To MS Society Advocacy Ambassadors:
As we build our advocacy program, we need to continue to build our “story bank” of personal connections to MS. Your enthusiasm and desire to see positive change in the MS community will help us achieve this goal. Please take a few minutes and tell “your story” to be used for our website, visits with legislators, marketing materials etc. It is crucial that we put a face to MS and we all have a story to tell. Even if you do not have MS you are still personally affected. Pass this assignment on to your loved ones too. They probably have a different perspective than we imagine.
Here are some thought provoking questions you might use to come up with your brief paragraph (a few sentences is fine). You may pick one of these questions or if you are that perpetual overachiever then by all means do more than one and write a response about your personal story. Feel free to use these questions as a guideline, or you may have other information of your own that you wish to share. You may reply by email or mail and include a photo with your contact information please (full name, address, phone). Share this request with your MS friends too! The more stories, the better!
Questions to get you started:
- How might you describe MS to someone on the street? What does it feel like?
- What challenges do you face in the morning? Afternoon? Evening?
- Doctor visits, injections, what else?
- How does the future look for you and how can you improve your current health?
- If you had a personal meeting with President Obama tomorrow, what would you ask for? (be specific)
If you have a photo of you please send that back with your “story”. Note: If this proves to be too difficult for you, then please let us know. Our staff can assist you in writing your story—we will gladly help!
Please include your full name, address and phone number when you reply so our files can be updated.
Stories can be submitted via mail to:
National MS Society, 4919 Memorial Highway, Ste 160, Tampa, FL 33634 or email to jenna.labadie@nmss.org
For more information contact Jenna Labadie at 813-889-8303 or 1-800-344-4867.