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Current NJ Metro Program & Service Announcements



Various dates and times

This information is updated the first week of every month
This page was last edited 10/6/16
Please read this message to:   
  •  discover different learning opportunities (webinar about Supporting Family and Friends with MS) including the Chapter Annual Meeting: Contemporary Issues in MS
  •  learn about research participation and advocacy opportunities (home modification survey; voter registration; Make MS medications accessible); 
  • participate in fundraisers for MS and
  • learn so much more

FREE - National MS Society and Can Do MS Webinar & Telelearning Series
 2nd Tuesday of each month 8:00pm – 9:15pm EST. Reserve your spot now!
The 2016 Webinar & Telelearning Series brings together a collaboration of MS experts — to help you learn strategies to live your best life with MS. Each free webinar & telelearning program features two presenters with time for Q&A.
The October Webinar:  Together in MS: Supporting Family and Friends of People with MS
Tuesday, October 11, 2016, 8-9:15pm
Presented by Rosalind Kalb, Ph.D. & Amanda Rohrig, OTR
Multiple sclerosis not only affects the person with MS, but it also impacts all those who care about and provide support for the person living with the disease. Anyone in this important role experiences a variety of emotions and concerns when adapting to the challenges MS brings to their lives.   Please join psychologist Rosalind Kalb, PhD and physical therapist Mandy Rohrig, PT, DPT as they talk to you and each other about ways that support partners can take care of their own wellness while providing care and support to a partner.
You can learn more and register from this link:   
If you are not able to view Can Do MS webinars live, then visit Can Do MS’s webinar archives. Watch them on your own time. Visit 
For a complete schedule of upcoming webinars, visit this link:  

Wellness Classes - Adaptive Yoga, Tai Chi & Aquatics
Registration required, no fees, caregivers welcome; contact the Society at 1-800-344-4867, or email: 
Wellness Discussion Guide 
For more Wellness resources, including adaptive programs  at Kessler, CentraState & YMCA’s, visit our website:  
Registration is now taking place for the Kessler MS Wellness Program in Saddle Brook.  Click here for complete details!

Save the Date for the Chapter Annual Meeting
What:  Contemporary Issues in MS
When:  Sunday, November 13, 2016; breakfast to be served
Where:  The Renaissance Woodbridge Hotel 515 US-1 Iselin
Registration ($10 per person) is required; you can register from this  link:  OR call 1-800-344-4867 and say, “I want to register for the NJ Metro Annual Meeting on Nov 13.”  

Home Modification Story Collection Survey  
Have you recently considered or taken steps to make your home more accessible? Were costs of the modification a hindrance or burden?
Some states have tax credits to help people with disabilities make their homes more accessible. In New Jersey and across the country, the National MS Society and MS activists are working on home modification tax credit legislation and your story can help with these efforts.
Each of us has a story that can drive change.  Please click here to complete a short anonymous survey about your experiences with home modifications.
Link to survey:     

Your Right to Vote and Polling Place Accessibility
Election Day is Tuesday, November 8.  Be sure that you have the opportunity to cast your vote.  In recent presidential election years, only about 60% of the eligible population has voted. Currently more than 1 out of 7 eligible voters lives with a disability; yet the voter turnout rate of people with disabilities is nearly 6% lower than that of other Americans.  Whether you live with a disability or not, it is important to exercise your right to vote. Easily access registration, deadlines and voting information — alphabetical by state — here

Make MS Medications Accessible
Medications-and the process for getting them – must be affordable, simple and transparent.  It is time for change!  Learn more from this link:  

Join the MS Movement 
Have you met with your elected official and shared how MS affects you? Are you interested in growing this relationship to keep people with MS top of mind as he or she considers legislation? Lead the way in your community by becoming a volunteer District Activist Leader! As a District Activist Leader, you will build and foster critical relationships with the elected officials in your legislative district. You will serve as a liaison between these officials and the Society, helping to develop a reliable grassroots movement across the state and the country. Click here to apply.  

Join the MS Activist Network  
 Receive updates on federal, state and local policy impacting people affected by MS. Also, you'll receive an MS Action Alert when an issue or piece of legislation calls for your immediate attention; with a few clicks you can email your public officials about why a current issue is important to you. For more information on how you can become an MS Activist contact: Mara Brough, Senior Manager, New Jersey Advocacy  

Do you have an employment question you would like answered? Are you curious about workplace disclosure, social security benefits, need a reasonable accommodation or are you thinking about returning to work? 
If so, the National MS Society has a dedicated employment specialist to answer your questions.  Feel free to pose your questions directly to this email address:  You can expect to receive a response within 48 hours.   

MS Patient Program in Livingston 
What:  MS Patient Program (in memory of Dr. Joseph Herbert, founder and Director of the MS Care Center 2003-2014)
When:  Thursday, November 17, 6pm (Registration at 5:30pm); light refreshments will be served
Where:  The MS Center at the RWJBH Ambulatory Care Center, 200 South Orange Ave, Livingston, Conference Room A/B
Speaker:  Stuart Cook, MD, Ruth Dunietz Kushner and Michael Jay Serwitz Professor of Neurology/Neurosciences at Rutgers, The State University of New Jersey
Remarks given by:  Krupa Pandey, MD and Ilya Kister, MD
Registration Required:  by November 7, call Teamlink at 888-724-7123

The Personal Assistance Services Program (PASP) 
 The PASP provides routine, non-medical assistance to adults with disabilities who are employed, involved in community volunteer work, or attending school. Personal assistants help with tasks such as: light housekeeping, bathing, dressing, preparing meals, shopping, driving or using public transportation. The total number of hours a person can receive is determined based on individual need, up to a maximum of 40 hours/week. For more information, view this webpage: 

Research Participation Opportunities – you may even get a stipend!
There are several opportunities for people with MS to participate in research studies, either locally on site, at home or online. 
Currently our website describes specific research opportunities with Case Western University, CentraState Medical Center, Columbia University, Holy Name Medical Center, Kessler Foundation Research Center (some of these studies at Kessler provide stipends and/or transportation reimbursement), Rutgers, The State University of NY at Buffalo and University at Albany. There is even a study for Progressive MS (If you have progressive MS, you can help researchers learn more about MS and memory). 
 Be sure to click on the link below to get the details about the each of these studies:

Holy Name Orthotic Clinic 
The physical therapy department of Holy Name Medical Center offers an orthotic clinic for anyone needing to get an ankle foot orthotic or other prescribed brace; patients will be evaluated by physical and occupational therapists; orthotic vendors will be present.  The clinic is held on the second Wednesday of each month.  To make an appointment or to get more information, please call the physical therapy department at 201-833-3085. 

Program in Spanish - Please share this with anyone you know who is affected by MS and also speaks Spanish!
Café con Leche 
Café con Leche es un programa gratuito de la Sociedad ofreciendo un grupo de apoyo que se reúne mensualmente por teléfono bajo la dirección de un profesional para todos los hispanohablantes afectados por la esclerosis múltiple y que quieren comunicarse con otros. Para averiguar más o inscribirse, llame al 1-800-344-4867, opción 3. 
Café con Leche is a Society program offering a free monthly professionally led telephone support group for anyone affected by MS who speaks Spanish and wants to connect with others. To learn more or to register, call 1-800-344-4867.   

Connect Through Self-help Groups 
The New Jersey Metro Chapter sponsors more than 30 self-help groups in 14 counties. These groups bring together people who share a common life experience for support, education, and mutual aid. Members of self-help groups share a belief that positive personal change happens through individual efforts with the support of others. 
For more information about SHGs, contact Lisa at that Chapter at or at 732-508-4431. 
You can also view the Chapter website page at: 

Attention Veterans!
People who served in the armed forces may have special benefits that address their MS related needs.  For more information to see if you are eligible for specific veteran programs, contact Joyce Williams
at 973-676-1000, ext. 1729   

How to Choose the Wheeled Mobility Device that's Right for You
You can learn about how to choose a mobility device right from the comfort of your own home!  The videos are available on the National MS Society website (scroll to the bottom and both parts are there) and onYouTube.  They are equipped with closed captions. To activate the closed captions when playing the videos on YouTube, click on the CC button on the toolbar that appears below the video, and select on.
Are you looking for a low cost mobility device?  Then read the next paragraph to learn about the Chapter’s Client-to-Client Resourceswebpage. 

Client to Client Resources
View this webpage to learn about specific durable medical equipment that is available free or low cost:     

Caregiver Education & Support Program in Bergen County
The Caregiver Education and Support Program provides in-home professional instruction and support to caregivers entrusted with the responsibilities of caring for someone with a chronic illness, disability, or disease. As there are no income guidelines to qualify, the caregiver must be unpaid and 18 years of age or older. Among the services available are: Nutritionists, Occupational, physical, and speech therapists, Registered nurse, Social worker. Read more about the Bergen CountyCaregiver Education & Support Program or call 201-336-6504.  
To learn about the variety of services for people with disabilities, in all NJ counties, go to this link:  

Arts Unbound is Recruiting Artists! 
Arts Unbound is actively recruiting emerging artists with disabilities for their Artist Development Program. This program is for people living with disabilities who are interested in or currently pursuing a career as a professional artist. All the participants will be expected to commit to developing a career plan, participate in workshops and master classes, and learn how to approach galleries and retailers. Staff will conduct portfolio reviews, promote the participants’ work to galleries, boutiques, and other retailers, license works for reproduction, help artists build online portfolios, and host group art exhibits. 
Artists interested in participating should contact Celene Ryan, Director of Artist Development at Arts Unbound at or at 973-675-2787. You may send up to three images of work that you think represents your strongest efforts. Please also share a little about yourself and your professional goals for the next year.

 Free Educational Programs from Pharmaceutical Companies
The National MS Society, New Jersey Metro Chapter is making this information available to you about these educational opportunities.  The National MS Society, New Jersey Metro Chapter is not sponsoring these programs. The Society has had no role in developing the content of these programs. 
What:  Navigating MS – A Learning session in Relapsing MS
When:  Wednesday, October 5, check in 6:30pm, program start 7pm, dinner will be provided. Self-parking is available onsite.
Where:  Salt Creek Grille, 1 Rockingham Row, Princeton
Speaker:  Roger Behar, MD - Princeton & Rutgers Neurology, Somerset and patient, Rosemarie C
RSVP:  Register by phone at 1-866-955-9999 or on website
Sponsored by:  Biogen
What: Listen. Learn. Live. Life with MS
When:  Monday, October 10th at 6 pm; dinner will be served
Where:  Fiore's Italian Restaurant, 12 Elm Street, Morristown, NJ
Speaker:  Dr. Stuart Fox, Neuroscience Center of Northern NJ, Morristown
RSVP:  1-866-703-6293 or Sponsored by:  Sanofi Genzyme
What:  Tysabri, the Importance of Staying on Therapy
When:  Friday, October 14,12:30pr Registration 1pm Start; lunch and parking provided
Where:  Iberia Tavern and Restaurant,  82 Ferry St, Newark
Speaker:  Gregory Anselmi, MD; Jennifer P, Patient
RSVP:  Register by phone at  1866-955-9999 or on website at: 
Sponsored by:  Biogen 
What:  Navigating MS, A Learning Session on Relapsing MS
When:  Saturday, October 15, 11:30am registration 12pm Start
Brunch and parking provided
Where:  Fresco.  15 Church Street  Montclair
Speaker:  Gregory Anselmi, MD; Jill K, Patient
RSVP:  Register by phone at  1-866-955-9999 or on website at:
Sponsored by:  Biogen 
What: Navigating MS, A learning session on relapsing MS
When:  Wednesday, October 19; check-in 11:30 AM, Seminar 12noon; lunch will be provided.
Where:  La Cipollina Ristorante, 16 W Main St, Freehold
Speaker:  Amos Katz, MD; Jill K, Patient Speaker
RSVP:  1-866-955-9999; 
Sponsored by:  Biogen
What: Listen. Learn. Live. Life with MS
When:  Thursday, October 20, 6 pm; dinner will be served
Where:  Don Pepe Steakhouse, 58 Route 46 West, Pine Brook, NJ
Speaker:  Dr. Krupa Pandey, MS Comprehensive Care Center at RWJ Barnabas Health, Livingston, NJ
RSVP:  1-866-703-6293 or
Sponsored by:  Sanofi Genzyme 
What:  Staying Healthy and Fit with MS
When:  Thursday, October 20, 6:30pm; a light meal will be served
Where:  Maggiano’s Little Italy, 70 Riverside Square, Hackensack
Speakers:  Mary Ann Picone, MD Medical Director, Holy Name Hospital MS Center and Stephen Kanter, PT, DPT, ATC, Supervisor of  Rehabilitation Services International MS Management Practice
RSVP:  RSVP by Friday, October 14, 2016 at 1-800-397-8082 or visit WWW.MSEVENTS.COM 
Sponsored by: Acorda Therapeutics
What: Listen. Learn. Live. Life with MS
When:  Monday, October 24,12 pm; lunch will be served
Where:   Bonefish Grill, 601 From Road, Paramus, NJ
Speaker:  Dr. Gary Clauser, MS Center at Lehigh Neurology, Allentown, PA
RSVP:  1-866-703-6293 or Sponsored by:  Sanofi Genzyme
What: MS from All Angles
When:  Thursday, October 27, 6 pm; dinner will be served
Where:   Chart House, Lincoln Harbor, Pier D-T, 1700 Harbor Boulevard, Weehawken
Speaker:  Dr. Mary Ann Picone, MS Center at Holy Name Hospital, Teaneck, & a Nutritionist
RSVP:  1-866-703-6293 or Sponsored by:  Sanofi Genzyme 
What:  Gilenya® Patient Programs:  Know Your Options:  A Closer Look at Gilenya® (fingolimod) and You   
When:  Tues evenings at 7pm and Thu evenings at 10pm
Where:  Speakers Direct on Line, Webinars
Speaker(s): MD's, NP's and Patient Guides
Sponsored by:  Novartis Pharmaceuticals
More information:  

Do it Yourself Fundraising MS
You have most likely heard about our amazing chapter events like Walk MS, Bike MS and Muckfest MS, but have you heard about DIY Fundraising MS?
With DIY Fundraising MS you get to take your talents and hobbies and turn them into a fundraising event of your own! Whether you like to play sports, host dinner parties, sell jewelry and crafts, or dance, the possibilities are endless.
No matter what your connection to MS is, we are all in the same fight to raise awareness and funds to end MS forever. Rally your friends, family and coworkers to do something about MS today! For additional information on kick-starting your DIY event contact Julie Falgiano at 732.508.4432 or   

Holy Name MS Center Awards Dinner 
What:  The 2016 MS Center Awards Reception
When:  Thursday, October 13, 2016, 6-9pm
Where:  Il Villaggio, Route 17, Carlstadt
Honorees:  Bogota Savings Bank, Joseph Coccaro, President & CEO and The Winifred M. and George P. Pitkin Foundation with the Lawrence R. Inserra Leadership Award.
More information:; or contact Lisa Futterman at 201-833-3000 x3899 or  

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