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Advancing Research for Neurological Diseases and 21st Century Cures

The Advancing Research for Neurological Diseases Act (H.R. 292/S.849) will create a nationwide system to track the incidence and prevalence of neurological diseases, including MS, which could one day lead to a cure.

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What We Are Trying to Accomplish

To pass the Advancing Research for Neurological Diseases Act of 2015 (H.R. 292/S.849) and the 21st Century Cures Act. These bills were both passed in 2016.
 

Why It’s Important

The bill would establish a data collection system run through the Centers for Disease Control and Prevention that would track the incidence and prevalence of neurological diseases, including MS. This new data system could one day lead to a cure for diseases like multiple sclerosis, as information collected will provide a foundation for evaluating and understanding aspects of these diseases on which we currently do not have a good grasp – such as the geography of diagnoses, variances in gender, disease burden and changes in healthcare practices among patients. 

The 21st Century Cures Act includes a number of the MS movement's top priorities: 
  • Establishment of a data collection system to track the incidence and prevalence of neurological conditions, otherwise known as the Neuro Data bill;
  • $4.8 billion in new funding for the National Institutes of Health and $500 million for the Food and Drug Administration to bring new treatments to patients;
  • A six-month extension protecting access to power complex rehabilitation technology (CRT) wheelchair accessories, which are fundamental components of the chair such as tilt-and-recline systems and specialized seat cushions.

Happening at the National Level

On December 7th the U.S. Senate approved the 21st Century Cures Act with a 94-5 vote, which follows the House of Representatives 392-26 vote on November 30. The bill now becomes law.

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Learn more about the passage of the 21st Century Cures Act.

Position Papers & Other Support

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