Success is when people with MS and those connected to the cause speak out on issues important to them, ask for change, and work with public officials to address them in a positive way.
Thanks to MS activists, we have successfully...
- Registered 1,183 individuals in North Florida to receive the MS Action Alert, which provides news and updates on health policies and MS issues, so that all activists can be informed to take action on legislation that matters. Join the MS Action Alert Network
- Garnered support from representatives through co-sponsorships of legislation and membership in the MS Caucus.
Personal Story
My life has changed in so many ways over the past years. I knew that there was something physically wrong with me and after a while my family and co-workers could see it too. Test after test, blood work until I thought I was participating in a vampire ritual, but still - no definite answer. Then my chiropractor became concerned, another look at my MRI, and many more tests. Yet still nothing definitive. Then, during my eye examination my ophthalmologist gave me the final answer “You have Multiple Sclerosis”. Wow, an answer finally! I wasn’t just making all of this up, or even better yet, I wasn’t losing my mind. There really was something wrong. Oh, no, there is really something wrong!
With MS you never know from day to day what can happen or how you are going to feel. Today might be okay, and tomorrow I may wake up and see everything out of foggy eyes, or I might not be able to get myself out of the bed at all. When it is one of those days, my granddaughter will ask me if I am ever going to get better. So for my family, for me, I am never giving up – “Never Give Up, Never Surrender”.
So, tomorrow just might be the day that researchers find a cure for MS. Hope keeps MS patients at least trying to get up morning after morning. However, we need more research and studies - whatever it takes to find a cure. I don’t want my grandchildren, or your grandchildren, family members, or anyone else to ever have to hear those almost unbearable yet relieved words that I heard.
The past few months after my diagnosis, I have met some extraordinary people in a support group for MS patients and family members. Together, we have been working on fundraisers -Walks, Bike Rides, anything that we can do to help raise funds to continue the research for a cure of MS. But, we can’t do it alone. We need your help, we need everyone’s help. YOUR donation just might be what is needed for - that one more test - or study to find THE cure.
“He gives strength to the weary. And to him who lacks might He increases power.” Isaiah 40:29
Cindy Segreto
Pensacola, FL