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Opportunities to Participate in Local Research Studies

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Opportunities to Participate in Research Studies

Some studies offer stipends!

Studies are listed alphabetically by institution.

Case Western Reserve University

Teleconference Intervention to Increase Exercise and Decrease Fatigue; Research Participation via phone and mail – you  do not have to travel.

Investigators at Case Western Reserve University are recruiting people for a study to determine whether methods of fatigue management and increasing physical activity that are often provided by rehabilitation centers can be distributed with a series of teleconferences and phone interviews. Matthew Plow, PhD, the primary investigator, is funded by a research grant from the National MS Society.  Participants should be ages 18 to 65, with a diagnosis of MS and the ability to walk 25 feet with or without a cane. Among those excluded are people who exercise more than 90 minutes per week, are pregnant, have metabolic or cardiopulmonary disease that puts them at high risk for engaging in a home exercise program, or have had four or more falls in the past 6 months. To learn more about the enrollment criteria for this study, and to find out if you are eligible to participate, please contact Meghan Golding, 216-368-0643, Meghan.Golding@UHhospitals.org

CentraState Medical Center – the Linda E Cardinale MS Center, Freehold, NJ

For all CentraState studies, contact: Heba El Farra Darwish/ Ph. 732-637-6353/ hdarwish@centrastate.com

1. A 12-month, randomized, rater- and dose-blinded study to compare the efficacy and safety of fingolimod 0.25 mg and 0.5 mg administered orally once daily with glatiramer acetate 20 mg administered subcutaneously once daily in patients with relapsing-remitting multiple sclerosis

The study population will consist of adult male and female patients with RRMS who meet all of the inclusion criteria and none of the exclusion criteria, Treatment-naïve patients and patients previously treated with disease-modifying therapies for MS, with the exception of S1P modulator therapy, are eligible to participate in the study. Patients being treated with first-line DMDs at the screening visit can continue drug intake up to the day before Day 1 of this study.

2. Long-term, prospective, multinational, parallel-cohort study monitoring safety in patients with MS newly started with fingolimod once daily or treated with another approved disease-modifying therapy.

This study will include patients with relapsing forms of MS that have been newly prescribed fingolimod by their treating physician or patients that are treated with other disease-modifying therapies as part of their MS treatment in accordance with the respective local prescribing information and routine clinical practice.

3. A Multicenter, Randomized, Double-Blind, Placebo-Controlled Study of the Efficacy and Safety of BG00012 in delaying Disability Progression in Subjects With Secondary Progressive Multiple Sclerosis

To be eligible to participate in this study, candidates must meet the following eligibility criteria at the time of randomization (Day 1) or at the timepoint specified in the individual eligibility criterion listed:

  • Ability to understand the purpose and risks of the study and provide signed and dated informed consent and authorization to use protected health information in accordance with national and local subject privacy regulations.
  • Age 18 to 58 years, inclusive, at the time of informed consent.
  • Onset of SPMS at least 1 to 2 years prior to randomization. SPMS is defined as relapsing-remitting disease followed by progression of disability independent of or not explained by relapses

4. A Multicenter, Double-Blind, Placebo-Controlled Study of Montelukast on Gastrointestinal Tolerability in Patients With Relapsing Forms of Multiple Sclerosis Receiving Tecfidera® (Dimethyl Fumarate) Delayed-Release Capsules

5. Plegridy™ (peginterferon β-1a) Real World Effectiveness and Safety Observational Program

  • Patient with MS who has been newly prescribed Plegridy according to local label or patient who participated in Study 105MS302 or Study 105MS303.
  • Patient age 18 years or older.

Drexel University

Multi-Tasking Study

We all do it: multitasking. Drexel University is looking for people to participate in a research study examining individuals with Multiple Sclerosis and how their ability to multitask is related to employment status. We are recruiting both individuals with and without Multiple Sclerosis to take part in this study. Participants will be asked to completed brief paper and pencil tasks, discuss their current or past experiences at work, and engage in a real-world multitasking task. The study will be split into two sessions lasting approximately 2 hours. If you are between the ages of 18-60 and want to take part in this research study, please call or email Dr. Maria Schultheis at 215-571-4253 or Schultheis@drexel.edu. Participants will be compensated for their time with $60.


Sleep and MS (Philadelphia)

Drexel University in Philadelphia is conducting a research study examining sleep and cognitive function in people with relapsing-remitting MS. They are currently seeking research participants between 18 and 55 years of age who have had a diagnosis of MS for at least six months. Participants need to come to Drexel University to enroll in the study and complete initial questionnaires (30 minutes), complete two weeks of at-home sleep tracking, and return to Drexel University for a follow up study session including paper and computerized tests and questionnaires (2-3 hours). Participants will be compensated for participation in this study.

All information is confidential and strictly used for research purposes only.

To participate, or for more information, please contact the Health and Neuropsychology lab, at 215-553-7145, or email the research team at sleepandhealth@drexel.edu.


Kessler Foundation KESSLER FOUNDATION IS SEEKING VOLUNTEER RESEARCH SUBJECTS FOR OUR MULTIPLE  SCLEROSIS (MS) STUDIES!

Emotional Processing and Relationships in MS
This study examines how individuals with MS process emotions and how this affects relationships and quality of life. The study involves testing sessions (5 hours, may be done in one or two visits) and the individual’s significant other will be asked to complete questionnaires. Compensation is $50. Eligibility: Volunteers must be between 18-55 and have no other neurological illness. Healthy controls are also needed for this study.

Employment and MS
Researchers at the Kessler Foundation are interested in learning more about the factors associated with employment decisions in MS. They are recruiting individuals who are gainfully employed. In particular, they are looking for people who are considering leaving the workforce or feeling as if they need to cut back on hours. All participants will complete an online survey asking about their work status and various factors thought to be related to managing one’s MS and ability to work.

Exercise Training in MS
The study examines how brain function is improved by exercise. The study involves paper tests, fitness testing, and an MRI scan (two sessions: baseline and follow-up), four group exercise classes at Kessler Foundation (one hour each), an individualized at-home exercise program (3 days a week for 16 weeks) and three one-on-one chat sessions with a personal trainer, over the phone or online. Compensation is $175. Eligibility: Volunteers must be between the ages of 18-64, not using an assistive device to walk (e.g., cane) and experiencing significant fatigue.
Speed of Processing Training to Improve Cognition in MS
This study examines a technique to improve the time it takes to process information in people with MS. The study involves 2-3 hour test sessions (baseline, short-term follow up, long-term follow up) and a training program (2 one-hour sessions a week, 5 weeks). There is a 50/50 chance of being in a treatment group or a control group. Compensation is $225. There are optional MRI scans (three scans: baseline, short-term follow up, long-term follow up). Compensation for this additional involvement is $100. Eligibility: Volunteers must be between the ages of 18-59 and have no other neurological illness.
Testing the Effects of Methylphenidate on MS
This study examines the use of this medication for persons with MS. The study involves 3 hour test sessions (baseline, short-term follow up, long-term follow up) and meetings with study doctor. Each participant will receive medication for 4 weeks and a sugar pill for another 4 weeks. Compensation is $25. Eligibility: Volunteers must be between the ages of 18-65.
Treating Learning and Memory Deficits in Progressive MS
This study examines the effects of a memory retraining technique. The study involves 2-3 hour test sessions (baseline, short-term follow up, long-term follow up) and training sessions (2 one-hour sessions a week for 5 weeks). There is a 50/50 chance of being in a treatment group or a control group. Volunteers will be compensated $225. Eligibility: Volunteers must be between the ages of 18-70.

For more information, contact:
Nancy Moore
nbmoore@kesslerfoundation.org
973-324-8450

Rutgers-New Jersey Medical School (Newark)

This study is testing the safety and effectiveness of an investigational drug in reducing MS relapses, funded by Novartis.

If you or someone you know has been diagnosed with relapsing-remitting multiple sclerosis (RRMS), you may be interested in a medical research study that is taking place at Rutgers-New Jersey Medical School (Newark).

To pre-qualify for this study, you must:

  • Be between the ages of 18 and 65
  • Have RRMS and 1 documented relapse during the previous year or 2 documented relapses during the previous 2 years

The study doctor will assess additional criteria during the screening period to determine whether this study is suitable for you. There is no expense to participate in this study. Eligible participants will receive study-related care and evaluations at no cost. Your participation is completely voluntary.

To find out more about this research study and learn if you pre-qualify to participate, call Deb Thurston at 973-972-2324


University of New York at Buffalo State

Life Goals and Purpose in People with MS

Researchers at the State University of New York at Buffalo are interested in studying the relationship between life goals and purpose in life of people diagnosed with MS.  U.S. citizens, over the age of 18 with a diagnosis of MS are eligible to take the online survey.  The questionnaire will take approximately 30 minutes to complete.  Participation is voluntary and information gathered is anonymous and will be kept confidential.  There is no direct compensation for this study.  It is hoped that the research will help improve services for individuals with MS in the future. Click here to go to survey.


University of California, San Francisco (UCSF)

Researchers Recruiting African American MS Patients and Healthy Controls for Genetics Studies – Key to finding cause of MS and better treatments.  It is not necessary to travel to CA for this research; read on.

Investigators at the UCSF are conducting research exploring the genetic basis of MS in African Americans. The UCSF team is asking for the donation of blood samples from African-American MS patients and also healthy controls without MS. It is not required, but the participation of certain family members is preferred as well

It is not necessary to travel to San Francisco to participate in this study. Once an individual has completed the initial online intake form and has agreed to participate, they are emailed the links to two additional online forms and sent a kit via express mail. The kit includes a consent form, a health information privacy form, and a medical records release form. The kit also includes everything necessary for the blood draw, which can be taken to your local Quest Diagnostics Lab, where the blood can be drawn and then returned in a prepaid envelope to the UCSF MS Genetics Lab. There is no cost to the study participants.

Contact:  To participate or request additional information, please complete this brief intake survey.  To learn more. Visit this link:  http://www.nationalmssociety.org/About-the-Society/News/Researchers-Recruiting-African-Americans-with-MS-a.


YourCareMoments  -   Paid Online Surveys for MS Patients

YourCareMoments is a market research company that focuses on patient healthcare experiences.  Through short paid online surveys, YourCareMoments wants to know about the medications you are taking, the prices you are paying, your doctor’s visits and most importantly, how you feel about these experiences. 

Surveys are short and you will get paid per survey.  Once a survey is completed, your earnings will be sent to your Paypal account within 2-3 business days.  At no time will you ever be asked to give up your identity as these surveys are anonymous.  Surveys are ongoing so registrants will have many opportunities to participate in multiple surveys.

In order to participate, you must register at www.yourcaremoments.com and be 18 years or older living in the U.S.  Feel free to email Keith at contact@yourcaremoments.com to address any questions you may have.

To participate or request additional information, please complete a brief intake survey from this link:  https://redcap.ucsf.edu/surveys/?s=RPKGc4.

More information from this website:  http://msgenetics.ucsf.edu/


To learn about more research studies beyond the tri-state area, visit this website: http://www.nationalmssociety.org/Research/Participate-in-Research-Studies

To learn about Resarch News and Progress, click here.

 

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