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National MS Society Commits to Health Equity in Clinical Trials and Data Collection

March 4, 2022

The National Multiple Sclerosis Society has rallied corporate healthcare partners together in their shared commitment to address underrepresentation in clinical trials through the principles identified in the Consensus Statement on Health Equity in Clinical Trials and Real-World Evidence Data Collection.  
 
People with MS need solutions to live their best lives and find a cure. The lack of diversity in clinical trials and the disparity in healthcare delivery are impediments to finding solutions and cures for everyone. Access to high quality, personalized healthcare is vital to ensuring each person with MS can get the treatments and care that is right for them. Inclusivity in clinical trials is critical to better understand what medication is right for each person and achieving the goal of personalized healthcare for all individuals living with MS. And to do so, the design and collection of clinical trials mush ensure that people with MS can contribute their valuable perspectives so they feel involved, welcomed and respected.
 
The National MS Society has created a forum to engage corporate healthcare partners so they can contribute to direct and focused dialogue to address issues that directly impact the MS community. This group is focused on a common vision with shared resources to ensure every person affected by MS can live their best lives. 
 
This group established four principles to increase inclusivity and address health inequities in the healthcare system and are committed to practicing these as individual organizations and in partnership with others.
 
Learn more about clinical trials and how to participate.

About Multiple Sclerosis

Multiple sclerosis is an unpredictable, often disabling disease of the central nervous system. Symptoms range from numbness and tingling to blindness and paralysis, and there is currently no cure for MS. The progress, severity and specific symptoms of MS in any one person cannot yet be predicted, but advances in research and treatment are leading to better understanding and moving us closer to a world free of MS. An estimated 1 million people live with MS in the United States. Most people with MS are diagnosed between the ages of 20 and 50, and it affects women three times more than men.

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© 2022 The National Multiple Sclerosis Society is a tax exempt 501(c)3 nonprofit organization. Its Identification Number (EIN) is 13-5661935.