Stacy Sinclair - Williamsburg, VA
I was 15 years old when my mother, Christine, was diagnosed with MS. After I finished college, I moved close to home so that I can help my father, Marc, care for Mom and my brother Matthew who has Down syndrome. In early 2013, my mom lost the ability to walk which vastly increased the amount of support she needs to get through the day. Now, my father, brother and I assist my mom with getting out of bed and bathing. We also help her in the restroom, feed her and assist with everyday activities such as writing. Our family’s lives center around Mom and her care because it is important to us that she is able to stay at home with the people she loves. Mom was able to qualify for Medicare early on, but since Medicare does not cover long-term services and supports, our family experienced financial strain paying out-of-pocket for a nurse to come twice a week. Looking for help, we applied for the Virginia Lifespan Respite Voucher Program and we
were approved for a voucher that supported 16-18 hours of respite. The voucher gave our family time to rest; run errands, and do something enjoyable together. I urge the Virginia legislature to provide funding for programs like the Lifespan Respite Voucher Program so that other families do not give up hope, but receive the help that they need.