Current NJ Metro Program & Service Announcements - National Multiple Sclerosis Society

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Current NJ Metro Program & Service Announcements

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Various dates and times

 

This information is updated the first week of every month

This page was last edited 2/18/15

Please read this message to learn about Relationship Matters and wellness classes, telephone and web learning dates (employment, research, intimacy, etc), a teen program, research opportunities, cycling, climbing, Walk MS weekend and much more!


Local Advocate to share her MS experience on a National Stage!

What: an MS “Ted Talk” (preview)*

When: February 7th and February 21st; 2:00pm

Where: the movie theater at AVE Clifton, 743 Passaic Ave, Clifton

Speaker:  Stephanie Butler, member of the advocacy Committee of the National MS Society, NJ Metro Chapter RSVP: JustKeepSmyelinBlog@gmail.com   

* The TEDx Program is designed to help communities, organizations and individuals to spark conversation and connection through local TED-like experiences.

For more information on TEDx, go to https://www.ted.com/about/programs-initiatives/tedx-program


Spring Wellness Classes kick off the week of March 16th 

Yoga, tai chi, aquatics!

Registration will begin on February 11You must register through the Chapter in order to participate in these wellness classes.  To register contact Aubrey at aubrey.donovan@nmss.org and include your name, email / mailing address, daytime phone number, and the name & location of the program(s) you are interested in. 

OR you can call the Society and ask for a listing of classes in your area 1-800-344-4867.  

There is a voluntary $30 suggested donation (not mandatory) for participation in a program. 

Please visit the chapter Wellness Page for more information on wellness classes in your area! 


Register for this FREE unique program that focuses on communication in relationships - Relationship Matters at Holy Name Hospital in Teaneck!  

Building a healthier relationship usually involves making changes — changes in how you listen and talk to your partner and changes in the way you solve problems. The information provided in this workshop will enhance your understanding of effective communication, as well as ways to resolve conflicts and strengthen your commitment to your partner and relationship

What:  A Relationship Enrichment Course for Couples Living With MS

When:  Sunday, March 22, 2015;

Check-in and coffee at 9:15am; program from10am-2pm; Lunch will be served.

Where:  Holy Name Medical Center – conference room #4;
                718 Teaneck Road, Teaneck, NJ

Facilitated by: Deb Mandelbaum, LCSW

Registration Required/More Information:  contact Lisa at lisa.torre-janssen@nmss.org or 732-508-4431 


Love, Sexuality and Chronic Illness

What:  Finding Love and Play in the Time of Chronic Illness - A frank and personal conversation about love and sexuality while living with a chronic illness

When:  Thursday, February 19, 11am

Where:  Barnabas Ambulatory Care Center, 200 South Orange Ave, Livingston, NJ, conference room B

Speaker:  Ma’ayan Greenbaum, PsyD, Barnabas Health Center

RSVP:  Info Link at 888-724-7123

More information:  Call Lauryn Weinshank, LSW at  973-322-7935


Employment Matters, a 4-week tele-discussion series; this program is only for individuals with MS who are currently employed.

As a complex and unpredictable disease, MS can have varying effects on a person’s ability to work. Trying to manage MS on the job can be challenging for many

What:  a 4-week tele-discussion series; Join us for an open discussion where other members can ask questions and share what has worked for them. Prior to each group you will be asked to view a brief 5-6 minute video on the topic to be discussed for that week. 

When:  Each program runs from 7-8 PM

  • Tuesday, Feb 3 – Being Proactive
  • Tuesday, Feb 10 - Legal Protections and Assistive Technology
  • Tuesday, Feb 24 - Disclosure
  • Tuesday, Mar 3 - Fatigue and Cognition  

Where:  from the comfort of your own home 

RSVP: You must register for the series. Space is limited, register early. If you are interested in participating, please call 212-453-3218 or email Barbara McKeon barbara.mckeon@nmss.org for a brief screening.


Can Do Multiple Sclerosis Upcoming Webinars – FREE!

2nd Tuesday of each month 8:00p.m. – 9:15p.m. EST. Reserve your spot now!

Can Do MS’s monthly webinar series offers insight from MS experts representing different medical disciplines so that participants can gain additional knowledge relating to MS.  Participants interact with a team of Can Do MS Programs Consultants, by asking questions to learn how to actively co-manage their MS from the comfort of their home.  The next webinar is listed below: 

February  10, 2015 8:00 – 9:15 p.m. Eastern Daylight Time

Flying Solo with Multiple Sclerosis
Presented by Can Do MS Programs Consultants:  Peggy Crawford, PhD & Linda Walls, OTR
Most people are faced with changes, losses and the need to make adjustments during their lives, but individuals with MS seem to have more than their fair share of these experiences.  And, if you are living alone with MS, these changes can be even more challenging.  Join Linda Walls, Occupational Therapist, and Peggy Crawford, Psychologist, as they discuss the strategies in the decisions you can make to maintain independence while functioning at the highest possible level, both physically and emotionally.  Register from this link:  https://cc.readytalk.com/cc/s/registrations/new?cid=tt8e2of73k94.   

Webinar Series Archive

If you are not able to view Can Do MS webinars live, then please Can Do MS’s webinar archives. Watch them on your own time. Visit http://www.mscando.org/webinararchive

Are You Newly Diagnosed With MS?  Click on the link below to view an archived webinar, Managing Multiple Sclerosis Early: Get Ahead of the Disease:  


Tele-learning Series

What:  A series of teleconferences aimed at providing information and guidance on current matters essential to liv­ing one’s best life with MS featuring experts by phone with an online presentation and Q&A.  The remainder of the series is listed below:

MS Employment: 4 Part Series (differs from the Employment Matters program described above)
February 12, 26 and March 12, 26; 8pm
  
Managing MS Bowel and Bladder Symptoms    
Tuesday, March 17- 7 pm or
Thursday, March 19– 10pm
 
Sex ED for Grownups-Intimacy in MS
Tuesday, May 19- 7 pm or
Thursday, May 21- 10pm
 
Gender Differences in MS
Tuesday, July 21- 7 pm or
Thursday, July 23- 10pm
 
Preparing for MS Doctor Visits
Tuesday, Sept. 15- 7 pm or
Thursday, Sept. 17- 10pm 
 
Where:  from the comfort of your own home 
 
Registration is required: call -1-800-344-4867 or email generalmailbox@nmss.org or register online from this link:
You will get a call in number or web link upon registration. Register for all of them today – you will receive a reminder for each call.
Please note: all tele-learning calls are recorded and can be found on the same webpage indicated above.

The Assistive Technology Center

Advancing Opportunities, an agency that provides services to people with disabilities has an Assistive Technology Center.  The goal is to help people with disabilities, their families, teachers and employers identify and learn to use the technology that will be most effective in meeting their goals.  You can learn more from this link:  http://www.assistivetechnologycenter.org/about.


Creatively Yours – calling all teens living with MS and their parents!  Sunday, Feb 28, 2015 

Come meet other young people living with MS at a fun painting party. Click here for details.  


Holy Name Orthotic Clinic

The physical therapy department of Holy Name Medical Center offers an orthotic clinic for anyone needing to get an ankle foot orthotic or other prescribed brace; patients will be evaluated by physical and occupational therapists; orthotic vendors will be present.  The clinic is held on the second Wednesday of each month.  To make an appointment or to get more information, please call the physical therapy department at 201-833-3085.


Craft Fair at Barnabas – looking for people who want to show/sell their items!

Are you a person living with MS?

Do you create or design special items? (Ex – soaps, jewelry, paintings)

Would you be interested in showing or selling your craft at a fair within Barnabas Health? 

For more information, contact Lauryn Weinshank, LSW by Jan 15 at 973-322-7935 or lweinshank@barnabashealth.org


Program in Spanish - Please share this with anyone you know who is affected by MS and also speaks Spanish!

Café con Leche

Café con Leche es un programa gratuito de la Sociedad ofreciendo un grupo de apoyo que se reúne mensualmente por teléfono bajo la dirección de un profesional para todos los hispanohablantes afectados por la esclerosis múltiple y que quieren comunicarse con otros. Para averiguar más o inscribirse, llame al 1-800-344-4867, opción 3. 

Café con Leche is a Society program offering a free monthly professionally led telephone support group for anyone affected by MS who speaks Spanish and wants to connect with others. To learn more or to register, call 1-800-344-4867.


FRIENDS – that is what you get when you join a self-help group (SHG)!  

F =  Fun to be had when you join the group.

R =  Research updates and study participation experiences to be shared among group members.

I =  Information to be discussed about a variety of topics.

E =  Education is important.

N =  Network to live your best life with MS. 

D =  Dedicate your time to help people with MS.

S = Socialize, meet new people.

There are more than 30 SHGs in the 14 counties of the NJ Metro service area.  There may be one that is just right for you!  Learn about the different groups and see how you can contribute to the excitement of their meetings.  Your participation and voice is always welcome!

NEW groups are now forming at Overlook Hospital in Summit, at the library in Middletown and at the Holy Name Fitness Center in Oradell.

A group for veterans with MS meets at the VA in East Orange on the 4th Tuesday of every month. 

For more information contact Joyce Williams at 973--676-1000 x1729.

For more information about SHGs, contact Lisa at that Chapter at lisa.torre-janssesn@nmss.org or at 732-508-4431.  You can also view the Chapter website page at:  http://www.nationalmssociety.org/Chapters/NJM/Find-Resources-and-Support/Programs/Self-Help-Group


Attention Veterans! 

People who served in the armed forces may have special benefits that address their MS related needs.  For more information to see if you are eligible for specific veteran programs, contact Joyce Williams at 973-676-1000, ext. 1729 


Care Partner Support Group

Connect with other care partners, find support and share your experiences. This National MS Society support group is led by experienced volunteers who are here to help you navigate life as a care partner of a person with MS.  To learn more, click on this link:  Carepartner Support Group 


Coaching for Emerging Artists

Arts Unbound is excited to announce it has received a grant from the Kessler Foundation to provide professional development support to fifteen to twenty artists with disabilities over the next year (October 2014-September 2015).

Arts Unbound is actively recruiting new emerging artists with disabilities for the program. All the participants will be expected to commit to developing a career plan, participate in workshops and master classes, and learn how to approach galleries and retailers. Staff will conduct portfolio reviews, promote the participants’ work to galleries, boutiques, and other retailers, license works for reproduction, help artists build online portfolios, and host group art exhibits.

Artists interested in participating should contact Celene Ryan, Director of Artist Development at Arts Unbound at 973-675-2787 or cryan@artsunbound.org. You may send up to three images of work you think represents your strongest efforts. Please also share a little about yourself and your artistic goals for the next year.  


Research Participation Opportunities – you may even get a stipend!

There are several opportunities for people with MS to participate in research studies, either on site, at home or online.  Currently our website describes specific research opportunities with Columbia University, Kessler Foundation Research Center, Rutgers and the State University of NY at Buffalo.  Click on this link to learn about these studies: 

http://www.nationalmssociety.org/Chapters/NJM/Services-and-Support/Resources/Local-Research-Studies

For more information about additional nationwide opportunities, click on this link: 

http://www.nationalmssociety.org/Research/Participate-in-Research-Studies/Surveys#section     


Do you have an employment question you would like answered? Are you curious about workplace disclosure, social security benefits, need a reasonable accommodation or are you thinking about returning to work?

 If so, the National MS Society has a dedicated employment specialist to answer your questions.  Feel free to pose your questions directly to this email address:  EmploymentQuestions@nmss.org.  You can expect to receive a response within 48 hours.


How to Choose the Wheeled Mobility Device that's Right for You

 You can learn about how to choose a mobility device right from the comfort of your own home!  The videos are available on the National MS Society website (scroll to the bottom and both parts are there) and on YouTube.  They are equipped with closed captions. To activate the closed captions when playing the videos on YouTube, click on the CC button on the toolbar that appears below the video, and select on.

Are you looking for a low cost mobility device?  Then read the next paragraph to learn about the Chapter’s Client-to-Client Resources webpage.


Client to Client Resources

View this webpage to learn about specific durable medical equipment that is available free or low cost: 

http://www.nationalmssociety.org/Chapters/NJM/Find-Resources-and-Support/Resources/Client-to-Client-Resources


Free Educational Programs from Pharmaceutical Companies
 
The National MS Society, New Jersey Metro Chapter is making this information available to you about these educational opportunities.  The National MS Society, New Jersey Metro Chapter is not sponsoring these programs. The Society has had no role in developing the content of these programs:
 
What:  Ready to Learn More About Relapsing MS?
When:  Thursday, February 5, 6:30pm
Where:   The Metuchen Inn, 424 Middlesex Avenue, Metuchen
Speaker:  Daniel Kantor, MD, Neurologique, Jacksonville, FL
RSVP:  www.MSlivingevents.com or call 866-703-6293
Sponsored by:  Genzyme
 
What: Knowing your Options with MS
When: Wed, Feb 18, 6:45pm; complementary dinner served
Where: Maggiano's Little Italy 390 Hackensack Ave Hackensack, NJ 07601 (201-220-2030)
Speaker: Dr. Amos Katz 
Sponsored by: EMD Serono (Rebif)
 
What: C.H.A.T. (Connecting, Helping, Inspiring, Teaching)
When: February 25, 2015 6:45 pm (with complementary dinner included)
Where: Iberia Tavern & Restaurant 80-84 Ferry St. Newark, NJ 07105 (973-344-6117)
Speaker: Donna Gleason MS Lifelines Nurse
RSVP: 1-877-969-1722 www.mslifelines.com/liveevents
Sponsored by: EMD Serono
 
What:  MS Relapse Symptoms: understanding your treatment choices
When:  Thursday, February 26 check-in 6:00.  Complimentary meal will be provided.
Where:  Calandra's, 234 Bloomfield Ave, Caldwell, NJ 07006
Speaker:  Yanchun Zhang, MD
RSVP:  1-877-219-0410 program ID#2613
Sponsored by:  Mallinckrodt Pharmaceutical 
 
What:  MS Portfolio Discussion
When:  Thursday, February 26th; meal will be served and complimentary parking will be available
Where:  Hyatt Morristown, 3 Speedwell Avenue, Morristown
Speaker:  Dr. Krupa Pandey, Director of the MS Center at St. Barnabas Health
RSVP:  1866-955-9999 or www.biogenidec.com
Sponsored by:  Biogen Idec
 
What: The Facts on MRIs & MS
When: Wed, Mar 11, 6:45 pm; complementary dinner served
Where: Maggiano's Little Italy 390 Hackensack Ave Hackensack, NJ 07601 (201-220-2030)
Speaker: TBD
Sponsored by: EMD Serono (Rebif)
 
What:  Plegridy, Inside Interferons
When:  March19th, 6-8pm; registration begins at 5:30pm; complimentary dinner will be served
Where:  Morristown Hyatt Hotel, 3 Speedwell Ave, Morristown
Speaker:  Dr. Krupa Pandey, MD, The MS Center at St. Barnabas in Livingston, NJ
RSVP:  1-866-955-9999
Sponsored by:  Biogen Idec
 
What: The Facts on MRIs & MS
When: Wed, Mar 25, 6:45 pm; complementary dinner served
Where: Iberia Tavern and Restaurant 80 Ferry St, Newark
Speaker: TBD
Sponsored by: EMD Serono (Rebif)
 
What:  Gilenya® Patient Programs:  Know Your Options:  A Closer Look at Gilenya® (fingolimod) and You
When:  Tuesday evenings at 7:00 pm and Thursday evenings at 10:00 pm
Where:  Speakers Direct on Line, Webinars
Speaker(s): MD's, NP's and Patient Guides
Sponsored by:  Novartis Pharmaceuticals
More information: http://www.gilenyapatientprogram.com/meetings/pdf                  
 
WEBINAR SERIES:
 
What:  TYSABRI Webinar Series so you can stay connected.  If you or a loved one has relapsing MS and wants to explore a treatment option, this webinar is for you. Join this webinar series to better understand relapsing MS and learn about treatment with TYSABRI(natalizumab). When:  Wednesday, November 19, 7PM ET/6PM CT
Where:  from the comfort of your own home
Speakers:  Each episode, you’ll hear from someone taking TYSABRI for their relapsing MS. Listen as a healthcare professional discusses the latest information about TYSABRI and offers additional tips on how to manage your relapsing MS.
Sponsored by:  Biogen Idec
To register and view the complete webinar schedule, visit www.TysabriWebEvents.com or call1-866-5368127  

Keep S'myelin - a newsletter about MS just for kids!

Keep S’myelin is a colorful, engaging, informative, and reassuring newsletter to help children and their parents talk and learn about MS together. Each issue is filled with stories, interviews, games, and activities that highlight a specific topic related to MS, as well as a special section just for parents.  To receive this newsletter, contact Lisa at the Chapter at Lisa.Torre-Janssen@nmss.org

MS Bar Crawl

 On February 21, the Chapter will take on the streets of Hoboken for its very first MS Bar Crawl! Each participant will receive a variety of discounted drink specials throughout the day as well as a special MS Bar Crawl giveaway. The proceeds from this event will benefit the more than 10,000 individuals living with MS in the New Jersey Metro area. Join us as we come together to celebrate our connections, our success and our desire for a world free of MS! To buy tickets or learn more, visit us at www.nationalMSsociety.org/HBC or email Elizabeth Shaw at Elizabeth.Shaw@nmss.org


Ready to go for a Spin for MS?

 Join MS Cycle for a Cure, an inspiring indoor cycling event on Sunday, March 1st!  We are seeking team captains to recruit a team that will raise funds for MS research. The event offers four 45-minute sessions of exciting indoor spinning. You can ride one session or four, depending on your team size.  The goal of this event is to bring the entire MS Community together to raise awareness and funds for critical MS Research. With teams representing all areas of the MS Community, we need you to get on a bike and spin for MS research!  

Hosted at HackensackUMC Fitness & Wellness Powered by The Giants in Maywood, NJ.  Contact Jamie Woodward at jwoodward@mshopeforacure.org or at 212-476-0483.  To register, visit the event website at: http://mshope.donorpages.com/NJCycle2015/ 


NJ Metro Chapter’s first-ever Climb to the Top; 33 flights of stairs, 822 steps closer to a cure! 

  • What:  Participants will climb 33 flights of stairs at Mack-Cali Harborside Plaza 5 in Jersey City.
  • When:  Saturday, March 28, 2015; Check-in will start at 12PM with the first wave starting at 1PM (please note, waves will be assigned one week prior)
  • Where:  Mack-Cali Harborside Plaza 5,185 Hudson Street, Jersey City 07311
  • Registration Fee: $35; Fundraising Minimum: $250  

Don’t miss the after-party at Henry’s on the Hudson!  Celebrate with others, enjoy the NYC skyline view, receive a complimentary appetizer and order dinner & drinks.  

Registration:  eventnjm.nationalMSsociety.org

For more information please contact: Julie Falgiano 732.508.4432 julianne.falgiano@nmss.org 


Walk MS Weekend – April 18 and 19, 2015

You can now register for Walk MS in NJ!  This we are presenting a weekend of walks.  Learn more from this link:  walkms.org


Bike to Create a World Free of MS!

Bike MS has something for everyone…  Don’t miss the chance to be a part of the national Bike MS cycling series. We offer both active and virtual participation so that chapter members can participate, inspire and encourage friends and family to join in one or all of our Bike MS events, whether they pedal the route or not!

  • Bike MS: Coast the Coast, May 16 & 17. Our premier cycling event offers ride lengths of 25, 50, 85 and the two-day 170-mile route along the Jersey Shore from West Long Branch to Cape May. 
  • Bike MS: Barrels and Brews (formerly Bike MS: Hops to Hops), on September 13 in Ringoes.  Choose your route length of 40 or 62 miles and pedal over the hills of the Amwell Valley. Celebrate at the Unionville Vineyard with a relaxing lunch, wine and beer.
  • Bike MS: Country Challenge on September 19 & 20 from Morristown to Whippany and back.  Route options offered are the 25, 50, 62 and the two-day 100-mile ride.  Enjoy the Saturday finish line featuring Oktoberfest food and entertainment!  

Register or learn more at www.nationalmssociety.org/Chapters/NJM/Fundraising-Events or call 732-660-1005, press option 2


MS Rock for a Cure!

We can't wait any longer to share this awesome event with you! We'll be partnering with the Count Basie Theatre & The Fab Faux – a Beatles tribute band – on June 13 to bring you a brand-new concert event. Are you ready to rock for a cure? For more information and to buy tickets, contact Karen at the NMSS at 201-977-6054or at karen.drzik@nmss.org  


You can read our most current Chapter newsletter online from this link:  

http://www.nationalmssociety.org/Chapters/NJM/Stay-Informed/MS-Connection-Newsletter


Find Us On Facebook!  https://www.facebook.com/NMSSnjm

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