The work we do in advocacy is divided into three areas on the government level: federal, state, and local. Although all levels reflect issues important to people living with MS, these policy priorities may change from year to year to reflect the political climate at the time. These priorities are showcased at our Public Policy Conference in Washington, D.C., the Cal-Neuroalliance in Sacramento, CA, as well as our coalition work in Nevada and local action alerts.
Federal
The Society’s Public Policy Office guides our federal advocacy efforts and works with MS activists to raise awareness nationwide. Annually, hundreds of MS activists unite in Washington, D.C. for our Public Policy Conference to visit their legislators on Capitol Hill and ask for their support on issues such as federal funding for MS research.
State
California
We proudly participate in the California Neuro Alliance. This coalition represents Californians affected by neurological conditions, their advocates, and their physicians. The mission of the California Neuro Alliance is to promote access to quality health care through education, public awareness, and advocacy. This year’s policy priorities include:
- Sharps Disposal
- Durable Medical Equipment (DME) Coverage
- Physical Therapy Caps
- Tier 4 Drugs
The 2011 California Neuro Alliance Conference is coming in May, 2011 in Sacramento. For more information call 310.479.4456 ext. 109.
Nevada
We have worked with a couple of powerful coalitions in Nevada to make change happen for people living with MS, including but not limited to the Nevada Women's Lobby. We are tuned into all issues that are important to people living with MS in Nevada, but have identified these priorities for 2010-2011:
- Respite Care
- DME Coverage
- Health Care
We need your help! If you are passionate about advocating for people living with MS and what to find out how your talents can help, contact Cheryl Roberto-Lvovsky, Advocacy Manager at 310.479.4476 ext. 109.
Local
Our local advocacy efforts start with assisting people living with MS practice self-advocacy. Many of the local issues that we address come directly from individuals who contact the Chapter about a problem affecting people with MS in their community. Our Chapter realizes that permanent, effective change comes from a community level. Some of these issues include access to public buildings, public transportation, and healthcare. We work together to influence regional policy thereby positively affecting the lives of those living with MS and the greater community as a whole.