Visit http://www.mscando.org/webinararchive 
For a complete schedule of upcoming webinars, visit this link: http://www.nationalmssociety.org/Resources-Support/Library-Education-Programs/Telelearning-Program  

Everyday Matters - Everyone has their own idea of their best life. For people living with MS, the idea of that “best life” can change due to the challenges of having a chronic, unpredictable and lifelong disease.
What:  Everyday Matters, (everdayMSmatters.org) is an interactive national program which will uncover stories of real people facing the everyday challenges that MS can bring on the path to one’s best life, and puts positive psychology to work in your life. Participants will gain understanding about how these principles can be used as a strategy for living with MS, as well as identify community resources for support.
When:  An Exciting 6 Week Tele-Conference Program on
             Wednesdays, 6:30 – 8:00pm;
             Two different sessions to choose from:
             Feb 24, Mar 2, 9, 16, 23, 30
             OR
             May 11, 18, 25, June 1, 8, 15
Facilitator:  Luann Pierce is a licensed clinical social worker who has worked with the National MS Society in different capacities since 2007. She is an instructor for several monthly classes for volunteers and individuals, couples and family members living with MS. LuAnn also offers counseling, care management, training and groups for the CO-WY chapter. She has worked in the field of human services and mental health for three decades.
Registration Required:  Lisa Torre-Janssen at 732-508-4431 or at lisa.torre-janssen@nmss.org.  You may be put on a waitlist.

Free From Falls – a free program 
What:  Free From Falls is a comprehensive fall prevention program for people with multiple sclerosis.  The eight week program provides professional support from the Holy Name Medical Center.
When:  8 Thursdays, beginning on Thursday, March 10, 1-3pm through Thursday May 5 (no class on Thursday April 7). 
Where: HNHFitness Center: 514 Kinderkamack Road, Oradell
Registration Required: To learn more, click on this link.  To complete an application, click here.  All completed applications are to be returned to Patti at fax number 732-855-6984 or emailed to patti.pasquino@nmss.org.  

One Step Program at the Hamilton YMCA
The New Jersey Metro Chapter of the National Multiple Sclerosis Society and the Hamilton YMCA are proud to collaborate in offering a customized wellness program for individuals with MS. The One Step program is a 12-week, 24-session wellness course designed for adults with MS.
One Step aims to provide attendees with a comfortable and accessible environment to encourage empowerment via facilitated conversations, and, through therapeutic exercises, address the issues of fatigue, mobility, weakness and depression.
Please contact: Joe Fuhrman  609-581-9622 x132 or prevention@hamiltonymca.org for more information and to register for this program!
Find out if there’s a local YMCA in your area, and if they offer any adaptive exercise classes. Simply go to: http://www.njymca.org/locations/

I’m Disabled, Now What?
Navigating through the steps necessary to secure disability income benefits when your symptoms prevent you from continuing to work can be an arduous process.  It is vital to submit your claim to the insurance company with strong proof of your disability, or your claim will be denied or a decision delayed. 
You are invited to attend this workshop to learn the best way to approach filing for private disability benefits from your employer’s long term disability plan, or policy you purchased.  An open discussion will include topics of The Top Ten Basics for Filing a Successful Disability Claim, How to Interpret the Disability Policy, How to Obtain Support From Your Treating Doctor for Your Case, Typical Hazards To Avoid That Will Derail Your Claim.  The staff of Ms. Rafel’s firm will be available for this exciting evening.  A social security attorney will also be present to provide answers regarding filing a claim for SSDI benefits. 
What:  I’m Disabled, Now What
When:  Wednesday, March 30, 2016, 6-7:30pm; light refreshments will be served. 
Where:  Bonny G. Rafel LLC, 17 Hanover Road, Suite 410, Florham Park  (973)845-2600
Presented by:  the disability law firm of Bonny G. Rafel LLC (www.disabilitycounsel.com)
Registration Required:  call 1-800-344-4867 or http://njmmain.nationalmssociety.org/site/Calendar?id=356026&view=Detail

Do you have an employment question you would like answered? Are you curious about workplace disclosure, social security benefits, need a reasonable accommodation or are you thinking about returning to work?  
If so, the National MS Society has a dedicated employment specialist to answer your questions.  Feel free to pose your questions directly to this email address:  EmploymentQuestions@nmss.org.  You can expect to receive a response within 48 hours. 

Join the MS Activist Network 
Receive updates on federal, state and local policy impacting people affected by MS. Also, you'll receive an MS Action Alert when an issue or piece of legislation calls for your immediate attention; with a few clicks you can email your public officials about why a current issue is important to you. For more information on how you can become an MS Activist contact: Mara Brough, Senior Manager, New Jersey Advocacy at mara.brough@nmss.org

Exercise Training in MS:  you can receive a stipend when you participate in this current research study at Kessler in West Orange

The study examines how brain function is improved by exercise. The study involves:
  • paper tests
  • fitness testing
  • an MRI scan (two sessions: baseline and follow-up),
  • four group exercise classes at Kessler Foundation (one hour each),
  • an individualized at-home exercise program (3 days a week for 16 weeks)
  • and three one-on-one chat sessions with a personal trainer, over the phone or online.
  • Compensation is $175.
  • Eligibility: Volunteers must be between the ages of 18-64, not using an assistive device to walk (e.g., cane) and experiencing significant fatigue.
For more information, contact:  Nancy Moore, nbmoore@kesslerfoundation.org, 973-324-8450
To learn about more research participation opportunities, read the next paragraph. 

More Research about MS and Physical Activity
Studies have shown that individuals with MS report lower rates of physical activity than the general population. Research is needed to examine how to increase individual’s physical activity to improve quality of life in this population.  Researchers at Oregon State University are conducting a study to investigate the relationship of self-compassion on resilience, physical activity, and quality of life for individuals with MS. They are inviting people with MS to participate in an online survey to gather information.  
  • The survey takes approximately 20 to 30 minutes to complete.
  • If you are between the ages of 18 and 65, can communicate in English, and have a medical diagnosis of MS, you are eligible to participate in this study.  Participation in the survey is voluntary and all survey data will be de-identified.  link to participate in survey: http://oregonstate.qualtrics.com/jfe/form/SV_bCnnbuAWCJwKTgF

Research Participation Opportunities – you may even get a stipend!
There are several opportunities for people with MS to participate in research studies, either on site, at home or online. 
Currently our website describes specific research opportunities with CentraState Medical Center, Columbia University, Holy Name Medical Center, Kessler Foundation Research Center (some of these studies at Kessler provide stipends and/or transportation reimbursement), Rutgers, The State University of NY at Buffalo and University at Albany.  There is even a study for Progressive MS!  If you have progressive MS, you can help researchers learn more about MS and memory.  Be sure to click on the link below to get the details about the Progressive MS Research!
Click on this link to learn about these studies: 
http://www.nationalmssociety.org/Chapters/NJM/Services-and-Support/Resources/Local-Research-Studies

Caregiver Education & Support Program in Bergen County
The Caregiver Education and Support Program provides in-home professional instruction and support to caregivers entrusted with the responsibilities of caring for someone with a chronic illness, disability, or disease. As there are no income guidelines to qualify, the caregiver must be unpaid and 18 years of age or older. Among the services available are: Nutritionists, Occupational, physical, and speech therapists, Registered nurse, Social worker. Read more about the Bergen County Caregiver Education & Support Program or call 201-336-6504.  
To learn about the variety of services for people with disabilities, in all NJ counties, go to this link:  http://www.state.nj.us/humanservices/doas/home/saaaa.html

Holy Name Orthotic Clinic
The physical therapy department of Holy Name Medical Center offers an orthotic clinic for anyone needing to get an ankle foot orthotic or other prescribed brace; patients will be evaluated by physical and occupational therapists; orthotic vendors will be present.  The clinic is held on the second Wednesday of each month.  To make an appointment or to get more information, please call the physical therapy department at 201-833-3085.

Program in Spanish - Please share this with anyone you know who is affected by MS and also speaks Spanish! 
Café con Leche 
Café con Leche es un programa gratuito de la Sociedad ofreciendo un grupo de apoyo que se reúne mensualmente por teléfono bajo la dirección de un profesional para todos los hispanohablantes afectados por la esclerosis múltiple y que quieren comunicarse con otros. Para averiguar más o inscribirse, llame al 1-800-344-4867, opción 3. 
Café con Leche is a Society program offering a free monthly professionally led telephone support group for anyone affected by MS who speaks Spanish and wants to connect with others. To learn more or to register, call 1-800-344-4867.  

Connect Through Self-help Groups 
 The New Jersey Metro Chapter sponsors more than 30 self-help groups in 14 counties. These groups bring together people who share a common life experience for support, education, and mutual aid. Members of self-help groups share a belief that positive personal change happens through individual efforts with the support of others. 
For more information about SHGs, contact Lisa at that Chapter at lisa.torre-janssesn@nmss.org or at 732-508-4431. 
You can also view the Chapter website page at:  http://www.nationalmssociety.org/Chapters/NJM/Find-Resources-and-Support/Programs/Self-Help-Group

Attention Veterans!
People who served in the armed forces may have special benefits that address their MS related needs.  For more information to see if you are eligible for specific veteran programs, contact Joyce Williams at 973-676-1000, ext. 1729 

How to Choose the Wheeled Mobility Device that's Right for You
You can learn about how to choose a mobility device right from the comfort of your own home!  The videos are available on the National MS Society website (scroll to the bottom and both parts are there) and on YouTube.  They are equipped with closed captions. To activate the closed captions when playing the videos on YouTube, click on the CC button on the toolbar that appears below the video, and select on.
Are you looking for a low cost mobility device?  Then read the next paragraph to learn about the Chapter’s Client-to-Client Resources webpage.

Client to Client Resources
View this webpage to learn about specific durable medical equipment that is available free or low cost: 
http://www.nationalmssociety.org/Chapters/NJM/Find-Resources-and-Support/Resources/Client-to-Client-Resources   

Free Educational Programs from Pharmaceutical Companies 
The National MS Society, New Jersey Metro Chapter is making this information available to you about these educational opportunities.  The National MS Society, New Jersey Metro Chapter is not sponsoring these programs. The Society has had no role in developing the content of these programs. 
-----------------------------------------
What:  Listen. Learn. Live. Life with MS
When:  Thursday, February 4, 6pm; dinner will be served
Where: The Brick House, 179 Godwin Avenue, Wyckoff, NJ
Speaker:  Dr. Mary Ann Picone, Director, Holy Name MS Center, Teaneck
RSVP:  1-866-703-6293 or www.mslivingevents.com
Sponsored by:  Genzyme
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What: C.H.A.T. (Connecting Helping Aspiring Teaching) subject: Being Resourceful
When: February 10, 2016 12pm (complementary lunch)
Where: The Salt Creek Grille 1 Rockingham Row Princeton
Speaker: Kristen Whitlock MS Lifelines Nurse 
RSVP: 1-877-969-1722 mslifelines.com/liveevents
Sponsored by: EMD Serono (Rebif)
-----------------------------------------
What: Get the Facts, MRIs and MS
When: Wednesday, February 17, 2016 7pm (complementary dinner)
Where: Steakhouse 85, 85 Church St. New Brunswick
Speaker: Dr. Mark Diamond
RSVP: 1-877-969-1722 mslifelines.com/liveevents
Sponsored by: EMD Serono (Rebif)
-----------------------------------------
What:  Listen. Learn. Live. Life with MS
When:  Thursday, February 18, 6pm; dinner will be served
Where:  The Madison Hotel, 1 Convent Road, Morristown, NJ
Speaker:  Dr. Stuart Fox, Neuroscience Center of Northern NJ, Morristown, NJ
RSVP:  1-866-703-6293 or www.mslivingevents.com
Sponsored by:  Genzyme
-----------------------------------------
What:  Introducing Lemtrada / An MS Speaker Event
When:  Wednesday February 18, 2016 6:30pm Dinner
Where:  Panico's   103 Church St.  New Brunswick
Speaker:  Jean Bakke-Cain, NP/Lemtrada Patient Ambassador 
RSVP:  1-866-682-7502 / TR343165 code, MoreAboutMSTreatment.com
Sponsored by: Genzyme 
-----------------------------------------   
What:  Listen. Learn. Live. Life with MS
When:  Saturday, February 20,11am; lunch will be served
Where:  Ebenezer Baptist Church, 216 Fourth Street, Englewood
Speaker:  Jean Bakke-Cain, NP, Lehigh Neurology, Allentown, PA
RSVP:  1-866-703-6293 or www.mslivingevents.com
Sponsored by:  Genzyme
----------------------------------------- 
What:  Listen. Learn. Live. Life with MS
When:  Tuesday, February 23, 6:00 pm; dinner will be served
Where:  Mohawk House, 3 South Sparta Avenue Sparta, NJ
Speaker:  Dr. Yevgeny Khesin, Neurologic Arts Associated, Newton
RSVP:  1-866-703-6293 or www.mslivingevents.com
Sponsored by:  Genzyme
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What: Getting to Know Your Options
When: Wednesday, February 24, 7pm (complementary dinner)
Where: Battello, 502 Washington Blvd Jersey City
Speaker: Dr. Mark Diamond
RSVP: 1-877-969-1722 mslifelines.com/liveevents
Sponsored by: EMD Serono (Rebif)
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What:  Listen. Learn. Live. Life with MS
When:  Thursday, Feb 25th at 9:30am; breakfast will be served
Where:  Panera Bread, 165 Route 4 West, Paramus NJ
Speaker:  Dr. David Honeycutt, MS Center of Greater Orlando, FL
RSVP:  1-866-703-6293 or www.mslivingevents.com
Sponsored by:  Genzyme
----------------------------------------
What:  Beyond MS Basics
When:  Thursday, February 25, 2016, 6:00 check-in, 6:30 Seminar; Complimentary meal provided
Where:  Fiore’s Italian Restaurant,12 Elm St.  Morristown (parking across the street)
Speaker:  Krupa Pandey, MD and a patient advocate
RSVP:  www.biogenmsknowledge.com or call 1-866-955-9999
Sponsored by:  Biogen
---------------------------------------- 
What: C.H.A.T. (Connecting Helping Aspiring Teaching) subject: Setting Expectations and Staying the Course
When: Wednesday, March 23, 2016 7pm; complementary dinner
Where: Fleming’s Steakhouse and Wine Bar, 90 The Promenade Edgewater
Speaker: Donna Gleeson MS Lifelines Nurse 
RSVP: 1-877-969-1722 mslifelines.com/liveevents
Sponsored by: EMD Serono (Rebif)
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What:  Beyond MS Basics
When:  Thursday, March 24, 2016, 6pm Registration; meal and speaker at 6:30pm. Free Parking.
Where:  Hyatt Morristown. 3 Speedwell Ave., Morristown
Speaker:  Krupa Pandey, MD
RSVP: 1-866-955-9999
Sponsored by: Biogen 
----------------------------------------  
What: C.H.A.T. (Connecting Helping Aspiring Teaching) subject: Setting Expectations and Staying the Course
When:  Wednesday, March 30, 2016 12pm (with complementary lunch included)
Where: The Salt Creek Grille 1 Rockingham Row Princeton
Speaker: Kristen Whitlock MS Lifelines Nurse 
RSVP: 1-877-969-1722 mslifelines.com/liveevents
Sponsored by: EMD Serono (Rebif)
----------------------------------------  
What: C.H.A.T. (Connecting Helping Aspiring Teaching) subject: Setting Expectations and Staying the Course
When: Wednesday, March 30, 2016 7pm (with complementary dinner included)
Where: Iberia Tavern and Restaurant 80-84 Ferry St Newark
Speaker: Donna Gleeson MS Lifelines Nurse 
RSVP: 1-877-969-1722 mslifelines.com/liveevents
Sponsored by: EMD Serono (Rebif)
----------------------------------------  
What:  Gilenya® Patient Programs:  Know Your Options:  A Closer Look at Gilenya® (fingolimod) and You   
When:  Tues evenings at 7pm and Thu evenings at 10pm
Where:  Speakers Direct on Line, Webinars
Speaker(s): MD's, NP's and Patient Guides
Sponsored by:  Novartis Pharmaceuticals
More information: http://www.gilenyapatientprogram.com/meetings/pdf

Walk MS Weekend 2016!
We are happy to announce Walk MS 2016 registration is now open! The NJ Metro Chapter will be hosting 11 walks across northern and central NJ on April 16 & 17, 2016. Walk MS is a great opportunity to make connections, change lives, and raise funds to support local programs and cutting-edge research. Here is a list of walk sites, dates and locations. For more information about the walks or to register, click the links below. You can also visit WalkMS.org or email NJMWalk@nmss.org for additional information. (Note, WalkMS.org works best when viewing in Firefox or Chrome browsers). We look forward to seeing you at Walk MS 2016!
Saturday, April 16, 2016
Walk MS: Readington, Solberg Airport
Walk MS: Clark, Oak Ridge Park
Walk MS: Seaside Boardwalk, Seaside Park
Walk MS: Jersey City, Liberty State Park
Sunday, April 17, 2016
Walk MS: Ridgefield Park, Overpeck County Park
Walk MS: Roxbury, Horseshoe Lake Recreation Complex
Walk MS: West Orange, Orange Reservoir
Walk MS: North Brunswick, Parsons Elementary School
Walk MS: Hamilton, Veterans Park
Walk MS: Lake Como, Bar Anticipation
Walk MS: Manalapan, Battlefield State Park

Do It Yourself Fundraising MS 
You have most likely heard about our amazing chapter events like Walk MS, Bike MS and Muckfest MS, but have you heard about DIY Fundraising MS?
With DIY Fundraising MS you get to take your talents and hobbies and turn them into a fundraising event of your own! Whether you like to play sports, host dinner parties, sell jewelry and crafts, or dance, the possibilities are endless.
No matter what your connection to MS is, we are all in the same fight to raise awareness and funds to end MS forever. Rally your friends, family and coworkers to do something about MS today! For additional information on kick-starting your DIY event contact Julie Falgiano at 732.508.4432 or julianne.falgiano@nmss.org.   

You can read the most current Chapter newsletter online from this link: http://www.nationalmssociety.org/Chapters/NJM/Stay-Informed/MS-Connection-Newsletter

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