National Multiple Sclerosis Society
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Ensure that Congress provides funding for MS research so that we can stop MS in its tracks, restore what has been lost and end MS forever.
Caregivers of people with MS spend about 24 hours a week providing care. Of these caregivers, 64% are emotionally drained, 32% experience depression and 22% have lost a job due to caregiving responsibilities. The Lifespan Respite Care Program helps states better coordinate and deliver quality respite care that improves the health of family caregivers and allows the person living with MS to continue living at home.
The Advancing Research for Neurological Diseases Act (H.R. 292/S.849) will create a nationwide system to track the incidence and prevalence of neurological diseases, including MS, which could one day lead to a cure.
The Ensuring Access to Quality Complex Rehabilitation Act creates a separate benefit category under Medicare for complex rehabilitation technology (CRT), protecting access to these customized products so that people with significant disabilities can have their medical needs addressed and remain independent.
This legislation is chaired by Representative Marguerite Quinn, Chair of the Pennsylvania MS Caucus. The bill would standardize and streamline the prior or preauthorization process in Pennsylvania.
Assembly Bill 1952/ Senate Bill 1285: The “Out of network- Consumer Protection, Transparency Cost Containment and Accountability Act” would protect consumers against surprise out of network medical bills.
The MS Caucus is a bi-partisan caucus with 20 members in the Pennsylvania State House of Representatives.
In Pennsylvania, the National MS Society and MS activists are working on home modification tax credit legislation and your story can help with these efforts. While the legislation has not yet been introduced, you can help our efforts by sharing your story.
In New Jersey, the National MS Society and MS activists are working on home modification tax credit legislation and your story can help with these efforts. While the legislation has not yet been introduced, you can help our efforts by sharing your story.
Medicaid provides comprehensive health coverage to nearly 9 million non-elderly people with disabilities and to 10 million low-income Medicare beneficiaries who rely on Medicaid to fill Medicare’s gaps including many people living with MS. Medicaid is a true safety net for people with MS as MS is one of the most expensive chronic diseases and people with MS are often forced to stop working because of their disease.
In Delaware, the National MS Society and MS activists are working on home modification tax credit legislation and your story can help with these efforts. While the legislation has not yet been introduced, you can help our efforts by sharing your story.
Lack of public information on the price of healthcare services, the paperwork required to attain care, and insufficient notification of benefit changes contribute to the burden of living with MS.
People with multiple sclerosis (MS) have a variety of healthcare needs including neurological symptoms, emotional and psychological issues, rehabilitation interventions to enhance mobility and independence and long-term care. These healthcare needs vary dramatically person to person. Every person with MS needs meaningful access to a comprehensive network of providers to meet his or her unique needs.
Assembly Bill 1933 / Senate Bill 1261: this legislation seeks to expand access to health care providers with accessible offices.
Partnerships and the relationships that result allow us to be at the table when decisions are being made and advocate for changes that have a positive impact on the lives of those with MS.
People living with multiple sclerosis (MS) sometimes find that it is necessary for them to modify their homes to increase accessibility and improve safety. Modifying a home may also allow a person with MS to maintain a connection to a job, or remain an active member of the community, or even to remain independent. However, these modifications can be prohibitively expensive. People with MS may benefit from financial relief—for example, in the form of credits when they file their taxes.