Mar 12, 2013
FOR IMMEDIATE RELEASE CONTACT: Susan Ashline
March 11, 2013 OFFICE: 585-271-0805 (X70344)
Assemblywoman Urges Governor to Declare March 11-17 MS Awareness Week in New York
MS Rates in Upstate New York are Double the National Average
Binghamton, NY – New York State Assemblywoman Donna Lupardo (D-Endwell) will be at the State Capitol this week, urging Governor Andrew Cuomo to adopt an Assembly resolution proclaiming March 11-17 “MS Awareness Week in New York”. Advocacy Manager, Aaron Ward, with the National MS Society Upstate New York Chapter, will be on the Assembly floor to accept a bound copy of the legislative resolution.
Assemblywoman Lupardo is a part of the New York State MS Legislative Alliance – a group of five state lawmakers who raise awareness and promote education about MS, speak to groups or attend events affiliated with the National MS Society, and share updates and events with constituents via social media, mail and website correspondence. Current members include Senator Mark Grisanti and Assembly members Mark Johns, Donna Lupardo, Crystal Peoples-Stokes, and Steven McLaughlin.
Individuals in Upstate New York are diagnosed with multiple sclerosis at a rate of twice the national average. Across the state, the Upstate New York Chapter serves more than 12,800 people living with MS and their friends, family and caregivers. In the Greater Binghamton area, there are more than 1,168 people living with MS. The disease impacts and challenges the lives of more than 2.1 million people worldwide.
During MS Awareness Week, the National MS Society is offering programs to the public to help them learn more about MS and to identify sources of support for those who are currently in the process of being diagnosed or are currently living with MS. MS Awareness Week’s main focus is to spread awareness of MS and encourage people to Join the Movement® against MS.
The average health care cost per year for people living with MS is an estimated $70,000; these costs can exceed $2 million over the lifetime of a person with MS.
Most Americans are diagnosed with MS between the ages of 20 and 50, making it the number one disabler of young adults. There are an estimated 10,400 new cases diagnosed each year.
Other events happening during MS Awareness Week in the Greater Binghamton (photo ops):
Brendan Fallon, Campaign Manager for the National MS Society Upstate New York Chapter, will be speaking about MS to the Tri-Town Boys and Girls Club in Sidney at 3:30 pm. The discussion will also feature a recent graduate of the Boys and Girls Club program talking candidly about living with MS.
Upstate New York Chapter staff and volunteers will be at the Oakdale Mall in Johnson City, from 2 p.m. to 7 p.m., spreading awareness of MS to neighbors in the Southern Tier by distributing information about chapter programs in the area. Mall patrons will “Try on MS”; the chapter will have props that people can put on to give them a taste of what it’s like to live with MS.
March 14 and 15
Students at Homer Brink Elementary School in Endwell will be wearing orange on Thursday and Friday in recognition of MS Awareness Week. The school will also hold an assembly to educate students about MS; date TBD.
Please contact us if you are interested in doing a feature story profiling someone who is living with MS.
For more information, contact Susan Ashline, Communications Manager, 585-271-0805 (x70344), Susan.Ashline@nmss.org.
About multiple sclerosis and the National MS Society Upstate New York Chapter: Multiple sclerosis, an often disabling disease of the central nervous system, interrupts the flow of information within the brain, and between the brain and body. Symptoms range from numbness and tingling to blindness and paralysis. Most people with MS are diagnosed between the ages of 20 and 50, with at least two to three times more women than men being diagnosed. The rate of diagnosis in Upstate New York is about double the national average. MS affects more than 2.1 million people worldwide and more than 12,800 people in the 50-county region served by the Upstate New York Chapter. For more information, visit www.MSupstateny.org.