Breadcrumb Navigation:

Home > Get Involved > MS Activist Toolkit > Campaign Digital Activism

Campaign Digital Activism

Now that you’re a digital MS activist, make it count. Help spread the word right now.

At the Society’s Public Policy Conference, March 4-6, 2013, MS activists will visit Capitol Hill in Washington D.C. and speak with federal legislators about MS and preserving funding for two things: (1) MS Research through National Institutes of Health (NIH) and Congressionally Directed Medical Research Programs (CDMRP), and (2) the Food and Drug Administration (FDA).

  • We must protect funds for MS research that will fuel future solutions to STOP MS in its tracks, RESTORE lost function and END MS forever (video). In part due to MS activist efforts, the NIH has directed about $725 million to MS research in the past five federal funding cycles, and the CDMRP has supported over $20 million of high-risk, high-reward MS research. We must keep telling our stories about how research impacts our lives to ensure that Congress continues to invest in medical progress.
  • The FDA ensures that drugs and medical devices are safe and effective for public use and provides patients with confidence in new technology. Because of the tremendous impact the FDA has on development and availability of treatments and aids for people living with MS, we must educate Congress to ensure that the FDA has adequate funding to continue to evaluate therapies in a timely way.

Whether or not you’re attending the Conference in person, you can support our issues, other MS activists and ultimately people affected by MS through digital activism:

  • Now! Make sure that your Friends, followers and the Society know that you are an MS activist. Blog, tweet and/or post on Facebook too.
  • During the Public Policy Conference, email, tweet or Facebook your officials ask them to support MS activists.
    • March 4:
      • Twitter – retweet @MSactivist tweets about Conference issues
      • Blog – read and comment on activist testimonial on the Society’s blog
      • Facebook – update your status and tag your official’s profile/page or any relevant videos, articles, personal stories or other posts. Sample:
        Looking to you, @official (replace “official” with your official’s Facebook profile/page name), to support me and other MS activists on issues that affect people with multiple sclerosis
    • March 5:
      • Twitter – mention your official in a tweet like this one:
        @official (replace “official” with your official’s Twitter handle) #MS activists will be on #CapitolHill tomorrow representing my MS interests. I'm an #MSactivist
        Edit accordingly if you will be on the Hill.
      • Facebook – Visit your officials’ pages and post a message to them asking:
        Please support full funding to support MS research and the FDA.
        Add a personal note if you wish.
      • Blog – read and comment on activist testimonial on the Society’s blog
    • March 6:
      • Twitter - @official (replace “official” with your official’s Twitter handle) #MSactivist are on #CapitolHill today representing my MS interests. I'm an #MSactivist
      • Facebook – update your status with something like this:
        My fellow MS activists are on Capitol Hill today meeting with legislators in support of important issues that affect people with MS. Please Like or Share to show your support – I Like!!
        Edit accordingly if you are on the Hill.
      • Action Alert – you’ll receive an action alert to reinforce the message of MS activists on Capitol Hill – take action! Sign up for Action Alerts if you’re not already.
  • After the Conference: March 7-10, 2013

    • Twitter – @official (replace “official” with your official’s Twitter handle) I urge you to preserve funding for #MS #research and the #FDA. #MSactivist

    • Twitter – if you're not sure if your official received an in-person visit from MS activists (or you're sure that he/she did NOT receive a visit), mention him/her in a tweet like these:
      @official (replace “official” with your official’s Twitter handle) please follow #MSactivist to hear the voices of #MS hopes and concerns!

    • Twitter – if your official received a visit from MS activists, mention him/her in a tweet like these:
      @official (replace “official” with your official’s Twitter handle) thanks for your time meeting with #MSactivist representing my #MS hopes and concerns!

  • MS Awareness Week, March 11-17, 2013 and beyond!
    • Facebook and Twitter – "Like", Share and/or retweet any posts your legislator might make in support of MS Awareness Week, or about visiting with you or other MS activists.
    • Share why or how you connect – and why you're an activist – at www.MSconnection.org and view the gallery of others' connections.

Thanks for being a digital MS activist!

Back to top