Children and teens with MS: a network for families
All parents wish for their children to be healthy and happy — to have lives without discomfort or loss — and hope to be able to protect them and keep them from harm. Although your child has been diagnosed with MS, your mission remains the same, and the National MS Society is committed to helping you ensure the very best for your daughter or son.
Whether your child’s diagnosis is relatively new, or you have been searching for answers for quite some time, the words “multiple sclerosis” can be very frightening. It is important to remember that:
You are not alone — there are both social and clinical networks to support your child and your family
MS is not fatal — most people with MS have a normal or near-normal life expectancy
Each person’s experience with MS is different
This is a hopeful time. While the cause of MS is unknown and there isn’t a cure yet, there are treatments available, and an increasing number of clinicians and researchers have taken a specific interest in better understanding diagnosis and treatment of children with MS and related disorders.
Connect with other families
Connect with other parents and teens through two online groups where you can share concerns and information:
Network of Pediatric MS Centers
In 2006, the National MS Society established a nationwide network of Pediatric MS Centers to provide comprehensive evaluation and care to children and teens (up to age 18) with MS and related central nervous system (CNS) demyelinating disorders.
The centers offer evaluation, diagnosis, treatment and support to families with child(ren) displaying symptoms suggestive of any CNS demyelinating disorder; a child does not need to have a definite diagnosis of MS in order to be evaluated.
Find a center near you.