Meet Katie Netzel, diagnosed in 2005
Katie is the official ambassador for Walk MS: Christopher & Banks Rochester Walk 2009. She also is part of the recently launched volunteer advisory group that is working with the National MS Society, Minnesota Chapter to develop new programs and opportunities specifically geared toward people in their 20s and 30s who live with MS.
What do you remember from the day you were diagnosed?
I was relieved when I received the diagnosis of multiple sclerosis. It was nice to finally know what I was up against and be able to put a name with the unusual sensations I had been experiencing. The diagnosis was hard because I was hoping for something that could be treated and cured, but once I knew what was going on it enabled me to take charge of my health again.
What made you decide to participate in Walk MS?
I wanted to participate in Walk MS to raise awareness about MS and connect with other people affected by the disease. Walk MS gave me an opportunity to share my diagnosis with people while fundraising, which was a nice way to break the news — it removed the “pity factor” because I was saying, “Yes, I was diagnosed with MS but I am choosing to do something about it. If we join together to find a cure maybe other people won’t have to hear the same diagnosis.”
What do you enjoy most about the event?
I enjoy the variety of people who turn out for the walk. Walk MS is all-inclusive and is something whole families can participate in together. I walked when I was 8 ½ months pregnant and then the next year with my 11-month old son! Even if they don’t know me or my story, it is so powerful to see that many people in our community care about MS and are committed to helping find a cure.
What advice would you give someone who is newly diagnosed with MS?
Don’t ever be ashamed that you were diagnosed with this disease. A diagnosis of MS doesn’t mean that you are unhealthy, unfit or incapable, but it gives you more knowledge and knowledge really is power. Use the knowledge of what is going on with your body to make informed decisions, connect with others, and take charge of your health.