CarePartners are family, friends, and neighbors. Spouses, family and friends can be drawn more closely together by their shared concerns and collaborative efforts. With appropriate information and support, carepartners can help their loved ones across their lifespan. As a carepartner it is important to remember that paying attention to your own health and well-being is essential to being able to care for someone else.
This page will provide you more information about care options such as home health services, adult day care, respite care services, carepartner support programs, assisted living facilities, and tips to help care for the carepartner.
CarePartner and Family Group
This group covers a series of topics important to carepartners or to anyone who provides care for a loved one with MS. It meets at the
David C. Pratt Cancer Center
Mercy Medical Center
607 South New Ballas Road
St. Louis, MO 63141
The group meets on the first Tuesday of February, May, August and November at 6:00pm.
The group is facilitated by Karen Tripp, Marriage & Family Counselor
RSVP is required. Please contact Stacey Sickler at email@example.com or (800) 344-4867 to RSVP or for questions.
MSTogether (for couples)
This couples social group provides an informal social opportunity to meet and talk. Events are organized by the couples themselves and they include potlucks and ball games. Expect to actively participate in planning and organizing, as well as having fun!
This group meets quarterly. The location changes, but is generally in the St. Louis area.
If interested, email Joe Salacki at firstname.lastname@example.org
A Guide for Caregivers (.pdf)
Practical issues faced by carepartners. Includes resource list.
2010 ADA Standards for Accessible Design, these amended regulations include numerous new or expanded provisions for general nondiscrimination policies including the use of wheelchair and other power-driven mobility devices, the use of service animals, reserving and guaranteeing accessible hotel rooms, selling tickets for wheelchair accessible seating at sporting events and performance venues, as well as guidelines on how the new regulations affect existing facilities.
Family Caregiver Alliance – Family Care Navigator: State by State Help for Family Caregivers.
If you are providing care to an older or disabled family member or friend, you know that navigating the long-term care system can be difficult. This state-by-state resource is intended to help you locate government, nonprofit, and private programs in your area. It includes services for family caregivers, as well as resources for older or disabled adults living at home or in a residential facility. It also includes information on government health and disability programs, legal resources, disease-specific organizations and much more.
Someone You Know Has MS: A Book for Families (.pdf)
For children, 5-12. A story about Michael and his family explains MS and explores children’s fears and concerns
When a Parent Has MS: A Teenager's Guide (.pdf)
For older children and teenagers who have a parent with MS. Discusses real issues brought up by real teenagers
PLAINTALK: A Booklet About MS for Families (.pdf)
Discusses some of the more difficult physical and emotional problems many families face
Care for the Care Partner (.pdf)
Preventing carepartner burnout