Current NJ Metro Program & Service Announcements - National Multiple Sclerosis Society

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Current NJ Metro Program & Service Announcements

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Various dates and times

This information is updated the first week of every month
This page was last edited 8/1/16
 
Please read this message to:
  • discover different learning opportunities (webinar about Anxiety and Exercise in MS);
  • research participation;
  • advocacy opportunities (home modification survey) and
  • and so much more!

Join us for our next FUNdraising events - participate, volunteer, support: 
Bike MS: Country Challenge www.BikeMSCountryChallenge.org
September 17 & 18, 2016
25, 50, 62 and 100 mile route options
Morristown, NJ
Scroll to the bottom for more information!
Dinner of Champions
September 21, 2016 at Maritime Parc, Jersey City
Scroll to the bottom for more information!

FREE - National MS Society and Can Do MS Webinar & Telelearning Series
2nd Tuesday of each month 8:00pm – 9:15pm EST. Reserve your spot now!

The 2016 Webinar & Telelearning Series brings together a collaboration of MS experts — to help you learn strategies to live your best life with MS. Each free webinar & telelearning program features two presenters with time for Q&A.
The August Webinar:  Workout Your Worries: Anxiety and Exercise in MS
Tuesday, August 9, 2016, 8-9:15pm
If you live with MS, you are twice as likely to experience anxiety and mood disorders. In fact, up to 60% of people with MS experience low mood or depression, and up to 40% experience anxiety. Mood issues can be caused by the disease process itself or by the challenges and stressors that arise from managing a chronic condition. Changes in mood can interfere with important relationships with friends, family members, co-workers, and your health care team. Recognition and acknowledgement of mood issues lead to strategies for management. While medications and talk therapy are important strategies for helping with mood challenges, emerging scientific evidence suggests that exercise may be equally as effective. Aerobic exercise such as cycling and walking, as well as stretching activities such as yoga, may help to manage mood. 
Please join psychologist Meghan Beier, Ph.D., and a physical therapist Mandy Rohrig, PT, DPT, for an honest interactive conversation about recognition of mood changes and ways to management mood with physical activity.
You can learn more and register from this link:  https://cc.readytalk.com/cc/s/registrations/new?cid=f9zlwmet50q9
If you are not able to view Can Do MS webinars live, then visit Can Do MS’s webinar archives. Watch them on your own time. Visit http://www.mscando.org/webinararchive 
For a complete schedule of upcoming webinars, visit this link: http://www.nationalmssociety.org/Resources-Support/Library-Education-Programs/Telelearning-Program 

Save the Date for the Chapter Annual Meeting
What:  Contemporary Issues in MS
When:  Sunday, November 13, 2016; breakfast to be served
Where:  The Renaissance Woodbridge Hotel 515 US-1 Iselin
Registration will be open after Labor Day ($10 per person); visit the website often at www.nationalMSsociety.org/NJM.  

Home Modification Story Collection Survey 
Have you recently considered or taken steps to make your home more accessible? Were costs of the modification a hindrance or burden?
Some states have tax credits to help people with disabilities make their homes more accessible. In New Jersey and across the country, the National MS Society and MS activists are working on home modification tax credit legislation and your story can help with these efforts.
Each of us has a story that can drive change.  Please click here to complete a short anonymous survey about your experiences with home modifications.
Link to survey: https://www.surveymonkey.com/r/PXHNGJ6  

Join the MS Movement 
Have you met with your elected official and shared how MS affects you? Are you interested in growing this relationship to keep people with MS are front of mind as he or she considers legislation? Lead the way in your community by becoming a volunteer District Activist Leader!  As a District Activist Leader, you will build and foster critical relationships with the elected officials in your legislative district. You will serve as a liaison between these officials and the Society, helping to develop a reliable grassroots movement across the state and the country. Click here to apply.  

Join the MS Activist Network 
Receive updates on federal, state and local policy impacting people affected by MS. Also, you'll receive an MS Action Alert when an issue or piece of legislation calls for your immediate attention; with a few clicks you can email your public officials about why a current issue is important to you. For more information on how you can become an MS Activist contact: Mara Brough, Senior Manager, New Jersey Advocacy at mara.brough@nmss.org 

NEW!  Wellness Discussion Guide for People with MS and Their Healthcare Provider
This guide is designed to ensure that people with MS and their healthcare providers have the information and materials they need to engage in effective conversations and decision-making around wellness and lifestyle interventions. You can view and download the Guide from this link:   www.nationalMSsociety.org/wellnessguide
One Step for MS program, held at four YMCA’s, which we have formed partnerships with in New Jersey:
The National MS Society New Jersey Metro area, and the YMCA’s of Hamilton, Madison, Freehold & Old Bridge, are proud to collaborate in offering a customized wellness program for individuals with MS. The One Step program is a 12-week, 24-session wellness course designed for adults with MS. One Step aims to provide attendees with a comfortable and accessible environment to encourage empowerment via facilitated conversations, and, through therapeutic exercises, address the issues of fatigue, mobility, weakness and depression.
For more information and to register for these programs, contact the YMCA of your choice below:  
Additional MS Specific Wellness Partnerships, include the following: 
  • SWIM, Inc. (Specialized Water Interest Movement) Assists adults with muscular impairments to obtain water based therapy. Operates ten programs in nine community and YMCA pools in New Jersey, stretching from Sussex to Cape May. Each program, or chapter, run by a dedicated group of volunteers, encourages adults with Multiple Sclerosis, Post-Polio Syndrome, Parkinson’s disease, and other mobility impairments to enjoy FREE aquatic exercise in a safe and caring environment. http://www.swim-inc.org/ 
  • MS Aqua Therapy Class, Co-sponsored by Physical Therapy by the Bay and Toms River Fitness and Aquatic Center. The class is taught by a licensed Physical Therapist and consists of exercises that target strength, flexibility, balance, posture, co-ordination and functional activities. There is a $5.00 per person charge for each class attended.  A Medical Release note from your doctor is required for participation. Contact: Carol Buckwalter, 732-270-0224.  

Do you have an employment question you would like answered? Are you curious about workplace disclosure, social security benefits, need a reasonable accommodation or are you thinking about returning to work? 
If so, the National MS Society has a dedicated employment specialist to answer your questions.  Feel free to pose your questions directly to this email address:  EmploymentQuestions@nmss.org.  You can expect to receive a response within 48 hours.  

The Personal Assistance Services Program (PASP) 
The PASP provides routine, non-medical assistance to adults with disabilities who are employed, involved in community volunteer work, or attending school. Personal assistants help with tasks such as: light housekeeping, bathing, dressing, preparing meals, shopping, driving or using public transportation. The total number of hours a person can receive is determined based on individual need, up to a maximum of 40 hrs/week. For more information, view this webpage:  http://www.state.nj.us/humanservices/dds/projects/pasp/

Research Participation Opportunities – you may even get a stipend!
There are several opportunities for people with MS to participate in research studies, either locally on site, at home or online. 
Currently our website describes specific research opportunities with Case Western University, CentraState Medical Center, Columbia University, Holy Name Medical Center, Kessler Foundation Research Center (some of these studies at Kessler provide stipends and/or transportation reimbursement), Rutgers, The State University of NY at Buffalo and University at Albany. There is even a study for Progressive MS (If you have progressive MS, you can help researchers learn more about MS and memory). 
Be sure to click on the link below to get the details about the each of these studies: 
http://www.nationalmssociety.org/Chapters/NJM/Services-and-Support/Resources/Local-Research-Studies

Holy Name Orthotic Clinic
The physical therapy department of Holy Name Medical Center offers an orthotic clinic for anyone needing to get an ankle foot orthotic or other prescribed brace; patients will be evaluated by physical and occupational therapists; orthotic vendors will be present.  The clinic is held on the second Wednesday of each month.  To make an appointment or to get more information, please call the physical therapy department at 201-833-3085.

Program in Spanish - Please share this with anyone you know who is affected by MS and also speaks Spanish!
Café con Leche 
Café con Leche es un programa gratuito de la Sociedad ofreciendo un grupo de apoyo que se reúne mensualmente por teléfono bajo la dirección de un profesional para todos los hispanohablantes afectados por la esclerosis múltiple y que quieren comunicarse con otros. Para averiguar más o inscribirse, llame al 1-800-344-4867, opción 3. 
Café con Leche is a Society program offering a free monthly professionally led telephone support group for anyone affected by MS who speaks Spanish and wants to connect with others. To learn more or to register, call 1-800-344-4867. 

Connect Through Self-help Groups 
The New Jersey Metro Chapter sponsors more than 30 self-help groups in 14 counties. These groups bring together people who share a common life experience for support, education, and mutual aid. Members of self-help groups share a belief that positive personal change happens through individual efforts with the support of others. 
For more information about SHGs, contact Lisa at that Chapter at lisa.torre-janssen@nmss.org or at 732-508-4431. 
You can also view the Chapter website page at:  http://www.nationalmssociety.org/Chapters/NJM/Find-Resources-and-Support/Programs/Self-Help-Group

Attention Veterans!
People who served in the armed forces may have special benefits that address their MS related needs.  For more information to see if you are eligible for specific veteran programs, contact Joyce Williams at 973-676-1000, ext. 1729  

How to Choose the Wheeled Mobility Device that's Right for You
You can learn about how to choose a mobility device right from the comfort of your own home!  The videos are available on the National MS Society website (scroll to the bottom and both parts are there) and on YouTube.  They are equipped with closed captions. To activate the closed captions when playing the videos on YouTube, click on the CC button on the toolbar that appears below the video, and select on.
Are you looking for a low cost mobility device?  Then read the next paragraph to learn about the Chapter’s Client-to-Client Resources webpage.

Client to Client Resources
View this webpage to learn about specific durable medical equipment that is available free or low cost: 
http://www.nationalmssociety.org/Chapters/NJM/Find-Resources-and-Support/Resources/Client-to-Client-Resources    

Arts Unbound is Recruiting Artists!
Arts Unbound is actively recruiting emerging artists with disabilities for their Artist Development Program. This program is for people living with disabilities who are interested in or currently pursuing a career as a professional artist. All the participants will be expected to commit to developing a career plan, participate in workshops and master classes, and learn how to approach galleries and retailers. Staff will conduct portfolio reviews, promote the participants’ work to galleries, boutiques, and other retailers, license works for reproduction, help artists build online portfolios, and host group art exhibits. 
Artists interested in participating should contact Celene Ryan, Director of Artist Development at Arts Unbound at cryan@artsunbound.org or at 973-675-2787. You may send up to three images of work that you think represents your strongest efforts. Please also share a little about yourself and your professional goals for the next year.  

Free Educational Programs from Pharmaceutical Companies
The National MS Society, New Jersey Metro Chapter is making this information available to you about these educational opportunities.  The National MS Society, New Jersey Metro Chapter is not sponsoring these programs. The Society has had no role in developing the content of these programs. 
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What: Listen. Learn. Live. Life with MS
When:  Wednesday, August 3rd at 6pm; dinner will be served
Where:  Mohawk House, 3 South Sparta Avenue, Sparta, NJ
Speaker:  Yevgeniy Khesin, MD, Neurologic Associated Arts, Newton
RSVP:  1-866-703-6293 or www.mslivingevents.com
Sponsored by:  Sanofi Genzyme
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What:  Hear from a Healthcare Professional and Other People Living with MS
When:  Friday, August 5,12pm; A light meal will be served
Where:  Grand Summit Hotel, 570 Springfield Avenue, Summit
Speakers:  Amos Katz, MD, Medical Director, Linda Cardinale MS Center at CentraState and Rick S, a person living with MS
RSVP:  1-800-397-8082 or visit www.msevents.com
Sponsored by:  Acorda Therapeutics
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What: Listen. Learn. Live. Life with MS
When:  Friday, August 12, 12 pm; lunch will be served
Where:   Bonefish Grill, 601 From Road, Paramus, NJ
Speaker:  Dr. Mary Ann Picone, Holy Name MS Center, Teaneck, NJ
RSVP:  1-866-703-6293 or www.mslivingevents.com
Sponsored by:  Sanofi Genzyme
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What: Listen. Learn. Live. Life with MS
When:  Tuesday, August 16,12 pm; lunch will be served
Where:  Don Pepe Steakhouse, 58 Route 46 West, Pine Brook
Speaker:  Dr. Gary Clauser, MS Center at Lehigh Neurology, Allentown, PA
RSVP:  1-866-703-6293 or www.mslivingevents.com
Sponsored by:  Sanofi Genzyme
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What: Listen. Learn. Live. Life with MS
When:  Tuesday, August 23rd at 6 pm; dinner will be served
Where:  The Madison Hotel, 1 Convent Road, Morristown, NJ
Speaker:  Dr. Stuart Fox, Neuroscience Center of Northern NJ, Morristown
RSVP:  1-866-703-6293 or www.mslivingevents.com
Sponsored by:  Sanofi Genzyme
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What:  Navigating MS
When:  Friday, September 30,11:30am check in, 12pm seminar start)  lunch will be served, and self-parking available on site
Where:  Flemings Prime Steakhouse, 90 The Promenade, Edgewater
Speaker:  Mary Ann Picone, MD, Holy Name Hospital, Teaneck
RSVP:  Register by phone at  1866-955-9999 or on website at: www.Navigating-MS.com 
Sponsored by:  Biogen
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What:  Gilenya® Patient Programs:  Know Your Options:  A Closer Look at Gilenya® (fingolimod) and You   
When:  Tues evenings at 7pm and Thu evenings at 10pm
Where:  Speakers Direct on Line, Webinars
Speaker(s): MD's, NP's and Patient Guides
Sponsored by:  Novartis Pharmaceuticals
More information: http://www.gilenyapatientprogram.com/meetings/pdf 

Bike MS: Country Challenge
September 17 & 18, 2016
25, 50, 62 and 100 mile route options
Morristown, NJ
www.BikeMSCountryChallenge.org
This ride offers a one or two-day cycling adventure through historic towns, pretty back roads and around the Great Swamp! Whether you are looking to ride with friends or push yourself to greater limits,      Bike MS: Country Challenge is for you!  Register to ride or volunteer online at www.BikeMSCountryChallenge.org.

Dinner of Champions
Join us on September 21, 2016 at Maritime Parc, Jersey City to celebrate 70 years of the National MS Society and to honor and recognize those  who are leaders in both their corporate citizenship and community contributions. This year’s Honorees include Bayer, Rosemarie Collopy and Bonnie Higgins. For more information please contact Alexis Stone at alexis.stone@nmss.org or at 201-977-2459.

Do It Yourself Fundraising MS 
You have most likely heard about our amazing chapter events like Walk MS, Bike MS and Muckfest MS, but have you heard about DIY Fundraising MS?
With DIY Fundraising MS you get to take your talents and hobbies and turn them into a fundraising event of your own! Whether you like to play sports, host dinner parties, sell jewelry and crafts, or dance, the possibilities are endless.
No matter what your connection to MS is, we are all in the same fight to raise awareness and funds to end MS forever. Rally your friends, family and coworkers to do something about MS today! For additional information on kick-starting your DIY event contact Julie Falgiano at 732.508.4432 or julianne.falgiano@nmss.org.   

Nothing Is Impossible
Nothing Is Impossible is an organization that provides assistance to people in financial need.  The organization does respond to requests from people with MS.  They are having an upcoming fundraiser:
What:  Eleventh Annual Golf Outing; The day is complete with cocktails, dinner, silent auction and 50/50
When:  Thursday, September 15, 2016
Where:  Ballyowen Golf Club in Hardyston, NJ
More details:  Click here to see the details

You can read the most current Chapter newsletter online from this link: http://www.nationalmssociety.org/Chapters/NJM/Stay-Informed/MS-Connection-Newsletter 

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