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Long Term Services and Supports and Assisted Living: Guidelines and Recommendations

Adult Day Programs—These guidelines will be most helpful to those day programs that have little or no experience serving people with MS. Included in the document is basic information about multiple sclerosis and specific recommendations, practical tips, and best practices as they relate to intake & assessment, clinical implications, psychosocial issues, activities & wellness, rehabilitation, and staffing & physical plant.

• Serving Individuals with Multiple Sclerosis in Adult Day Programs (.pdf)
• Adult Day Programs by County - Missouri (.pdf)
• Missouri Adult Day Services Association

Assisted Living—Guidance to administrators and staff of assisted living facilities that are seeking to develop effective service plans for residents with multiple sclerosis. These guidelines address the unique set of clinical conditions of residents with MS and provide recommendations to maximize their quality of life.

• Assisted Living for Individuals with Multiple Sclerosis (.pdf)

Nursing Home Care—Information on clinical practice, practical tips and best practices with regard to nursing and daily care, rehabilitation, psychosocial needs and cognitive issues, assisting families with the nursing home admission process, training materials, and resources for health care professionals.

• Nursing Home Care of Individuals with Multiple Sclerosis (.pdf)

General Information

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• Public Health Insurance Programs, Medicaid is public health coverage that provides access to health services for individuals and families with low income and assets, as well eligible persons with a disability.

• Missouri Code of State Regulations, Title 19 - Department of Health and Senior Services

• Illinois Code of State Regulations

• Missouri Pioneer Network (MC5)
  Illinois Pioneer Coalition

• Ombudsman St. Louis
  Ombudsman Illinois
  Ombudsman Program, consists of professional and specially trained staff and volunteer ombudsman who are assigned to long-term care facilities weekly, develop rapport with residents and provide advocacy,support and education about their rights.

• Leading Age

• American Healthcare Association
  Iliinois: http://www.illinoisaaham.com/
  Missouri: http://www.aaham-mo.com/

• National Association of Activity Professionals

• St. Louis Area Agency on Aging

• Illinois Area Agency on Aging

• Private Duty Association

• American College of Health Care Administrators

• National Association of Directors of Nursing Administration

• American Medical Directors Association

• National Association of Social Workers

• American Therapeutic Recreation Association

Long Term Services and Supports Committee

The Long-term Care Committee will ensure that the Chapter is focusing on the common issues that affect people with MS as guided by the "Principles to Promote the Quality of Life for People with MS”. The principles are endorsed by the World Health Organization.

Committee Goals and Objectives

The goal of the Long Term Services and Supports Committee is to provide strategic planning and support to long-term care programming and initiatives within the Gateway Area Chapter of the National MS Society.


Provide input on planning, implementation and review of long-term care programming at the MS community - NHC of Town & Country

• Assist in developing outcome measurements for replication of MS wing, staff & residents
• Assist with locating and securing resources for residents of the MS Community and staff caring for the residents,  examples are free or low cost on-site presentations for staff or residents (four per fiscal year), training opportunities for staff, locating items needed by residents

Long Term Services and Supports Committee Members