Lifespan Respite Care Program - National Multiple Sclerosis Society

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Supporting Family Caregivers Through the Lifespan Respite Care Program

Caregivers of people with MS spend about 24 hours a week providing care. Of these caregivers, 64% are emotionally drained, 32% experience depression and 22% have lost a job due to caregiving responsibilities. The Lifespan Respite Care Program helps states better coordinate and deliver quality respite care that improves the health of family caregivers and allows the person living with MS to continue living at home.

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About This Issue

What We Are Trying To Accomplish: To continue funding the Lifespan Respite Care Program so that our nation’s more than 60 million family caregivers have access to quality respite care.

Why It’s Important: Caregivers of people with MS spend about 24 hours a week providing care. Of these caregivers, 64% are emotionally drained, 32% experience depression and 22% have lost a job due to caregiving responsibilities. The Lifespan Respite Care Program helps states better coordinate and deliver quality respite care that improves the health of family caregivers and allows the person living with MS to continue living at home.

Updates: Congress funded the Lifespan Respite Care Program at $2.36 million for Fiscal Year (FY) 2015, the same amount of funding it received the previous year. Through this funding, more than thirty states and the District of Columbia have received grants to establish or enhance their statewide Lifespan Respite Care Programs. States have for instance established statewide databases of available respite care and provided vouchers to families to choose and purchase quality respite care. Congress is currently considering funding levels for Fiscal Year 2015.

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