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Court Rules ACA Invalidated; Status Quo for Now

December 14, 2018

The National Multiple Sclerosis Society is deeply disappointed by today’s ruling in the case of Texas v. U.S., which strikes down the Affordable Care Act. 
“This ruling is yet another roadblock for people living with MS and others with pre-existing conditions to getting the affordable health care they need,” said Bari Talente, the Society’s Executive Vice President of Advocacy. “Access to affordable health insurance should be guaranteed regardless of health, employment status, age or location. This decision is expected to be appealed and we will continue to work to ensure people have the health coverage they need.”
People like Jill Lagace, a small business owner who lives with multiple sclerosis and relies on an ACA health plan.
“I am terrified if the ACA goes away. I don’t know how I will pay for my medications,” said Lagace.  “I don’t know how I will pay for my very expensive MRIs or my doctor appointments.”
MS is a chronic disease for which there is no cure, only medications that slow the progression of the disease.  The average MS medication costs $80,000 per year.
“This decision, coming on the eve of the Open Enrollment deadline is already creating stress and uncertainty for people as we head into a new coverage year,” said Talente.
The Society will continue to monitor developments. We expect enrollment to remain open through Saturday and have been assured the ACA will remain in effect during the appeals process.

Read a joint statement from several of the nation’s leading patient advocacy groups.

About Multiple Sclerosis

Multiple sclerosis is an unpredictable, often disabling disease of the central nervous system. Symptoms range from numbness and tingling to blindness and paralysis, and there is currently no cure for MS. The progress, severity and specific symptoms of MS in any one person cannot yet be predicted, but advances in research and treatment are leading to better understanding and moving us closer to a world free of MS. An estimated 1 million people live with MS in the United States. Most people with MS are diagnosed between the ages of 20 and 50, and it affects women three times more than men.


© 2020 The National Multiple Sclerosis Society is a tax exempt 501(c)3 nonprofit organization and our Identification Number (EIN) is 13-5661935.