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MS Prevalence Data Collection Included in Proposed 21st Century Cures Act

January 27, 2015

Today, a long-awaited draft of the 21st Century Cures Act was circulated by the House Energy and Commerce Committee – including the Advancing Research for Neurological Diseases Act (H.R. 292) supported by the Society! H.R. 292 will create a nationwide system to track the incidence and prevalence of neurological diseases, including MS, which could one day lead to a cure. Information collected will provide a foundation for evaluating and understanding aspects of these diseases on which we currently do not have a good grasp – such as the geography of diagnoses, variances in gender, disease burden and changes in healthcare practices among patients. Many initiatives were proposed, but few were included – the Advancing Research for Neurological Diseases Act’s successful inclusion was empowered in part by the efforts of MS activists around the country! 
 
The 21st Century Cures initiative has been a large, bi-partisan effort led by Representative Fred Upton (MI-R) and Diana DeGette (D-CO). As part of this initiative, Congress is taking a comprehensive look at what steps are needed to accelerate the pace of cures in America, from the discovery of clues in basic science, to streamlining the drug and device development process, to unleashing the power of digital medicine and social media at the treatment delivery phase. 
 
The Energy and Commerce Committee, the group overseeing the 21st Century Cures, is seeking feedback on the proposals and plans to introduce the legislation and send a bill to President Obama’s desk for signature by the end of the year. More information on the discussion is available in this summary (Title IV, subtitle B is on page 9 of 13).
 
Share our pride in Advancing Research for Neurological Disease Act (H.R. 292)’s inclusion in the 21st Century Cures Act – and encourage support – through social media by using #MSactivist and #cures2015! And ask your U.S. Representative to show his/her support for the MS movement by cosponsoring the Advancing Research for Neurological Disease Act today. 

 

About Multiple Sclerosis

Multiple sclerosis is an unpredictable, often disabling disease of the central nervous system that disrupts the flow of information within the brain, and between the brain and body. Symptoms range from numbness and tingling to blindness and paralysis. The progress, severity and specific symptoms of MS in any one person cannot yet be predicted, but advances in research and treatment are leading to better understanding and moving us closer to a world free of MS. Most people with MS are diagnosed between the ages of 20 and 50, with at least two to three times more women than men being diagnosed with the disease. MS affects more than 2.3 million people worldwide.

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