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Progressive MS and Major Changes

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  1. A Guide for Caregivers (.pdf)

    Practical issues faced by caregivers. Includes resource list. By Tanya Radford. (last updated December 2011)

  2. At Home with MS—Adapting Your Environment (.pdf)

    Modify a house or apartment to save energy, compensate for reduced vision or mobility, and live comfortably when MS is severe. Many do-it-yourself changes. By Jane E. Harmon, OTR. (last updated December 2011)

  3. Driving with Multiple Sclerosis (.pdf)

    Addresses questions and concerns about how MS might affect a person’s ability to drive now or in the future. Includes information about driving evaluations and different types of auto adaptive equipment. By Pat Niewoehner, BS, OTR/L, CDRS, and Florian P. Thomas, MD, PhD. (New October 2013)

  4. Hiring Help at Home (.pdf)

    Checklists and worksheets for people who need help at home. Forms for a needs assessment, job description, and employment contract. (last updated 2005)

  5. How to Choose the Mobility Device that is Right for You (.pdf)

    Understand the full range of tools available to stay functionally mobile, comfortable and safe. Offers full-color photos of devices ranging from the simplest cane to the most complex power chair, guidance on how to determine if and when a device might be appropriate, and important safety tips. Introduces readers to assistive technology professionals and outlines the steps involved in a comprehensive evaluation for a wheeled mobility device. (New August 2013)

  6. Managing MS Through Rehabilitation (.pdf)

    What rehabilitation can do for mobility, fatigue, driving, speech, memory, bowel or bladder problems, sexuality, and more. By Randall T. Schapiro, MD and Susan E. Bennett, PT, DPT, EDD, NCS, MSCS. (last updated February 2013)

  7. Managing Progressive MS (.pdf)

    An overview of symptom management, coping strategies when progressive MS makes the road rougher. By Kaye Hooper, RN, MPH. (last updated October 2013)

  8. Maximizing Independence: A Guide to Planning for Changing MS Care Needs (.pdf)

    A guide to help families anticipate and plan for the future to assure loved ones living with MS will receive the support and assistance they need to manage their disease and lead full and enriching lives.

  9. Plaintalk—A Booklet about MS for Families (.pdf)

    Discusses some of the more difficult physical and emotional problems many families face. By Sarah Minden, MD, and Debra Frankel, MS, OTR. (last updated January 2014)

  10. So You Have Progressive MS (.pdf)

    A veteran of 11 years writes frankly about life, family, work, dating, and pursuing your dreams when the diagnosis is "progressive" MS. By Sharon M. Brown. (last updated February 2012)

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