Campaign Digital Activism - National Multiple Sclerosis Society

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Campaign Digital Activism

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Make your connections count

First, learn how to find and connect with your public officials and other MS activists in social media. Then get talking! 

Make sure your messages are heard by using the hashtag #MSactivist in your messages in Facebook and all other social media (not just Twitter). Use one or two additional hashtags based on importance – such as:

If it’s important that your followers or officials know where you’re from, use your two-letter state abbreviation as a hashtag, such as #CA, #NE, #TX or #DMV (DC/Maryland/Virginia).

Current advocacy issue - MS treatments from pipeline to approval

Learn more about the issues (appropriations and funding for agencies).

Urge your Senators to support $10M for the MS CDMRP in Fiscal Year 2015 the same way the House recently did. Send an email or use social media.

  • @senator Plz include $10M in separate funding for #MSresearch in #MS #CDMRP #DoDApprops Bill #MSactivist
  • @senator #HouseofReps committed $10M for #MSresearch in #MS #CDMRP #DoDApprops Bill. Plz do the same! #MSactivist

If your legislators signed on to the Dear Colleague letters supporting funding for the National Institutes of Health (NIH), say thank you:

  • @representative, thank you for signing @NIH letter led by @RepMcKinley & @RepAndreCarson supporting $32B. #MSactivist
  • @senator, thank you for signing @NIH letter led by @SenBobCasey & @SenatorBurr supporting $32B. #MSactivist

There was no Dear Colleague letter for the Food and Drug Administration (FDA) but you can still urge support for FDA funding:

  • @publicofficial Please support @US_FDA in FY15 for speedy #MS therapy approvals. #MSactivist
  • @publicofficial Please support #FDA in FY15 for speedy #MS therapy approvals. I’m an #MSactivist

Current advocacy issue - complex rehabilitation technology

Support Access to Complex Rehabilitation Technology (create a separate Medicare benefit for complex rehab power wheelchairs).

If your member of Congress hasn't sponsored the complex rehab bill yet:

  • @representative Please support #HR942 which provides #complexrehab technology to #Medicare recipients. I’m an #MSactivist
  • @senator Please support #S948 which provides #complexrehab technology to #Medicare recipients. #MSactivist

If your elected official has sponsored the complex rehab bill, thank him/her:

  • @representative, thank you for signing #complexrehab #HR942 led by @RepJoeCrowley & @JimPressOffice #MSactivist
  • @senator, thank you for signing #complexrehab #S948 led by @SenSchumer & @SenThadCochran #MSactivist

Congressional MS Caucus

The Congressional MS Caucus — now more than 180 members strong — seeks policy solutions for people affected by MS.

Ask your Senators to support MS CDMRP funding today. Find MS Caucus Senator handles here:

  • @senator #MScaucus member: Plz urge @SenateApprops to inclu $10M in separate funding for #MSresearch in #MS #CDMRP. #MSactivist
  • @senator #HouseofReps committed $10M for #MSresearch in #DoDApprops. #MScaucus member plz urge @SenateApprops same! #MSactivist

Ask your member of Congress to join the MS Caucus:

  • @publicofficial As #ST [replace with your two-letter state abbreviation] constituent & #MSactivist, I ask you to please support people w #MS nationwide #MScaucus
  • @publicofficial As your constituent and an #MSactivist, I ask you to please support people w #MS nationwide by joining the Congressional MS Caucus.

If your member of Congress has joined the MS Caucus, thank him/her:

  • Thank you to @publicofficial for joining the #MScaucus — now more than 180 members strong! #MSactivist
  • Huge thanks go out to @publicofficial for supporting those w/ #MS by joining the #MScaucus! #MSactivist

How to use sample posts

On Twitter, replace @senator or @representative or @publicofficial with your official’s Twitter handle, #DearSenator or #DearHouseRep (respectively or) #DearCongress. A period (.) in front of an @mention ensures that all of your followers see the tweet.

On Facebook, either:

  • post on your profile and tag your official (replace @publicofficial with the title of your Senator's or Representative’s Facebook page) or
  • post/comment directly on your official's page and omit @publicofficial.

Thanks for being a digital MS activist!

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