The National MS Society is committed to delivering accurate and reliable information to everyone affected by MS, and subsequently reviews many requests for participation in MS surveys. Following is a list of surveys (mostly online) and other research studies seeking to recruit people with multiple sclerosis that has been reviewed by the Society and offered as information only, not an endorsement or recommendation. The surveys/studies are being conducted either by investigators seeking to answer scientific or health policy questions about MS, or by pharmaceutical or medical device companies conducting market research efforts to develop or improve products for people with MS. Further details about each survey/study, as well as contact information, are included at this link: http://www.nationalmssociety.org/research/researchers-need-you/surveys/index.aspx.
Clinical trials help to determine if a drug is safe and effective for people with MS. People with MS who are willing to volunteer in these studies make it possible for all of us to look forward to new and better therapies. To learn more about how to participate in clinical trials, view the information from this link: http://www.nationalmssociety.org/research/clinical-trials/index.aspx
CLICK HERE FOR CLINICAL TRIALS IN NJ
Employment Study for Individuals Living With MS
Investigators at Seton Hall University are conducting a research study investigating the emotional and physical factors that may have an impact on an individual’s employment status, following a diagnosis of MS. They are recruiting US citizens between the ages of 25-50 who are diagnosed with MS, were engaged in paid employment at the time of MS diagnosis and are currently experience a relapsing-remitting course of MS. The study will require a maximum time commitment of 30 minutes from each participant. Participants will complete a demographic questionnaire and the following assessments: the Revised Stress Related Growth Scale, the Multiple Sclerosis Self-Efficacy Scale, the Career Self-Efficacy Scale and the American version of Guy’s Neurological Disability Scale. Participation in this study is completely voluntary and individuals may withdraw from the study without any penalty, at any time. To ensure anonymity, each participant will complete an anonymous on-line survey through Survey Monkey.
Click here to go to the survey. For more information, please contact megan.castano@student.shu.edu.
Doctor-patient relationships and experiences adjusting to Multiple Sclerosis (the dreaMS Study)
Researchers at University at Albany, SUNY are recruiting people being treated for MS for a study to learn more about doctor-patient relationships and experiences adjusting to Multiple Sclerosis. Participants can complete the anonymous and confidential questionnaire, entirely from home. Participation should only take about 45 minutes. Participants are eligible for a prize-drawing to receive compensation. The answers may ultimately help to improve the quality of the medical care that people with Multiple Sclerosis receive.
For more information or to complete the questionnaire over the phone, please call (518) 442-4903.
Click here to fill out the questionnaire online.