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MS Activist Speaks in Support of 21st Century Cures on Capitol Hill

June 16, 2015

District Activist Leader Seth Morgan was invited to join bipartisan leaders of the House Energy and Commerce Committee on Tuesday, June 16th, at the U.S. Capitol to discuss the 21st Century Cures Act (H.R. 6). The advocates were welcomed by Chairman Fred Upton (R-MI), Rep. Diana DeGette (D-CO), Health Subcommittee Chairman Joe Pitts (R-PA), Ranking Member Frank Pallone, Jr. (D-NJ), and Health Subcommittee Ranking Member Gene Green (D-TX). The bill is aimed at accelerating the speed of research and proposes a comprehensive approach to reforming the scientific field. Included in this bill is the language from the Advancing Research for Neurological Diseases Act (H.R. 292)—a bill of great importance to MS research because it would create a database that could point to potential risk factors for developing MS. 
The bipartisan leaders commented, “Patients – they’re what #Cures2015 is all about. Their strength and optimism inspire each of us every day and their support throughout the 21st Century Cures initiative has helped bring us to where we are: continuing the momentum of a 51-0 approval in our committee and a growing list of supporters. As we prepare to bring H.R. 6 to the full House, we look forward to visiting with the real motivation behind 21st Century Cures.”    
Seth was on hand to speak with Representatives and members of the media. He shared the following:
For years I have been saying, there are two lynchpins to finding a cure for MS. First, we need to create an environment that will foster the next great medical discoveries by investing more money in research and creating incentives for scientists to remain dedicated to their field. Second, we need more information on the faces of MS and what factors predispose people to MS, which are currently a mystery because of a lack of data. 
In the 21st Century Cures Act, we have the chance to create the solutions to address these issues. The bill 1) invests in the NIH and FDA 2) creates more financial and systemic support for researchers, and 3) creates a data collection system for neurological conditions. Never before have I been so hopeful that we have a path to finding a cure and I urge other members of Congress to join in the support of the 21st Century Cures Act to get us closer to a world free of MS!"

About Multiple Sclerosis

Multiple sclerosis is an unpredictable, often disabling disease of the central nervous system that disrupts the flow of information within the brain, and between the brain and body. Symptoms range from numbness and tingling to blindness and paralysis. The progress, severity and specific symptoms of MS in any one person cannot yet be predicted, but advances in research and treatment are leading to better understanding and moving us closer to a world free of MS. Most people with MS are diagnosed between the ages of 20 and 50, with at least two to three times more women than men being diagnosed with the disease. MS affects more than 2.3 million people worldwide.


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