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For Kids: Keep S'myelin

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Keep S’myelin: A fun resource for kids about MS

Keep S’myelin is a colorful, engaging, informative, and reassuring newsletter to help children and their parents talk and learn about MS together. Each issue is filled with stories, interviews, games, and activities that highlight a specific topic related to MS, as well as a special section just for parents. 

To receive your FREE subscription to Keep S’myelin, contact an MS Navigator via email or by calling 1-800-344-4867.

You and your family may also be interested in Digesting Science, an interactive website about MS designed specifically for children and teens.

  1. Keep S'myelin: Issue 1 — Intro to MS (.pdf)

    Parents often wonder how much to tell their children about MS. They worry that talking about the MS will be too frightening, too confusing, and too burdensome for the kids to handle. We wanted to make this newsletter available to children because we feel that accurate information, geared to a child's age and abilities, helps that child to understand and cope with changes MS may bring.

  2. Keep S'myelin: Issue 2 — About MS and Feelings (.pdf)

    This issue of Keep S'myelin is all about feelings. As you share the stories and activities with your children, you might want to reflect on some of your own feelings and help your kids identify theirs. This is a chance to share and compare.

  3. Keep S'myelin: Issue 3 — About MS & Symptoms (.pdf)

    People with MS may notice that they are having trouble doing everyday things. These troubles and discomforts are called "symptoms."

  4. Keep S’myelin: Issue 4 — Schools (.pdf)

    School is the backdrop for a very significant part of your child's life. Family and home issues are brought to the school environment just as school experiences influence home life. Use this issue of Keep S'myelin to help you talk with your child about his or her school experiences, especially as they relate to MS in the family.

  5. Keep S’myelin: Issue 5 — Family Life and MS (.pdf)

    This issue of Keep S'myelin is about families. You can use the articles and games to talk with your children about the ways MS has changed your family's routines or affected different members of the family.

  6. Keep S’myelin: Issue 6 — Tools Can Make Life with MS Easier

    any people with MS use different types of tools or gadgets to help them move about, have fun, and do everyday activities. Perhaps your mom or dad has made changes to your house to make it easier and safer to get around. All of these things can be very helpful for someone with MS, but some may seem strange at first.

  7. Keep S’myelin: Issue 7 — This Is About You (.pdf)

    This issue of Keep S’myelin is filled with stories by children who have a parent with MS. Their stories reflect the variability of the disease itself, providing you with the opportunity to remind your child(ren) that every person’s MS is different.

  8. Keep S’myelin: Issue 8 — MS Around the World (.pdf)

    In this issue of Keep S’myelin, your children will learn about the larger world of MS. Since families can sometimes feel very alone in their efforts to cope with the impact of MS, it may come as a surprise to learn that parents and children around the world are sharing this experience—and that MS Societies like ours are working to support their efforts.

  9. Keep S’myelin: Issue 11 — Feelings & MS (.pdf)

    Everyone in the family is likely to have feelings about MS—the most common being anxiety, anger, sadness and guilt. One of the biggest challenges for families is that each person will experience these reactions at different times and in different ways.

  10. Keep S’myelin: Issue 13 — Fun Activities (.pdf)

    This issue of Keep S’myelin contains lots of family activities and games. Some have MS content — for example, the scrambled answer quiz and the word search — while others are just for fun, like the recipes, jokes, and games. So, we hope this issue serves two purposes: providing ways to learn about MS with your child and suggesting ways to have fun together in spite of MS!

  11. Keep S’myelin: Issue 14 — Invisible Symptoms (.pdf)

    How many times has a family member, friend or colleague said, "I know you have MS, but you look so well!" Use this issue of Keep S'myelin to help your children understand the concepts of variability and unpredictability, and the frustration of having invisible symptoms.

  12. Keep S’myelin: Issue 15A — Moving with MS - For Children (.pdf)

    Some people with MS use a cane to help them walk. Others use a wheelchair or a scooter to get around. Still others walk just fine without any help at all. This issue of Keep S'myelin will help you and your kids adjust to new mobility aids.

  13. Keep S’myelin: Issue 15B — Moving with MS - For Parents (.pdf)

    Some people with MS use a cane to help them walk. Others use a wheelchair or a scooter to get around. Still others walk just fine without any help at all. This issue of Keep S'myelin will help you and your kids adjust to new mobility aids.

  14. Keep S’myelin: Issue 16A — Family Changes - For Children (.pdf)

    Use this issue of Keep S’myelin to help you and your children talk together about the changes MS has brought to your family. Change is difficult for all of us, regardless of age. However, children, in particular, rely on routines; they like to know just what to expect, and for the most part, enjoy the status quo.

  15. Keep S’myelin: Issue 16B — Family Changes for Parents (.pdf)

    Use this issue of Keep S’myelin to help you and your children talk together about the changes MS has brought to your family. Change is difficult for all of us, regardless of age. However, children, in particular, rely on routines; they like to know just what to expect, and for the most part, enjoy the status quo.

  16. Keep S’myelin: Issue 17A — Teamwork - For Chidren (.pdf)

    This issue is designed to reassure your children that there are lots of people who can help your family cope with MS. The medical team, friends, neighbors, teachers, The National MS Society, MS researchers, all may be members of your family's "team."

  17. Keep Smyelin - Issue 17B - Teamwork - For Parents (.pdf)

    This issue is designed to reassure your children that there are lots of people who can help your family cope with MS. The medical team, friends, neighbors, teachers, The National MS Society, MS researchers, all may be members of your family's "team."

  18. Keep S’myelin: Issue 18 — Exacerbations (.pdf)

    Once your healthcare practitioner has confirmed that you are experiencing an MS exacerbation, your next step will be to identify strategies for managing the situation. This issue will help you and your children make it through this challenging time.

  19. Keep S’myelin: Issue 19 — Where's the Cure? (.pdf)

    It can be hard to be patient waiting for the cure for MS. This episode explores what scientists are doing to find a cure, reasons to be hopeful and why it is taking time.

  20. Keep S’myelin: Issue 20 — MS around the World (.pdf)

    In this issue we travel around the world to learn more about MS, exposing readers to the international MS research effort and to places and people around the world who are thinking and learning about MS. We hope this issue of Keep S'myelin will get you thinking about places beyond your neighborhood.

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