Current NJ Metro Program & Service Announcements - National Multiple Sclerosis Society

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Current NJ Metro Program & Service Announcements

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Various dates and times

In Person

This information is updated the first week of every month

This page was last edited 12/9/14


You can read our most current Chapter newsletter online from this link:  

http://www.nationalmssociety.org/Chapters/NJM/Stay-Informed/MS-Connection-Newsletter


Tele-learning Series

What:  A series of teleconferences aimed at providing information and guidance on current matters essential to liv­ing one’s best life with MS featuring experts by phone with an online presentation and Q&A.

Research in MS – Your Questions Answered

Tuesday, January 20- 7 pm or

Thursday, January 22- 10pm

MS Employment: 4 Part Series

February 12, 26 and March 12, 26- 8pm

Managing MS Bowel and Bladder Symptoms    

Tuesday, March 17- 7 pm or

Thursday, March 19– 10pm

Sex ED for Grownups-Intimacy in MS

Tuesday, May 19- 7 pm or

Thursday, May 21- 10pm

Gender Differences in MS

Tuesday, July 21- 7 pm or

Thursday, July 23- 10pm

Preparing for MS Doctor Visits

Tuesday, Sept. 15- 7 pm or

Thursday, Sept. 17- 10pm

Where:  from the comfort of your own home

Registration is required: call -1-800-344-4867 or email generalmailbox@nmss.org or register online from this link: http://www.nationalmssociety.org/Chapters/NJM/Services-and-Support/Telconferences/Tele-learning-Series-2014-2015.  You will get a call in number or web link upon registration. Register for all of them today – you will receive a reminder for each call.


Can Do Multiple Sclerosis Upcoming Webinars – FREE!

2nd Tuesday of each month 8:00p.m. – 9:15p.m. EST. Reserve your spot now!

Can Do MS’s monthly webinar series offers insight from MS experts representing different medical disciplines so that participants can gain additional knowledge relating to MS.  Participants interact with a team of Can Do MS Programs Consultants, by asking questions to learn how to actively co-manage their MS from the comfort of their home.  The next two webinars are listed below:      

         December 9, 2014: 8:00 – 9:15 p.m. Eastern Standard Time

Holistic Tips to Healthy Eating and Exercise

Presented by Can Do MS Programs Consultants: Aliza Ben-Zacharia, DrNP, ANP, MSCN & Amy Dix, MPA-C, MSCS

An important way to stay healthy is to adopt a healthy diet and to exercise regularly. Healthy habits include making and creating a balanced diet, implementing an exercise program and also having enough time for relaxation. Nutrition and exercise are the cornerstones of living well and will foster a healthy lifestyle with your MS.  Register from this link:  https://cc.readytalk.com/cc/s/registrations/new?cid=c0eodnpb866a.

January  13, 2015 8:00 – 9:15 p.m. Eastern Standard Time
Get Motivated to Get Organized
Presented by Can Do MS Programs Consultants:  Juliann Hanson-Zlatev, OTR & David Rintell, EdD

Life can be pretty complicated these days, and it is difficult to keep track of our appointments, email, family life, relationships and finances. One way to overcome the effects of MS fatigue is to incorporate organizational skills and strategies into your day to day life. We could all benefit from being more organized, but it is difficult to get started.  Register from this link:  https://cc.readytalk.com/cc/s/registrations/new?cid=enlue1yxpn2y.

Webinar Series Archive

If you are not able to view Can Do MS webinars live, then please Can Do MS’s webinar

archives. Watch them on your own time. Visit http://www.mscando.org/webinararchive

Are You Newly Diagnosed With MS? 

Click on the link below to view an archived webinar, Managing Multiple Sclerosis Early: Get Ahead of the Diseasehttp://www.mscando.org/multiple-sclerosis-programs/webinar-series/2014-webinar-archive/


Holy Name Orthotic Clinic

The physical therapy department of Holy Name Medical Center offers an orthotic clinic for anyone needing to get an ankle foot orthotic or other prescribed brace; patients will be evaluated by physical and occupational therapists; orthotic vendors will be present.  The clinic is held on the second Wednesday of each month.  To make an appointment or to get more information, please call the physical therapy department at 201-833-3085.


Back Home Safely!

What:  Learn about home modifications and home safety as mobility declines.

When:  Monday, December 8, 2014, Noon; refreshments will be served

Where:  Barnabas Health Ambulatory Care Center, 200 South Orange Avenue, Livingston

Speaker:  Karen Frank, OT

RSVP:  register by 12/1 by calling 1-888-724-7123 or email TeamLINK@barnabashealth.org - call Lauryn Weinshank, LSW

973.322.7935 to learn more about this program.

Sponsored by:  Barnabas Health Ambulatory Care Center


Craft Fair at Barnabas – looking for people who want to show/sell their items!

Are you a person living with MS?

Do you create or design special items? (Ex – soaps, jewelry, paintings)

Would you be interested in showing or selling your craft at a fair within Barnabas Health?

For more information, contact Lauryn Weinshank, LSW by Jan 15 at 973-322-7935 or lweinshank@barnabashealth.org


Program in Spanish - Please share this with anyone you know who is affected by MS and also speaks Spanish!

Café con Leche

Café con Leche es un programa gratuito de la Sociedad ofreciendo un grupo de apoyo que se reúne mensualmente por teléfono bajo la dirección de un profesional para todos los

hispanohablantes afectados por la esclerosis múltiple y que quieren comunicarse con otros. Para averiguar más o inscribirse, llame al 1-800-344-4867, opción 3.

Café con Leche is a Society program offering a free monthly professionally led telephone support group for anyone affected by MS who speaks Spanish and wants to connect with others. To learn more or to register, call 1-800-344-4867.


FRIENDS – that is what you get when you join a self-help group (SHG)!

F =  Fun to be had when you join the group.

R =  Research updates and study participation experiences to be shared among group members.

I =  Information to be discussed about a variety of topics.

E =  Education is important.

N =  Network to live your best life with MS.

D =  Dedicate your time to help people with MS.

S = Socialize, meet new people.

There are more than 30 SHGs in the 14 counties of the NJ Metro service area.  There may be one that is just right for you!  Learn about the different groups and see how you can contribute to the excitement of their meetings.  Your participation and voice is always welcome!

NEW groups are now forming at Overlook Hospital in Summit, at the library in Middletown and at the Holy Name Fitness Center in Oradell.

A group for veterans with MS meets at the VA in East Orange on the 4th Tuesday of every month. 

For more information contact Joyce Williams at 973--676-1000 x1729.

For more information about SHGs, contact Lisa at that Chapter at lisa.torre-janssesn@nmss.org or at 732-508-4431.  You can also view the Chapter website page at:  http://www.nationalmssociety.org/Chapters/NJM/Find-Resources-and-Support/Programs/Self-Help-Group.


Attention Veterans!

People who served in the armed forces may have special benefits that address their MS related needs.  For more information to see if you are eligible for specific veteran programs, contact Joyce Williams at 973-676-1000, ext. 1729


Care Partner Support Group

Connect with other care partners, find support and share your experiences. This National MS Society support group is led by experienced volunteers who are here to help you navigate life as a care partner of a person with MS.  To learn more, click on this link:  Carepartner Support Group


Coaching for Emerging Artists

Arts Unbound is excited to announce it has received a grant from the Kessler Foundation to provide professional development support to fifteen to twenty artists with disabilities over the next year (October 2014-September 2015).

Arts Unbound is actively recruiting new emerging artists with disabilities for the program. All the participants will be expected to commit to developing a career plan, participate in workshops and master classes, and learn how to approach galleries and retailers. Staff will conduct portfolio reviews, promote the participants’ work to galleries, boutiques, and other retailers, license works for reproduction, help artists build online portfolios, and host group art exhibits.

Artists interested in participating should contact Celene Ryan, Director of Artist Development at Arts Unbound at 973-675-2787 or cryan@artsunbound.org. You may send up to three images of work you think represents your strongest efforts. Please also share a little about yourself and your artistic goals for the next year.  


Research Participation Opportunities – you may even get a stipend!

There are several opportunities for people with MS to participate in research studies, either on site, at home or online.  Currently our website describes specific research opportunities with Columbia University, Kessler Foundation Research Center, Rutgers and the State University of NY at Buffalo.  Click on this link to learn about these studies: 

http://www.nationalmssociety.org/Chapters/NJM/Services-and-Support/Resources/Local-Research-Studies

For more information about additional nationwide opportunities, click on this link: 

http://www.nationalmssociety.org/Research/Participate-in-Research-Studies/Surveys#section    


Do you have an employment question you would like answered? Are you curious about workplace disclosure, social security benefits, need a reasonable accommodation or are you thinking about returning to work?

If so, the National MS Society has a dedicated employment specialist to answer your questions.  Feel free to pose your questions directly to this email address:  EmploymentQuestions@nmss.org.  You can expect to receive a response within 48 hours.


How to Choose the Wheeled Mobility Device that's Right for You

You can learn about how to choose a mobility device right from the comfort of your own home!  The videos are available on the National MS Society website (scroll to the bottom and both parts are there) and on YouTube.  They are equipped with closed captions. To activate the closed captions when playing the videos on YouTube, click on the CC button on the toolbar that appears below the video, and select on.

Are you looking for a low cost mobility device?  Then read the next paragraph to learn about the Chapter’s Client-to-Client Resources webpage…


Client to Client Resources 

View this webpage to learn about specific durable medical equipment that is available free or low cost: 

http://www.nationalmssociety.org/Chapters/NJM/Find-Resources-and-Support/Resources/Client-to-Client-Resources


Free Educational Programs from Pharmaceutical Companies The National MS Society, New Jersey Metro Chapter is making this information available to you about these educational opportunities.  The National MS Society, New Jersey Metro Chapter is not sponsoring these programs. The Society has had no role in developing the content of these programs:

What:  Plegridy, Inside Interferons

When:  Thursday, December 4th, 6-8pm; registration begins at 5:30pm; complimentary dinner will be served

Where:  The Hyatt Hotel, 3 Speedwell Ave., Morristown, N.J., 07960

Speaker:  Mark Diamond, MD,  of The Neuroscience Center of Northern NJ

RSVP:  1-866-955-9999

Sponsored by:  Biogen Idec

 

What:  Inside Interferons

When:  Tuesday, December 9th, 6-8pm; registration begins at 5:30pm; complimentary dinner will be served

Where:  Maggiano’s Little Italy, 70 Riverside Square, Hackensack, NJ 07601

Speaker:  David Duncan, MD,  Holy Name MS Center in Teaneck

RSVP:  1-866-955-9999

Sponsored by:  Biogen Idec

 

              What:  Gilenya® Patient Programs:  Know Your Options:  A Closer Look at Gilenya® (fingolimod) and You

              When:  Tuesday evenings at 7:00 pm and Thursday evenings at 10:00 pm

              Where:  Speakers Direct on Line, Webinars

              Speaker(s): MD's, NP's and Patient Guides

              Sponsored by:  Novartis Pharmaceuticals

              More information: http://www.gilenyapatientprogram.com/meetings/pdf         

 

WEBINAR SERIES:

What:  TYSABRI Webinar Series so you can stay connected.  If you or a loved one has relapsing MS and wants to explore a treatment option, this webinar is for you. Join this webinar series to better understand relapsing MS and learn about treatment with TYSABRI(natalizumab). When:  Wednesday, November 19, 7PM ET/6PM CT

Where:  from the comfort of your own home

Speakers:  Each episode, you’ll hear from someone taking TYSABRI for their relapsing MS. Listen as a healthcare professional discusses the latest information about TYSABRI and offers additional tips on how to manage your relapsing MS.

Sponsored by:  Biogen Idec

To register and view the complete webinar schedule, visit www.TysabriWebEvents.com or call1-866-5368127


Keep S'myelin - a newsletter about MS just for kids!

Keep S’myelin is a colorful, engaging, informative, and reassuring newsletter to help children and their parents talk and learn about MS together. Each issue is filled with stories, interviews, games, and activities that highlight a specific topic related to MS, as well as a special section just for parents.  To receive this newsletter, contact Lisa at the Chapter at Lisa.Torre-Janssen@nmss.org.


Walk MS Weekend – April 18 and 19, 2015

You can now register for Walk MS in NJ!  This we are presenting a weekend of walks.  Learn more from this link:  walknjm.nationalMSsociety.org


New Date! NJ Metro Chapter’s first-ever Climb to the Top; 33 flights of stairs, 822 steps closer to a cure! 

Our chapter has decided that, in order to provide all our attendees with the best event experience possible, Climb to the Top will not be held on November 15th. Instead, the event will have a new date of Saturday, March 28th. This new date, which is during MS Awareness Month, will provide participants more time to train, recruit and fundraise.

 

What:  Participants will climb 33 flights of stairs at Mack-Cali Harborside Plaza 5 in Jersey City.

When:  Saturday, March 28, 2015; Check-in will start at 12PM with the first wave starting at 1PM

(please note, waves will be assigned one week prior)

Where:  Mack-Cali Harborside Plaza 5,185 Hudson Street, Jersey City 07311

Registration Fee: $35; Fundraising Minimum: $250

Don’t miss the after-party at Henry’s on the Hudson!  Celebrate with others, enjoy the NYC skyline view, receive a complimentary appetizer and order dinner & drinks.

Registration and more information:  eventnjm.nationalMSsociety.org

For more information please contact: Julie Falgiano 732.508.4432 julianne.falgiano@nmss.org   


Find Us On Facebook!  https://www.facebook.com/NMSSnjm

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