Support and Resources for Individuals with HAM - National Multiple Sclerosis Society

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Support and Resources for Individuals with HAM

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American Academy of Neurology (AAN)

AAN offers a free subscription to their patient-focused magazine, Neurology Now, that provides patients and their caregivers with credible, up-to-the-minute, balanced coverage of the latest advances in neurology research and treatment. Written in concise and easy-to-understand language, the articles help patients make informed decisions about treatment options and living with a wide-range of neurologic disorders.
Call 800-879-1960 
or 612-928-6000 (International), fax 
612-454-2746
201 Chicago Avenue
, Minneapolis, MN 55415


National Institute of Neurological Disorders and Stroke (NINDS)

NINDS collects and disseminates research and information related to neurological disorders.

NIH Neurological Institute

P.O. Box 5801
, Bethesda, MD 20824
Call (toll free) 800-352-9424 or 301-496-5751

For access to free Telecommunications Relay Services (TRS) for people with hearing or speech impairments, dial 7-1-1 on your phone.

National Organization for Rare Disorders (NORD)

NORD (rarediseases.org) provides information for patients and families, mentoring for patient organizations, advocacy for the rare disease community, research grants, and patient assistance programs.

  • NORD has compiled resources that may be useful to individuals and families affected by rare diseases.
  • The NORD Rare Disease Database provides reports in patient-friendly language on more than 1,200 rare diseases. Each report provides a basic introduction with links to resources for additional information and assistance.

Email orphan@rarediseases.org. Call toll free / voicemail only 800-999-NORD(6673), 203-744-0100, 
TTY 203-797-9590, fax 203-798-2291
55 Kenosia Avenue Danbury, CT  06810

Other resources

  • Pubmed is the National Library of Medicine's searchable database of medical literature and lists of journal articles.
  • RareShare is an online social hub dedicated to patients, families and healthcare professionals affected by rare medical disorders.

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