We are excited to share with you the most current updates from our advocacy team and keep you informed about the progress we're making in chapter advocacy issues at the federal, regional, state and local levels.
Congresswoman Carolyn Maloney co-sponsored legislation that will establish a cross-functional group to formulate recommendations for the coordination of government and private programs addressing autoimmune diseases and will provide an avenue to exchange information in order to streamline communication. The chapter is working with the NMSS Public Policy Office to help obtain additional sponsors for this bill, the Mary Colella Autoimmune Disease Awareness Act.
In collaboration with the chapters in the Northeast region, a regional advocacy newsletter will be produced in September.
The chapter is working as part of New Yorkers for Accessible Health Coverage (NYFAHC) to conduct a survey that will provide information on what people with disabilities are concerned about regarding the Affordable Care Act and the creation of a Health Care Exchange in New York State. The chapter will reach out to the appropriate support groups to ensure that individuals with MS have the opportunity to participate in the survey. The data from the survey will assist in discussions with legislators when determining the structure and features of the Health Care Exchange.
The bill to establish access aisles for handicapped parking spaces of at least eight feet has been signed into law by Governor Cuomo.
The Society’s Strategic Response Implementation team is working to create tailored statewide legislative agendas based on issues that are relevant to broad cross-section of chapters across the country.
As a result of the United States Court of Appeals Second Circuit decision that New York City is not in violation of the Americans with Disabilities Act due to the lack of accessible taxis, the Taxis for All Campaign is requesting an en banc hearing to review the case again. If the request is granted, all the judges of the United States Court of Appeals Second Circuit will hear the case and a determination will be made by all the justices.