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Share Your Story

 

It’s housekeeping time. We’d like to update our advocacy database of interested volunteers. The National MS Society believes the voices of one or many can create change and new opportunities through advocacy. We know you are an activist in your community because we hear the great things you’re already doing locally. How about joining the advocates already part of our network? Here are some ways you might want to volunteer:

  1. Share your “MS story” for use in our website, print, media, legislative efforts.  Please email your story of 200 words or less (with photo if possible) to Jenna.Paladino@nmss.org. You will receive an email to confirm that your story was received.  Please see below for ideas on how to start writing your story.
     
  2. Are you willing to meet with specific elected officials and talk about your MS?
     
  3. Would you be willing to promote advocacy at Walk and Bike events?  We need your assistance in signing people up for the Action Alert network and getting the message out about our advocacy efforts.
     
  4. Become a member of our Government Relations Committee (GRC). It is a statewide committee comprised of volunteers like yourself and chapter staff working to set a priority agenda, manage legislative issues and build awareness campaigns.

If any or all of this interests you please contact Jenna.Paladino@nmss.org. We promise to train you and make you feel confident in telling your story.

 Please be sure to stay informed with our Action Alert Network: www.nationalMSsociety.org/MSactivist

 Ideas to help you start writing your "MS Story":

  • How might you describe MS to someone on the street? What does it feel like?
  • What challenges do you face in the morning? Afternoon? Evening?
     
  • Doctor visits, injections, what else?
     
  • How does the future look for you and how can you improve your current health?
     
  • If you had a personal meeting with President Obama tomorrow, what would you ask for? (be specific)

Note: If writing your story proves to be too difficult for you, then please let us know. Our staff can assist you in writing your story—we will gladly help!