Kids Get MS Too
Although MS is typically thought of as an adult-onset disease, some children and teens have been diagnosed. Young Persons with MS: A Network for Families with a Child or Teen with MS is a program that offers educational and psychosocial support for children and teens with MS and their families. The Network is a collaborative effort of the National MS Society and the MS Society of Canada. Together we recognize the unique needs of these children and their families.
The Network currently offers the following resources specifically for this special population:
- Parents’ Handbook
Kids Get MS Too: A Handbook for Parents Whose Child or Teen has MS is an informational handbook containing a wide range of information pertaining to pediatric MS. The handbook was written by specialists in childhood MS. - Mighty Special Kids—An Activity Book for Children with MS
An activity book for children ages 5-12 with MS. The book includes educational games, activities, and age-appropriate articles to help children better understand their diagnosis. - Teleconferences
Teleconferences featuring issues related to pediatric MS are offered. Topics covered include research, treatment, cognitive issues, rights within the school system, and transitioning to college and the workforce. - Virtual Community for Parents
The Network connects parents through a moderated listserv where they can share concerns and information. - Virtual Community for Teens
The Network connects teens with MS through a moderated listserv where they can share concerns and information. - Information and Referral
For information about pediatric MS or to register for the Network, call 1-866-KIDS W MS (1-866-543-7967) or email childhoodms@nmss.org.
Also, learn more about the Pediatric MS Centers of Excellence.