Digital Activist Campaign - National Multiple Sclerosis Society

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Campaign Digital Activism

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Make your connections count

First, learn how to find and connect with your public officials and other MS activists in social media. Then get talking! 

Make sure your messages are heard by using the hashtag #MSactivist in your messages in Facebook and all other social media (not just Twitter). Use one or two additional hashtags based on importance – such as:

If it’s important that your followers or officials know where you’re from, use your two-letter state abbreviation as a hashtag, such as #CA, #NE, #TX or #DMV (DC/Maryland/Virginia).

Federal priorities, activist Capitol Hill visits and follow-up

MS activists visited the Hill in March as part of the Society’s Public Policy Conference and urged federal legislators to

Support MS Treatments: Pipeline to Approval (appropriations and funding for agencies).

If your legislators signed on to the Dear Colleague letters supporting funding for the National Institutes of Health (NIH) and/or the MS Congressionally Directed Medical Research Program (CDMRP), say thank you:

  • @representative, thank you for signing @NIH letter led by @RepMcKinley and @RepAndreCarson supporting $32B. #MSactivist
  • @senator, thank you for signing @NIH letter led by @SenBobCasey & @SenatorBurr supporting $32B. #MSactivist
  • @representative, thanks for signing #MS #CDMRP letter led by @michaelcburgess & @ChrisVanHollen supporting $10M. #MSactivist
    [on Twitter, replace@senator or @representative with your official’s Twitter handle]

There was no Dear Colleague letter for the Food and Drug Administration (FDA) but you can still urge support for funding for the FDA:

  • @publicofficial Please support @US_FDA in FY15 for speedy #MS therapy approvals. #MSactivist
    [on Twitter, replace@publicofficial with your official’s Twitter handle or #DearCongress]
  • @ Public Official Please support #FDA in FY15 for speedy #MS therapy approvals. I’m an #MSactivist
    [on Facebook a. post on your profile and tag your official (replace @Public Official with the title of your House Representative’s Facebook page) or b. post/comment on your official's page and omit @Public Official]

Support Access to Complex Rehabilitation Technology (create a separate Medicare benefit for complex rehab power wheelchairs).

If your member of Congress hasn't sponsored the complex rehab bill yet:

  • @representative Please support #HR942 which provides #complexrehab technology to #Medicare recipients. I’m an #MSactivist
    [on Twitter, replace @representative with your Representative’s handle or #HouseRep]
  • @senator Please support #S948 which provides #complexrehab technology to #Medicare recipients. #MSactivist
    [on Twitter, replace @senator with your Senator’s handle or #DearSenator]
  • @Public Official Please support #HR942 [replace with #S948 for your Senators] which provides #complexrehab technology for #Medicare recipients. #MSactivist
    [on Facebook a. post on your profile and tag your official (replace @Public Official with the title of your House Representative’s Facebook page) or b. post/comment on your official's page and omit @Public Official]

If your elected official has sponsored the complex rehab bill, thank him/her:

  • @senator, thank you for signing #complexrehab #S948 led by @SenSchumer and @SenThadCochran #MSactivist
  • @representative, thank you for signing #complexrehab #HR942 led by @repjoecrowley and @JimPressOffice #MSactivist

Congressional MS Caucus

The Congressional MS Caucus – now over 180 members strong – seeks policy solutions for people affected by MS.

To ask your member of Congress to join the MS Caucus, here are sample social media messages:

  • @publicofficial As #ST [replace with your two-letter state abbreviation] constituent & #MSactivist, I ask you to please support people w #MS nationwide #MScaucus
    [on Twitter, replace @publicofficial with your official’s handle or  #DearCongress]
  • @ Public Official As your constituent and an #MSactivist, I ask you to please support people w #MS nationwide by joining the Congressional MS Caucus.
    [on Facebook a. post on your profile and tag your official (replace @Public Official with the title of your House Representative’s Facebook page) or b. post/comment on your official's page and omit @Public Official]

If your member of Congress has joined the MS Caucus, thank him/her with one of these sample social media messages:

  • Thank you to @publicofficial for joining the #MScaucus—now over 180 members strong! #MSactivist
  • Huge thanks go out to @publicofficial for supporting those w/ #MS by joining the #MScaucus! #MSactivist

Thanks for being a digital MS activist!

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