Who are Carepartners? Spouses, family members, or friends!
It may be hard to think about at times, but the truth is, not just the person living with MS is affected. If you are living with multiple sclerosis (MS), or caring for someone with MS, you know that it can take more than medicine to help manage the condition. Having a strong support network—from doctors and nurses to friends and family—can be an essential part of your well-being. The support partner aspect of this program is specifically for individuals who are affected by your diagnosis.
A Guide for CarePartners (.pdf)
Practical issues faced by carepartners. Includes resource list.
- Deliver A Smile visits to individuals with MS who are unable to leave their home unassisted, are socially isolated, and/or live in a nursing home or skilled care facility.
- Support Groups
- Resources: Spouses, partners, family and friends can be drawn more closely together by their shared concerns and collaborative efforts.
Communities Specializing in MS Care
NHC of Town & Country, St. Louis, MO, is a specialized community for individuals with MS which offers collaborative programming. For more information, visit their website at http://www.townandcountryhealthcare.com or to contact NHC of Town and Country, please call 636-227-5700 or fax them at 636-227-9431.
If you would like more information on how to become a specialized multiple sclerosis community, please contact Debra Preston at Debra.Preston@nmss.org or 314-781-9020, option 1, ext. 27151.
Help at Home
Hiring Help at Home (.pdf)
Checklists and worksheets for people who need help at home. Forms for a needs assessment, job description, and employment contract
Environmental Adaptations (.pdf)
Design changes to your home or work can enable people to live with MS more comfortably and productively
Rehab to Home Discharge Guide, a family caregiver guide from the United Hospital Fund of New York's Next Step in Care initiative. This resource includes information specific to the rehab setting, such as equipment and assistive devices needed at home, follow-up care, and financial issues and planning for additional care at home.
Ombudsman St. Louis
Ombudsman Program, consists of professional and specially trained staff and volunteer ombudsman who are assigned to long-term care facilities weekly, develop rapport with residents and provide advocacy,support and education about their rights.
To get more information about Long Term Services and Supports, please call 1-800-344-4867.