Current NJ Metro Program & Service Announcements - National Multiple Sclerosis Society

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Current NJ Metro Program & Service Announcements



Various dates and times

In Person

This information is updated the first week of every month

This page was last edited 1/5/15


Dear Friend of the NJ Metro Chapter,    

Please read this message to learn about telephone and web learning opportunities (employment, research, intimacy, etc), cycling, climbing, Walk MS weekend and much more!

You can read our most current Chapter newsletter online from this link:

Employment Matters, a 4-week tele-discussion series; this program is only for individuals with MS who are currently employed.

As a complex and unpredictable disease, MS can have varying effects on a person’s ability to work. Trying to manage MS on the job can be challenging for many 

What:  a 4-week tele-discussion series; Join us for an open discussion where other members can ask questions and share what has worked for them. Prior to each group you will be asked to view a brief 5-6 minute video on the topic to be discussed for that week. 

When:  Each program runs from 7-8 PM

  • Tuesday, February 3 – Being Proactive
  • Tuesday, February 10 - Legal Protections and Assistive Technology
  • Tuesday, February 24 - Disclosure
  • Tuesday, March 3 - Fatigue and Cognition  

Where:  from the comfort of your own home 

RSVP:  You must register for the series. Space is limited, register early. 

If you are interested in participating, please call 212-453-3218 or email Barbara McKeon for a brief screening.

Tele-learning Series

What:  A series of teleconferences aimed at providing information and guidance on current matters essential to liv­ing one’s best life with MS featuring experts by phone with an online presentation and Q&A.

Research in MS – Your Questions Answered

Tuesday, January 20- 7 pm or

Thursday, January 22- 10pm

MS Employment: 4 Part Series (differs from the Employment Matters program described above)

February 12, 26 and March 12, 26; 8pm

Managing MS Bowel and Bladder Symptoms    

Tuesday, March 17- 7 pm or

Thursday, March 19– 10pm

Sex ED for Grownups-Intimacy in MS

Tuesday, May 19- 7 pm or

Thursday, May 21- 10pm

Gender Differences in MS

Tuesday, July 21- 7 pm or

Thursday, July 23- 10pm

Preparing for MS Doctor Visits

Tuesday, Sept. 15- 7 pm or

Thursday, Sept. 17- 10pm

Where:  from the comfort of your own home

Registration is required: call -1-800-344-4867 or email or register online from this link:

You will get a call in number or web link upon registration. Register for all of them today – you will receive a reminder for each call.

Please note: all tele-learning calls are recorded and can be found on the same webpage indicated above

Can Do Multiple Sclerosis Upcoming Webinars – FREE!

2nd Tuesday of each month 8:00p.m. – 9:15p.m. EST. Reserve your spot now!

Can Do MS’s monthly webinar series offers insight from MS experts representing different medical disciplines so that participants can gain additional knowledge relating to MS.  Participants interact with a team of Can Do MS Programs Consultants, by asking questions to learn how to actively co-manage their MS from the comfort of their home.  The next two webinars are listed below:

January  13, 2015 8:00 – 9:15 p.m. Eastern Standard Time

Get Motivated to Get Organized
Presented by Can Do MS Programs Consultants:  Juliann Hanson-Zlatev, OTR & David Rintell, EdD
Life can be pretty complicated these days, and it is difficult to keep track of our appointments, email, family life, relationships and finances. One way to overcome the effects of MS fatigue is to incorporate organizational skills and strategies into your day to day life. We could all benefit from being more organized, but it is difficult to get started.  Register from this link:   

February  10, 2015 8:00 – 9:15 p.m. Eastern Daylight Time

Flying Solo with Multiple Sclerosis
Presented by Can Do MS Programs Consultants:  Peggy Crawford, PhD & Linda Walls, OTR
Most people are faced with changes, losses and the need to make adjustments during their lives, but individuals with MS seem to have more than their fair share of these experiences.  And, if you are living alone with MS, these changes can be even more challenging.  Join Linda Walls, Occupational Therapist, and Peggy Crawford, Psychologist, as they discuss the strategies in the decisions you can make to maintain independence while functioning at the highest possible level, both physically and emotionally.  Register from this link:  

Webinar Series Archive

If you are not able to view Can Do MS webinars live, then please Can Do MS’s webinar archives. Watch them on your own time. Visit

Are You Newly Diagnosed With MS? 

Click on the link below to view an archived webinar, Managing Multiple Sclerosis Early: Get Ahead of the Disease

Holy Name Orthotic Clinic

The physical therapy department of Holy Name Medical Center offers an orthotic clinic for anyone needing to get an ankle foot orthotic or other prescribed brace; patients will be evaluated by physical and occupational therapists; orthotic vendors will be present.  The clinic is held on the second Wednesday of each month.  To make an appointment or to get more information, please call the physical therapy department at 201-833-3085.

Craft Fair at Barnabas – looking for people who want to show/sell their items!

Are you a person living with MS?

Do you create or design special items? (Ex – soaps, jewelry, paintings)

Would you be interested in showing or selling your craft at a fair within Barnabas Health?

For more information, contact Lauryn Weinshank, LSW by Jan 15 at 973-322-7935 or

Program in Spanish - Please share this with anyone you know who is affected by MS and also speaks Spanish!

Café con Leche

Café con Leche es un programa gratuito de la Sociedad ofreciendo un grupo de apoyo que se reúne mensualmente por teléfono bajo la dirección de un profesional para todos los hispanohablantes afectados por la esclerosis múltiple y que quieren comunicarse con otros. Para averiguar más o inscribirse, llame al 1-800-344-4867, opción 3.

Café con Leche is a Society program offering a free monthly professionally led telephone support group for anyone affected by MS who speaks Spanish and wants to connect with others. To learn more or to register, call 1-800-344-4867.

FRIENDS – that is what you get when you join a self-help group (SHG)!

F =  Fun to be had when you join the group.

R =  Research updates and study participation experiences to be shared among group members.

I =  Information to be discussed about a variety of topics.

E =  Education is important.

N =  Network to live your best life with MS. 

D =  Dedicate your time to help people with MS.

S = Socialize, meet new people.

There are more than 30 SHGs in the 14 counties of the NJ Metro service area.  There may be one that is just right for you!  Learn about the different groups and see how you can contribute to the excitement of their meetings.  Your participation and voice is always welcome!

NEW groups are now forming at Overlook Hospital in Summit, at the library in Middletown and at the Holy Name Fitness Center in Oradell.

A group for veterans with MS meets at the VA in East Orange on the 4th Tuesday of every month. 

For more information contact Joyce Williams at 973--676-1000 x1729.

For more information about SHGs, contact Lisa at that Chapter at or at 732-508-4431.  You can also view the Chapter website page at:

Attention Veterans!

People who served in the armed forces may have special benefits that address their MS related needs.  For more information to see if you are eligible for specific veteran programs, contact Joyce Williams at 973-676-1000, ext. 1729 

Care Partner Support Group

Connect with other care partners, find support and share your experiences. This National MS Society support group is led by experienced volunteers who are here to help you navigate life as a care partner of a person with MS.  To learn more, click on this link:  Carepartner Support Group

Coaching for Emerging Artists

Arts Unbound is excited to announce it has received a grant from the Kessler Foundation to provide professional development support to fifteen to twenty artists with disabilities over the next year (October 2014-September 2015).

Arts Unbound is actively recruiting new emerging artists with disabilities for the program. All the participants will be expected to commit to developing a career plan, participate in workshops and master classes, and learn how to approach galleries and retailers. Staff will conduct portfolio reviews, promote the participants’ work to galleries, boutiques, and other retailers, license works for reproduction, help artists build online portfolios, and host group art exhibits.

Artists interested in participating should contact Celene Ryan, Director of Artist Development at Arts Unbound at 973-675-2787 or You may send up to three images of work you think represents your strongest efforts. Please also share a little about yourself and your artistic goals for the next year.  

Research Participation Opportunities – you may even get a stipend!

There are several opportunities for people with MS to participate in research studies, either on site, at home or online.  Currently our website describes specific research opportunities with Columbia University, Kessler Foundation Research Center, Rutgers and the State University of NY at Buffalo.  Click on this link to learn about these studies:

For more information about additional nationwide opportunities, click on this link:    

Do you have an employment question you would like answered? Are you curious about workplace disclosure, social security benefits, need a reasonable accommodation or are you thinking about returning to work?

If so, the National MS Society has a dedicated employment specialist to answer your questions.  Feel free to pose your questions directly to this email address:  You can expect to receive a response within 48 hours.

How to Choose the Wheeled Mobility Device that's Right for You

You can learn about how to choose a mobility device right from the comfort of your own home!  The videos are available on the National MS Society website (scroll to the bottom and both parts are there) and on YouTube.  They are equipped with closed captions. To activate the closed captions when playing the videos on YouTube, click on the CC button on the toolbar that appears below the video, and select on.

Are you looking for a low cost mobility device?  Then read the next paragraph to learn about the Chapter’s Client-to-Client Resources webpage.

Client to Client Resources

View this webpage to learn about specific durable medical equipment that is available free or low cost:

Free Educational Programs from Pharmaceutical Companies

 The National MS Society, New Jersey Metro Chapter is making this information available to you about these educational opportunities.  The National MS Society, New Jersey Metro Chapter is not sponsoring these programs. The Society has had no role in developing the content of these programs:

What:  Getting to Know Plegridy for Relapsing MS

When:  1/22/14, 6:00 pm;  a meal will be served; free parking

Where:  Hyatt Morristown, 3 Speedwell Avenue, Morristown, NJ 07960

Speaker:   Dr. Krupa Pandey, Director of the MS Center at St. Barnabas Health

RSVP:  1-866-955-9999 or

Sponsored by:  Biogen


What:  MS Portfolio Discussion

When:  Thursday, February 26th; meal will be served and complimentary parking will be available

Where:  Hyatt Morristown, 3 Speedwell Avenue, Morristown, NJ

Speaker:  Dr. Krupa Pandey, Director of the MS Center at St. Barnabas Health

RSVP:  1866-955-9999 or

Sponsored by:  Biogen Idec


What:  Gilenya® Patient Programs:  Know Your Options:  A Closer Look at Gilenya® (fingolimod) and You

When:  Tuesday evenings at 7:00 pm and Thursday evenings at 10:00 pm

Where:  Speakers Direct on Line, Webinars

Speaker(s): MD's, NP's and Patient Guides

Sponsored by:  Novartis Pharmaceuticals

More information:                  



What:  TYSABRI Webinar Series so you can stay connected.  If you or a loved one has relapsing MS and wants to explore a treatment option, this webinar is for you. Join this webinar series to better understand relapsing MS and learn about treatment with TYSABRI(natalizumab). When:  Wednesday, November 19, 7PM ET/6PM CT

Where:  from the comfort of your own home

Speakers:  Each episode, you’ll hear from someone taking TYSABRI for their relapsing MS. Listen as a healthcare professional discusses the latest information about TYSABRI and offers additional tips on how to manage your relapsing MS.

Sponsored by:  Biogen Idec

To register and view the complete webinar schedule, visit or call1-866-5368127 

Keep S'myelin - a newsletter about MS just for kids!

Keep S’myelin is a colorful, engaging, informative, and reassuring newsletter to help children and their parents talk and learn about MS together. Each issue is filled with stories, interviews, games, and activities that highlight a specific topic related to MS, as well as a special section just for parents.  To receive this newsletter, contact Lisa at the Chapter at

Ready to go for a Spin for MS?

Join MS Cycle for a Cure, an inspiring indoor cycling event on Sunday, March 1st!  We are seeking team captains to recruit a team that will raise funds for MS research. The event offers four 45-minute sessions of exciting indoor spinning. You can ride one session or four, depending on your team size.  The goal of this event is to bring the entire MS Community together to raise awareness and funds for critical MS Research. With teams representing all areas of the MS Community, we need you to get on a bike and spin for MS research!  

Hosted at HackensackUMC Fitness & Wellness Powered by The Giants in Maywood, NJ.  Contact Jamie Woodward at or at 212-476-0483.  To register, visit the event website at:

Walk MS Weekend – April 18 and 19, 2015

You can now register for Walk MS in NJ!  This we are presenting a weekend of walks.  Learn more from this link:

NJ Metro Chapter’s first-ever Climb to the Top; 33 flights of stairs, 822 steps closer to a cure! 

What:  Participants will climb 33 flights of stairs at Mack-Cali Harborside Plaza 5 in Jersey City.

When:  Saturday, March 28, 2015; Check-in will start at 12PM with the first wave starting at 1PM (please note, waves will be assigned one week prior)

Where:  Mack-Cali Harborside Plaza 5,185 Hudson Street, Jersey City 07311

Registration Fee: $35; Fundraising Minimum: $250 

Don’t miss the after-party at Henry’s on the Hudson!  Celebrate with others, enjoy the NYC skyline view, receive a complimentary appetizer and order dinner & drinks. 

Registration and more information:

For more information please contact: Julie Falgiano 732.508.4432

MS Rock for a Cure!

We can't wait any longer to share this awesome event with you! We'll be partnering with the Count Basie Theatre & The Fab Faux – a Beatles tribute band – on June 13 to bring you a brand-new concert event. Are you ready to rock for a cure? For more information and to buy tickets, contact Karen at the NMSS at 201-977-6054or at

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