Current NJ Metro Program & Service Announcements - National Multiple Sclerosis Society

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Current NJ Metro Program & Service Announcements

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Various dates and times

In Person

This information is updated the first week of every month

This page was last edited 11/5/14


You can read our most current Chapter newsletter online from this link:  

http://www.nationalmssociety.org/Chapters/NJM/Stay-Informed/MS-Connection-Newsletter


If you missed the program in October, you can still register for the program in November!

Join us for a FREE Informational Seminar

What:  Current Treatment Options in MS 

When:   Thursday, Nov 13, 6-8pm  Complimentary dinner will be served

Where:  the Barnabas MS Center in Livingston;

Speaker:  Krupa Pandey, MD from the Barnabas MS Center.

Registration required:  online at http://njmmain.nationalmssociety.org/site/Calendar?id=334021&view=Detail or call 1-800-344-4867 or email generalmailbox@nmss.org; say that you want to register for the program; Current Treatment Options in MS.


Thank You Caregivers!

Caregiver Recognition Month takes place every November.  The Chapter wants to acknowledge the dedication of caregivers; you are appreciated!  Be sure to check the Chapter’s Facebook page at www.facebook.com/NJMProgramsandServices and Twitter account @NMSSnjm in November to honor caregivers; give a shout out to your caregiver letting them know how much you appreciate them and all that they do for you using the hash tag: #NMSSnjmcaregivers.

You can also access information about specific caregiver activities from this link:  http://www.nationalmssociety.org/Chapters/NJM/Services-and-Support/Services/Caregivers


Tele-learning Series

What:  A series of teleconferences aimed at providing information and guidance on current matters essential to liv­ing one’s best life with MS featuring experts by phone with an online presentation and Q&A.

When:  The first call is scheduled for 2 different dates and times – you choose what works best for you!

Tips for people with MS and their partners: Planning for the future

               Tuesday, November 18- 5pm

Thursday, November 20- 10pm

Presented by Dick Bell of Financial Education Partners Foundation and Bradley Frigon of the National Academy of Elder Law Attorneys, this session will provide helpful information – including legal and financial considerations – for care partners and people living with MS.

Where:  from the comfort of your own home

Registration is required: call -1-800-344-4867 or email generalmailbox@nmss.org You will get a call in number or web link upon registration.

More information about future calls is available from this link:  http://www.nationalmssociety.org/Resources-Support/Library-Education-Programs/Telelearning-Program.  Topics will include:

  • Tips for Care-partners
  • Research in MS
  • Employment
  • Managing MS Bowel and Bladder Symptoms
  • Sex and Intimacy
  • Gender Differences
  • Preparing For MS Doctor Visits

Annual Meeting and Open House

What:  Chapter Annual Meeting and Open House

This is the official reorganization of the Chapter Board of Trustees.  New board members are elected; chapter members are invited to elect the new board.  See the slate of candidates from this link: http://njmmain.nationalmssociety.org/site/Calendar?id=334196&view=Detail                                             

When:  Thursday, November 20, 2014

  • Open House, 3-5pm; light refreshments will be served.
  • Annual Meeting at 5pm.
  • Board of Trustees Meeting at 6pm (board members only). 

Where:  Chapter office, 1480 US Highway 9N, Suite 301, Woodbridge, NJ

RSVP required:  1-800-344-4867 or generalmailbox@nmss.org; say that you want to register for the Chapter Annual Meeting.  You may prefer to register online at: http://njmmain.nationalmssociety.org/site/Calendar?id=334196&view=Detail


Can Do Multiple Sclerosis Upcoming Webinars – FREE!

2nd Tuesday of each month 8:00p.m. – 9:15p.m. EST. Reserve your spot now!

Can Do MS’s monthly webinar series offers insight from MS experts representing different medical disciplines so that participants can gain additional knowledge relating to MS.  Participants interact with a team of Can Do MS Programs Consultants, by asking questions to learn how to actively co-manage their MS from the comfort of their home.  The next few webinars are listed below:

November 11, 2014: 8:00 – 9:15 p.m. Eastern Daylight Time
It Takes Two to… Communicate
Presented by Can Do MS Programs Consultants:
Beth Bullard, OTR & Rosalind Kalb, PhD
Join Beth Bullard, an occupational therapist, and Rosalind Kalb, a clinical psychologist, to learn and share helpful tips for talking and listening in ways that will keep your communications healthy, respectful and productive.  Register from this link:  https://cc.readytalk.com/cc/s/registrations/new?cid=flrxjtsrwula.        

          December 9, 2014: 8:00 – 9:15 p.m. Eastern Standard Time

          Holistic Tips to Healthy Eating and Exercise

          Presented by Can Do MS Programs Consultants: Aliza Ben-Zacharia, DrNP, ANP, MSCN & Amy Dix, MPA-C,     MSCS

An important way to stay healthy is to adopt a healthy diet and to exercise regularly. Healthy habits include making and creating a balanced diet, implementing an exercise program and also having enough time for relaxation. Nutrition and exercise are the cornerstones of living well and will foster a healthy lifestyle with your MS.  Register from this link:  https://cc.readytalk.com/cc/s/registrations/new?cid=c0eodnpb866a.

Webinar Series Archive

If you are not able to view Can Do MS webinars live, then please Can Do MS’s webinar archives. Watch them on your own time. Visit http://www.mscando.org/webinararchive

Are You Newly Diagnosed With MS? 

Click on the link below to view an archived webinar, Managing Multiple Sclerosis Early: Get Ahead of the Diseasehttp://www.mscando.org/multiple-sclerosis-programs/webinar-series/2014-webinar-archive/


Programs in Spanish - Please share this with anyone you know who is affected by MS and also speaks Spanish!

Day for Hispanic Families Living with MS –What:  A Day to be informed about MS and to celebrate Hispanic culture

When:  Sunday, November 23, 2014, 10:00 AM - 4:00 PM

Where:  Columbia University-Casa Italiana Teatro,1161 Amsterdam Ave At 117th St, New York, NY

More information and registration:  http://nynmain.nationalmssociety.org/site/Calendar?id=332576&view=Detail

More information about MS in Spanish can be found at:  http://www.nationalmssociety.org/Resources-Support/Library-Education-Programs/Informacion-en-Espanol

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Café con Leche

Café con Leche es un programa gratuito de la Sociedad ofreciendo un grupo de apoyo que se reúne mensualmente por teléfono bajo la dirección de un profesional para todos los hispanohablantes afectados por la esclerosis múltiple y que quieren comunicarse con otros. Para averiguar más o inscribirse, llame al 1-800-344-4867, opción 3.

Café con Leche is a Society program offering a free monthly professionally led telephone support group for anyone affected by MS who speaks Spanish and wants to connect with others. To learn more or to register, call 1-800-344-4867.


FRIENDS – that is what you get when you join a self-help group (SHG)!

F =  Fun to be had when you join the group.

R =  Research updates and study participation experiences to be shared among group members.

I =  Information to be discussed about a variety of topics.

E =  Education is important.

N =  Network to live your best life with MS.

D =  Dedicate your time to help people with MS.

S = Socialize, meet new people.

There are more than 30 SHGs in the 14 counties of the NJ Metro service area.  There may be one that is just right for you!  Learn about the different groups and see how you can contribute to the excitement of their meetings.  Your participation and voice is always welcome!

NEW groups are now forming at Overlook Hospital in Summit, at the library in Middletown and at the Holy Name Fitness Center in Oradell.

A group for veterans with MS meets at the VA in East Orange on the 4th Tuesday of every month. 

For more information contact Joyce Williams at 973--676-1000 x1729.

For more information about SHGs, contact Lisa at that Chapter at lisa.torre-janssesn@nmss.org or at 732-508-4431.  You can also view the Chapter website page at:  http://www.nationalmssociety.org/Chapters/NJM/Find-Resources-and-Support/Programs/Self-Help-Group.


Attention Veterans!

People who served in the armed forces may have special benefits that address their MS related needs.  For more information to see if you are eligible for specific veteran programs, contact Joyce Williams at 973-676-1000, ext. 1729


Care Partner Support Group

Connect with other care partners, find support and share your experiences. This National MS Society support group is led by experienced volunteers who are here to help you navigate life as a care partner of a person with MS.  To learn more, click on this link:  Carepartner Support Group


Holy Name Orthotic Clinic

The physical therapy department of Holy Name Medical Center offers an orthotic clinic for anyone needing to get an ankle foot orthotic or other prescribed brace; patients will be evaluated by physical and occupational therapists; orthotic vendors will be present.  The clinic is held on the second Wednesday of each month.  To make an appointment or to get more information, please call the physical therapy department at 201-833-3085.


Do you have an employment question you would like answered? Are you curious about workplace disclosure, social security benefits, need a reasonable accommodation or are you thinking about returning to work?

If so, the National MS Society has a dedicated employment specialist to answer your questions.  Feel free to pose your questions directly to this email address:  EmploymentQuestions@nmss.org.  You can expect to receive a response within 48 hours.


How to Choose the Wheeled Mobility Device that's Right for You

You can learn about how to choose a mobility device right from the comfort of your own home!  The videos are available on the National MS Society website (scroll to the bottom and both parts are there) and on YouTube.  They are equipped with closed captions. To activate the closed captions when playing the videos on YouTube, click on the CC button on the toolbar that appears below the video, and select on.

Are you looking for a low cost mobility device?  Then read the next paragraph to learn about the Chapter’s Client-to-Client Resources webpage…


Client to Client Resources 

View this webpage to learn about specific durable medical equipment that is available free or low cost: 

http://www.nationalmssociety.org/Chapters/NJM/Find-Resources-and-Support/Resources/Client-to-Client-Resources


Ramp Rebuild – help for people affected by Superstorm Sandy

What:  Funding is available through the NJ Division of Disability Services to replace, repair or build modular ramps for individuals who require one at their Sandy-impacted primary residences.  Ramps will be built for eligible applicants until funding is exhausted. Modular ramps are custom built from metal, wood or fiberglass and have no permanent footings, making them easy to install, remove, and relocate as necessary. Installation can take a few days or a week depending on the project.

More information:  http://www.nj.gov/humanservices/dds/projects/sandyramps.html or call 1-888-285-3036


Free Educational Programs from Pharmaceutical Companies The National MS Society, New Jersey Metro Chapter is making this information available to you about these educational opportunities.  The National MS Society, New Jersey Metro Chapter is not sponsoring these programs. The Society has had no role in developing the content of these programs:

What:  Facing MS head on: Balancing Treatment Benefits and Risks

When:  Wednesday, November 5, 2014, Check-in: 6:00PM - 6:30PM, Seminar:  6:30PM - 8:30PM; Complimentary dinner will be served. Complimentary parking will be available.

Where:  Maggiano's Little Italy, 70 Riverside Square, Hackensack, NJ 07601

Speaker:  Mary Ann Picone, MD Medical Director MS, Comprehensive Care Center, Holy Name Medical Center, Teaneck

RSVP:  Call 866.955.9999, Visit www.FighterEvents.com

Sponsored by:  Biogen Idec

 

Title:  Understanding Your Treatment Choices

When:  Thursday, November 6, 5:30pm

Where:  Costa Verde, 6039 Route 35, South Amboy                

Speaker:    Allan Brian Perel, MD

RSVP:  www.msrelapseprogram.com or call 1-877-219-0410 use program ID – 2195

Sponsored by:  Mallinckrodt Pharmaceuticals

 

              What:  Plegridy Clinical Overview

When:  Thursday, November 6; registration 5:30 pm; modest meal will be served

              Where:  Grand Chalet, 1377 State Route 23, Wayne

Speaker:  Mark Diamond, MD

RSVP:  1-866-955-9999

Sponsored by:  Biogen Idec

 

What:  Living with MS: An informative event for people living with MS and their care partners

When:  Wednesday, November 12th, 2014, 6 pm

Where:  Mohawk House, 3 Sparta Avenue, Sparta, NJ 07871 (dinner will be served)

Speaker:  Yevgeniy Khesin, MD, Neurologic Associated Arts, Newton, NJ & an MS ambassador

RSVP: 1-866-703-6293 or GenzymePatientRSVP@ahmdirect.com

Sponsored by: Genzyme

 

              What:  New Therapy Update for the Treatment of Relapsing MS

When: Thursday, November 13th, 6:30-8:30pm; registration begins at 6:00pm; complimentary dinner will be served

Where:  Maggiano’s Little Italy, 600 Commons Way, Bridgewater, NJ 08807

Speaker:  Dr. Patrick Gainey, MD, Affiliated Neurology, Morganville, NJ

RSVP:  1-866-955-9999

Sponsored by:  Biogen Idec

 

What:  Living with MS: An informative event for people living with MS and their care partners

When:  Saturday, November 15th, 2014, 1:30 am

Where:  Il Villaggio 651 Route 17 South Carlstadt, NJ 07072 (lunch will be served)

Speaker:  MaryAnn Picone, MD, Holy Name MS Center, NJ & an MS ambassador

RSVP: 1-866-703-6293 or GenzymePatientRSVP@ahmdirect.com

Sponsored by:  Genzyme

 

What:  MS Relapse Symptoms, Understanding your Treatment Choices

When:  Monday, November 17, 6pm, complementary dinner will be served

Where:  Don Pepe Steak House, 1818 Old Bloomfield Ave, Pine Brook

Speaker:  Mary Ann Picone, MD of the MS Center at Holy Name Medical Center

RSVP: 1-877-219-0410 program #2374

              Sponsored by:  Mallinckrodt Pharmaceuticals (formerly Questcor)

 

What:  Living with MS: An informative event for people living with MS and their care partners

When:  Wednesday, November 19th, 2014 at 6 pm

Where:  The Madison Hotel, 1 Convent Road, Morristown, NJ 07960 (dinner will be served)

Speaker:  Stuart Fox, MD, The Neuroscience Center of Northern New Jersey, Morristown, NJ & a MS ambassador

RSVP: 1-866-703-6293 or GenzymePatientRSVP@ahmdirect.com

Sponsored by:  Genzyme

 

              What:  New Therapy Update for the Treatment of Relapsing MS

When: Thursday, November 20th, 6:30-8:30pm; registration begins at 6:00pm; complimentary dinner will be served

Where:  Princeton Marriott at Forrestal, 100 College Road East, Princeton, NJ 08540

Speaker:  Dr. Patrick Gainey, MD, Affiliated Neurology, Morganville, NJ

RSVP:  1-866-955-9999

Sponsored by:  Biogen Idec

 

Title: Understanding Your Treatment Choices

When:  Sunday, November 23, 11:30am

Where:  Terrazza, 273 High Street, Perth Amboy

Speaker:    Allan Brian Perel, MD

RSVP:  www.msrelapseprogram.com or call 1-877-219-0410 use program ID – 2471

Sponsored by:    Mallinckrodt Pharmaceuticals

 

What:  New Therapy Update for the Treatment of MS

When:  Thursday, December 4th, 6-8pm; registration begins at 5:30pm; complimentary dinner will be served

Where:  The Madison Hotel, 1 Convent Road, Morristown, NJ., 07960

Speaker:  Mark Diamond, MD,  of The Neuroscience Center of Northern NJ

RSVP:  1-866-955-9999

Sponsored by:  Biogen Idec

 

              What:  Gilenya® Patient Programs:  Know Your Options:  A Closer Look at Gilenya® (fingolimod) and You

              When:  Tuesday evenings at 7:00 pm and Thursday evenings at 10:00 pm

              Where:  Speakers Direct on Line, Webinars

              Speaker(s): MD's, NP's and Patient Guides

              Sponsored by:  Novartis Pharmaceuticals

              More Information More information: http://www.gilenyapatientprogram.com/meetings/pdf        

              Sponsored by:  Biogen Idec

 

WEBINAR SERIES:

What:  TYSABRI Webinar Series so you can stay connected.  If you or a loved one has relapsing MS and wants to explore a treatment option, this webinar is for you. Join this webinar series to better understand relapsing MS and learn about treatment with TYSABRI(natalizumab). When:  Wednesday, November 19, 7PM ET/6PM CT

Where:  from the comfort of your own home

Speakers:  Each episode, you’ll hear from someone taking TYSABRI for their relapsing MS. Listen as a healthcare professional discusses the latest information about TYSABRI and offers additional tips on how to manage your relapsing MS.

Sponsored by:  Biogen Idec

To register and view the complete webinar schedule, visit www.TysabriWebEvents.com or call1-866-5368127


Keep S'myelin - a newsletter about MS just for kids!

Keep S’myelin is a colorful, engaging, informative, and reassuring newsletter to help children and their parents talk and learn about MS together. Each issue is filled with stories, interviews, games, and activities that highlight a specific topic related to MS, as well as a special section just for parents.  To receive this newsletter, contact Lisa at the Chapter at Lisa.Torre-Janssen@nmss.org.


Research Participation Opportunities – you may even get a stipend!

There are several opportunities for people with MS to participate in research studies, either on site, at home or online.  Currently our website describes specific research opportunities with Columbia University, Kessler Foundation Research Center, Rutgers and the State University of NY at Buffalo.  Click on this link to learn about these studies: 

http://www.nationalmssociety.org/Chapters/NJM/Services-and-Support/Resources/Local-Research-Studies

For more information about additional nationwide opportunities, click on this link: 

http://www.nationalmssociety.org/Research/Participate-in-Research-Studies/Surveys#section    


Join us on Sunday, March 29 for MS Awareness Night with the New Jersey Devils! The Devils face off against the Anaheim Ducks at 7:00 p.m. at the Prudential Center in Newark. Come out, raise awareness with us and enjoy:

• Specially priced group ticket
• Group seating at the game
• Group welcome on the big screen
• Devils group gift

Our chapter will also be the beneficiary of the in-game 50/50 raffle and receive a portion of MS ticket sales! To purchase tickets, visit  www.newjerseydevils.com/msawarenessnight and use the promo code MSDEVILS!

Oh, and don't forget to wear your orange!


Find Us On Facebook!  www.facebook.com/NJMProgramsandServices

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