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Books, videos, audiotapes and other MS-related materials are available for checkout by anyone living in the Greater Illinois Chapter’s service area. Visit the chapter’s Chicago office to browse our library in person, or request materials through the IRC by calling 1.800.344.4867. In addition to the chapter’s library, many self-help groups across the state maintain their own mini-libraries.

Through the Greater Illinois Chapter Lending Library, you may borrow up to three items at a time for a period of four weeks, with the option of a one-time, two-week renewal. Renewing items is as simple as giving us a call at 1.800.344.4867. Materials are sent to you at no cost via UPS or regular mail. To return items, simply place them in the padded envelope they arrived in, and insert that into the pre-paid business reply envelope provided to you with the materials requested. The package can be left for your mail carrier -- no need to make a trip to the post office!

Browse our Lending Library online:

 Architecture/Accessibility

• An Accessible Home of Your Own, edited by Raymond Cheever and Betty Garee. Accent Special Publications, Cheever Publishing, Inc., Bloomington, Ill., 1990. Ideas to help you live more easily in you own home. Fourteen individuals tell you in words and pictures what they did to make their homes accessible.
• Building and Remodeling for Accessibility:  A How-to Video Guide from Dean Johnson, home improvement expert and host of the Home Time TV series. Dean will show you the techniques needed to do a professional job. You’ll learn how to choose the right tools, save on materials, avoid costly mistakes and much more.
• Ideas for Making Your Home Accessible, compiled and edited by Betty Garee. Accent Special Publications, Cheever Publishing, Inc. Bloomington, Ill., 1986. An easy-to-use reference packed with helpful ideas. Includes information on special devices and where to get them.
• How to Build Ramps for Home Accessibility, manual and video by the Home Ramp Project, Metropolitan Center for Independence.  The Ramp Project began in the summer of 1991. It was a way to lower the cost of residential ramps, increase the speed of completion and involve consumers in an active role to solve their ramp access. The manual and video walk you step by step through the entire process.
• Products and Plans for Universal Homes, by the editors of Home Planners in Cooperation with the Center For Universal Design and the Philip Stephan Companies, Inc. Building a universal home can be daunting. Finding the right plans, choosing appropriate products, tracking down sources and services for this specialized style of home can take hours of work. This book brings together all of the elements you need to create the home you want. More than 1,700 products from 450 manufactures or suppliers are included, along with information on how to purchase the blue prints of each featured home.

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Alternative Therapies

• Alternative Medicine and Multiple Sclerosis, by Allen C. Bowling, M.D., Ph.D., Demos Medical Publishing, New York City.  This authoritative book offers reliable information on the relevance, safety and effectiveness of various alternative therapies that are not typically considered in discussions of MS management, yet are in widespread use.
• The Health Robbers -- A Closer Look at Quackery in America, by Stephan Barrett, M.D. and William T. Jarvis, Ph.D., Prometheus Books, Buffalo, N.Y., 1993. The editors are a nationally known consumer advocate and the National Council Against Health Fraud. A respected expert in the field of interest writes each chapter. The public can only be protected by education and information, and that is what this book is about.

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Caregivers

• Avoiding Attendants From Hell -- A Practical Guide To Finding, Hiring & Keeping Personal Attendants, by Judy Price. A how-to guide for those who require assistance with personal care and daily living tasks due to a physical disability.
• Coping with Caregiver Worries, by James R. Sherman, Ph.D., Pathway Books, Minnesota, 1998. Part of the Caregiver Survival Series, this book describes strategies for coping with the range of emotions that accompany caregiving.
• Creative Caregivers, by James R. Sherman, Ph.D., Pathway Books, Minnesota, 1994. A comprehensive encyclopedia of caregiving that is an exceptional resource for time-deprived and energy depleted caregivers.
• In the Shadows-Living and Coping with a Loved One’s Chronic Illness, by David Luterman, D.Ed. Jade Press, Bedford, Mass. 1995. A compendium of the pain, joy, guilt, anger and dilemmas that families living with a chronic illness must face.
• Mainstay for the Well Spouse of the Chronically Ill, by Maggie Strong. Little, Brown & Co., Boston, 1997. Maggie Strong shares her experiences as the spouse and principal caregiver of a person with chronic illness.
• Positive Caregiver Attitudes, by James R. Sherman, Ph.D., Pathway Books, Minnesota, 1994. A book packed full of strategies for caregivers.
• Preventing Caregiver Burnout, by James R. Sherman, Ph.D., Pathway Books, Minnesota, 1994. Provides guidelines for caregivers for taking control and taking care.
• Someone Who Cares -- A Guide to Hiring an In-Home Caregiver, by Ellen Cervants, M.S.W., Jeanne Heid-Grubman, A.M., and Charlotte K. Schuerman, A.M. This booklet will help start your search for home care. It provides information on when to use home care services, how much they cost, where they may be found, how to hire and supervise a worker in your home and when to end services. Checklists, forms and other tools may be copied from this booklet.
• The Comfort of Home -- An Illustrated Step-by-Step Guide for Caregivers, by Maria M. Meyer with Paula Derr, RN. This simple and practical guide promises to take the fear out of home care and bring confidence and peace of mind to caregivers. It will take you through the steps of home care and contains checklist, resources and tips to make the caregiver’s job easier and more satisfying.
• The Magic of Humor in Caregiving, by James R. Sherman, Ph.D., Pathway Books, Golden Valley, Minn., 1996. This book contains a wealth of ideas about the magic of humor for caregivers who want to learn how to live better but have limited time for reading. Use it as valuable resource guide.
• The Resourceful Caregiver, produced by the National Family Caregivers Association, Inc., Mobsy Yearbook, Inc., St. Louis., 1996. About caregivers and their needs, using your inner resources to seek out and access outside resources and learning how to take charge of your life.

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Chronic Illness

• In The Shadows -- Living and Coping with a Loved One’s Chronic Illness, by David Luterman, D.Ed., Jade Press, Bedford, Mass., 1995. A compendium of the pain and tempered joy, of the guilt and anger, of dilemmas and despair that accompany families with chronic illness.
• Sick and Tired of Feeling Sick and Tired--Living with Invisible Chronic Illness, by Paul J Donoghue, Ph.D., and Mary E. Siegel, Ph.D., W.W. Norton & Company, Inc. New York City, 1992. This book gives practical information and lends a sympathetic ear to those suffering from invisible chronic illness and to their caregivers and families.
• We Are Not Alone -- Learning to Live with Chronic Illness, by Sefra Kobrin Pitzele, Workman Publishing, New York City, 1986. This book offers inspiration and practical living strategies to the millions of Americans who either have a chronic illness or care for someone who does.
• You Are Not Your Illness, by Linda Noble Topf, M.A., with Hal Zina Bennett, Ph.D., Simon & Schuster, New York City, 1995. Included are seven principles for meeting the challenges. Topf writes her personal journey to fulfillment in a way everyone can understand, whether or not they suffer from a chronic illness like multiple sclerosis.

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Emotional Health/Sexuality

• Enabling Romance: a Guide to Love, Sex and Relationships for the Disabled, by Ken Kroll and Erica Levy Klein. This book explores sexual variations and alternatives and contains specific chapters on everything from spinal cord injuries to multiple sclerosis.
• Frank Talk, a Video, with Joann LeMaistre, Ph.D., Alpine Guild, Inc. Oak Park, Ill., 1994. Frank Talk is an informal discussion of issues and concerns about which the chronically ill, their families, friends and caregivers feel deeply.  Some of the issues discussed are: keeping friends, emotional responsibility, depression, self-judgment, controlling the future, strong feelings, and more. Length: 30 minutes.
• In Their Own Words -- Sexuality and Multiple Sclerosis, a video with Dr. Ruth Westheimer, produced by the National Multiple Sclerosis Society, Greater Illinois Chapter and the University of Chicago, Department of Neurology. People with MS, partners of the people with MS and the people who treat them speak frankly on the issue of sexuality.
• Living Beyond Multiple Sclerosis a sequel to Woman Living with Multiple Sclerosis. They’re back!  Is there life beyond MS? Oh, yes.…  The new book shares more time, energy and sanity-saving techniques, as well as talks about ways to live beyond the limitations the MonSter (MS) imposes.
• Woman Living with Multiple Sclerosis, by Judith Lynn Nichols and her Online Group of MS Sisters. This book is an intimate portrait drawn from the e-mail chats of a group of women with MS. In forming an online support network, they become friends and then comrades in a fight against the disease they dubbed the MonSter: multiple sclerosis.

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Employment/Legal/Insurance

• A Tool to work with the Americans with Disabilities Act (ADA) video, Coastal Video Communications Corp., Virginia Beach, Va., 1992. This video will help you understand the ADA and how it works for you.
• Career Success for People with Physical Disabilities, by Sharon F. Kissane, Ph.D., VGM Career Horizons, NTC Publishing Group, Lincolnwood, Ill., 1997.  A book that shows you how to plan and prepare for career success, regardless of the physical challenges you face.
• Employment Issues and Multiple Sclerosis, by Philip D. Rumrill, Jr., Ph.D., Demos Vermande, New York, 1996. With contributions from authorities in medicine, vocational rehabilitation and law, this book considers elements of employment, vocational assessment strategies, job placement and retention interventions, the Americans with Disabilities Act, tax benefits and work incentives.
• Goals: with Zig Zigler video, Nightingale Content Corp., Chicago. The seven steps to goal-setting used by the top three percent of the population. With goals, you can more fully realize your maximum potential, because goals take you many places and enable you to experience many things. Length: 77 minutes.
• Health Insurance, How to Get it, Keep It or Improve What You’ve Got, by Robert Enteen, Ph.D., Athena Books, Paragon House, 90 Fifth Avenue, New York. Robert Enteen, an authority on health insurance, shows you how to locate and evaluate coverage, compare costs and obtain the maximum benefits from your existing insurance plan. (This library list will soon be updated with the second edition of this book.)
• Health Insurance Resources -- Options for People with Chronic Disease or Disability, by Dorothy E. Norhtrop, MSW and Stephan Cooper, Demos Medical Publishing, New York, 2003.  A comprehensive overview of health insurance options, including managed care, medicare and medicaid, supplemental security income (SSI) and social security disability insurance (SSDI).  It was designed to help people understand the healthcare system.
• Insurance Solutions Plan, Live Better -- A Workbook for People with a Chronic Disease or Disability, by Laura D. Cooper, Esq., Demos Medical Publishing, New York, 2002. A comprehensive overview of health, life disability and long term care insurance planning.
• Image and Self-Protection audio cassette, produced by Career Track Publications. For women in business, government and the professions. Explore the style and personal power of some very successful women. Here’s what you’ll learn:  how to stand up to conflict, communicate with impact, project a stronger image, build your personal power, be seen and get known.
• Job Search Tactics for People with Disabilities (video, 22 minutes).  This video discusses the job process for people with disabilities. It explains how to take advantage of all your resources and knowing your rights under the ADA.
• Interviewing for People with Disabilities (video, 20 minutes).  This video discusses the challenges of interviewing for a job when you have a disability.  It explains how to prepare for an interview, and suggests ways of ensuring a good interview. It also discusses reasonable accommodations and disclosing a detectable or undetectable disability (these videos are loaned as a set).
• Resume and Applications for People with Disabilities (video, 24 minutes). This video discusses the important role a resume cover letter can play during your job search. It also reviews your rights under the ADA and suggests when and how to disclose medical information.
• Making the ADA Work for You video.  This video will help professional human resource personnel, as well as the individual employee, understand the ADA. Virginia Beach, Va.
• Work with Passion audio cassette series, by Nancy Anderson, Whatever Publishing, Inc., San Rafael, Calif. How to do what you love for a living. Nancy Anderson, a career consultant, shows you how to discover your goals, your resources, your skills, your passions and how to make them work for you in creating the career of your choice. Contains six cassettes, a total of 5.5 hours of listening.
• A Guide to Legal Rights for People with Disabilities, by Marc D. Stolman, Demos Publications, New York, 1994. This book deals comprehensively with legal problems most often encountered by people with disabilities.  It is primarily written for non-lawyers, but lawyers may benefit from it. You will find answers to the most common questions about laws involved in insurance, government benefits, wills, trusts, durable powers of attorney, bankruptcy, debt, collections, credit reports and how you can enforce your rights.
• Multiple Sclerosis, Your Legal Rights, by Lanny and Sara Perkins, Demos Medical Publishing, New York (second edition), 1999. This book is a source of basic information about the legal problems that often affect people with MS, and possible solutions to those problems. A straightforward and practical guide that covers the ADA, social security, wills, durable powers of attorney and other common legal issues.
• The Consumer’s Legal Guide to Today’s Health Care, by Stephan L. Isaacs, J.D. and Ava C. Swartz, M.P.H., Houghton Mifflin Company, Boston, 1992. The book is about your medical rights and how to assert them. This book covers patients' rights, insurance, workplace health and safety and much more.

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Exercise

Caution: You should consult your physician before beginning these or any other exercise programs. Certain exercises may not be appropriate for everyone.

• Aqua Exercise for Multiple Sclerosis, video MS Series 1, Sprint Equipment, Rothammer International, Inc., Santa Maria, Calif. An active workout that cools and supports the body, demonstrated by experts.
• Armchair Fitness Aerobics video, by Betty Switkes, CC-M Productions, Cedar Springs, Md., 1994.  Lively and fun. A well-designed program to work out without wearing out. Safe, enjoyable aerobic workouts for all ages. Strength and stretching for everyone.
• Come Back! video with Jean Tapia, produced in cooperation with the Southeast Texas Chapter, National Multiple Sclerosis Society, 1987. It’s easy, it’s fun and it’s effective. No matter what our circumstances or limitations, each of us can maintain a better mental attitude and physical condition through exercise.
• Gentle Yoga for the Physically Challenged video, with Lorna Bell, R.N. and Eudora Seyfer, 1987. Exercises developed especially for people with debilitating conditions.
• Gentle Yoga by Lorna Bell, RN and Eudora Seyfer, Ingram Press, Cedar Rapids, Iowa, 1982. Written especially for people with debilitating conditions. Includes yoga exercises, information on nutrition and stress control and other tips for improving your health.
• MS--Home Training Program video, produced on behalf of Swiss Multiple Sclerosis Society, CH-8036 Zurich, 1989. Instructions for exercise at home and practical guidelines for daily use. A program for people with minimal to moderate degrees of disability. Length: 15 minutes.
• Pathways Exercise video, Mobility Limited, Morro Bay, Calif., 1993. This video is for people with limited mobility, including seniors, people with multiple sclerosis, arthritis or other limitations, as well as for people who are overweight or temporarily limited. Length: 48 minutes.
• Yogability and You video, by Shelley Sidelman, 2003. Shelley’s approach to yoga combines soft and gentle stretching exercises with simple breathing and relaxation techniques. This video is for people with MS, arthritis, Parkinson’s or Fibromyalgia, and for people recovering from an illness, accident or surgery.
• The MS Wheelchair Workout video, presented by the New York City Chapter of the National Multiple Sclerosis Society. An exercise workout for individuals using mobility aids such as wheelchairs or scooters, and for those with limited mobility.
• The New MS Exercise Challenged video, by Joe Potente, Potente Productions, New York.  Exercises appropriate for all ages.
• TheraCise -- Get Those Arms Moving! video, TheraCisa Inc., 1989. This video contains exercises intended to maintain or increase range of motion and strength for individuals with decreased upper extremity function.
• Wellness, Self-Care, Exercise and Aging with Disability, by June Isaacson Kailes, Rehabilitation Research and Training Center on Aging with a Disability (third edition), 1996.
• Yes You Can! video, sponsored in part by Teva Marion Partners, 1999. An exercise program designed specifically for people with multiple sclerosis. Exercising and stretching can increase your strength and mobility.
• Yoga with Eric Small, produced by the National Multiple Sclerosis Society, Northern & Southern California Chapters, 1999. Yoga adapted for people with multiple sclerosis or other disabilities. With this video, the viewer can move logically through a sequence of breathing, postures and guided relaxing just as a participant would in one of Eric’s classes.
• Yoga:  For MS and Related Conditions, produced by Mobility Limited through Demos Publishing, 2003. A non-aerobic workout for anyone with limited mobility, designed to be used at home, alone.  Variations using an assistant are also included.

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Families

• Coping When a Parent Has Multiple Sclerosis, by Barbara Cristall, Rosen Publishing Group, Inc., New York, 1992. This book was developed from a short story Ms. Cristall wrote, called “Our Mom Has MS.”
• Kids Talk MS Video and Support Group Facilitator Discussion Guide, by Allan Berman, Ph.D., Muriel B. Cohn, MA, NCC and Robert I. Cohen, Ph.D., Rhode Island Chapter of National Multiple Sclerosis Society, 1990. This tape should be viewed with and adult facilitator. A group of kids share what it’s like to have a parent with multiple sclerosis.
• Long-Term Care: Every Family’s Concern video, National Multiple Sclerosis Society, 1998. This video highlights the National Multiple Sclerosis Society’s awareness and concern over the need for long-term care coverage for individuals with MS and other chronic illness. The National Multiple Sclerosis Society is a strong advocate for long-term care coverage.
• Marriage and Disability, edited by Betty Garee and Raymond Cheever, Accent Special Publications, Cheever Publishing, Inc. 1992. This is a great resource for anyone contemplating marriage or who is already married, whether they, their partner or both have disabilities.
• Mother-to-Be -- A Guide to Pregnancy and Birth for Women with Disabilities, by Judith Rogers and Molleen Matsumura, Demos Vermande, New York. 1991. A practical guide to pregnancy based on childbirth experiences of 36 women with a wide variety of disabilities, including four women with multiple sclerosis.
• MS: Guide for Families, edited by Rosalind Kalb, Ph.D., Demos Vermande, New York, 1998. A dynamic and extremely useful book for families living with MS. This book can lead the way for families to strengthen their coping skills receive targeted information about the disease and it’s ramifications, and facilitate important life decisions.
• Esclerosis Multiple Guia Para El Paciente Y Su Familia, Labe C. Scheinberg, M.D. and Nancy J. Holland, M.A., R.N., Fundacio FIATC, 1988.
• Multiple Sclerosis and the Family, by Rosaland C. Kalb, PH.D, and Labe Scheinberg. Strategies and resources that are available to help families more effectively manage their lives in the presence of MS.
• Multiple Sclerosis and Having a Baby -- Everything You Need to Know about Conception, Pregnancy and Parenthood, by Judy Graham. This book gives an insightful presentation of the whole picture and what it means to be a parent with MS, from conception to your child’s adulthood. This book is written in an effort to make the experiences of childbirth and raising a family the joyful and informed experiences they should be.
• MS:  A Family Affair video, National Multiple Sclerosis Society, New York Chapter. Diane Sawyer narrates the introduction. Forty-four families allow us a view through a window that is usually closed.
• Parent Talk MS video, National Multiple Sclerosis Society, Rhode Island Chapter.  In this video parents are talking about their perspectives on disability, MS symptoms, anger, depression, motivation, friends and children.

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Independent Living/Adaptive Devices

• An Easier Way -- Handbook for the Elderly and Individuals with Disabilities, by Jean Vieth Sargent, Iowa State University Press, Ames, Iowa, 1981.  This book focuses on the needs of the elderly and disabled who want to remain independent and need to find easy ways to do their daily routines.
• Choices for Change video, produced by the National Multiple Sclerosis Society. Activities of daily living, utilizing the appropriate assistive device and mobility aides. Length: 21:30.
• Easy Elegant Dining, by Gratia Greene Alkire, TIA Publishing, 1993. Recipes created for the physically challenged and visually impaired.
• Enhancing Independence, produced by the Mayor’s Office for People With Disabilities, Chicago, 1994. A guide to solutions for meal preparation.
• Real People, Real Problems, Real Nursing Solutions video, Consortium of Multiple Sclerosis Centers, National Multiple Sclerosis Society Symposium, 1998. An overview of multiple sclerosis, the role of the nurse, physical therapy and medication. Discussion of resources three individuals with MS have used for daily living assistance.

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Motivational/Personal Stories

• Beyond Rage, Mastering Unavoidable Health Changes, by JoAnn LeMaistre, Ph.D., Alpine Guild, Oak Park, Ill., 1992. Revised and expanded edition. This book will be immensely valuable to all those struggling with chronic illness.
• Fall Down Laughing -- How Squiggy Caught Multiple Sclerosis and Didn’t Tell Nobody, by David L. Lander. David Lander’s vibrant account of his struggle to conceal and then battle multiple sclerosis is a page-turner. Infused with Lander’s special brand of humor, this behind-the-scenes look into the daily reality of his illness is at once informative, touching and inspiring.
• Fall Down Seven Times, Get Up Eight, edited by John K. Wolf, M.D. professor of Neurology, State University of New York Health Science Center and Syracuse, N.Y.,  Academy Books, Rutland, Vt., 1992.
• Life on Cripple Creek:  Essays on Living with Multiple Sclerosis, by Dean Kramer, Demos Publishing, New York, 2003. The author, who writes a monthly column for MS World, Inc. called “Life on Cripple Creek,” here compiles her sometimes poignant, often laugh-out-loud funny essays on the struggles of living with a life-changing disability.
• LifeLines:  Stories from Women with Hope, by Rita Glaze, Intuitive Health, Inc., 2003. Written by someone diagnosed with MS in 2002, the book is a compilation of stories shared by women with life-changing illnesses.
• Love Paints Beauty in the Soul, by Alice Johnson, Ed.D. and John Johnson, Jr., Ed.D. Mal-Jonal Productions, Inc., Miami, 1996. Sequel to “Mysterious Stranger Aboard,”  this book is for the caregiver and patient, a spiritual and motivational road that focuses on positive forces in the face of suffering.
• Montel Williams Show Topic:  Multiple Sclerosis video. This show aired in October 1999, after Montel Williams went public with his MSdiagnosis.
• Moving Violations A Memoir:  War Zones, Wheelchairs and Declarations of Independence, by John Hockenberry, Hyperion, New York, 1995. A book that will change your life and smash your perceptions of disabled people.
• No Pity, by Joseph P. Shapiro, Times Books, New York, 1994. The author chronicles the new civil rights movement -- that of the disabled. Readers will recognize the fact that disability rights are an issue whose time has come.
• Straight Talk to the Newly Diagnosed, conceived and developed by the National Multiple Sclerosis Society, New York Chapter, made possible by a grant from Paralyzed Veterans of America, 1999. Nine men and women who have personally faced the challenges of multiple sclerosis share their experiences and offer advice to two newly diagnosed individuals who pose their most compelling questions and concerns.
• Waist-High in the World A Life Among the Non-disabled, by Nancy Mairs, Beacon Press Boston, 1997. This book is about multiple sclerosis, women with disabilities, physical and social obstacles, the ethics of selective abortion and euthanasia, the joys and troubles of travel and much more.
• Welcome To My World, by Anne L. Shuell, East Amherst, N.Y., 1996. A woman diagnosed with multiple sclerosis in 1972 shares her insights. We hear many stories about people who have overcome horrendous obstacles as they create a new life after having the old one shattered by a disability or chronic illness.  This is an attempt to portray what goes on behind the scenes.
• When the Road Turns -- Inspirational Stories, by and About People with MS, edited by Margot Russell, Health Communications, Inc., Deerfield Beach, Fla., 2001. This book describes the journey called multiple sclerosis as it is taken by a number of remarkable people. MS challenges different people in different ways, and these stories testify to the amazing variety of coping strategies used to meet those challenges.
• Women Living with Multiple Sclerosis, by Judith Lynn Nichols and her group of online MS sisters. This book is an intimate portrait drawn from the e-mail chats of a group of special women written by a former reporter and freelance writer. Members of this all-woman online support network share intimate, emotional accounts of their experiences with MS. Some stories are painful, some are funny, and often they are both.
• Yes You Can!!! By Janis Dietz, Ph.D., Demos Vermande, New York. This book can help you embrace the premise that life should be lived to the fullest extent possible, disability or not. Life itself offers the joy of living as well as the responsibility to live it right, even if getting there takes some extra effort, even if getting there takes a long time, even if getting there requires skills you never knew you possessed!

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Multiple Sclerosis/Multiple Sclerosis Management

• 300 Tips for Making Life with Multiple Sclerosis Easier, by Shelley Peterman Schwarz, Demos Medical Publishing, New York, 1999. The book is filled with tips, techniques and shortcuts the author learned from personal experience and from the people around her.
• Adapting to Life with Multiple Sclerosis video, Consortium of Multiple Sclerosis Centers, 1999. Funded in part by Biogen, Inc. This video was developed to provide you with important MS information, treatment options, the ongoing advances being made in MS research and the types of support available for people with MS.
• Living with Multiple Sclerosis, A Wellness Approach, by George H. Kraft, M.D. and Marci Catanzaro, R.N., Ph.D. Demos Vermande, New York, 1996. This basic guide to living with MS deals with wellness issues such as diet, nutrition and exercise. Emphasis is given to strategies for managing the disease in an effective manner consistent with leading a full and relatively normal life.
• Living Well with MS:  A Guide for Patient, Caregiver and Family, by David L. Carroll and Jon Dudley Dorman, M.D., Harper Collins, New York, 1993. This book is written for the patient, family and caregiver to inform and comfort.
• Managing Multiple Sclerosis video, Fairview MS Center, Minneapolis, 1995.
• Meeting the Challenge of Progressive Multiple Sclerosis, by Patricia K. Coyle, MD, and June Harper, MSN, ANP, FAAN. Demos Vermande, New York, 2001. This book is written specifically for those individuals who have or are developing progressive disease. It focuses on ways not only to manage the progressive disease and its symptoms, but also to cope with the life changes that may accompany.
• Multiple Sclerosis:  A Guide for the Newly Diagnosed, by Nancy, Ph.D., T. Jock Murray, M.D. and Stephen C. Reingold, Ph.D. Demos Vermande, New York, 1996. This book serves as a guide to learning about the disease, its potential impact on your life and the medical treatments now available for managing it successfully.
• Esclerosis Multiple:  Guia Para el Recien Diagnosticado, traducido por Patricia Frias de Thomas y revisado por Dra. Teresa Corona Vazquez, Cuidad de Mexico, 2002. Demos Publishing, New York.
• Multiple Sclerosis:  A Guide for Patients and their Families (second edition).  Edited by Labe C. Scheinberg, M.D., Raven Press, New York, 1987.  A guide for every aspect of multiple sclerosis, including coping with the illness.
• Multiple Sclerosis -- A Rehabilitation Approach to Management, by Randall T. Schapiro, M.D., Demos Vermande, New York, 1991. The Complete management book for people with MS and their families who desire an understanding of innovative approaches to managing the disease.
• Multiple Sclerosis:  A Self-Help Guide to Its Management, by Judy Graham, Healing Arts Press, Rochester, Vt, 1989.  Self-help therapies for managing MS based on research data. Graham offers advice on diet, food supplements, exercise and yoga.
• Multiple Sclerosis Fact Book, by Richard Lechtenberg, M.D., F.A. Davis Co., Philadelphia, 1995. Filled with layperson language that explains new developments in MS by using illustrations and concise text. Recommended for the newly diagnosed as well as those who have been dealing with MS for many years.
• Multiple Sclerosis Fatigue: The Invisible Symptom video, National Multiple Sclerosis Society, Maryland Chapter, 1992. Length: 25 mins.
• Multiple Sclerosis in Clinical Practice, by Stanley van den Noort and Nancy J. Holland, Demos Medical Publishing, New York, 1999. A book for physicians and clinicians treating people with multiple sclerosis. It discusses the disease, medications and symptom management.
• Multiple Sclerosis:  New Hope and Practical Advice for People with MS and Their Families, by Louis Rosner, M.D., and Shelly Ross, Simon and Schuster, New York, 1992.  A patient-oriented book covering all the latest information on controlling symptoms, the role of stress and current treatments.
• Multiple Sclerosis Questions and Answers, by David Barnes, Merit Publishing, Coral Springs, Fla., 2000. Dr. Barnes is a consulting neurologist in England and has written this book largely for physicians and other healthcare professionals. It gives an overview of the disease and treatments.
• Multiple Sclerosis, The Facts video, Fairview MS Center, Minneapolis. Produced by Yonchenko Communications, South San Francisco, 1995. This video is a valuable tool.
• Multiple Sclerosis:  The Guide to Treatment and Management, by Chris H. Polman, MD., PhD, Alan J. Thompson, MD, FRCP, FRCPT, I. Jock Murray, OC, MD, FRCPC, MACP, FRCP, and W. Ian McDonald, MB, PhD, FRCP, FmedSci. Demos, New York. Fifth Edition, 2001. Comprehensive guide covers the broad diversity of treatment options in MS. Gives both a detailed discussion for each therapy in current use and an opinion statement on it’s usefulness and effectiveness by the Medical Management Committee of the International Federation of Multiple Sclerosis Societies.
• Multiple Sclerosis:  The Questions You Have, the Answers You Need, edited by Rosalind C. Kalb, Ph.D, Demos Vermande, New York. Second edition, 2000. This is the definitive guide for anyone concerned with multiple sclerosis. It covers a wide range of topics in a question and answer format.
• Managing the Symptoms of Multiple Sclerosis, 4th Edition, by Randall T. Schapiro, M.D., Demos Medical Publishing, New York, 2003. An updated edition of the complete books of management for people with multiple sclerosis, their families and healthcare professionals.
• Multiple Sclerosis, The Ultimate User-Friendly Guide by The Rocky Mountain Multiple Sclerosis Center Guild, 1999. Published with a grant from Biogen, this handbook is a short guide to understanding and treating multiple sclerosis.
• New Perspectives on Living with MS audio tape, Health Talk Interactive, 1995.
• Solving the Puzzle of Chronic Fatigue Syndrome, by Michael Rosenbaum, M.D & Murray Susser, M.D., Life Science Press, Tacoma, Wash., 1992.  This book includes information on treatment of Chronic Fatigue Syndrome, from drug therapy to nutritional recommendations. This book thoroughly reviews both controversial and conventional medical therapies.
• Therapeutic Claims in Multiple Sclerosis (4th Edition), by William A. Sibley, M.D., Demos Vermande, New York, 1996. Prepared under the auspices of the International Federation of MS Societies and the National Multiple Sclerosis Society, this book remains the definitive source for reliable assessments of therapies currently in use for the treatment of MS.

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Recreation and Travel

• Access Travel USA, by Candida H. Cremona, Creative Hospitality Concepts, Inc., Fort Lauderdale, Fla., 1994.  This book is a reference book for travelers with disabilities, their families, companions and the travel agents who serve them.  You will find names, addresses, phone numbers, dimensions, quantities and descriptives in an easy-to-use chart.
• Accent Guide to Recreation and Sports, by Lynn Winston, edited by Betty Garee, Accent Special Publications, Inc., Bloomington, Ill., 1985. This book is meant to stir the imagination so that you can find an activity that provides accessible fun. There is a list of special products and devices available for different sports and activities.
• Easy Access to National Parks, by Wendy Roth and Michael Tompane, Sierra Club Books, San Francisco, 1992. The Sierra Club’s guide for people with disabilities, mobility problems, vision and hearing impairments, seniors, families with young children—anyone looking for gentle, low-effort hiking opportunities will find this an invaluable resource.
• Great American Vacations for Travelers with Disabilities, Fodor’s Travel Publications, Inc., 1994. A guide to America’s best best-loved cities, parks and regions for people with disabilities and the people who travel with them. Essential planning information, access organizations, wheelchair repair shops, what to pack, tips on getting there and more local information.
• Ideas for Easy Travel, by Steve Wright and Heidi Johnson-Wright, 1994.

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Research

• Clinical Trials-What You Should Know Before Volunteering to Be a Research Subject, by J. Joseph Giffels, Demos Vermande, New York, 1996. This book describes what a clinical trail is, what your role will be, what your rights are as a research subject and what role your doctor will play -- information to help you decide if you should be in a clinical study.

The following is a list in chronological order of video taken during National Multiple Sclerosis Society Teleconferences, Research Symposiums and other research programs produced by the Greater Illinois Chapter.

National Multiple Sclerosis Society -- Teleconference Videos

• 1994 Taking Control Options to Maximizing Your Health
• 1997 Progress and Promise In MS Research
• 1997 One Thing People with MS Can Count On
• 1998 Progress and Promise in MS Research
• 1999 It’s Your Call:  Making Treatment Decisions
• Fannie & Charles Penikoff Research Symposium Videos
• 1998 Together Making a Difference
• 1999 A Mosaic of Strength
• 2000 Advances in Damage Repair & Managing MS
• 2001 Alternative Medicine and MS
• 2002 Cognition and MS
• 2003 Wellness
• 2004 The Road to Remyelination (VHS & DVD)
• 2005 Development of Novel New Drugs (VHS & DVD)
• 2006 The Road to Remyelination 2 (VHS & DVD)
• 2006 Track 1: What's the Next Big Thing? New Directions in MS Research (VHS & DVD)
• 2006 Track 2: How to Get to the Next Big Thing?  Clinical Trials and Getting New Drugs on the Market (VHS & DVD)
• 2006 Track 3: What Do We Do While We Wait for the Next Big Thing? New Research on Health and Wellness (VHS & DVD)

Audio Cassettes

• Newly Diagnosed Teleconference/ Moving Forward Seminars (Please call for topics and availability.)

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Social Security/ Taxation/ Financial Resources

• How to Qualify for Social Security and Protect Your Rights, by David A. Marton, M.D., Fine Books, 1992.
• Tax Options and Strategies for People with Disabilities, by Steven Mendelsohn, Demos Vermande, New York, 1993. Even complex principals of tax and policy are made clear to the reader. Jargon is stripped away, and information is presented clearly.
• Consumer’s Guide to Home Repair Grants and Subsidized Loans, by Robert L. Berko. Published by Consumer Education Research Center, South Orange, N.J., 1996.  Contains a list of more than 6,000 federal, state, county and local agencies that aid homeowners and renters.

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References Must Be Used in the Chicago Office

•  Financial Aid for the Disabled and Their Families, by Gail Ann Schlacter and R. David Weber, Reference Service Press, San Carlos, Calif., 2000-2002. A list of scholarships, fellowships/grants, loans, grants-in-aid, awards and internships designed primarily or exclusively for persons with disabilities and members of their families. Includes state benefits sources and financial aid references.
• Financial Aid for Minorities -- African Americans, Hispanic Americans, Asian Americans, Native Americans, by Gail Ann Schlacter and R. David Weber. Reference Service Press, San Carlos, Calif., 1999-2001. A list of scholarships, fellowships/grants, loans, grants-in-aid, awards and internships open primarily or exclusively to minorities.
• Multiple Sclerosis Diagnosis, Medical Management and Rehabilitation, edited by Jack S. Burks, M.D., and Kenneth P. Johnson, M.D.  The underlying theme in this book is comprehensive information in a practical format.  While designed for the neurologist or other MS health care specialist, it will be a useful reference for all healthcare professionals.

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