Make your connections count
First, learn how to find and connect with your public officials and other MS activists in social media. Then get talking!
Make sure your messages are heard by using the hashtag #MSactivist in your messages in Facebook and all other social media (not just Twitter). Use one or two additional hashtags based on importance – such as:
If it’s important that your followers or officials know where you’re from, use your two-letter state abbreviation as a hashtag, such as #CA, #NE, #TX or #DMV (DC/Maryland/Virginia).
Current federal priority issue - Neurological data & 21st century cures
MS activists are working to build support for the Advancing Research for Neurological Diseases Act (H.R. 292/S. 849) or "neuro data bill" which will create a nationwide system to track the incidence and prevalence of neurological diseases, including MS, and help us get to a cure. This bill has also been included in the 21st Century Cures Act (H.R. 6), which the U.S. House of Representatives passed with an impressive 344-77 vote on July 10.
It's important to continue adding cosponsors to the underlying neuro data bill. Here are some sample messages to circulate on Twitter using the hashtags #NeuroData, #MSactivist and #Cures2015:
Can you reach out to Congress to let them know that accelerating MS research is a priority? Join us --> ntl.ms/1AiYecf #MSactivist
HR 292 and S 849 #neurodata bills help MS researchers better understand MS and other neurological diseases. #MSactivist
If your member(s) of Congress have already cosponsored H.R. 292 or S. 849, thank them:
@(include your member of congress) thank you for making accelerating MS research a priority as an #MSactivist! #NeuroData http://ntl.ms/1CKz1wj
Current federal priority issue - complex rehabilitation technology
MS activists are also asking Congress to cosponsor and pass a bill that will streamline access to Complex Rehabilitation Technology so that people with progressed MS can have their medical needs met and remain independent.
If your member(s) of Congress hasn't sponsored the complex rehab bill yet:
.@representative @senator please support #HR1516 #S1013 which provides #complexrehab technology to #Medicare recipients. I’m an #MSactivist #access2CRT
If your member of Congress has already sponsored the complex rehab bill, thank him/her:
.@representative, thank you for signing #complexrehab #HR1516 led by @RepJoeCrowley & @JimPressOffice #MSactivist
.@senator, thank you for signing #complexrehab #S1013 led by @SenThadCochran & @SenSchumer #MSactivist
.@representative, thank you for cosponsoring #complexrehab in the US House! #access2CRT is important to me as an #MSactivist
.@senator, thank you for cosponsoring #complexrehab in the US Senate! #access2CRT is important to me as an #MSactivist
Current federal priority issue - MS research funding
Ask your member of Congress to support federal MS research funding through the National Institutes of Health and the MS Congressionally Directed Medical Research Program:
.@publicofficial please support $10 mil for the MS @CDMRP in fiscal year 2016 #MSresearch
.@publicofficial please support $32 bil for the @NIH in fiscal year 2016 #MSresearch
If your member of Congress signed onto the MS research funding letters, thank him/her:
Thank you to @publicofficial for supporting #MSresearch through the MS @CDMRP
Thank you to @publicofficial for supporting #MSresearch through the MS @NIH
On Twitter, replace @senator or @representative or @publicofficial with your official’s Twitter handle, #DearSenator or #DearHouseRep (respectively or) #DearCongress. A period (.) in front of an @mention ensures that all of your followers see the tweet.
On Facebook, either:
post on your profile and tag your official (replace @publicofficial with the title of your Senator's or Representative’s Facebook page) or
post/comment directly on your official's page and omit @publicofficial.