Multiple sclerosis is a progressive disease for which no cure has yet been found. Although we have treatments to manage the disease course, they are only partially effective, which means that some people’s MS will worsen in spite of everything they and their doctors do to try and prevent it.
Progressive MS manifests itself differently in each person. Whether your MS is secondary-progressive, which follows a period of relapsing-remitting MS, or primary-progressive, meaning it has been slowly progressing from the beginning, it is important to realize that progressive does not necessarily imply severe disability.
Advanced MS is typically progressive MS with increasing or severe disability, requiring assistance with aids to daily living.
- Engage in self-advocacy to better understand and guide your medical care, and, as necessary, manage long term care.
- Meet others who share what you are going through by attending a self-help group.
- Join the online community at MSConnection.org and get plugged into groups, discussion boards, and expert Q&A anywhere and anytime.
- Find a friend over the phone. MSFriends is a peer telephone support, to offer you a connection when you want it and need it. Learn more.
Take Care of Yourself
- Be Healthy by participating in a wellness program in your community, many of which are accessible and adaptable.
- Manage stress and depression, too. Help Pro can help you meet your unique counseling needs by using their free, online database to find a counselor, or by calling 800-652-0155.
- Centers for Independent Living are private, nonprofit organizations that provide services to maximize the independence of individuals with disabilities and the accessibility of their communities. Services vary, but may include information & referral, disability advocacy, peer counseling, skills training, financial assistance, and care management. Follow this link to see if there is a local center in your area.
- State Assistive Technology Projects help people with disabilities access assistive technology, including computer technology and funding resources, to maximize independence and quality of life.
- AbleData provides objective information on assistive technology products and rehabilitation equipment. Call 800-227-0216 or visit their website.
- Association for Driver Rehabilitation Specialists (ADED) maintains a directory of vehicle modification and equipment installation members. For a referral in your area, call ADED at 866-672-9466 or visit their website.
- For additional independent living resources, including respite care, home care, home modifications, financial assistance, and transportation, contact an MS Navigator at 800-344-4867, option 1 for referrals and information.