2012 LINKS Teleconference Series
9 Opportunities to Learn More About MS
from the Comfort of Your Home
We are pleased to present a series of teleconferences for clients with MS and their families entitled “LINKS.” Whether you just received a diagnosis of MS or have been living with it for a long time--the goal of this series is to “link” you with information and tips on how to maintain your quality of life in the years ahead.
This nine week series will run Tuesday nights (7-8 pm) from April 3 through May 29, 2012. Each call will be conducted using a toll-free number, so you can call from the comfort of your home. Participate in several calls* or just the one that interests you.
What is a Teleconference?
A teleconference is an opportunity to learn new information from the comfort of home by calling into a designated number to hear an interactive presentation.
*You will need to register individually for each call you wish to attend.
April 3rd, 2012 at 7:00 pm: Health Insurance:
Your Rights and Responsibilities
People with MS and their families know that health insurance is one of their most important life lines. But confusion about health insurance, from employer-based health plans to Medicaid and other government-based coverage, is common. This call will provide an overview of the major sources of health coverage for people with MS, with an emphasis on your rights and responsibilities as covered individuals.
Guest Speaker: Kim Calder is the Director of Federal Health Affairs and Insurance Policy for the National MS Society. She leads efforts to promote access to quality MS care and optimal benefits for people with MS in health, disability, and other forms of insurance. Prior to joining the MS Society's national office in New York in 2003, her career focused on advocacy and government relations in the cancer community. She has previously held public policy positions at Cancer Care, Inc., the National Alliance of Breast Cancer Organizations and the American Cancer Society. Ms. Calder holds a Masters of Policy Studies degree from The New School for Social Research in New York City.
Handouts: Health Insurance Powerpoint
April 10th, 2012 at 7:00 pm: Mental Gymnastics:
The Power of the Mind to Hurt & Heal
From time to time, we’ve all been held ransom by those nagging thoughts that keep us up at night and just won’t fade. Join this call as we explore how what we think affects both our emotional and physiological states, ultimately leading to better and worse states of health or illness. Discussion will also touch on how emotional intelligence—the ability to identify, assess, tolerate, express, and effectively manage difficult emotions— results in a higher quality of life and an improved state of well-being.
Guest Speaker: Diane Dean, RN-BC, LPC, NCC, CEG, owns Epiphany! Counseling & Wellness Center in Murrysville, PA, a Highmark Preventive Health Alliance Site. She is a registered nurse, licensed counselor, Reiki Master and professionally-trained coach. Diane has 20+ years in healthcare, has studied energy psychology, and has taught at several universities and colleges including the University of Pittsburgh.
Handouts: Mental Gymnastics Powerpoint
April 17th, 2012 at 7:00 pm:
Improving Your Lifestyle through Financial Planning
Maintaining financial security is a high priority for people living with an unpredictable disease like MS.This teleconference will discuss financial planning strategies by beginning with the end goal in mind. The discussion will include: assessing your income versus expenses, reallocating resources, benefits that are available through the government and employers, as well as resources for further information.
Guest Speakers: Dick Bell is the owner of Bell Financial in Calabasas, CA. He has a M.S. in Financial Services from The American College. He also holds five professional designations that include Certified Financial Planner™ (CFP®) and Chartered Financial Consultant. He is a founder of the Financial Education Partners (FEP) program where members of Financial Service Professionals provide pro bono financial counseling to people referred to them by the National Multiple Sclerosis Society. He serves as the national director of FEP and has personally provided financial counseling to over 150 individuals with multiple sclerosis.
Silvia Stazio is a financial planner with Sagemark Consulting/Lincoln Financial Advisors located in Vienna, VA. She is a Certified Financial Planner™ (CFP®), a member of the Society of Financial Service Professionals, and heads the Financial Education Partners program for members of the National Capital Chapter. She lives in Bethesda, MD where she frequently volunteers for the Bethesda Urban Partnership and the National Capital Area Glass Guild.
April 24th, 2012 at 7:00 pm:
MS & Depression
Multiple sclerosis is a complex disease that can affect the mind, as well as the body. With an estimated 50% of people with MS experiencing a major depressive episode at some point, it is evident that MS can cause significant emotional changes. Join us on this call as we address factors that can impact your emotions and outline depression vs. normal grieving, symptoms of clinical depression, and treatment options.
Guest Speaker: J. Lamar Freed, Psy. D. is a psychologist practicing in the Philadelphia, PA area. He received his professional training at Hahnemann University, graduating in 1989. Dr. Freed started his private practice in 1992, one year before his diagnosis with multiple sclerosis. His work focuses on helping those living with an illness understand how to manage emotional changes and improve functioning. In addition to seeing patients, Dr. Freed volunteers for the National MS Society as the leader of a monthly men's support group and as coordinator of monthly Delaware Valley self-help group leader conference calls. He lives with his wife and three cats in Elkins Park, PA.
May 1st, 2012 at 7:00 pm: At Home with MS:
Adapting Your Environment
MS symptoms can make everyday activities more challenging—but an endless array of mobility aids, adaptive strategies, and environmental modifications are available to help you stay mobile, productive, and independent at home.Listen to this call as we discusshow to improve your house or apartment to make it more accessible, as well as ways to organize to conserve energy and simplify work.
Guest Speaker: Marnie Renda OTR/L, CAPS, an Independent Living Specialist, is the founder of Destination Home LLC. This Cincinnati, OH based company is dedicated to helping elders and persons with disabilities continue to live in the comfort of their homes. Marnie graduated from Lafayette College with a BA in Psychobiology and Springfield College with a Master of Education in Occupational Therapy. She has 20 years experience working in health clinics, community care, skilled nursing homes and hospitals. She has, also, worked as a Certified Aging in Place Specialist for many years. Recently, Marnie earned an Executive Certificate in Home Modifications through the National Resource Center on Supportive Housing and Home Modifications at the University of Southern California. She is an adjunct professor at Xavier University and Cincinnati State Technical College educating future occupational therapy practitioners on home modifications and assistive technology.
- At Home with MS - Minimizing Your Risk of Falls brochure
- At Home with MS-Adapting Your Environment brochure
May 8th, 2012 at 7:00 pm: Pain in MS
Pain syndromes are common in MS. In one study, 55% of people with MS had “clinically significant pain” at some time and almost half (48%) were troubled by chronic pain.This call will help you to understand the nature of pain in MS, discuss pharmacologic and non-pharmacologic pain management strategies, and explore self-management models of pain management.
Guest Speaker: Heidi Maloni is the National Clinical Nursing Director of the Veterans Affairs MS Center of Excellence in Washington, DC. She is a certified adult nurse practitioner, a certified neuroscience registered nurse and MS certified nurse. She has volunteered with the National MS Society for over 18 years. On a national level, Heidi has served as a presenter, on committees, and as an expert on pain and MS. She has been quoted in the National MS Society’s magazine Momentum and has worked with the Society to develop materials for the Professional Resource Center.
May 15th, 2012 at 7:00 pm: Walking with MS: Fighting the Consequences of MS on Mobility
Problems with gait (difficulty in walking) are among the most common mobility limitations in MS. Studies suggest that half the people with relapsing-remitting MS will need some assistance with walking within 15 years of their diagnosis. Learn about the factors that lead to walking limitations in MS and the consequences of decreased mobility. We will also provide an overview of how walking can be assessed, to track its evolution over time, and to determine the effects of treatments. Lastly, we will explain the various therapies and devices that can help improve or maintain walking performance throughout the course of the disease.
Guest Speaker: Francois Bethoux, MD serves as the Director of Rehabilitation Services at the Cleveland Clinic Mellen Center in Ohio. Dr. Bethoux completed a Neuroimmunology fellowship at the Mellen Center for Multiple Sclerosis Treatment and Research (affiliated with the Cleveland Clinic Foundation). His research interests include outcomes measurements in both general and multiple sclerosis specific neurorehabilitation, gait analysis and evaluation of symptomatic therapies, and rehabilitative interventions for spasticity in MS and other disorders of the central nervous system.
May 22nd, 2012 at 7:00 pm: Care Options–When Help is Needed
As your symptoms change, it is important to know what options are available to you and your family to help maintain your independence while also ensuring your needs are met. This teleconference will focus on the differences and benefits of in-home care, assisted living, skilled nursing facilities, respite care, and adult day programs and how to determine which option is best for you and your family.