The Boston Home Opens the Wheelchair Enhancement Center
The Boston Home’s Wheelchair Enhancement Center (WEC) opened in 2012 to extend to clients the Boston Home’s deep expertise in maximizing wheelchair functionality. The Center’s clients, who live in the community or other long term care facilities, receive customized enhancements for their wheelchairs to increase comfort and personal independence, both essential to quality of life. Customization might include attaching an iPad or reprogramming the wheelchair’s drive software for improved control. The WEC offers the following services:
- Wheelchair modifications including power wheelchair programming and alternative drive controls
- Electronic and social media mounting – design and install of custom mounts to wheelchairs for devices such as, laptops, iPads, E-readers, etc.
- Wheelchair assessment, training and repair
The Wheelchair Enhancement Center at the Boston Home fills a necessary gap between what insurance and warranties will cover and the expanding customization desired by users. Onsite assessment and repair is available at the Center, allowing individuals to stay mobile and comfortable without long incapacitating delays.
For more information about the Boston Home’s Wheelchair Enhancement Center, contact Don Fredette at 1-617-326-4278 or firstname.lastname@example.org.
What if everyone who cares about MS could join together in one place?
Share what you know at www.MSConnection.org.
When you join the National MS Society’s MSConnection.org, you’ll be able to make meaningful connections when, where and how you want, with easy access to the best content and resources the MS community can bring you. You can share information about the topics that are most important to you, connect with people, and have expert MS information and opinions right at your fingertips.
CONNECT to create change:
- Be an MS Activist. Connect with other Activists.
CONNECT to get involved:
- Find an MS Walk, share fundraising ideas.
CONNECT to ask questions:
- Learn more about MS from an MS Navigator.
CONNECT to be heard:
- Participate in discussion groups and blogs.
- Share what you know.
CONNECT to give and receive support:
- Find Self-Help Groups near you.
- Join the “Online Peer Connections Program. ”
- Call “MSFriends.”
You can still CONNECT!
- MSFriends is a telephone support program: call toll free 1-866-673-7436.
- The Online Peer Connections Program has a telephone component for individuals with limited computer access: Contact Monica Aden, Online Peer Connections Coordinator, at 1-303-698-6100 ext. 15169.
- And don’t forget…to learn more about Society Connection Programs or for other questions and information, an MS Navigator is just a phone call away: 1-800-344-4867.
Dora Lipcon Lending Library New Additions
Multiple Sclerosis and Caregivers: A look at the challenges of surviving in a relationship that includes giving care (2009). Direct Health Media, Inc. In this program, you will meet four couples who wrestle with the daily challenges of caring for a partner with MS while still caring for themselves.
Managing Pain & Sleep Issues in Multiple Sclerosis (2012). North American Education Program produced by the National MS Society of the USA in collaboration with the MS Society of Canada. Scientists and clinicians, who treat MS patients who experience pain and sleep disorders, are working to find better strategies for managing these disorders. The program booklet provides information from studies that are completed or in process that add to our body of knowledge about MS management.
Hacia un mejor entendimiento de la esclerosis múltiple (To a better understanding of MS). An innovative Spanish audio resource recorded totally in Spanish. This CD is designed as a companion to the Society brochures, What is MS, Diagnosis the Basic Facts, and But You Look So Good (enclosed). A wonderful resource for people newly diagnosed, families, and friends.
How to Choose the Mobility Device that is Right for You A guide for people with MS Managing Major Changes (2013).
Top 10 List of MS Questions: (10/24/12) Angela Applebee, M.D., Director of the MS Center of Northern New England at Fletcher Allen Healthcare, addresses the most common questions and concerns facing individuals newly diagnosed with MS.
Invisible Symptoms: (11/28/12) Pam Mills, RN, BSN, MSCN addresses the “invisible” symptoms of MS such as pain, fatigue, and cognitive issues and how to manage these symptoms effectively.
Colores Latino: Esclerosis Multiple: El Capítulo trabajó con la galardonada Colores productora Latina Nancy Peña para grabar y transmitir sobre el quien, que, donde y por qué del MS en español. David J. Rintell, EdD, Psicólogo y Consultor de vario MS Centros de atención Clínicos en el área de Boston, contesta a preguntas sobre EM, predominio, síntomas, tratamientos y más. El programa fue transmitido en la televisión de acceso de comunidad en Worcester y Lowell en la caída 2012.
A Family Affair: (12/12/12) Peggy Crawford, Ph.D., PSYD, Cincinnati Children’s Hospital; contributing author to Multiple Sclerosis: A Guide for Families and Bonnie Danowski, family member of a person with MS, address the many challenges facing both the individual and family living with MS. Learning about MS and communicating are effective strategies for coping with these challenges and developing a healthier lifestyle.
Share What You Know
MS Awareness Week 2013
MS Awareness Week, March 11–17, is a time for people affected by MS to connect with others, share knowledge and take action to increase awareness about the disease. Your voice and the connections you create will make the movement even more powerful.
MS destroys connections inside us. It disconnects the mind from the body and people from each other. But what if we could forge connections that MS couldn’t destroy? What if we could connect more people in more ways around this disease? Would they share more knowledge? More questions? More answers? More hope? Maybe, by connecting enough small victories, we could win some really big ones.
Think about this scenario and how ‘connections’ make a difference: A man in Arizona clicks “share:” on an article on how to keep health insurance coverage - it stops a woman in New Hampshire from losing her health insurance, which means she can afford her daily medications.
MS Awareness Week!
• March 11-17, 2013 •
What are you doing?
- Check out MSnewengland.org, click on the link for “MS AWARENESS WEEK ”
- Create a video to share your connection to MS. Post your MS Awareness Home Video on YouTube!
- Educate others about MS and what the National MS Society does. Host an MS awareness information table at your local library! Contact email@example.com to learn more.
- Update your Facebook Status about MS. Donate your status line each day of MS Awareness Week and tell us how your connections are helping to kill MS.
- Check out Facebook.com/MSnewengland for more MS Awareness Week activities.
- Follow the Chapter on Twitter @MS_newengland. Use #MSconnection, and tell us how you will connect to end MS.
- Write a letter to the editor of your local newspaper, and share how MS affects you and/or your loved ones.
- Raise MS aWEARness by wearing orange. Need something new? Visit the Society Store on line.
- Sign up to volunteer at an upcoming chapter event, such as MS Flags of Hope, or MS Awareness buck slip handout. Contact Emily.Flanders@nmss.org for more details.
- Form a team: Bike MS, Walk MS, or Challenge Walk.
- Donate: Support the Society — every donation moves us closer to a world free of MS.
- Spread the Word: Tell five people it’s MS Awareness Week and ask them to tell five more.
- The Chapter will post online a prepared story about MS that you can submit to a hospital or company newsletter.
To learn more, visit MSnewengland.org
Have an idea? Write us at NationalMSSocietyGNE@nmss.org.
The Spectrum of MS: Spring 2013 Series
Below The Belt: Bladder and Bowel Issues in MS
Wednesday, April 17, 2013, 6:30 – 7: 30 p.m.
Christine St. Laurent, MSN, RN, MSCN
Learn about common bladder and bowel issues that can arise with MS, and ways to treat and cope with them.
Multiple Sclerosis, Sex and Intimacy
Wednesday, May 8, 2013, 6:30 - 7:30 p.m.
Pamela S. Boyle, MS, FAACS
An open and honest discussion about the personal and intimate side of living with MS. Explore concepts of intimacy, challenge their communication skills and explore a range of expressions to awaken or enhance the sexual connection.
Improving Independence in Progressive MS
Wednesday, June 12, 2013, 6:30 - 7:30 p.m.
June Halper, MSN, ANP, FAAN
Sometimes MS symptoms can progress to the point that they significantly interfere with daily activities. Maintaining control and independence in everyday life doesn’t necessarily mean doing everything the same way you did it before. Discover how to navigate the world of assistive technology and ways to modify your environment at home and at work to optimize control and independence.
Did you miss a call in the Fall series? Please visit our website to access recordings from previous teleconferences.
Help is a Call Away
No matter where you live, if you have questions about multiple sclerosis, an MS Navigator can help you. Submit a request to firstname.lastname@example.org. Please include your name, mailing address, and phone number. Or call us toll free, Monday-Fridat, 9 a.m. to 5 p.m. Find resources for all of the following, and much more!
- REFERRALS to Neurologists, MS Clinical Centers, Legal Services, Mental Health Providers, Allied Health Professionals, Housing Needs, Self Help and Support Groups
- RESOURCES for Medical Equipment, Home Modifications, Transportation, Independent Living, Financial Assistance
- PROGRAMS in Home Care and Day Care, Recreation and Wellness
- COUNSELING for Employment, Insurance, and Public Benefits
Wellness Scholarship Program
Scholarships are available for classes in yoga, tai chi, aquatics, and physical fitness. Find out about instructors in your area. Visit our website, >Programs & Services>In Your Community>Physical Wellness.
Keep S’myelin is published quarterly by the National MS Society for children 5 - 10 years old and their relatives who have MS. Games, fun, and information. To sign up, call the chapter or email: email@example.com.
In Touch Phone Groups
These professionally facilitated support groups meet monthly by telephone. Listen, learn and talk to other people with MS from the comfort of your home.
- Third Monday/month with Denise Riel, LICSW
- Second Tuesday/month with Allison Troy, LICSW
- First Wednesday/month with Ronnie Gullette, MEd, LMHC, LSW
Call 1-800-344-4867 for more information.
MS Learn Online
Webcasts and podcasts are pre-recorded and may be played at any time
MS Learn Online is an educational webcast series featuring three channels of programming —
- Feature Presentation: Experts present on topics such as Research, Treatments, Relationships, Employment, Insurance, Staying Well and Living with MS.
- Daily Minute: A short informational clip about MS.
- Q&A: Every week, MS Learn Online experts answer a new viewer question.
Transcripts (.pdf format) and podcasts (.mp3 audio format) are available for most programs. Visit: nationalMSsociety.org > Multimedia Library > Webcasts & Podcasts
My Life My MS My Decisions
A series of online classes that will help you boost your decision-making power.
It’s your MS and it’s your medical care, but sometimes it can feel like other people are making your decisions for you. These classes keep you in the driver’s seat.
- Be an active member of your healthcare team
- Understand your doctor’s medication recommendations
- Improve your health and well-being
- Articulate the reasoning behind your decisions
- Improve communication with your healthcare providers
- Use sound reasoning to make decisions about your health
- Decide whether participation in clinical trials is right for you
This course is offered as an online program so you can access the class when and where it is most convenient for you. 1-800-344-4867 or at www.nationalmssociety.org.
Offers case management services to help stabilize client and family during times of difficulty or crisis. To learn more, call 1-800-344-4867 or email firstname.lastname@example.org.
Ask the Experts
Have a question about MS? Get expert advice and opinions on common MS questions online at MSnewengland.org > Programs and Services > Ask the Experts