I’m worried about whether I can continue working as my MS progresses. I don’t know if it’s time to stop working, but I don’t know what I would do if I couldn’t work anymore. How do I tell? What comes next?
Who can tell me when it’s time to stop working? How do I know?
Ultimately, the decision to stop working is yours. Luckily, your health care providers and other professionals, like a neuropsychologist, occupational therapist, or vocational counselor, can help give you the information you need to make an informed choice. This can include tests to measure your physical and cognitive abilities, exploring accommodations, and discussing the possibility of job retraining.
What options should I try before I decide to stop working?
Options like workplace accommodations, utilizing short-term and long-term disability benefits, using FMLA (Family Medical Leave Act) leave, and job retraining can all help employees stay on the job longer.
What programs can I apply for to maintain income and insurance once I stop working?
Programs like SSI and SSDI (Supplemental Security Income/Social Security Disability Income) can provide a moderate monthly income to people who can’t work due to their disability. You may be able to pay to keep your employer coverage for some time with COBRA, or to get new coverage through programs like Medicaid, Medicare, and others.
Not sure where to start? Need more information or help with what’s next?
Call 800-344-4867 (800-FIGHT-MS) and speak to an MS Navigator.
Ask them about employment consultation.
Click here for a complete list of helpful resources, links, and brochures.
The National Multiple Sclerosis Society is pleased to assist you in researching information about employment-related issues. Our comments are based on professional advice, published information, and expert opinion, but do not represent legal advice. For legal advice, please consult a qualified attorney.