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Investigators Recruiting Hispanics/Latinx People with MS: Do Genetics and Culture Affect MS Severity?

January 26, 2022

Summary: Investigators are actively recruiting 400 Hispanics/Latinx people who have been diagnosed with MS within the last five years to participate in a study examining the impact of genetics and cultural perceptions on disease severity. The primary investigator, Lilyana Amezcua, MD, MS, at The Keck School of Medicine of the University of Southern California, is funded by a research grant from the National MS Society. Other study sites include the University of Miami, University of New Mexico and Caribbean Neurological Center in Puerto Rico.
 
Rationale: People of Hispanics/Latin descent in the U.S. are diverse in culture and genetic background. Finding socio-cultural or genetic factors that affect MS in this population is important, since some of these factors are modifiable. Integration into a new way of life and culture, a process known as acculturation, is a stressful life event that has been shown to increase the chances of engaging in unhealthy behaviors that could make MS worse. Now, this group is attempting to identify such factors.
 
How to get involved: Participants will have to visit one of the study sites. Participation involves answering questionnaires about acculturation and perception about their condition, watching a short film about MS, and providing a blood sample that will be analyzed for ancestry. The researchers will assess whether Asian, Native American, European or African genetic markers in the DNA influence disease severity. Participants will be followed for two years.
 
Contact: People who are interested in being a part of this study can contact the nearest site:

University of Southern California MS Center
Los Angeles, CA
Coordinator: Andrea C. Martinez, MPH
323-442-6817
mart452@usc.edu
 
University of Miami
Miami, FL
Coordinator: Patricia Manrique
305-243-4028
cmanrique@med.miami.edu

Caribbean Neurological Center
San Juan, Puerto Rico
Coordinator: Ramon Vega
(787) 793-7984
flizardi@caribbeanneurologicalcenter.com

About Multiple Sclerosis

Multiple sclerosis is an unpredictable disease of the central nervous system. Currently there is no cure. Symptoms vary from person to person and may include disabling fatigue, mobility challenges, cognitive changes, and vision issues. An estimated 1 million people live with MS in the United States. Early diagnosis and treatment are critical to minimize disability. Significant progress is being made to achieve a world free of MS.

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The National MS Society, founded in 1946, is the global leader of a growing movement dedicated to creating a world free of MS. The Society funds cutting-edge research for a cure, drives change through advocacy and provides programs and services to help people affected by MS live their best lives. Connect to learn more and get involved: nationalMSsociety.org, Facebook, X, formerly known as Twitter, Instagram, YouTube or 1-800-344-4867.

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