The National MS Society is recruiting 2,500 people for the second phase of the Sonya Slifka Longitudinal MS Study, a long-term study of people with MS across the country. The study gathers information about various aspects of MS that can impact quality of life and disease course. It is named for a woman with MS whose family is helping to support the project. Early results from this study have already increased our knowledge of MS, helped MS researchers develop more effective ways to treat this disease, and enabled the National MS Society to advocate for policies that benefit people with MS.
We are now seeking people with MS who belong to one or more of the following groups:
- Recently diagnosed (in 2007 or 2008)
- African-American
- Hispanic
- 18-24 years old
If you fit any of these categories, we invite you to participate in the Sonya Slifka Study.
- Participation involves a 45-60 minute telephone interview at the beginning of the study and a 15-20 minute telephone interview every 6 months after that.
- Participants also keep records of the health services they use.
- Participation is voluntary and all information collected is kept confidential to the extent allowed by law.
- Interviews are conducted in English.
This is a very important study—it has already begun to help us understand the impact of MS on patients and their families, how to manage MS more effectively, and how to advocate for better access to health care. Please join us in this exciting endeavor!
If you want to learn more about the study and whether you are eligible to participate, please contact the Sonya Slifka MS Study, toll-free at 1-800-305-8013.
Read more about the Sonya Slifka Longitudinal MS Study.