LENDING LIBRARY
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If you have questions, please contact the Oregon Chapter:
| Phone: | 503.223.9511 800.344.4867 |
| E-mail: | info@defeatms.com |
Click on a Topic:
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Lifestyle Changes, |
MANAGING THE SYMPTOMS OF MULTIPLE SCLEROSIS, 4th Ed.
By Randall T. Schapiro, M.D. In clear, understandable language and with
helpful illustrations, this book explores every symptom of MS and discusses
clinically tested and proven methods for managing symptoms. 2003
MEETING THE CHALLENGE OF PROGRESSIVE MULTIPLE
SCLEROSIS By Patricia K. Coyle, MD, and June Halper, MSN, ANP,
FAAN. Written specifically for those who have or are developing progressive
disease. Focuses on management, symptoms, and life-changes. 2001
MULTIPLE SCLEROSIS: A GUIDE FOR THE NEWLY DIAGNOSED
2nd Ed. By Nancy Holland, T. Jock Murray, Stephan Reingold. Provides answers
and advice for the newly diagnosed and includes a valuable guide to
further reading and resources. 2002
MULTIPLE SCLEROSIS: QUESTIONS AND ANSWERS
By David Barnes. Published in England, 2000.
MULTIPLE SCLEROSIS: THE QUESTIONS YOU HAVE; THE
ANSWERS YOU NEED By Rosalind C. Kalb. A question & answer book
on medical, psychosocial adjustment, insurance issues, life planning, and employment
aspects of living with MS. Resources and suggestions for further
reading. 1999
THE FIRST YEAR: MULTIPLE SCLEROSIS, AN ESSENTIAL
GUIDE FOR THE NEWLY DIAGNOSED By Margaret Blackstone.
A “patient-expert” living with MS herself, Blackstone guides the newly diagnosed
step by step through their first year with MS. 2003
300 TIPS FOR MAKING LIFE EASIER By Shelley P. Schwarz. A
compilation of tips, techniques and shortcuts to help make MS more manageable.
1999
A DELICATE BALANCE: LIVING SUCCESSFULLY WITH CHRONIC
ILLNESS By Susan Milstrey Wells. The author gives her insight into living
and dealing with her, and others close to her, chronic illnesses. 2000
BEYOND RAGE By JoAnn Le Maistre Ph.D. The emotional impact of
chronic physical illness: vignettes from actual cases illustrate the stages of
emotional response to chronic illness. 1985.
EASY ELEGANT DINING By Gratia Greene Alkire. Large print, easily prepared
recipes. 1993
LIVING BEYOND MULTIPLE SCLEROSIS By Judith Nichols and the
online group of MS sisters (authors of Women Living with Multiple Sclerosis).
Anecdotal and personal information regarding MS. 2000 The authors recommend
that you check with your medical practitioner before trying any of the
treatments discussed by the group.
LIVING WITH MULTIPLE SCLEROSIS: A WELLNESS APPROACH
By George Kraft, MD & Marci Catanzaro, RN, Ph.D. A question and answer
handbook for maintaining a positive, well-informed, approach in coping with
MS. 1996
MULTIPLE SCLEROSIS: A SELF-CARE GUIDE TO WELLNESS 2nd
Edition Edited by Nancy J. Holland, Ed.D., and June Halper, MSN, RN, CS,
ANP. The physical and psychological needs of the person with MS are thoroughly
addressed in this condensed notebook which includes a glossary of
medical terms and comprehensive MS medications information. 1998
SICK AND TIRED OF FEELING SICK AND TIRED By Paul Donoghue,
Ph.D. and Mary Siegel, PhD. Living with invisible chronic illness and coping
with it. Dr. Siegel has been diagnosed with MS. 1992
WOMEN LIVING WITH MULTIPLE SCLEROSIS By Judith Lynn Nichols
and her online group of MS sisters. Women’s issues related to living with
MS. 1999
YES, YOU CAN! GO BEYOND PHYSICAL ADVERSITY AND LIVE
LIFE TO IT’S FULLEST By Janis Dietz, Ph.D. Taking the hand you are
dealt and developing the fullest maximum results. 2002
ALTERNATIVE MEDICINE AND MULTIPLE SCLEROSIS
By Allen C.
Bowling, MD, Ph.D. Covers complementary and alternative medicine, as well
as various types of therapy for people with MS. 2001
THE ALTERNATIVE MEDICINE HANDBOOK By Barrie R. Cassileth,
Ph.D. A descriptive look at alternative and complementary therapies. 1998
CLINICAL TRIALS: WHAT YOU SHOULD KNOW BEFORE VOLUNTEERING
TO BE A RESEARCH SUBJECT By J. Joseph Giffels.
Question and answer handbook on consenting to be a research subject. 1996
SYMPTOM MANAGEMENT IN MULTIPLE SCLEROSIS 3rd ed.
By Randall T. Schapiro, MD. Handy guidebook to the varied symptoms of MS
and the multiple therapies used to manage them. 1998
TYLER’S HONEST HERBAL By Steven Foster and Varro Tyler, Ph.D. A
sensible guide to the use of herbs and related remedies. Be sure to read the
prefaces, the section on pros and cons and laws and regulations. 1999
THE COMFORT OF HOME By Maria M. Meyer with Paula Derr, RN. An
illustrated step-by-step guide for caregivers. 1998.
CREATIVE CAREGIVING By James R. Sherman, Ph.D. From the Caregiver
Survival Series. Provides helpful and interesting ideas and creative approaches.
1994
CROSSED SIGNALS By Caroline Courey. A good book for the entire family,
especially at the outset of diagnosis, as told from the family’s teenager’s
point of view. 2000
MAINSTAY: For THE WELL SPOUSE OF THE CHRONICALLY ILL
By Maggie Strong. A personal account of a wife and mother after her husband
is diagnosed with MS; includes resources, associations, and information and
suggestions for the well caregiver. 1997
MULTIPLE SCLEROSIS: A GUIDE FOR FAMILIES By R. Kalb
Ph.D. A useful book for persons with multiple sclerosis and their families.
Covers many issues that affect both the person with MS and the entire
family. 1998
POSITIVE CAREGIVER ATTITUDES By James R. Sherman, Ph.D.
Strategies to cope with negative thoughts that may overwhelm the caregiver.
1994
PREVENTING CAREGIVER BURNOUT By James R. Sherman, Ph.D.
From The Caregiver Survivor Series. A manual of coping strategies for
caregivers. 1994
FINANCIAL/LEGAL/EMPLOYMENT/INSURANCE:
EMPLOYMENT ISSUES AND MULTIPLE SCLEROSIS By Phillip D.
Rumrill, Jr., Ph.D., CRC. Employment issues that are relevant to people
with MS are identified and explored. 1996
MULTIPLE SCLEROSIS: YOUR LEGAL RIGHTS 2nd ed.
By L. Perking and S. Perkins. Legal aspects of living with MS, obtaining
benefits, etc. 1999
TAX OPTIONS AND STRATEGIES FOR PEOPLE WITH
DISABILTIES 2nd ed. By Steven B. Mendelsohn. Detailed reference for
assessing the application of tax laws that directly concern medical, educational
or business deductions for people with disabilities. 1996
COURAGE: THE STORY OF THE MIGHTY EFFORT TO END
THE DEVASTATING EFFECTS OF MULTIPLE SCLEROSIS By
Richard Trubo. The moving story of one woman’s unceasing devotion to
her brother and how her dream to end the devastating effects of MS was
transformed into one of the most powerful and effective national health
organizations in the world. 2001.
FALL DOWN LAUGHING: HOW SQUIGGY CAUGHT MULTIPLE
SCLEROSIS AND DIDN’T TELL NOBODY By David L. Lander.
David Lander played Squiggy on “Laverne and Shirley,” a popular sitcom
in the seventies. This is his story. Get ready to laugh. 2000. (Available on
CD also.)
MULTIPLE SCLEROSIS: A PERSONAL EXPLORATION By Alexander
Burnfield. Written by a psychiatrist discussing what MS is, how it
affects people, and how to cope with its symptoms. He writes from a personal
point of view. 1996
WAIST-HIGH IN THE WORLD: A Life Among the Nondisabled By
Nancy Mairs. Struggles and challenges of being disabled are confronted
frankly on many levels. Offers fresh and profound insight. 1998
THE WINNING SPIRIT By Zoe Koplowitz with Mike Celizic. An inspirational
account of one person’s courage, perseverance and lessons learned
while fighting MS. 1997
EDUCATION SERIES bye the National MS Society:
The following are video tapes unless DVD is indicated
AND THOSE WHO CARE by the National MS Society.
MS: The Genetic Connection From the National MS Society’s
2006 North American Education Conference
Updates in MS Research Bruce Bebo, PhD talks about the latest in
MS Research at the Oregon Chapter’s 2005 Annual Fall Forum. Also included
is a motivational talk by Lee Patton, PhD T (2 hours)
The Path Back From an MS Attack From the National MS Society’s
2005 North American Education Conference
“BODY, MIND and SPIRIT” A 2-tape series produced by the
Oregon Chapter from the 2004 Body Mind and Spirit Conference. Presentations
from five providers of complementary and alternative medicine
(CAM) who have substantial knowledge in their fields as well as experience
in treating people with MS. The five areas presented are: Herbs & Nutrition,
Acupuncture, Yoga, Meditation and Massage
.
CAREER CROSSROADS: EMPLOYMENT AND MS
OHSU MS HEALTHY TALKS SERIES. Featured Speakers:
Dr. Bourdette, Cinda Hugos and Lois Copperman. Talks include exercise,
fatigue and cognitive issues. (3 hours)
Complementary & Alternative Therapies and MS
Panelists: Dr. Allen Bowling, author of Alternative Medicine and MS and
Dr. Bourdette, OHSU MS Center Co- Director, Moderator Bernie Perry,
BSN. 2001
Genetic Research and Research of Complementary
Therapies in MS MS Panelists: Dr. Dennis Bourdette, Dr. Stephen
Hauser; Moderator Bernie Perry, BSN. 2000
MAGNETIC RESONANCE IMAGING: ILLUMINATING THE
MYSTERY OF MULTIPLE SCLEROSIS Very informative regarding
MRI’s use in clinical diagnosis. 1999. (18 min)
MS AND THE MRI Lecture by Dr. Donald Paty, 1998.
SEX HORMONES AND MS Dr. Voskuhl. 1999.
BEFORE I DIE Hypothetical scenarios surrounding end-of-life medical
care are presented to a panel of professionals, forcing them to role play in
situations where right choices both professional and personal are not always
evident. 1997. (60 min)
INSURANCE PLANNING FOR PEOPLE WITH MS w/ Laura
Cooper, Esq. Attorney at Law and nationally recognized expert on life planning
issues for young adults with disabilities and chronic illness, Ms. Cooper
hosts this popular workshop on insurance planning including ways to bulletproof
your insurance portfolio. 6/04. (3 hours, 23 min) © 2004 by Laura D.
Cooper, Esq.
MEDICARE PART D Discusses the new prescription drug coverage.
2005
INFORMATION ON MS, LIFESTYLE CHANGES, COPING SKILLS:
ADAPTING TO LIFE WITH MULTIPLE SCLEROSIS Education,
Support, and Treatment are Key. 1999.
AFTER YOU’VE BEEN TOLD Info on MS and living a fulfilling life.
BUILDING AND REMODELING FOR ACCESSIBLITY A “How-
To”Video Guide from Hometime Video Publishing.
BUT YOU LOOK SO WELL Living with MS This documentary focuses
on those individuals who ‘look so well’ to the outside world, yet suffer
from such “invisible” symptoms as pain, numbness, fatigue, depression, vision
and cognitive problems. 2005 (85min)
COPING WITH MULTIPLE SCLEROSIS Grief/crisis theory and
coping skills. (45 min)
ENABLE People with Disabilities and Computers a Microsoft
Enable Production. (1999) (45 min)
FATIGUE: TAKE CONTROL 2-tape series produced by the National
Multiple Sclerosis Society and designed by MS experts to teach individuals
with MS fatigue how to manage this common, complex, and disabling condition.
Tape 1 is a brief overview of fatigue including types of fatigue and how
to take charge of your own fatigue issues. Tape 2 is a series of short segments
about each of the major issues mentioned in Tape 1. Examples are: Cognitive
fatigue; Heat fatigue; Food ad fatigue. (Total running time: 90 min.)
FRIENDSHIP, SUPPORT & BUILDING COMMUNITY 3-tape
series from the 2001 Women’s Day Conference in Portland, Oregon. Keynote
speaker Judith Lynn Nichols, author of Women Living with MS and Living
Beyond MS.
HEALTHY TALK Presentation about a healthy approach to MS (5/04)
HOW TO GAIN STRENGTH FROM ADVERSITY Presentation
by Al Siebert, Ph.D. (Author of the book by the same title). Exploration of
coping systems for all manner of physical and emotional adversity.
(60 min.)
LIFE BEFORE AND NOW Profiles of people with MS in So. CA.
(15 min)
THE NEUROPSYCHOLOGICAL EVALUATION & MS Dr.
Julien Guillaumot answers questions about what you can expect from a
Neuropsychological Evaluation and why you might need one. 2006
(45min)
STRAIGHT TALK TO THE NEWLY DIAGNOSED 30-minute
video produced by NMSS, NY City Chapter. Provides a realistic and optimistic
look at life after diagnosis. Answers to many vital questions concerning
the disease are given by a group of people with MS. 1999.
PERFORMING WELLNESS V Well Arts Institute tape series 2003
(2 hr 20 min)
WOMEN EMPOWERED: MANAGING MS 3-tape series from the
2000 Women’s Day Conference in Portland, Oregon. Keynote speaker Dr.
Herman Frankel and workshops on stress, cognitive changes, depression,
employment, complementary therapies, and yoga. 2000.
FAMILY,PARTNER, CAREGIVER RELATED ISSUES:
“ABOVE IT ALL: MAINTAINING HUMOR AND PERSPECTIVE
AS A CAREGIVER” Presentation by Wendy Lustbader,
LCSW. 6/14/00.
THE EDUCATED CAREGIVER: A COMPREHENSIVE
GUIDE FOR CAREGIVERS AND THEIR FAMILIES A threevideo
series that represents an encyclopedia of information, an instruction
guide and a “video support group.” Offers a wealth of information, strategies,
and support for those caring for a loved one. 1998.
FAMILY DAY AT THE OREGON ZOO “MS: The Modern Therapeutic
approach, with Dr. Stanley Cohan, Pac NW MS Center”, “MS: Our
Story, with David Lander, Actor (120 min). 2001.
THE FAMILY GUIDE TO LONG-TERM CARE 3-volume series:
“Getting Started,” (35 min.), “Making the Right Choice,” (50 min.), and
“Staying In- volved,” (31 min.). 2000.
KIDS TALK MS Discussion with kids whose parents have MS.
(10 min)
THE HOME CARE COMPANION: HELP FOR FAMILY AND
FRIENDS WHO ARE CARING FOR SOMEONE AT HOME
Volume 2: How to help someone who uses a wheelchair without hurting
yourself.
MS: A FAMILY AFFAIR How families cope w/ chronic illness.
(28 min.)
MS THROUGH THE EYES OF A CHILD Kids express thoughts
and feelings regarding facts about MS. (6 min.).
PARENTS TALK MS Discussion with parents about impact of MS on
their children. (18 min.)
A PRESCRIPTION FOR CAREGIVERS: TAKE CARE OF
YOURSELF Features workshop led by Wendy Lustbader . (60 min.).
TIMMY’S JOURNEY TO UNDERSTANDING MS An educational
cartoon that explains MS to children (available in DVD)
THE THIRD STEP TO DIGNITY (LONG TERM CARE
CAMPAIGN) The what, who and how of long term care. (18 min.)
EMPLOYMENT PREDICTION FOR SUCCESS: JOB
RAISING PROGRAM
YOU’RE IN THE PICTURE: HOW CITIZENS AFFECT
PUBLIC POLICY
THE FUTURE OF THE ADA (33 min.)
THE TIME IS NOW: HEALTH CARE REFORM WITH
LONG TERM CARE Description of need and call to action. (13 min)
LONG TERM CARE: EVERY FAMILY’S CONCERN (6 min)
EXERCISE:
Check with your doctor before starting a new exercise program. Listen to your body! Make modifications and adaptations when necessary! For more information on exercising and MS, contact the Chapter.
AQUA EXERCISE FOR MULTIPLE SCLEROSIS Description of
water exercises. (20 min)
BEDTOP Yoga Simple stretches & Yoga Techniques you can do lying
down. For home and Travel. (30 min)
CHAIR DANCING® SIT DOWN & TONE UP Uses energizing
and uplifting music; appropriate for many people with MS. A wheelchair
variation is not demonstrated but many exercises could be done by some in
a wheelchair. (20 min.)
COMING BACK! AN EXERCISE PROGRAM FOR PEOPLE
WITH PHYSICAL LIMITATIONS (SE Texas Chapter) Emphasizes
range of motion, gentle strengthening and proper breathing; most exercises
are done sitting. (50 min.)
EXERCISE AND MS Discussion about the beneficial effects of exercise
based on Maximizing Your Health. Some demos. (30 min.)
“FITNESS IS FOR EVERYBODY” Part One Chair Exercise, Sitting.
Easter Seals Ability Hour.
“FITNESS IS FOR EVERYBODY” Part Two Chair Exercise,
Standing. Easter Seals Ability Hour
GENTLE FITNESS Simple exercises and stretches for flexibility,
(range-of-motion) strength, and breathing.
GENTLE YOGA FOR THE PHYSICALLY CHALLENGED
with Margot. Two 30 minute stretching and breathing routines.
THE MS WORKOUT TAPE (NY City Chapter) Moderate workout,
standing or sitting, featuring Jimmy Huega. (30 min.)
MS EXERCISE SERIES ,VOL 2 Tai Chi and Yoga for people with
MS. Produced by the MS Awareness Foundation. 2005 (DVD)
MS EXERCISE SERIES COMPILATION DVD Includes an exercise
program, the Feldenkrais Method and Pilates for people with MS.
Produced by the MS Awareness Foundation. 2004 (DVD)
PATHWAYS Exercise video for people with limited mobility. (48 min)
SIT AND BE FIT FOR MULTIPLE SCLEROSIS This 30 minute
tape includes warm-up, circulation, stretching and strengthening exercises
appropriate for the condition of multiple sclerosis. (30 min)
THE WHEELCHAIR WORKOUT (NY City Chapter) Exercise
geared toward people in wheelchairs. (30 min)
“YES, YOU CAN!” An exercise video designed and produced
exclusively for people living with multiple sclerosis. Not recommended for
those who use wheelchairs. (39 min)
Materials are sent in postage-paid mailbags for free, easy return