National MS Society Commits to Health Equity in Clinical Trials and Data Collection
March 4, 2022
The National Multiple Sclerosis Society has rallied corporate healthcare partners together in their shared commitment to address underrepresentation in clinical trials through the principles identified in the Consensus Statement on Health Equity in Clinical Trials and Real-World Evidence Data Collection
People with MS need solutions to live their best lives and find a cure. The lack of diversity in clinical trials and the disparity in healthcare delivery are impediments to finding solutions and cures for everyone. Access to high quality, personalized healthcare is vital to ensuring each person with MS can get the treatments and care that is right for them. Inclusivity in clinical trials is critical to better understand what medication is right for each person and achieving the goal of personalized healthcare for all individuals living with MS. And to do so, the design and collection of clinical trials mush ensure that people with MS can contribute their valuable perspectives so they feel involved, welcomed and respected.
The National MS Society has created a forum to engage corporate healthcare partners
so they can contribute to direct and focused dialogue to address issues that directly impact the MS community. This group is focused on a common vision with shared resources to ensure every person affected by MS can live their best lives.
This group established four principles to increase inclusivity and address health inequities in the healthcare system and are committed to practicing these as individual organizations and in partnership with others.
Learn more about clinical trials
and how to participate.
Multiple sclerosis is an unpredictable disease of the central nervous system. Currently there is no cure. Symptoms vary from person to person and may include disabling fatigue, mobility challenges, cognitive changes, and vision issues. An estimated 1 million people live with MS in the United States. Early diagnosis and treatment are critical to minimize disability. Significant progress is being made to achieve a world free of MS.