National Multiple Sclerosis Society
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Ensure that Congress provides funding for MS research so that we can stop MS in its tracks, restore what has been lost and end MS forever.
Caregivers of people with MS spend about 24 hours a week providing care. Of these caregivers, 64% are emotionally drained, 32% experience depression and 22% have lost a job due to caregiving responsibilities. The Lifespan Respite Care Program helps states better coordinate and deliver quality respite care that improves the health of family caregivers and allows the person living with MS to continue living at home.
The Advancing Research for Neurological Diseases Act (H.R. 292/S.849) will create a nationwide system to track the incidence and prevalence of neurological diseases, including MS, which could one day lead to a cure.
The Ensuring Access to Quality Complex Rehabilitation Act creates a separate benefit category under Medicare for complex rehabilitation technology (CRT), protecting access to these customized products so that people with significant disabilities can have their medical needs addressed and remain independent.
Medicaid provides comprehensive health coverage to nearly 9 million non-elderly people with disabilities and to 10 million low-income Medicare beneficiaries who rely on Medicaid to fill Medicare’s gaps including many people living with MS. Medicaid is a true safety net for people with MS as MS is one of the most expensive chronic diseases and people with MS are often forced to stop working because of their disease.
Lack of public information on the price of healthcare services, the paperwork required to attain care, and insufficient notification of benefit changes contribute to the burden of living with MS.
People with multiple sclerosis (MS) have a variety of healthcare needs including neurological symptoms, emotional and psychological issues, rehabilitation interventions to enhance mobility and independence and long-term care. These healthcare needs vary dramatically person to person. Every person with MS needs meaningful access to a comprehensive network of providers to meet his or her unique needs.
Partnerships and the relationships that result allow us to be at the table when decisions are being made and advocate for changes that have a positive impact on the lives of those with MS.
People living with multiple sclerosis (MS) sometimes find that it is necessary for them to modify their homes to increase accessibility and improve safety. Modifying a home may also allow a person with MS to maintain a connection to a job, or remain an active member of the community, or even to remain independent. However, these modifications can be prohibitively expensive. People with MS may benefit from financial relief—for example, in the form of credits when they file their taxes.
Middle and low income families rely on spousal refusal to preserve their income to make ends meet.
In order for an insurance plan to make affordable care accessible, it must have a robust network of a variety of types of healthcare providers.
The New York MS Coalition Action Network supports efforts by New York State to enhance the availability of telehealth and telemedicine.
There are approximately 34,000 families impacted by multiple sclerosis in New York who experience challenges with accessibility, access to affordable health care, transportation, employment, among other issues.
To develop and maintain a database of voters with disabilities and also to build a coalition of organizations to further support and promote NYDVN’s mission.