Knowledge is power. Learning all you can about MS will help you better evaluate your options for managing symptoms, treatments, coordination with your health care team, and living well with your MS.
In What we know about MS, you can explore:
TREND SYMPOSIUM
Healthcare experts recently discussed changes in MS cognition at two TREND Symposiums in Lincoln, NE and Overland Park, KS. If you weren't able to participate, below are the presentations including topics on research on the horizon, what to expect from neuropsychological testing and what adaptations, strategies & assistive technology can help.
Overland Park, KS TREND Presentations
- Overview of Cognitive and Treatments in MS - with Dr. Sharon Lynch, Neurologist
- Neuropsychological Testing and Research Update - with Abbey Hughes, MS Researcher
- Lunch and Opportunity to visit with vendors
- Adaptations and Strategies for Cognitive Changes in MS - with Sara Baker, Speech Language Pathologist
Lincoln, NE TREND Presentations
- Overview of Cognitive Changes in MS - with Dr. John Puente, Neurologist and Mary Filipi PhD, APRN of Neurological and Spinal Surgery, LLC
- Testing & Treatments for Cognitive Changes in MS – with Dr. Robert Arius, Clinical Neuropsychologist with Arias Neuropsychology and Behavioral Medicine
- Adaptations & Strategies for Cognitive Changes in MS – with Daniel Kasparek, MA, CCC-SLP and Reagan Hoffman, MS, OTR/L from Madonna Rehabilitation Hospital
The 2013 Midwest Teleconference Series is brought to you through a collaboration of all Midwest Regional Chapters of the National Multiple Sclerosis Society. There is no charge for these calls but registration is required. Participation is limited to 35 people for each call. Call 1-800-344-4867 and press 1 to sign up.
Coming Soon |
Date |
Register |
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| My Family has MS | 6/10/13 |
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| WAKE UP! | 7/8/13 |
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| Probiotics and MS | 8/12/13 |
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| Complementary and Alternative (CAM) Therapy for MS | 9/8/13 |
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Missed a Teleconference?
Archives |
Handouts |
Listen |
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It's Not Just In Your Head May 13, 2013 |
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Calm Before the Storm April 8, 2013 |
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Don't fall for it: keep your balance March. 11, 2013 |
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What's Happening Now- MS Research Feb. 11, 2013 |
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African Americans get MS too Jan. 14, 2013 |
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Exercise: Maybe A pain, But A Lot To Gain Nov. 12, 2012 |
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Managing Cognitive Changes in MS Oct. 8, 2012 |
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MS: What a Pain Sept. 10, 2012 |
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Spasticity: What's Under Your Control Aug. 13, 2012 |
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The Cycle of MS Symptoms and Their Effect of Bowel and Bladder July 9, 2012 |
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Give Yourself A Hand: Tools for Everyday Life June 11, 2012 |
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Me, Myself and I: The Art of Being Your Own Care Partner May 14, 2012 |
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Maximizing Your Physcial Therapy for Optimum Benefit April 9, 2012 |
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Research: Where are we now, where are we going? March 12, 2012 |
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What About Progressive MS? Feb. 13, 2012 |
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Making Connections Thru Social Media Jan. 9, 2012 |
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You Are Not Alone Dec. 12, 2011 |
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Hot Flash or MS Moment? Nov. 14, 2011 |
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Eating for Healthy Living with MS Oct. 10, 2011 |
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Symptom Management: Optic Neuritis Sept. 12, 2011 |
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Sleep & MS: When to Doze Aug. 8, 2011 |
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Navigating Through Relationships Part 2: How to Cope With Loss July 11, 2011 |
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Navigating Through Relationships Part 1: Taking Care of Yourself While Taking Care of Others June 13, 2011 |
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Intimacy: Preparing for Pregnancy May 9, 2011 |
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Know Your Rights: Part II-Taking Control of Your Health Care April 11, 2011 |
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Know Your Rights: Part I–Standing Up for Yourself March 14, 2011 |
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Clinical Trials & Research on the Horizon Feb. 14, 2011 |
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Feeling Well, Feeling Wise-How do you get there? Jan. 10, 2011 |
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Cognitive Changes & MS: Dec. 13, 2010 |
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Pain & MS: Nov. 8, 2010 |
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Vitamins & Supplements: What Does Vitamin D Do? Oct. 11, 2010 |
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Navigating the SSDI Process Sept. 13, 2010 |
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Progressive MS Aug. 9, 2010 |
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Bowel & Dysfuntion July 5, 2010 |
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Coping with Change June 7, 2010 |
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MS & the Urinary Track May 10, 2010 |
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Cognitive Changes & MS April 10, 2010 |
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Nutrition March 8, 2010 |
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Men's Issues & MS Feb. 8, 2010 |
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Update in MS Research, Genetics & Clinical Trials Jan. 11, 2010 |
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Oral Medication Update Dec. 14, 2009 |
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Eating Healthy & Staying Fit Through the Holidays Nov. 9, 2009 |
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Intimacy & MS Oct. 12, 2009 |
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Relationships & MS Aug. 10, 2009 |
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Taming Stress April 13, 2009 |
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Employment March 9, 2009 |
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Fatigue Management Dec. 8, 2009 |
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Progressive MS Book Available
People with primary-progressive MS (PPMS) account for an estimated 10 percent of the total multiple sclerosis population. With most of the attention focused towards the relapsing-remitting form of MS, people with PPMS often describe themselves as “orphans” of the MS world.
“Primary Progressive Multiple Sclerosis - What You Need to Know,” is a comprehensive book that discusses the diagnosis of PPMS, treatment and research, rehabilitation, wellness, family and social issues, and life planning. The book was written by Drs. Jack Burks, Nancy Holland and Diana Schneider and published by DiaMedica Publishing. Bound within the book is a companion DVD, “Primary-Progressive Multiple Sclerosis - Perspectives on Moving Forward.” The DVD profiles four people living with the significant challenges of PPMS who share their strategies for maintaining health, quality of life and planning for life with primary-progressive MS. If you or someone you love has PPMS, you can receive a copy of this book free by calling 1-800-344-4867.