Make your connections count
First, learn how to find and connect with your public officials and other MS activists in social media. Then get talking!
Make sure your messages are heard by using the hashtag #MSactivist in your messages in Facebook and all other social media (not just Twitter). Use one or two additional hashtags based on importance – such as:
If it’s important that your followers or officials know where you’re from, use your two-letter state abbreviation as a hashtag, such as #CA, #NE, #TX or #DMV (DC/Maryland/Virginia).
Current advocacy issue - H.R. 292 & 21st Century Cures
A long-awaited draft of the 21st Century Cures Act was circulated by the House Energy and Commerce Committee – including the Advancing Research for Neurological Diseases Act (H.R. 292) supported by the Society! H.R. 292 will create a nationwide system to track the incidence and prevalence of neurological diseases, including MS, which could one day lead to a cure.
To help raise awareness and increase the number of cosponsors we’ve developed the following sample messages to circulate on Twitter using the hashtags #NeuroData, #MSactivist and #Cures2015.
#MSactivist news: "H.R. 292 Included in 21st Century Cures" via ntl.ms/1CKz1wj #NeuroData #Cures2015
Great news for activists! #Cures2015 was released & HR 292 was included! ntl.ms/1CKz1wj #MSactivist #NeuroData
Did you know that Congress introduced a bill to accelerate #MS research? Find out more at ntl.ms/1AiYecf #MSactivist #NeuroData
Can you reach out to Congress to let them know that accelerating MS research is a priority? Join us --> ntl.ms/1AiYecf #MSactivist
Lastly, be sure to thank your Representative once they commit to cosponsoring H.R. 292:
@(include your member of congress) thank you for making accelerating MS research a priority as an #MSactivist! #NeuroData http://ntl.ms/1CKz1wj
Current advocacy issue - complex rehabilitation technology
Support Access to Complex Rehabilitation Technology (create a separate Medicare benefit for complex rehab power wheelchairs).
If your member of Congress hasn't sponsored the complex rehab bill yet:
@representative Please support #HR942 which provides #complexrehab technology to #Medicare recipients. I’m an #MSactivist
@senator Please support #S948 which provides #complexrehab technology to #Medicare recipients. #MSactivist
If your elected official has sponsored the complex rehab bill, thank him/her:
@representative, thank you for signing #complexrehab #HR942 led by @RepJoeCrowley & @JimPressOffice #MSactivist
@senator, thank you for signing #complexrehab #S948 led by @SenSchumer & @SenThadCochran #MSactivist
The Congressional MS Caucus — now more than 180 members strong — seeks policy solutions for people affected by MS.
Ask your member of Congress to join the MS Caucus:
@publicofficial As #ST [replace with your two-letter state abbreviation] constituent & #MSactivist, I ask you to please support people w #MS nationwide #MScaucus
@publicofficial As your constituent and an #MSactivist, I ask you to please support people w #MS nationwide by joining the Congressional MS Caucus.
If your member of Congress has joined the MS Caucus, thank him/her:
Thank you to @publicofficial for joining the #MScaucus — now more than 180 members strong! #MSactivist
Huge thanks go out to @publicofficial for supporting those w/ #MS by joining the #MScaucus! #MSactivist
On Twitter, replace @senator or @representative or @publicofficial with your official’s Twitter handle, #DearSenator or #DearHouseRep (respectively or) #DearCongress. A period (.) in front of an @mention ensures that all of your followers see the tweet.
On Facebook, either:
post on your profile and tag your official (replace @publicofficial with the title of your Senator's or Representative’s Facebook page) or
post/comment directly on your official's page and omit @publicofficial.