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Neurological Data Bill (HR 292) Included in 21st Century Cures Draft; Bill Expected to Move Quickly

April 29, 2015

Bipartisan Energy and Commerce Committee leaders in the U.S. House of Representatives have released a second draft of the 21st Century Cures Act, a bill that has been much anticipated by the patient and research community. The bill is aimed to accelerate the discovery, development and delivery of new medical treatments. On Thursday April 30--exactly one year to the day since full Committee Chairman Fred Upton (R-MI) and Rep. Diana DeGette (D-CO) launched the initiative—
the Subcommittee on Health will hold a legislative hearing to review the draft. 
 
The Advancing Research for Neurological Diseases Act (HR 292) remained in the new draft, a provision that the National Multiple Sclerosis Society has been involved in drafting and advocating for its inclusion. HR 292 will create a nationwide system to track the incidence and prevalence of neurological diseases, including MS, which could one day lead to a cure. Information collected will provide a foundation for evaluating and understanding aspects of these diseases on which we currently do not have a good grasp – such as the geography of diagnoses, variances in gender, disease burden and changes in healthcare practices among patients. The Advancing Research for Neurological Diseases Act’s successful inclusion was a direct result  by the efforts of MS activists around the country! MS activists submitted nearly 3,000 letters to Congress in support of the act and more than 325 MS activists conducted 388 meetings on Capitol Hill on March 11th to advocate for the act.
 

About Multiple Sclerosis

Multiple sclerosis is an unpredictable, often disabling disease of the central nervous system that disrupts the flow of information within the brain, and between the brain and body. Symptoms range from numbness and tingling to blindness and paralysis. The progress, severity and specific symptoms of MS in any one person cannot yet be predicted, but advances in research and treatment are leading to better understanding and moving us closer to a world free of MS. Most people with MS are diagnosed between the ages of 20 and 50, with at least two to three times more women than men being diagnosed with the disease. MS affects more than 2.3 million people worldwide.

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