Historically, MS has been viewed as an adult-onset disease. However, it is also diagnosed in children and teens. It is estimated that at least 8,000 - 10,000 children and teens nationally have MS and another 10,000 - 15,000 are experiencing what may be MS symptoms.
Some resources include:
Pediatric MS Centers of Excellence
The National MS Society recently announced the establishment of a kind network of Pediatric MS Centers of Excellence. These centers will offer comprehensive medical and psychosocial support to children and their families.
MS World offers another way for children living with MS and their families to connect with peers. The website hosts online chats and message boards for children under 13, for teens, and for parents of a child with MS.
Teen Adventure Weekend
The National Pediatric MS Center at Stony Brook University Hospital sponsors a four-day summer Teen Adventure Weekend for 11-18 years old who are living with MS. The recreational and team-building program includes activities such as kayaking, sailing, and rope climbing. The program is free, but space is limited. Email firstname.lastname@example.org for the latest details.