Current NJ Metro Program & Service Announcements - National Multiple Sclerosis Society

Skip to navigation Skip to content

Current NJ Metro Program & Service Announcements

Share

Details

Various dates and times

This information is updated the first week of every month
This page was last edited 8/5/15
 

Dear Friend of the NJ Metro Chapter, 

Please read this message to learn about Wellness classes, research participation and learning opportunities (managing the transitions in MS, doctor visits), Bike MS, fundraising and volunteer opportunities and so much more! 


Fall Wellness Session Begins September 2015

Participate in one of the Chapter Sponsored Wellness classes including: 

  • Yoga
  • Tai Chi
  • Aquatics 

Classes are offered throughout northern and central New Jersey and are free to attend. Registration starts on August 17th! Call 1-800-344-4867 or email aubrey.donovan@nmss.org for more information and to register for a class!

Hamilton YMCA – One Step Program
The New Jersey Metro Chapter of the National Multiple Sclerosis Society and the Hamilton YMCA are proud to announce a collaborative effort in developing a customized wellness program for individuals with MS. The One Step program is a 12-week, 24-session course designed for adults with MS. One Step aims to provide attendees with a comfortable and accessible environment to encourage empowerment via facilitated conversations, and, through therapeutic exercises, address the issues of fatigue, mobility, weakness and depression.  Please contact: Joe Fuhrman  609-581-9622 x132 or prevention@hamiltonymca.org for more information and to register for this program! 

Joe Fuhrman, director of Member Activities and Healthy Living from the Hamilton area YMCA will address a Chapter self-help group on Tuesday, August 4, 7pm at the Robbinsville Senior Center.  He will discuss this program. 


Join the MS Activist Network 

Receive updates on federal, state and local policy impacting people affected by MS. Also, you'll receive an MS Action Alert when an issue or piece of legislation calls for your immediate attention; with a few clicks you can email your public officials about why a current issue is important to you. For more information on how you can become an MS Activist contact: Mara Brough, Senior Manager, New Jersey Advocacy at mara.brough@nmss.org


Research Participation Opportunities – you may even get a stipend!

There are several opportunities for people with MS to participate in research studies, either on site, at home or online. 

Currently our website describes specific research opportunities with CentraState Medical Center, Columbia University, Holy Name Medical Center, Kessler Foundation Research Center (some of these studies at Kessler provide stipends and/or transportation reimbursement), Rutgers, The State University of NY at Buffalo and University at Albany. 

There is even a study for Progressive MS!  If you have progressive MS, you can help researchers learn more about MS and memory.  Be sure to click on the link below to get the details about the Progressive MS Research!

Click on this link to learn about these studies: 
http://www.nationalmssociety.org/Chapters/NJM/Services-and-Support/Resources/Local-Research-Studies  


Can Do Multiple Sclerosis Upcoming Webinars - FREE! 

2nd Tuesday of each month 8:00p.m. – 9:15p.m. EST. Reserve your spot now!

Can Do MS’s monthly webinar series offers insight from MS experts representing different medical disciplines so that participants can gain additional knowledge relating to MS.  Participants interact with a team of Can Do MS Programs Consultants, by asking questions to learn how to actively co-manage their MS from the comfort of their home.  The next webinar is listed below: 

Tuesday, August 11, 2015, 8:00 – 9:15pm
Can Do MS Webinar:  Taking Charge of Your MS Transitions: A Solution Focused Approach

Presented by David Rintell, EdD & Mandy Rohrig, PT, DPT
In this webinar, you will learn to identify four important transitions that occur among individuals and loves ones who live with multiple sclerosis. Join Psychologist David Rintell and Physical Therapist Mandy Rohrig who will offer practical, solution focused strategies to help you and your loved ones successfully manage these transitions. 

Register from this link: https://cc.readytalk.com/cc/s/registrations/new?cid=gkdz1b4itlfk

If you are not able to view Can Do MS webinars live, then please Can Do MS’s webinar archives. Watch them on your own time. Visit http://www.mscando.org/webinararchive


Tele-learning Series

What:  A series of teleconferences aimed at providing information and guidance on current matters essential to liv­ing one’s best life with MS featuring experts by phone with an online presentation and Q&A.  The remainder of the series is listed below:    

Preparing for MS Doctor Visits   

Tuesday, Sept. 15- 7 pm or

Thursday, Sept. 17- 10pm   

Where:  from the comfort of your own home   

Registration is required: call -1-800-344-4867 or email generalmailbox@nmss.org or register online from this link:

http://main.nationalmssociety.org/site/Calendar?id=334143&view=Detail

You will get a call in number or web link upon registration. Register today – you will receive a reminder for the call.

Please note: all tele-learning calls are recorded and can be found by clicking here.


MS Patient Program in memory of Dr. Joseph Herbert, Founder and Director of the Barnabas MS Care Center, 2003-2014 

What:  Patient program 

When:  Thursday, October 29, 5:30 pm 

Where:  Barnabas Health Ambulatory Care Center,  

200 South Orange Avenue, Livingston, Conference Room A/B

Speakers:  Ilya Kister, MD and Krupa Pandey, MD 

   Dr. Kister who will discuss the legacy of Dr. Herbert as a  

   pioneering MS clinician and researcher and Dr. Pandey who

   will provide updates on the latest MS treatments. 

RSVP Required: by Oct 19 - Email at Teamlink@barnabashealth.org or call 1-888-724-7123 

Sponsored by:  Barnabas Health


Community Health Law Project

CHLP will help you get answers to your questions about health insurance enrollment.  If you had a life changing event that prevented you from enrolling in a health insurance program during open enrollment (November 15, 2014 – February 15, 2015), you still may be eligible to enroll.  More information can be found on the CHLP website:  http://www.chlp.org/programs


Holy Name Orthotic Clinic

The physical therapy department of Holy Name Medical Center offers an orthotic clinic for anyone needing to get an ankle foot orthotic or other prescribed brace; patients will be evaluated by physical and occupational therapists; orthotic vendors will be present.  The clinic is held on the second Wednesday of each month.  To make an appointment or to get more information, please call the physical therapy department at 201-833-3085.


Program in Spanish - Please share this with anyone you know who is affected by MS and also speaks Spanish!

Café con Leche 
Café con Leche es un programa gratuito de la Sociedad ofreciendo un grupo de apoyo que se reúne mensualmente por teléfono bajo la dirección de un profesional para todos los hispanohablantes afectados por la esclerosis múltiple y que quieren comunicarse con otros. Para averiguar más o inscribirse, llame al 1-800-344-4867, opción 3. 

Café con Leche is a Society program offering a free monthly professionally led telephone support group for anyone affected by MS who speaks Spanish and wants to connect with others. To learn more or to register, call 1-800-344-4867.  


Connect Through Self-help Groups 

The New Jersey Metro Chapter sponsors more than 30 self-help groups in 14 counties. These groups bring together people who share a common life experience for support, education, and mutual aid. Members of self-help groups share a belief that positive personal change happens through individual efforts with the support of others. 

For more information about SHGs, contact Lisa at that Chapter at lisa.torre-janssesn@nmss.org or at 732-508-4431. 

You can also view the Chapter website page at:  http://www.nationalmssociety.org/Chapters/NJM/Find-Resources-and-Support/Programs/Self-Help-Group


Attention Veterans!

People who served in the armed forces may have special benefits that address their MS related needs.  For more information to see if you are eligible for specific veteran programs, contact Joyce Williams at 973-676-1000, ext. 1729 


Care Partner Support Group

Connect with other care partners, find support and share your experiences. This National MS Society support group is led by experienced volunteers who are here to help you navigate life as a care partner of a person with MS.  To learn more, click on this link:  Carepartner Support Group  


Caregiver Education & Support Program in Bergen County

The Caregiver Education and Support Program provides in-home professional instruction and support to caregivers entrusted with the responsibilities of caring for someone with a chronic illness, disability, or disease. As there are no income guidelines to qualify, the caregiver must be unpaid and 18 years of age or older. Among the services available are: Nutritionists, Occupational, physical, and speech therapists, Registered nurse, Social worker. 

Read more about the Bergen County Caregiver Education & Support Program or call 201-336-6504.  Other counties that have similar programs include:  

Morris: Call Main number - 973-285-6848

Ocean: Call Board of Social Services - 732-349-1200

Somerset: Visiting Nursing Association - 908-766-0180 ext. 110

For information in other counties, contact the county Office for Disability Services in the specified county; you can find the county list at this link:  http://www.nj.gov/humanservices/dds/home/cntyofficeindex.html


Young Adults

Disability Allies will host an upcoming event to connect young adults with and without disabilities together: 

What:  A bowlathon

When:  on Sunday, August 9,1pm

Where:  Brunswick Zone, 1 Carolier Lane, N. Brunswick

More information:  Call Ross Yellin at 908-616-5091 


Displaced Homemakers in NJ

Displaced homemakers are individuals who have worked in the home for a number of years and, due to divorce, separation, death or disability of a spouse or partner, now find themselves as the primary source of household income.  In many cases, displaced homemakers may be underemployed and unable to support either themselves or their children. After having lost their primary source of financial support, displaced homemakers may need to return to the workforce. 

Learn more about New Jersey’s displaced homemakers programs and how they may help someone you know.  Please Visit http://www.state.nj.us/dcf/women/displaced/ or call 1-855-INFO-DCF (1-855-463-6323).


Do you have an employment question you would like answered? Are you curious about workplace disclosure, social security benefits, need a reasonable accommodation or are you thinking about returning to work?

If so, the National MS Society has a dedicated employment specialist to answer your questions.  Feel free to pose your questions directly to this email address:  EmploymentQuestions@nmss.org.  You can expect to receive a response within 48 hours. 


How to Choose the Wheeled Mobility Device that's Right for You

You can learn about how to choose a mobility device right from the comfort of your own home!  The videos are available on the National MS Society website (scroll to the bottom and both parts are there) and on YouTube.  They are equipped with closed captions. To activate the closed captions when playing the videos on YouTube, click on the CC button on the toolbar that appears below the video, and select on.
Are you looking for a low cost mobility device?  Then read the next paragraph to learn about the Chapter’s Client-to-Client Resources webpage.


Client to Client Resources

View this webpage to learn about specific durable medical equipment that is available free or low cost: 
http://www.nationalmssociety.org/Chapters/NJM/Find-Resources-and-Support/Resources/Client-to-Client-Resources 


Free Educational Programs from Pharmaceutical Companies

 The National MS Society, New Jersey Metro Chapter is making this information available to you about these educational opportunities.  The National MS Society, New Jersey Metro Chapter is not sponsoring these programs. The Society has had no role in developing the content of these programs. 

What: Quieting MS Quietly

When:  Monday, August 3rd, 9:30 am; breakfast will be served

Where:  Panera Bread, 165 Route 4 West (Kohl's Plaza) Paramus

Speaker:  Dr. Gary Clauser, Lehigh Neurology, Allentown, PA

RSVP:  1-866-703-6293 or www.mslivingevents.com

Sponsored by:  Genzyme

----------------------------------------- 

What:  Ready to learn more about Relapsing MS?

When:  Monday, August 3, 12:30pm; complementary meal

Where:  Seasons 52, 217 Lafayette Ave, Edison

Speaker:  Gary Clauser, MD, Lehigh Neurology

RSVP: 866-703-6293; Meeting Code: TR303480 (1239833)

Sponsored by: Genzyme

----------------------------------------- 

What:  Ready to learn about Relapsing MS?

When:  Tuesday, August 4, 6:30pm

Where:  Ponte Vecchio, 3863 Highway 516 East, Old Bridge

Speaker:  Roger Behar, MD & Devin Friedlander, MD, Princeton & Rutgers Neurology

RSVP:  866-703-6293; Meeting Code: TR306787

Sponsored by: Genzyme

----------------------------------------- 

What: Quieting MS Quietly

When:  Wednesday, August 5, 6:00 pm; dinner will be served

Where:  La Strada Ristorante, 1105 Route 10, Randolph

Speaker:  Stuart Fox, MS, Neuroscience Center of Northern NJ, Morristown

RSVP:  1-866-703-6293 or www.mslivingevents.com

Sponsored by:  Genzyme

-----------------------------------------

What: C.H.A.T. (Connecting Helping Aspiring Teaching) subject: “Staying Smart with Relapsing MS and Your Therapy

When: Wednesday, August 5, 7pm (complementary dinner)

Where: Fleming’s Steakhouse and Wine Bar, 90 The Promenade, Edgewater

Speaker: Donna Gleeson MS Lifelines Nurse

RSVP: 1-877-969-1722 mslifelines.com/liveevents

Sponsored by: EMD Serono (Rebif)

----------------------------------------- 

What: Quieting MS Quietly

When:  Thursday, August 6th at 12:30 pm; lunch will be served

Where:  Don Pepe, 58 Route 46 West, Pine Brook

Speaker:  Dr. Andy Woo, Santa Monica Neurology, Santa Monica, CA

RSVP:  1-866-703-6293 or www.mslivingevents.com

Sponsored by:  Genzyme

----------------------------------------- 

What: Quieting MS Quietly

When:  Wednesday, August 12th at 6:00 pm; dinner will be served

Where: Fire & Oak, 100 Chestnut Ridge Road, Montvale

Speaker:  Mary Ann Picone, MD, Holy Name MS Center, Teaneck

RSVP:  1-866-703-6293 or www.mslivingevents.com

Sponsored by:  Genzyme

----------------------------------------- 

What: C.H.A.T. (Connecting Helping Aspiring Teaching) subject: Staying Smart with Relapsing MS and Your Therapy

When: Wednesday, August 12, 7pm (complementary dinner)

Where: Iberia Tavern and Restaurant 80-84 Ferry St Newark

Speaker: Donna Gleeson MS Lifelines Nurse

RSVP: 1-877-969-1722 mslifelines.com/liveevents

Sponsored by: EMD Serono (Rebif)

----------------------------------------- 

What:  MS relapse symptoms and understanding your treatment choices  

Date:   Wednesday, August 12; check in 5:30 PM; meal provided

Location: Mohawk House 71 Sparta Ave., Sparta, NJ 07871

Speaker: Mary Ann Picone, MD

RSVP:  1877219–0410 or visit WWW.MS relapseprogram.com  program ID number 3217

Sponsored by Mallinckrodt Pharmaceuticals

----------------------------------------- 

What: Quieting MS Quietly

When:  Tuesday, August 25, 6:00 pm; dinner will be served (tentative-look for date online)

Where:  Mohawk House, 3 South Sparta Avenue Sparta

Speaker:  Dr. Yevgeniy Khesin, Neurologic Arts Associated, Newton

RSVP:  1-866-703-6293 www.mslivingevents.com

Sponsored by:  Genzyme

----------------------------------------- 

What:  Ready to learn more about Relapsing MS?

When:  Monday, August 31, 12:30pm; complementary meal

Where:  Bertucci’s, 899 St: George’s Ave, Woodbridge Twp

Speaker:  Gary Clauser, MD, Lehigh Neurology

RSVP: 866-703-6293; Meeting Code: TR303484 (1242299)

Sponsored by: Genzyme

----------------------------------------- 

What:  C.H.A.T. (Connecting Helping Aspiring Teaching) subject: “Taking Care of Yourself”

When:  Wednesday, September 9, 12pm (complementary lunch)

Where:  Maggiano’s Little Italy 390 Hackensack Ave Hackensack

Speaker:  Donna Gleeson MS Lifelines Nurse

RSVP:  1-877-969-1722 mslifelines.com/liveevents

Sponsored by:  EMD Serono (Rebif)

----------------------------------------- 

What:  Beyond MS Basics

When:  Thursday, Sept 17, Check in: 6pm, Seminar: 6:30-8:30pm

Where:  Hyatt Morristown, 3 Speedwell Avenue, Morristown

Speaker: Krupa S. Pandey, MD, Barnabas MS Comprehensive MS Center, Livingston

Register at: 1-866-955-9999

Sponsored By: Biogen Idec

----------------------------------------- 

What: C.H.A.T. (Connecting Helping Aspiring Teaching) subject:      “Taking Care of Yourself”

When: September 30,12pm (complementary lunch)

Where: Salt Creek Grill in Princeton Forrestal Village,1 Rockingham

      Row Princeton

Speaker: Kristen Whitlock MS Lifelines Nurse

RSVP: 1-877-969-1722 mslifelines.com/liveevents

Sponsored by: EMD Serono (Rebif)

----------------------------------------- 

What:  Gilenya® Patient Programs:  Know Your Options:  A Closer Look at Gilenya® (fingolimod) and You  

When:  Tues evenings at 7:00 pm and Thu evenings at 10:00 pm

Where:  Speakers Direct on Line, Webinars

Speaker(s): MD's, NP's and Patient Guides

Sponsored by:  Novartis Pharmaceuticals

More information: http://www.gilenyapatientprogram.com/meetings/pdf    


Keep S'myelin - a newsletter about MS just for kids!

Keep S’myelin is a colorful, engaging, informative, and reassuring newsletter to help children and their parents talk and learn about MS together. Each issue is filled with stories, interviews, games, and activities that highlight a specific topic related to MS, as well as a special section just for parents.  To receive this newsletter, contact Lisa at the Chapter at Lisa.Torre-Janssen@nmss.org


Cocktails for a Cure

Join us on Tuesday, September 29th at 7:00pm as we say good-bye to summer at the National MS Society Cocktails for a Cure “Boardwalk” themed Cocktail Party at Maritime Parc in Jersey City! This last hurrah of summer will feature boardwalk inspired treats, food, beverages and a silent auction. Additionally, our chapter will feature and honor attendees who are committed to ending Multiple Sclerosis, forever. These attendees, or our “MS Stars,” include advocates, corporations, researchers, doctors, MS Champions and volunteers. For more information or to purchase tickets visit our Cocktails For A Cure 2015 website or contact Alexis Stone – alexis.stone@nmss.org or 201-977-2459.


Bike to Create a World Free of MS!

  • Bike MS: Barrels and Brews (formerly Bike MS: Hops to Hops), on September 13 in Ringoes.  Choose your route length of 40 or 62 miles and pedal over the hills of the Amwell Valley. Celebrate at the Unionville Vineyard with a relaxing lunch, wine and beer.
  • Bike MS: Country Challenge on September 19 & 20 from Morristown to Whippany and back.  Route options offered are the 25, 50, 62 and the two-day 100-mile ride.  Enjoy the Saturday finish line featuring Oktoberfest food and entertainment!  

Register or learn more at: www.nationalmssociety.org/Chapters/NJM/Fundraising-Events or call 732-660-1005, press option 2


You can read the most current Chapter newsletter online from this link:  http://www.nationalmssociety.org/Chapters/NJM/Stay-Informed/MS-Connection-Newsletter 

Find Us on Social Media! 

Facebook - New           Twitter - new            Instagram - new            YouTube Button

 

Share


Chapter HomeReturn to list