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National MS Society Partners with FasterCures and Avalere

August 26, 2016

The National MS Society has been invited to participate in two important initiatives with FasterCures and Avalere: Rx for Innovation and the Patient-Perspective Value Framework (PPVF) Initiative. 
Following the 2016 election, FasterCures’ Rx for Innovation will provide the new Administration an overview of opportunities within biomedical research to improve the health and productivity of the American people, reduce the cost of disease to society and create an engine of economic growth.

Rx for Innovation will use its unique view of the challenges across the research and development ecosystem, as well as its ability to tap into a broad network of innovators across sectors and diseases, to craft an itinerary for the Administration, including a set of actionable recommendations to get new and better treatments to patients faster and support the evolution of the biomedical sector. Learn more about Rx for Innovation.

In June 2016, in collaboration with FasterCures, Avalere launched the Patient-Perspective Value Framework (PPVF) Initiative to develop a value framework that incorporates the patient’s perspective on value. The goal of the PPVF Initiative is to develop a standalone value framework for assessing therapies, diagnostics, and other healthcare services, which is in line with patients’ conceptions of value. The framework’s design will include a number of technically specified criteria, measures, and data sources that can be used to measure value from the patient’s perspective. Along with the National MS Society, the PPVF Steering Committee includes a variety of patient groups, payers, life sciences companies, advocates, and input from the Centers for Medicare and Medicaid Services (CMS). This effort has the potential to produce a meaningful framework that can help patients evaluate treatments based on criteria that are meaningful to them.  The first version of PPVF will be published in June 2017. Learn more about the Patient-Perspective Value Framework Initiative.

About Multiple Sclerosis

Multiple sclerosis is an unpredictable, often disabling disease of the central nervous system that disrupts the flow of information within the brain, and between the brain and body. Symptoms range from numbness and tingling to blindness and paralysis. The progress, severity and specific symptoms of MS in any one person cannot yet be predicted, but advances in research and treatment are leading to better understanding and moving us closer to a world free of MS. Most people with MS are diagnosed between the ages of 20 and 50, with at least two to three times more women than men being diagnosed with the disease. MS affects more than 2.3 million people worldwide.

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