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Current NJ Metro Program & Service Announcements

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Details

Various dates and times

This information is updated the first week of every month
This page was last edited 12/6/16
 

Please read this message to:  

  • Walk MS!  Register at www.walkms.org or email NJMWalk@nmss.org

  • College scholarship applications

  • Sleep and MS webinar

  • Research participation and advocacy opportunities (home modification survey and tax credits; Make MS medications accessible);  

  • So much more.

For more Wellness resources, including adaptive programs at Kessler, CentraState and YMCAs, visit our website:  
www.nationalmssociety.org/Chapters/NJM/Calendar/Programs/Wellness-Programs  
Wellness Discussion Guide from the National MS Society -
www.nationalMSsociety.org/wellnessguide  

Time to Flip the Switch - Bright Lights to Fight MS!
Mike and Carol Cook decided to join the movement in their own creative way by hosting Christmas Lights for MS! They decorate their house with synchronized lights and holiday music that brings joy to their community while raising funds for the MS Society. “This charity is very important to us because our son was diagnosed with MS at the age of 13, in 2009. Last year, we raised over $5,800 and hope to beat that amount in 2016,” said the Cooks. “Not only do we enjoy raising money for MS, we also love spreading the holiday cheer and try to greet every person that comes by to see the show.” You can view this spectacular light show at 1 Carlson Court, Jackson, NJ; the light show will run nightly until Jan1, Sun-Thurs, 6:00-10:00, Fri & Sat, 6:00- 11:00.  All donations are greatly appreciated!  If donating by check, please make check payable to the National Multiple Sclerosis Society.

Home Modification Tax Credits in NJ
We support efforts to provide home modification tax credits. These tax credits allow people living with physical disabilities caused by multiple sclerosis (MS) or other circumstances such as age, disease or result of an injury the ability to afford to modify their homes resulting in improved accessibility, increased safety, and much-needed independence. The National MS Society is supporting a bill in New Jersey, Senate Bill 2657 that would create a tax credit up to $2,500 to modify/retrofit an existing home. Please click here to write your legislator today and ask him/her to cosponsor this legislation.  

Make MS Medications Accessible
Medications-and the process for getting them – must be affordable, simple and transparent.  It is time for change!  Learn more from this link: http://www.nationalmssociety.org/Treating-MS/Medications/Make-MS-Medications-Accessible.   

Join the MS Activist Network  
Receive updates on federal, state and local policy impacting people affected by MS. Also, you'll receive an MS Action Alert when an issue or piece of legislation calls for your immediate attention; with a few clicks you can email your public officials about why a current issue is important to you. For more information on how you can become an MS Activist contact: Mara Brough, Senior Manager, New Jersey Advocacy at mara.brough@nmss.org    

Do you have an employment question you would like answered? Are you curious about workplace disclosure, social security benefits, need a reasonable accommodation or are you thinking about returning to work? 
If so, the National MS Society has a dedicated employment specialist to answer your questions.  Feel free to pose your questions directly to this email address:  EmploymentQuestions@nmss.org.  You can expect to receive a response within 48 hours.     

The Personal Assistance Services Program (PASP) 
The PASP provides routine, non-medical assistance to adults with disabilities who are employed, involved in community volunteer work, or attending school. Personal assistants help with tasks such as: light housekeeping, bathing, dressing, preparing meals, shopping, driving or using public transportation. The total number of hours a person can receive is determined based on individual need, up to a maximum of 40 hours/week. For more information, view this webpage: http://www.state.nj.us/humanservices/dds/projects/pasp/ 

Research Participation Opportunities – you may even get a stipend!
There are several opportunities for people with MS to participate in research studies, either locally on site, at home or online. 
Currently our website describes specific research opportunities with Case Western University, CentraState Medical Center, Columbia University, Holy Name Medical Center, Kessler Foundation Research Center (some of these studies at Kessler provide stipends and/or transportation reimbursement), Rutgers, The State University of NY at Buffalo and University at Albany. There is even a study for Progressive MS (If you have progressive MS, you can help researchers learn more about MS and memory). 
Be sure to click on the link below to get the details about the each of these studies: 
http://www.nationalmssociety.org/Chapters/NJM/Services-and-Support/Resources/Local-Research-Studies

Holy Name Orthotic Clinic 
The physical therapy department of Holy Name Medical Center offers an orthotic clinic for anyone needing to get an ankle foot orthotic or other prescribed brace; patients will be evaluated by physical and occupational therapists; orthotic vendors will be present.  The clinic is held on the second Wednesday of each month.  To make an appointment or to get more information, please call the physical therapy department at 201-833-3085. 

Program in Spanish - Please share this with anyone you know who is affected by MS and also speaks Spanish!
Café con Leche 
Café con Leche es un programa gratuito de la Sociedad ofreciendo un grupo de apoyo que se reúne mensualmente por teléfono bajo la dirección de un profesional para todos los hispanohablantes afectados por la esclerosis múltiple y que quieren comunicarse con otros. Para averiguar más o inscribirse, llame al 1-800-344-4867, opción 3. 
Café con Leche is a Society program offering a free monthly professionally led telephone support group for anyone affected by MS who speaks Spanish and wants to connect with others. To learn more or to register, call 1-800-344-4867. 

Connect Through Self-help Groups 
The New Jersey Metro Chapter sponsors more than 30 self-help groups in 14 counties. These groups bring together people who share a common life experience for support, education, and mutual aid. Members of self-help groups share a belief that positive personal change happens through individual efforts with the support of others. 
For more information about SHGs, contact Lisa at that Chapter at lisa.torre-janssen@nmss.org or at 732-508-4431. 
You can also view the Chapter website page at: http://www.nationalmssociety.org/Chapters/NJM/Find-Resources-and-Support/Programs/Self-Help-Group 

Attention Veterans! 
People who served in the armed forces may have special benefits that address their MS related needs.  For more information to see if you are eligible for specific veteran programs, contact Joyce Williams at 973-676-1000, ext. 1729   

How to Choose the Wheeled Mobility Device that's Right for You
You can learn about how to choose a mobility device right from the comfort of your own home!  The videos are available on the National MS Society website (scroll to the bottom and both parts are there) and on YouTube.  They are equipped with closed captions. To activate the closed captions when playing the videos on YouTube, click on the CC button on the toolbar that appears below the video, and select on.

Caregiver Education & Support Program in Bergen County
The Caregiver Education and Support Program provides in-home professional instruction and support to caregivers entrusted with the responsibilities of caring for someone with a chronic illness, disability, or disease. As there are no income guidelines to qualify, the caregiver must be unpaid and 18 years of age or older. Among the services available are: Nutritionists, Occupational, physical, and speech therapists, Registered nurse, Social worker. Read more about the Bergen County Caregiver Education & Support Program or call 201-336-6504.  
To learn about the variety of services for people with disabilities, in all NJ counties, go to this link: http://www.state.nj.us/humanservices/doas/home/saaaa.html  

Arts Unbound is Recruiting Artists! 
Arts Unbound is actively recruiting emerging artists with disabilities for their Artist Development Program. This program is for people living with disabilities who are interested in or currently pursuing a career as a professional artist. All the participants will be expected to commit to developing a career plan, participate in workshops and master classes, and learn how to approach galleries and retailers. Staff will conduct portfolio reviews, promote the participants’ work to galleries, boutiques, and other retailers, license works for reproduction, help artists build online portfolios, and host group art exhibits. 
Artists interested in participating should contact Celene Ryan, Director of Artist Development at Arts Unbound at cryan@artsunbound.org or at 973-675-2787. You may send up to three images of work that you think represents your strongest efforts. Please also share a little about yourself and your professional goals for the next year.

Free Educational Programs from Pharmaceutical Companies
The National MS Society, New Jersey Metro Chapter is making this information available to you about these educational opportunities.  The National MS Society, New Jersey Metro Chapter is not sponsoring these programs. The Society has had no role in developing the content of these programs. 
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What: Staying Healthy and Fit with MS
When: Thursday, December 1, 2016 6:30 PM A light meal will be served
Where: Charlie Brown’s Fresh Grill, 167 W Main Street, Denville, NJ  07834
Speaker: Mary Ann Picone, MD Medical Director, Holy Name Hospital MS Center, Jared Hoover, PT, DPT, MSCS, Doctor of Physical Therapy
RSVP: RSVP by Monday, November 28, 2016 1-800-397-8082 or visit WWW.MSEVENTS.COM
Sponsored by: Acorda Therapeutics
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What: Financial Wellness and MS
When: Monday, December 5, 2016 at 12:00 pm; a light meal will be served
Where: Salt Creek Grille, Princeton Forrestal Village (along U.S. Route 1 next to the Westin) One Rockingham Row, Princeton, NJ 08540 (609)419-4200
Speaker: Caren Marks, MD- Neurologist at the Linda E. Cardinale MS Center at CentraState
RSVP:  1-800-397-8082 or visit www.msevents.com
Sponsored by Acorda Therapeutics, Inc.
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What: Importance of Adherence and Long Term Management
When: Tuesday, December 6th, 2016 6:30 PM A light meal will be served
Where: Michael’s Riverside, 528 Riverside Avenue, Lyndhurst, NJ  07071
Speaker: Krupa Pandey, MD Staff Neurologist, Barnabas Health
Stephen Kanter, PT, DPT, ATC, Supervisor of Rehabilitation Services International MS Management Practice
RSVP: RSVP by Thursday, December 1, 2016 1-800-397-8082 or visit WWW.MSEVENTS.COM
Sponsored by: Acorda Therapeutics
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What: Financial Wellness and MS
When: Wednesday, December 7, 2016 at 6:30 pm; a light meal will be served
Where: Via Veneto, 2410 Route 35, Manasquan, NJ 08736 (732) 722-8458
Speaker: Roger Behar, MD Neurologist at Princeton Rutgers Neurology
RSVP:  1-800-397-8082 or visit www.msevents.com
Sponsored by Acorda Therapeutics, Inc.

WALK MS 2017 -  Registration Open!
11 walk locations across northern and central NJ
   Saturday, April 29, 2017
   Liberty State Park, Jersey City
   Oak Ridge Park, Clark
   Solberg Airport, Readington
   Boardwalk, Seaside Park
   
   Sunday, April 30, 2017

   Overpeck County Park, Ridgefield Park
   Horseshoe Lake Recreation Complex, Roxbury
   Orange Reservoir, West Orange
   Veterans Park, North Brunswick
   Battlefield State Park, Manalapan
   Bar Anticipation, Lake Como
   Veterans Park, Hamilton

For more information or to register, visit www.walkms.org or email NJMWalk@nmss.org

Registration for Bike MS: Coast the Coast is now open!
Join us on May 20th and 21st as we embark on an unforgettable journey along the Jersey Shore. Choose one of five routes and enjoy breathtaking coastal views while passing through seaside towns on flat terrain. With 1,500 cyclists of all ages and riding abilities by your side, you'll experience an incredible level of camaraderie on a ride filled with laughter, excitement, support and a profound sense of accomplishment. Register online at http://www.bikemscoastthecoast.org or call (732)-660-1005.

MUCKFEST returns to New Jersey this June!
Everyone who registers for the event by December 31 will receive this Free “Mudproof” Cell Phone holder as a special gift!   Register today and join the fun – whether it’s your first time or your sixth time – we know you’ll have a MUCKING good time supporting the MS Society.
MuckFest2017
Registration Link:
http://main.nationalmssociety.org/site/PageServer?pagename=HOM_MUCK_MuckFest_info_newjersey 

Do it Yourself Fundraising MS
With DIY Fundraising MS you get to take your talents and hobbies and turn them into a fundraising event of your own! Whether you like to play sports, host dinner parties, sell jewelry and crafts, or dance, the possibilities are endless.
No matter what your connection to MS is, we are all in the same fight to raise awareness and funds to end MS forever. Rally your friends, family and coworkers to do something about MS today! For details on how to kick-start your DIY fundraiser contact Julie Falgiano at 732.508.4432 or julianne.falgiano@nmss.org.
Old Bridge & Freehold: contact Lisa McGovern at 732-727-0704 ext.301 or lmcgovern@ymcanj.org Website:  http://ymcanj.org/
Find out if there’s a local YMCA in your area, and if they offer any adaptive exercise classes. Simply go to: http://www.njymca.org/locations/ Madison:  contact Joe Gonsalves at 973-822-9622 x2242 or jgonsalves@madisonymca.org  Website: http://www.madisonareaymca.org/ Fanwood-Scotch Plains: contact Donna Peart at 908-889-8880 x104 or  dpeart@fspymca.org  Website: http://fspymca.org/

Register today for Walk MS! 
Eleven locations throughout NJ on the weekend of April 29-30, 2017
Scroll through this message to read about the 11 walk locations or click on this link:  www.walkms.org 

Scholarship Program - Apply Now (deadline is Jan 18, 2017)!
MS shouldn’t stand in the way of an education. This is why the National MS Society's scholarship program exists — to help highly qualified students who have been diagnosed with MS or who have a parent with MS achieve their dreams of going to college.
Applications are accepted online only; the deadline is January 18, 2017. Please note - eligibility requirements have changed. For eligibility details and to apply for a scholarship, click on this link:  http://www.nationalmssociety.org/Resources-Support/Insurance-and-Financial-Information/Financial-Resources/Scholarship-Program/Scholarship-Program-Information.   

FREE - National MS Society and Can Do MS Webinar & Telelearning Series
2nd Tuesday of each month 8:00pm – 9:15pm EST. Reserve your spot now!
The 2016 Webinar & Telelearning Series brings together a collaboration of MS experts — to help you learn strategies to live your best life with MS. Each free webinar & telelearning program features two presenters with time for Q&A.
The December Webinar: Sleep and MS: Strategies for Improving Your Zzz's
Tuesday, December 13, 2016, 8-9:15pm 
Sleep disturbance is a common and often troubling symptom among individuals with multiple sclerosis. Whether it’s getting too little sleep, sleeping too much, or having poor sleep quality, problems with sleep significantly impact quality of life for people with MS and their loved  ones. Please join clinical psychologist Abbey J. Hughes, PhD and nurse practitioner Stephanie Buxhoeveden, MSCN, MSN, FNP-BC as they discuss a variety of approaches for assessing and managing sleep disturbance in MS. They will respond to your questions and concerns while sharing real life examples pertaining to sleep in MS. This webinar will provide a unique opportunity for individuals with MS, as well as their friends, family members, and caregivers, to learn strategies and acquire resources to facilitate improvements in sleep.
You can learn more and register from this link:  https://cc.readytalk.com/registration/#/?meeting=vdc5ihsdnhu1&campaign=jkzzppj7eqdx  
If you are not able to view Can Do MS webinars live, then visit Can Do MS’s webinar archives. Watch them on your own time. Visit http://www.mscando.org/webinararchive 
For a complete schedule of upcoming webinars, visit this link:http://www.nationalmssociety.org/Resources-Support/Library-Education-Programs/Telelearning-Program   

Wellness
One Step for MS program - the National MS Society New Jersey Metro area, and the YMCA’s listed below, are proud to collaborate in offering a customized wellness program for individuals with MS. The One Step program is a 12-week, 24-session wellness course designed for adults with MS. One Step aims to provide attendees with a comfortable and accessible environment to encourage empowerment via facilitated conversations, and, through therapeutic exercises, address the issues of fatigue, mobility, weakness and depression. For more information and to register for these programs, contact the YMCA of your choice below:  
Hamilton: contact Janice Nastasi at  609-581-9622 orjnastasi@hamiltonymca.org
Website: www.hamiltonymca.org/locations/jkr-branch

You can read the most current Chapter newsletter online from this link: http://www.nationalmssociety.org/Chapters/NJM/Stay-Informed/MS-Connection-Newsletter  

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