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FDA Uses Online Community to Gather Drug Safety Info

June 23, 2015

PatientsLikeMe – a for-profit company that offers an online community for people with medical conditions, including MS – and the FDA are collaborating to explore the potential of using patient-generated reports of medication safety to inform the FDA’s regulatory process. In the PatientsLikeMe community, 350,000 members report on their experiences with more than 2,500 conditions. PatientsLikeMe has collected more than 110,000 “adverse event” reports on 1,000 different medications, and the FDA will now be able to access and analyze this data.

Read more from the Washington Post

About Multiple Sclerosis

Multiple sclerosis is an unpredictable, often disabling disease of the central nervous system. Symptoms range from numbness and tingling to blindness and paralysis, and there is currently no cure for MS. The progress, severity and specific symptoms of MS in any one person cannot yet be predicted, but advances in research and treatment are leading to better understanding and moving us closer to a world free of MS. An estimated 1 million people live with MS in the United States. Most people with MS are diagnosed between the ages of 20 and 50, and it affects women three times more than men.

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